Re: Re: Is pain from PSC or not?

[Guest guest]

My gall bladder was taken out in '93. That is how they found the mishapened liver ducts that was later diagnosed as PSC. Thanks.

Subject: Re: Is pain from PSC or not?To: Date: Saturday, November 15, 2008, 4:00 PM

I am sorry to hear that you are in pain. I am wondering if you still have your Gall Bladder? This sounds very similar to what I experienced before they took mine out. Dawn >> I was diagnosed with PSC and ulcerative colits in 1993, but other > than need for a common bile duct dilitation and stent in 1998, I > have remained stable. Statistically, my doctor thought I would be > in liver failure four years ago. I seem to be defying the odds, but > this summer I started with upper abdominal pain, mostly right side, > with a couple of episodes of mild fevers and headaches. This was > reminescent of my common bile blockage in 1998. > > I had an ERCP with a dilitation of a hepatic duct that was

slightly > narrowed. I also had an upper GI endoscopy, MRI and colonoscopy. > There was no evidence that my PSC had worsened. Ulcertative colitis > is stable. All lab tests are normal. The only thing that showed up > was gastritis. > > The problem is that I have had no relief from the upper GI pain. It > worsens when I eat and extends across the entire upper abdomen. It > also worsens as the day progresses. There is a feeling of bloating > and swelling. Feels like a fist is under the right ribs pushing up > against the ribs and the diaphragm. On occasion I have some > breathlessness. ..fair amount of fatigue. I can only eat small > amounts. I have some stomach discomfort from reflux. My gallbaldder > is gone.> > The only thing my doc can figure out is that the pain and symptoms > come from PSC even though none of my tests point to that

because he > can't find anything else. I asked about whether I could be having a > reaction to my meds. I take Pentesa 2000 to 3000 mg a day, Urso 600 > mg a day (although I did take 1200 this past summer when the pain > started until recently,) and Nexium 40 mg a day (have been on this > for years.) He agreed that I should try stopping the Nexium to see > if that helps. > > Are these symptoms from PSC?> Carole>

[Guest guest]

Carole

Another possibility is esophagitis. I had pain when swallowing, like a hot coal was stuck in my chest. The docs took a look with a tube and saw small ulcers. I have been taking protonics or nexium ever since and no problems and no pain since. There are a number of tests to find the source of your pain, don't stop searching for an answer. Pain should not be accepted quietly. If one doc can't find the answer, go to another.

Take care

MizKit

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[Guest guest]

Carole

Another possibility is esophagitis. I had pain when swallowing, like a hot coal was stuck in my chest. The docs took a look with a tube and saw small ulcers. I have been taking protonics or nexium ever since and no problems and no pain since. There are a number of tests to find the source of your pain, don't stop searching for an answer. Pain should not be accepted quietly. If one doc can't find the answer, go to another.

Take care

MizKit

Instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now!

[Guest guest]

Thanks to all who have responded with the helpful information. I am most appreciative.

Carole

Subject: Re: Re: Is pain from PSC or not?To: Date: Sunday, November 16, 2008, 12:22 AM

CaroleAnother possibility is esophagitis. I had pain when swallowing, like a hot coal was stuck in my chest. The docs took a look with a tube and saw small ulcers. I have been taking protonics or nexium ever since and no problems and no pain since. There are a number of tests to find the source of your pain, don't stop searching for an answer. Pain should not be accepted quietly. If one doc can't find the answer, go to another.Take careMizKit

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