Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 , I'm so sorry to hear about 's struggles. Here's hoping that the splenectomy will go as well as possible, and that his recovery will go smoothly. Sending positive wishes your way. Ricky PSC 2003 ITP & PSC Some of you may remember back at the end of July, my husband---- was hospitalized and diagnosed with Idiopathic thrombocytopenic purpura (ITP). He also has PSC Stage 3(jan '07) and UC (apr '07). We will keep you posted on the results the Splenectomy has on the PSC. Please keep us in your thoughts as this is going to be a rocky road for the next few weeks. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 , I'm so sorry to hear about 's struggles. Here's hoping that the splenectomy will go as well as possible, and that his recovery will go smoothly. Sending positive wishes your way. Ricky PSC 2003 ITP & PSC Some of you may remember back at the end of July, my husband---- was hospitalized and diagnosed with Idiopathic thrombocytopenic purpura (ITP). He also has PSC Stage 3(jan '07) and UC (apr '07). We will keep you posted on the results the Splenectomy has on the PSC. Please keep us in your thoughts as this is going to be a rocky road for the next few weeks. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2008 Report Share Posted November 15, 2008 : Good thoughts and prayers for from the blustery midwest. Hoping for many smooth patches on the rocky road and speedy healing. You sound like you are handling all well and remember to take care of yourself. Dee wife of Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2008 Report Share Posted November 15, 2008 Hi ,Please keep us informed of your husband's progress. He will be in my thoughts.Marie To: From: jafoga2002@...Date: Sat, 15 Nov 2008 02:29:22 +0000Subject: ITP & PSC Some of you may remember back at the end of July, my husband---- was hospitalized and diagnosed with Idiopathic thrombocytopenic purpura (ITP). He also has PSC Stage 3(jan '07) and UC (apr '07). ITP is another auto-immune disease in which your body attacks your platelets. ITP comes in two forms: 1) a breif onset of ITP treated with a brief medication regiment; 2) chronic ITP. ITP can be treated with steroids, infusion treatments of certain cancer/chemo drugs, laproscopic Splenectomy, as well as a few other prescription cancer/transplant drugs. PSC & ITP are very, very rarely found together. Not much research has been done on the two diseases when found together. The doctors are not real certain what the outcome of a Splenectomy will have on the PSC in the liver. After numerous months of high doses of steroids, retuxin treatments, and weekly blood tests, is scheduled to have the Splenectomy on Nov 19. Since July, we have seen his platelets go from as high as 68,000 to as low as 7,000; normally staying between 15,000-30,000 in his case. Normal platelet counts are 250,000 to 400,000. Today we spent the whole day at the hospital preparing for the surgery-- testing, vaccanations, etc. His platelets decreased so much in the past two days, he will have to go through an emergency transfusion on Monday to have the surgery on Wednesday and not bleed out. We are dealing with three great doctors at IU Med Ctr--a hemotologist, a hepatoligist, and the surgeon. Some of you may be wondering why I am sharing all of these details, but we would like others to know this combination of diseases do exist. When ITP onsets, your life centers around it and your doctors appointments and blood tests. Random bruising and nose bleeds are the first signs that your platelets may be too low. We will keep you posted on the results the Splenectomy has on the PSC. Please keep us in your thoughts as this is going to be a rocky road for the next few weeks. Windows Live Hotmail now works up to 70% faster. Sign up today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2008 Report Share Posted November 15, 2008 You and your husband will definitrly be in my heart and prayers. I just wonder I recently began having decreased platelets and have been on mercaptopurine. My gi says that because my hemoglobin is in ranhe he does not believe that it is an issue. I wonder what else it could be if not this ITP that your husband has. I will be going to my hep this week and discuss it with him. Thanks for the very informative post. ShaulPsc ucSent via BlackBerry by AT&TDate: Sat, 15 Nov 2008 02:29:22 -0000To: < >Subject: ITP PSC Some of you may remember back at the end of July, my husband---- was hospitalized and diagnosed with Idiopathic thrombocytopenic purpura (ITP). He also has PSC Stage 3(jan '07) and UC (apr '07). ITP is another auto-immune disease in which your body attacks your platelets. ITP comes in two forms: 1) a breif onset of ITP treated with a brief medication regiment; 2) chronic ITP. ITP can be treated with steroids, infusion treatments of certain cancer/chemo drugs, laproscopic Splenectomy, as well as a few other prescription cancer/transplant drugs. PSC & ITP are very, very rarely found together. Not much research has been done on the two diseases when found together. The doctors are not real certain what the outcome of a Splenectomy will have on the PSC in the liver. After numerous months of high doses of steroids, retuxin treatments, and weekly blood tests, is scheduled to have the Splenectomy on Nov 19. Since July, we have seen his platelets go from as high as 68,000 to as low as 7,000; normally staying between 15,000-30,000 in his case. Normal platelet counts are 250,000 to 400,000. Today we spent the whole day at the hospital preparing for the surgery-- testing, vaccanations, etc. His platelets decreased so much in the past two days, he will have to go through an emergency transfusion on Monday to have the surgery on Wednesday and not bleed out. We are dealing with three great doctors at IU Med Ctr--a hemotologist, a hepatoligist, and the surgeon. Some of you may be wondering why I am sharing all of these details, but we would like others to know this combination of diseases do exist. When ITP onsets, your life centers around it and your doctors appointments and blood tests. Random bruising and nose bleeds are the first signs that your platelets may be too low. We will keep you posted on the results the Splenectomy has on the PSC. Please keep us in your thoughts as this is going to be a rocky road for the next few weeks. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.