Re: Husband just diagnosed with PSC/RC

[Guest guest]

RC,

Hi! Welcome. I'm sure this is one of the last places you want to be, but I'm

glad you've found us! I think you'll find this group very helpful and

informative and a great support system.

I think second opinions are great things when dealing with something as

complicated as PSC. I, personally, go to Mayo ville, but I know Mayo

Rochester is an excellent facility from people on this site.

One of the hardest things about PSC is that it's such an individual disease.

Some of us have symptoms, some don't, some of us have symptoms that others of us

don't have, etc. I'll let someone else offer you dietary advice since that

isn't really my forte (although I do know that a low-fat diet is usually

recommended along with making sure you maintain adequate nutrition since

malnutrition can be a problem), but if you'd like to chat about anything else or

want whatever little dietary advice I can offer, feel free to contact me. You

and/or your husband may also be interested in joining our Facebook group if you

haven't already. If you're not already a member of Facebook, just go to

www.Facebook.com and sign up for a free account (it's easy). Once you're on

Facebook, just search out PSC Partners or you can contact me (Sandi Pearlman)

and I'll send you the link. It's similar to this site but mainly for PSCers in

their 20s/30s and around those ages to

deal with some of the concerns we may have.

Good luck with everything!

Sandi in VA