Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 I was diagnosed when I was 19 years old with hypo. I was then treated by doctors for 25 years with Synthroid and got sicker and literally lost all those years to misery. I buy my meds online and they are the same as the prescription meds I SHOULD have been prescribed for years. You can order your own testing online without a doctor's blessing unless you live in CA or NY. A trial of thyroid hormones will not in any way harm you. Even if you do not have a thyroid problem. Your own thyroid will just lower it's production of hormones to compensate, and when you quit it will resume production. *Artistic Grooming * Hurricane, WV Fat cat? Diabetes? Listowner for overweight or hypothyroid cats http://groups.yahoo.com/group/hypokitties/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 From the late 1800s up untill about 1975, they had no good tests for determining how much thyroid was circulating in the blood. So, the only way thyroid doses were adjusted were by symptoms. Doctors used clues like body temperature, muscle reflex speed, pulse, physical appearance of the patient and the patient's own assessment of their condition to determin thyroid doses. Amazingly, there were no problems at all doing it this way and thyroid patients lived long and healthy lives. The first two patients that started their treatment in the late 1800s lived to be 79 and 91 and were in good health most of their lives. I have not yet been able to find one study done during that time on osteoporisis and it is rarely even mentioned in old papers. You can look for yourself at http://www.thyroidhistory.net Thyroid doses prior to about 1975, when the TSH test and other sensitive tests were developed, were 2 to 3 times higher than they are today with no problems whatsoever. In the mid 1970s a few very influential endocrinologists decided that everybody had been overtreated for over 75 years, just based on the then new TSH test. They convinced doctors that doses needed to be lowered. No studies were ever done to look at the long term heatlh of patients on these lower doses. Quite a few doctors wrote into journals complaining of the new ideas and stressing that the carefull assesment of the patient took precident over tests. But, the new lower doses stuck and I think the main reason is that it keeps the patient mildly undermedicated and therefore he/she is in constant need of the doctor's care for the myriad of problems that result. In the past patients found their best dose and rarely in their lifetime needed to change it. It resulted in a healthy person with lower rates of cardiovascular disease, reproductive problems and cancer than the general public. They had little need for the doctor, but for occasional check-ups and new prescriptions for thyroid. Doctors today will not tell you that the healthy thyroid makes 3 to 5 grains a day and that due to pituitary regulation, you cannot overdose untill your dose exceeds what your healthy thyroid would make. Today's thryoid doses are much less than the healthy thyroid would make. But, the thyroid patient can actually take a lot more hormone safely and have little impact on circulating thyroid levels. If you take 1 grain of Armour, the pituitary will know this and drop production of TSH to drop production from the thyroid by 1 grain. Thus, the pituitary keeps you protected from overdose untill the dose exceeds what your heatlhy thyroid would make, where it can no longer drop TSH enough. So, my point is that thyroid therapy done carefully with small dose raises over enough time between more raises and with careful monitoring of symptoms is really quite safe. You can easily know if you are hyperthyroid by your body temperature, pulse and symptoms. On top of that, it is not all that dangerous to be mildly hyperthyroid for a few months. It takes about a year of being hyperthyroid by a significant amount to develope any kind of permanent damage. The body is very adaptable and can increase breakdown and removal of excess thyroid and so mild overdoses are not the huge danger that doctors like to scare patients with. Studies done with heatlhy people found that they could tolerate up to 9 grains before they exibited symptoms of hyperthyroidism. So, thyroid treatment is not rocket science. You simply go slowly, keep an eye on your symptoms and adjust your dose up untill you feel good and once there, you should rarely need the change your dose. This worked quite well for over 75 years, in fact I think this method works better than tests. Tests have so many flaws and many of the smarter doctors and researchers have written a lot about the problems with tests. Tests only tell you what's in the blood and not whether your tissues have enough thyroid. The ranges make everybody have to be at the same levels, when in fact people have huge differences in what are normal thyroid levels for them. At least 20% of heatlhy people fall outside test ranges. So, to get to your questions, I have been self treating for over a year now and have been using body temp, pulse and my symptoms as a guide for adjusting my medication. I am doing so much better than I did under the care of my last doctor. I do not want to do it any other way anymore. As for adrenal support, this is a much more complicated issue and about 95% of doctors have absolutely no knowledge about this and have done no reading on the topic of adrenal support or physiological treatment of low adrenal function. It is complicated. The vast majority will not give adrenal support when starting a patient on thyroid. The results of this are disasterous for many and has probably resulted in the death of patients. It was disasterous for me. Thyroid medication literature gives dire warnings about adrenal problems and thyroid treatment, yet amazingly doctors don't read this or believe it. This is definitely one area where you have to really look hard for a doctor who has any knowledge or where you have to do a lot of your own research. So, doing your own adrenal support is very complicated and not doing adrenal support with thyroid treatment when you need it can be dangerous. