Has anyone tried Guaifenesin?

[Guest guest]

Has anyone tried this treatment? It is a component found in most

cough medications.

Many Doc's are trying this now - some swear by it.

It is suppose to release the things that our bodies hold on to that

causes the pain of FM/CFIDS. Thus initially making you feel worse,

but eventually getting you to a better state.

It is inexpensive and easy to get even without RX. Dosage usually

starts at 300mg per day going up to 3600 to 4800mg a day. ( A bit

much - I know) and if it helps you are expected to take it

forever !!!!!

It is suppose to have minimum to no bad side effects.

I am asking this question because I started seeing a new Doc about 2

months ago who specializes in FM/CFIDS and uses the Guai approach.

My problem is it causes extreme nausea and vomiting for me. Not a

normal effect & and I feel like he (the doc) got upset with me due to

this. And I was wondering if anyone else has tried it and had this

problem.

I also noticed it caused more noticable effects on my mitral valve

prolapse. Before I only had slight chest pains and numbness. But when

I take the Guai - chest pain and numbness increase as well as total

inability to lay on my left side.

For the life of me I could not understand why he got upset - but

realized this was the foundation of his practice and I was blowing a

whole in his theory.

I have major stomach problems and almost everything I eat or take has

this nauseating and vomiting effect at some time or other. I have

never been able to take anything for more than 3 - 4 dosed before my

tummy rejects it. and HE KNEW THAT !!!!!!!

Anyway - just wondering if anyone else has tried this and what their

results were.

Thank and I hope everyone has a nice day.

Cinda

[Guest guest]

Cinda,

I've tried Guaifenesin for sinus/nasal problems, but primarily for the

Fibromyalgia. Except for thickening mucus (bad sinus problems with asthma), I

had nothing else happen. Didn't help, didn't hurt.

If it is any consolation, I get violently ill on any myacins... I throw up for

weeks, even after I quit taking it. I have lots of unusual reactions to a lot

of things. My doctor finally figured out I was determined to be different. I

like to think of it as 'keeping them on their toes'.

But don't you just hate the doctors who are astonished that you don't follow

their pre-conceived notions of how you are supposed to react.

~ :-D

Has anyone tried Guaifenesin?

Has anyone tried this treatment? It is a component found in most

cough medications.

Many Doc's are trying this now - some swear by it.

It is suppose to release the things that our bodies hold on to that

causes the pain of FM/CFIDS. Thus initially making you feel worse,

but eventually getting you to a better state.

It is inexpensive and easy to get even without RX. Dosage usually

starts at 300mg per day going up to 3600 to 4800mg a day. ( A bit

much - I know) and if it helps you are expected to take it

forever !!!!!

It is suppose to have minimum to no bad side effects.

I am asking this question because I started seeing a new Doc about 2

months ago who specializes in FM/CFIDS and uses the Guai approach.

My problem is it causes extreme nausea and vomiting for me. Not a

normal effect & and I feel like he (the doc) got upset with me due to

this. And I was wondering if anyone else has tried it and had this

problem.

I also noticed it caused more noticable effects on my mitral valve

prolapse. Before I only had slight chest pains and numbness. But when

I take the Guai - chest pain and numbness increase as well as total

inability to lay on my left side.

For the life of me I could not understand why he got upset - but

realized this was the foundation of his practice and I was blowing a

whole in his theory.

I have major stomach problems and almost everything I eat or take has

this nauseating and vomiting effect at some time or other. I have

never been able to take anything for more than 3 - 4 dosed before my

tummy rejects it. and HE KNEW THAT !!!!!!!

Anyway - just wondering if anyone else has tried this and what their

results were.

Thank and I hope everyone has a nice day.

Cinda

[Guest guest]

> But don't you just hate the doctors who are astonished that you

don't follow their pre-conceived notions of how you are supposed to

react.

>

> ~ :-D

Yes i hate it intensely. And he seemed so good. Compasionate,

understanding, and really knows how to detect issues. He found

several things that other doc's overlooked. But alot of that changed

when I could not follow protocol.

