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Hello everyone. My name is Cinda. I am 33 yrs old, married for 16

years and have a 13 year old daughter. I live in Northesat Georgia (

beautiful foothills of the Appalachia )

I was diagnosed with CFIDS about 11 years ago - after several years

of up & down health and job interuptions. at that time Doc said "

Nothing that I can do "

I was also diagnosed with FM about 2 years ago - different Doc that

did not know much about CFIDS - therefor did not really recognize

it !!!

Have recently seen a new Doc in Atlanta, GA that works with both. But

does very little lab work or X-rays ( which are needed with

disability claims). I have been pretty much rated extremely severe -

but am still fighting with short term disability ( from work) despite

the fact that I can't even drive myself to work, much less stay and

do any type of work.

Other conditions include: Migraines & constant headache, Chemical

sensitivities, Light, sound, & smell sensitivities, tempature and

humidity sensitivities, tons of medicine allergies, sleep problems -

sleep for long periods of time due to fatigue alternating with long

periods ( up to 54 hours) of NO sleep, Esophageal reflux with

constriction, ulcers, Spasmatic colon/intestine - functional bowel

disease, internal hemorrhoids, borderline thyroid disorder,

hypoglycemic, Mitral valve prolapse with water retention and chest

pains, panic attacks, sicca syndrome, raynaud's phenomenon,

vulvodynia, vestibular dysfunction, urethral syndrome, arthritis,

cognitive impairments, all 18 tender points, multiple trigger points,

early menopause ( began at age 19 ) hysterectomy at age 25 due to

cysts, endometriosis and menapause, oopherectomy last year due to

tumors, the list goes on. Many of which have been noted by the Doc -

others have just been spoken by him. the later being one of the

problems with insurance claims !!!!!!!

I have tried many meds and treatment - all of which have failed.

I will be seeing a new Doc this week for complete physical, x-rays,

blood work and EKG. I used to work with this Doc years ago and

hopefully he will be open minded. Does anyone have suggestions of

particular test that might be helpful? Once diagnosed with FM/CFIDS

many doc's put all things under this umbrella - not considering some

symptoms could be managed - thus giving us some releif. So this time

I am going outside of the FM/CFIDS box to try to eliminate or

medicate some of these things.

Gentle Hugs to you all & I look forward to chatting with you,

Cinda