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 From the late 1800s up untill about 1975, they had no good tests for determining how much thyroid was circulating in the blood. So, the only way thyroid doses were adjusted were by symptoms. Doctors used clues like body temperature, muscle reflex speed, pulse, physical appearance of the patient and the patient's own assessment of their condition to determin thyroid doses. Amazingly, there were no problems at all doing it this way and thyroid patients lived long and healthy lives. The first two patients that started their treatment in the late 1800s lived to be 79 and 91 and were in good health most of their lives. I have not yet been able to find one study done during that time on osteoporisis and it is rarely even mentioned in old papers. You can look for yourself at http://www.thyroidhistory.net Thyroid doses prior to about 1975, when the TSH test and other sensitive tests were developed, were 2 to 3 times higher than they are today with no problems whatsoever. In the mid 1970s a few very influential endocrinologists decided that everybody had been overtreated for over 75 years, just based on the then new TSH test. They convinced doctors that doses needed to be lowered. No studies were ever done to look at the long term heatlh of patients on these lower doses. Quite a few doctors wrote into journals complaining of the new ideas and stressing that the carefull assesment of the patient took precident over tests. But, the new lower doses stuck and I think the main reason is that it keeps the patient mildly undermedicated and therefore he/she is in constant need of the doctor's care for the myriad of problems that result. In the past patients found their best dose and rarely in their lifetime needed to change it. It resulted in a healthy person with lower rates of cardiovascular disease, reproductive problems and cancer than the general public. They had little need for the doctor, but for occasional check-ups and new prescriptions for thyroid. Doctors today will not tell you that the healthy thyroid makes 3 to 5 grains a day and that due to pituitary regulation, you cannot overdose untill your dose exceeds what your healthy thyroid would make. Today's thryoid doses are much less than the healthy thyroid would make. But, the thyroid patient can actually take a lot more hormone safely and have little impact on circulating thyroid levels. If you take 1 grain of Armour, the pituitary will know this and drop production of TSH to drop production from the thyroid by 1 grain. Thus, the pituitary keeps you protected from overdose untill the dose exceeds what your heatlhy thyroid would make, where it can no longer drop TSH enough. So, my point is that thyroid therapy done carefully with small dose raises over enough time between more raises and with careful monitoring of symptoms is really quite safe. You can easily know if you are hyperthyroid by your body temperature, pulse and symptoms. On top of that, it is not all that dangerous to be mildly hyperthyroid for a few months. It takes about a year of being hyperthyroid by a significant amount to develope any kind of permanent damage. The body is very adaptable and can increase breakdown and removal of excess thyroid and so mild overdoses are not the huge danger that doctors like to scare patients with. Studies done with heatlhy people found that they could tolerate up to 9 grains before they exibited symptoms of hyperthyroidism. So, thyroid treatment is not rocket science. You simply go slowly, keep an eye on your symptoms and adjust your dose up untill you feel good and once there, you should rarely need the change your dose. This worked quite well for over 75 years, in fact I think this method works better than tests. Tests have so many flaws and many of the smarter doctors and researchers have written a lot about the problems with tests. Tests only tell you what's in the blood and not whether your tissues have enough thyroid. The ranges make everybody have to be at the same levels, when in fact people have huge differences in what are normal thyroid levels for them. At least 20% of heatlhy people fall outside test ranges. So, to get to your questions, I have been self treating for over a year now and have been using body temp, pulse and my symptoms as a guide for adjusting my medication. I am doing so much better than I did under the care of my last doctor. I do not want to do it any other way anymore. As for adrenal support, this is a much more complicated issue and about 95% of doctors have absolutely no knowledge about this and have done no reading on the topic of adrenal support or physiological treatment of low adrenal function. It is complicated. The vast majority will not give adrenal support when starting a patient on thyroid. The results of this are disasterous for many and has probably resulted in the death of patients. It was disasterous for me. Thyroid medication literature gives dire warnings about adrenal problems and thyroid treatment, yet amazingly doctors don't read this or believe it. This is definitely one area where you have to really look hard for a doctor who has any knowledge or where you have to do a lot of your own research. So, doing your own adrenal support is very complicated and not doing adrenal support with thyroid treatment when you need it can be dangerous. