Is pain from PSC or not?

[Guest guest]

I was diagnosed with PSC and ulcerative colits in 1993, but other

than need for a common bile duct dilitation and stent in 1998, I

have remained stable. Statistically, my doctor thought I would be

in liver failure four years ago. I seem to be defying the odds, but

this summer I started with upper abdominal pain, mostly right side,

with a couple of episodes of mild fevers and headaches. This was

reminescent of my common bile blockage in 1998.

I had an ERCP with a dilitation of a hepatic duct that was slightly

narrowed. I also had an upper GI endoscopy, MRI and colonoscopy.

There was no evidence that my PSC had worsened. Ulcertative colitis

is stable. All lab tests are normal. The only thing that showed up

was gastritis.

The problem is that I have had no relief from the upper GI pain. It

worsens when I eat and extends across the entire upper abdomen. It

also worsens as the day progresses. There is a feeling of bloating

and swelling. Feels like a fist is under the right ribs pushing up

against the ribs and the diaphragm. On occasion I have some

breathlessness...fair amount of fatigue. I can only eat small

amounts. I have some stomach discomfort from reflux. My gallbaldder

is gone.

The only thing my doc can figure out is that the pain and symptoms

come from PSC even though none of my tests point to that because he

can't find anything else. I asked about whether I could be having a

reaction to my meds. I take Pentesa 2000 to 3000 mg a day, Urso 600

mg a day (although I did take 1200 this past summer when the pain

started until recently,) and Nexium 40 mg a day (have been on this

for years.) He agreed that I should try stopping the Nexium to see

if that helps.

Are these symptoms from PSC?

Carole