Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 There's a real serious situation with one of our group members, but at this time she is having some difficulty dealing with the reality of PSC and end stage liver disease - so out of respect for her, allowing her time to cope, I will not mention her name. However, I will continue to stress how important it is that I/we locate a hepatologist in Ohio. I spoke to a mutual friend tonight and he said not to limit my search to the Dayton area, and pointed out that Indianapolis, Columbus, Cincinnati and a multitude of other cities are within 1-3 hour drive - of course, the closer to Dayton the better, assuming the hep is good. So, if anyone knows a hep within a reasonable distance from Dayton, please, let me know. Time is truly impertinent in this matter. She needs a hep, so she can get a referral to a tx center, and get listed...now. I'm fighting for her because she's not able to fight for herself at this time, but I'm sure most of you here understand that and we all know how important it is to have an advocate when you're just "too pooped to party," as my mom used to say. Thanks for any and all leads!!! Big hugs and great appreciation, (MO) PSC & UC '84, chronic pancreatitis '97, tx'd Jan. 7, 2008 and doing well! Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 ,Wish I could help. How about the Cleveland Clinic? Kudos to you for being her advocate!Marie To: From: MO425@...Date: Wed, 12 Nov 2008 18:44:17 -0500Subject: Help! There's a real serious situation with one of our group members, but at this time she is having some difficulty dealing with the reality of PSC and end stage liver disease - so out of respect for her, allowing her time to cope, I will not mention her name. However, I will continue to stress how important it is that I/we locate a hepatologist in Ohio. I spoke to a mutual friend tonight and he said not to limit my search to the Dayton area, and pointed out that Indianapolis, Columbus, Cincinnati and a multitude of other cities are within 1-3 hour drive - of course, the closer to Dayton the better, assuming the hep is good. So, if anyone knows a hep within a reasonable distance from Dayton, please, let me know. Time is truly impertinent in this matter. She needs a hep, so she can get a referral to a tx center, and get listed...now. I'm fighting for her because she's not able to fight for herself at this time, but I'm sure most of you here understand that and we all know how important it is to have an advocate when you're just "too pooped to party," as my mom used to say. Thanks for any and all leads!!! Big hugs and great appreciation, (MO) PSC & UC '84, chronic pancreatitis '97, tx'd Jan. 7, 2008 and doing well! Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Stay up to date on your PC, the Web, and your mobile phone with Windows Live Click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 ,Wish I could help. How about the Cleveland Clinic? Kudos to you for being her advocate!Marie To: From: MO425@...Date: Wed, 12 Nov 2008 18:44:17 -0500Subject: Help! There's a real serious situation with one of our group members, but at this time she is having some difficulty dealing with the reality of PSC and end stage liver disease - so out of respect for her, allowing her time to cope, I will not mention her name. However, I will continue to stress how important it is that I/we locate a hepatologist in Ohio. I spoke to a mutual friend tonight and he said not to limit my search to the Dayton area, and pointed out that Indianapolis, Columbus, Cincinnati and a multitude of other cities are within 1-3 hour drive - of course, the closer to Dayton the better, assuming the hep is good. So, if anyone knows a hep within a reasonable distance from Dayton, please, let me know. Time is truly impertinent in this matter. She needs a hep, so she can get a referral to a tx center, and get listed...now. I'm fighting for her because she's not able to fight for herself at this time, but I'm sure most of you here understand that and we all know how important it is to have an advocate when you're just "too pooped to party," as my mom used to say. Thanks for any and all leads!!! Big hugs and great appreciation, (MO) PSC & UC '84, chronic pancreatitis '97, tx'd Jan. 7, 2008 and doing well! Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Stay up to date on your PC, the Web, and your mobile phone with Windows Live Click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I would love for her to go to Cleveland Clinic. I was listed there and was very happy. Unfortunately with her family situation she is afraid that she will be too far away for her family, including her young children to be present at and after transplant. I'm still working on that, though, I promise. Thanks for the response! Help! There's a real serious situation with one of our group members, but at this time she is having some difficulty dealing with the reality of PSC and end stage liver disease - so out of respect for her, allowing her time to cope, I will not mention her name. However, I will continue to stress how important it is that I/we locate a hepatologist in Ohio. I spoke to a mutual friend tonight and he said not to limit my search to the Dayton area, and pointed out that Indianapolis, Columbus, Cincinnati and a multitude of other cities are within 1-3 hour drive - of course, the closer to Dayton the better, assuming the hep is good. So, if anyone knows a hep within a reasonable distance from Dayton, please, let me know. Time is truly impertinent in this matter. She needs a hep, so she can get a referral to a tx center, and get listed...now. I'm fighting for her because she's not able to fight for herself at this time, but I'm sure most of you here understand that and we all know how important it is to have an advocate when you're just "too pooped to party," as my mom used to say. Thanks for any and all leads!!! Big hugs and great appreciation, (MO) PSC & UC '84, chronic pancreatitis '97, tx'd Jan. 7, 2008 and doing well! Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Stay up to date on your PC, the Web, and your mobile phone with Windows Live Click here Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I would love for her to go to Cleveland Clinic. I was listed there and was very happy. Unfortunately with her family situation she is afraid that she will be too far away for her family, including her young children to be present at and after transplant. I'm still working on that, though, I promise. Thanks for the response! Help! There's a real serious situation with one of our group members, but at this time she is having some difficulty dealing with the reality of PSC and end stage liver disease - so out of respect for her, allowing her time to cope, I will not mention her name. However, I will continue to stress how important it is that I/we locate a hepatologist in Ohio. I spoke to a mutual friend tonight and he said not to limit my search to the Dayton area, and pointed out that Indianapolis, Columbus, Cincinnati and a multitude of other cities are within 1-3 hour drive - of course, the closer to Dayton the better, assuming the hep is good. So, if anyone knows a hep within a reasonable distance from Dayton, please, let me know. Time is truly impertinent in this matter. She needs a hep, so she can get a referral to a tx center, and get listed...now. I'm fighting for her because she's not able to fight for herself at this time, but I'm sure most of you here understand that and we all know how important it is to have an advocate when you're just "too pooped to party," as my mom used to say. Thanks for any and all leads!!! Big hugs and great appreciation, (MO) PSC & UC '84, chronic pancreatitis '97, tx'd Jan. 7, 2008 and doing well! Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Stay up to date on your PC, the Web, and your mobile phone with Windows Live Click here Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I wish you were is Los Angeles, so you could be my advocate!!!Marie To: From: MO425@...Date: Wed, 12 Nov 2008 20:58:20 -0500Subject: Re: Help! She's 4.5 hours from Cleveland, so I'm guessing that makes her 6-6.5 from the Dayton area, where she lives. She feels she needs to stay close to home because she has small children. I'm trying to convince her that it can work no matter where she goes, she just needs to get tx'd, but...well, I'm still working on it. Thank you, Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! See how Windows® connects the people, information, and fun that are part of your life Click here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I have been going to a Greg Gibbons who is a gastroenterologist at Ohio Gastroenterlogy in Columbus Ohio for 15 years, he has a special interest in PSC, for some reason he finds it fascinating and keeps in constant contact with the Mayo Clinic. I like him. This particular group also has a doc that specializes in post liver transplant care. Ohio State in Columbus does transplants, this would be a one and half hours drive for your friend. Hope this helps. B. PSC 1994 Subject: Re: Help!To: Date: Wednesday, November 12, 2008, 8:58 PM She's 4.5 hours from Cleveland, so I'm guessing that makes her 6-6.5 from the Dayton area, where she lives. She feels she needs to stay close to home because she has small children. I'm trying to convince her that it can work no matter where she goes, she just needs to get tx'd, but...well, I'm still working on it.Thank you, Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
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