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 From what I have read... Osteoporosis and Fibromyalgia and Chronic Fatigue Syndrome ALL became e widespread about the same time the TSH tests became the method of choice for doctors to diagnose and adjust thyroid meds. Does this tell us something? Hello? Symptoms USED to be the way it was diagnosed and treated VERY successfully. That is how those of us that are self treating are adjusting our dosages, with very little testing to go with. Now there are some of us that have r4egular testing ( comes to mind) but has it helped her get to her correct dosage any better than adjusting by symptoms? I doubt it. No offense ! I just feel like we know our own bodies better than 99% of the doctors out there that have never experienced the FEELINGS with this disease. Because we don;t LOOK crippled or sick they think alot is in our heads. WE know differently. *Artistic Grooming * Hurricane, WV Fat cat? Diabetes? Listowner for overweight or hypothyroid cats http://groups.yahoo.com/group/hypokitties/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 From what I have read... Osteoporosis and Fibromyalgia and Chronic Fatigue Syndrome ALL became e widespread about the same time the TSH tests became the method of choice for doctors to diagnose and adjust thyroid meds. Does this tell us something? Hello? Symptoms USED to be the way it was diagnosed and treated VERY successfully. That is how those of us that are self treating are adjusting our dosages, with very little testing to go with. Now there are some of us that have r4egular testing ( comes to mind) but has it helped her get to her correct dosage any better than adjusting by symptoms? I doubt it. No offense ! I just feel like we know our own bodies better than 99% of the doctors out there that have never experienced the FEELINGS with this disease. Because we don;t LOOK crippled or sick they think alot is in our heads. WE know differently. *Artistic Grooming * Hurricane, WV Fat cat? Diabetes? Listowner for overweight or hypothyroid cats http://groups.yahoo.com/group/hypokitties/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Foget the iodine tests and do NOT give him iodine supplements. The temperature SCREAMS hypo. Yes, there are many, many folks here who self-treat. Endo's suck. Find a doc who will test the free T4 and the free T3 and will put him on Armour if you are uncomfortable with self-treating right now. Where are you located? Janie > > Hi: I have a few questions if that's ok. My son has autism and is > 20 and I have been trying to get help with having a thyroid issue > diagnosed. I truly believe he is hypothyroid, has many many symptoms > and I did the iodine patch test for a week and the stain never stayed > 24 hrs and his morning temp on average was 96.1. I just had him to a > endo and I am not holding my breath with her. My question is: Is > anyone on this list NOT using a doctor to treat their thyroid > issues. I am nervous about doing this on my own. I was advised to > redo the iodine stain until it stays 24 hrs and then support his > thyroid with supplements. What I am confused about is do I start > giving him iodine supplements after the stain is present for 24 hrs. > During the week I was doing this test his mood was the best I have > seen since he was a little boy. Any thoughts or paths I should > take? Thank you Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Im in New York- The endo did a free T4 only even tho I asked for both. I havent gotten results back yet, but she didnt seem at all interested in what I was saying to begin with. Curious-Why not iodine supps? Eileen > > Foget the iodine tests and do NOT give him iodine supplements. The > temperature SCREAMS hypo. Yes, there are many, many folks here who > self-treat. Endo's suck. Find a doc who will test the free T4 and > the free T3 and will put him on Armour if you are uncomfortable with > self-treating right now. Where are you located? > > Janie > > > > > Hi: I have a few questions if that's ok. My son has autism and > is > > 20 and I have been trying to get help with having a thyroid issue > > diagnosed. I truly believe he is hypothyroid, has many many > symptoms > > and I did the iodine patch test for a week and the stain never > stayed > > 24 hrs and his morning temp on average was 96.1. I just had him > to a > > endo and I am not holding my breath with her. My question is: Is > > anyone on this list NOT using a doctor to treat their thyroid > > issues. I am nervous about doing this on my own. I was advised > to > > redo the iodine stain until it stays 24 hrs and then support his > > thyroid with supplements. What I am confused about is do I start > > giving him iodine supplements after the stain is present for 24 > hrs. > > During the week I was doing this test his mood was the best I have > > seen since he was a little boy. Any thoughts or paths I should > > take? Thank you Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 > Im in New York- The endo did a free T4 only even tho I asked for > both. I havent gotten results back yet, but she didnt seem at all > interested in what I was saying to begin with. You've got just another one of the millions of lousy, ignorant Endo's out there. He didn't do the free T3 purposely. As Laurie as aptly said, run. You will NOT get good treatment. Check out the armour thyroid site for docs in your area who prescribe Armour--see the LINKS section of this site. BUT........even then, call the office and ask WHAT THYROID TESTS does the doc do, and what is his PRIMARY PRESCRIBED MED? If they say they do the " thyroid panel " , hang up politely. If they say they primarily prescribe Synthroid or Levoxyl, hang up politely. If they say you have to come in first, hang up period. > Curious-Why not iodine supps? Because reports we've seen from others say it's ineffective and can make problems worse. There is also good reading in the FILES section. Janie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Thanks Janie: I always forget to look in the files on all the boards Im on. Gheeze Im losing it!. I did check out the doctors in my area and got the responses you listed. But there is an alternative doctor not too far that I did some emailing with and they were very nice and helpful. They use Armour and also do the proper tests and will treat symptoms also. I just told my husband when I get the results back from the other endo-either way I am going to contact the alternative doctor anyway and if I like them I will have them treat my son. Again, thanks for the help. Eileen I have some homework to do in the files section.hehe -- In NaturalThyroidHormones , " loboshe " wrote: > > > Im in New York- The endo did a free T4 only even tho I asked for > > both. I havent gotten results back yet, but she didnt seem at all > > interested in what I was saying to begin with. > > You've got just another one of the millions of lousy, ignorant > Endo's out there. He didn't do the free T3 purposely. As Laurie as > aptly said, run. You will NOT get good treatment. Check out the > armour thyroid site for docs in your area who prescribe Armour--see > the LINKS section of this site. BUT........even then, call the > office and ask WHAT THYROID TESTS does the doc do, and what is his > PRIMARY PRESCRIBED MED? If they say they do the " thyroid panel " , > hang up politely. If they say they primarily prescribe Synthroid or > Levoxyl, hang up politely. If they say you have to come in first, > hang up period. > > > Curious-Why not iodine supps? > > Because reports we've seen from others say it's ineffective and can > make problems worse. > > There is also good reading in the FILES section. > > Janie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Oh BOy Sheila: My son is a too!!!! He has meltdowns also and I started this quest to find some help for him. It is soo scary and heartbreaking to see when this happens to him. He is on risperdal and trileptal for the aggression. When they are over he is totally exhausted and in need of some comfort in the worst way. I will be asking for the cortisol test myself and I think I will follow up on my previous post and make an appointment with the Alternative Doc. Thanks Eileen > > Sheila, has you son been tested for low cortisol? That can cause > rage. > > Chris > Sheila Bliesath > StarGate Travel > Phone: > For more information on travel or becoming an agent > info@S... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Oh BOy Sheila: My son is a too!!!! He has meltdowns also and I started this quest to find some help for him. It is soo scary and heartbreaking to see when this happens to him. He is on risperdal and trileptal for the aggression. When they are over he is totally exhausted and in need of some comfort in the worst way. I will be asking for the cortisol test myself and I think I will follow up on my previous post and make an appointment with the Alternative Doc. Thanks Eileen > > Sheila, has you son been tested for low cortisol? That can cause > rage. > > Chris > Sheila Bliesath > StarGate Travel > Phone: > For more information on travel or becoming an agent > info@S... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Oh BOy Sheila: My son is a too!!!! He has meltdowns also and I started this quest to find some help for him. It is soo scary and heartbreaking to see when this happens to him. He is on risperdal and trileptal for the aggression. When they are over he is totally exhausted and in need of some comfort in the worst way. I will be asking for the cortisol test myself and I think I will follow up on my previous post and make an appointment with the Alternative Doc. Thanks Eileen > > Sheila, has you son been tested for low cortisol? That can cause > rage. > > Chris > Sheila Bliesath > StarGate Travel > Phone: > For more information on travel or becoming an agent > info@S... > > > > Quote Link to comment Share on other sites More sharing options...
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