Cinda

[Guest guest]

> But don't you just hate the doctors who are astonished that you

don't follow their pre-conceived notions of how you are supposed to

react.

>

> ~ :-D

Yes i hate it intensely. And he seemed so good. Compasionate,

understanding, and really knows how to detect issues. He found

several things that other doc's overlooked. But alot of that changed

when I could not follow protocol.

Cinda

[Guest guest]

Cinda writes,

> I am asking this question because I started seeing a new Doc about 2

> months ago who specializes in FM/CFIDS and uses the Guai approach.

> My problem is it causes extreme nausea and vomiting for me. Not a

> normal effect & and I feel like he (the doc) got upset with me due to

> this. And I was wondering if anyone else has tried it and had this

> problem.

> I also noticed it caused more noticeable effects on my mitral valve

> prolapse. Before I only had slight chest pains and numbness. But when

> I take the Guai - chest pain and numbness increase as well as total

> inability to lay on my left side.

> For the life of me I could not understand why he got upset - but

> realized this was the foundation of his practice and I was blowing a

> whole in his theory.

>

> I don't think that I would worry about blowing a hole in his theory. You

> need a different doctor. The doctor is to help you and as far as I can

> see, this treatment is hurting you, big time.

>

> Him being upset is not your problem. Especially when the mitral valve

prolapse is getting worse. This is something that needs to be seen to at

once. Get yourself another doctor. One that will help you and not get upset

if his pet treatment doesn't work out for you.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

Cinda writes,

> I am asking this question because I started seeing a new Doc about 2

> months ago who specializes in FM/CFIDS and uses the Guai approach.

> My problem is it causes extreme nausea and vomiting for me. Not a

> normal effect & and I feel like he (the doc) got upset with me due to

> this. And I was wondering if anyone else has tried it and had this

> problem.

> I also noticed it caused more noticeable effects on my mitral valve

> prolapse. Before I only had slight chest pains and numbness. But when

> I take the Guai - chest pain and numbness increase as well as total

> inability to lay on my left side.

> For the life of me I could not understand why he got upset - but

> realized this was the foundation of his practice and I was blowing a

> whole in his theory.

>

> I don't think that I would worry about blowing a hole in his theory. You

> need a different doctor. The doctor is to help you and as far as I can

> see, this treatment is hurting you, big time.

>

> Him being upset is not your problem. Especially when the mitral valve

prolapse is getting worse. This is something that needs to be seen to at

once. Get yourself another doctor. One that will help you and not get upset

if his pet treatment doesn't work out for you.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

Hello everybody!!

Over the weekend I found out something, that really surprised me. My friend has

fibro. She never mentioned it.

We happended to be talking about Guaifenesin and she said she is taking a lot of

it.

She used to live in California and her doctor is actually the guy that wrote the

book " what doctors don't tell you about fibro " (I think that is the title)

She said she believes in this treatment and it makes a big difference for her.

She also told me that it will make you feel worse at first.

I will have to check into this some more.

I just got tested for Mono, and it was negative. I don't think I ever had mono.

It just had to be ruled out.

I haven't been following the postings very well lately, too much stuff to do....

.... and fighting a cold.

WELCOME new members!! Glad to have you all!!!

[Guest guest]

Hi !

I just saw Dr. St. Amand, who wrote the book (literally and

figuratively). I've just started the guai, and I'm cautiously

optimistic. If you want to check back with me in a few weeks I'll

tell you how it's going. I'm really glad to read it helped your

friend.

> Hello everybody!!

>

> Over the weekend I found out something, that really surprised me.

My friend has fibro. She never mentioned it.

> We happended to be talking about Guaifenesin and she said she is

taking a lot of it.

> She used to live in California and her doctor is actually the guy

that wrote the book " what doctors don't tell you about fibro " (I

think that is the title)

>

> She said she believes in this treatment and it makes a big

difference for her.

>

> She also told me that it will make you feel worse at first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I don't think I

ever had mono. It just had to be ruled out.

>

> I haven't been following the postings very well lately, too much

stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

[Guest guest]

Hello!!

I think it is worth a try. My friend told me that she felt worse at first, but

it is sign of it working.

I hope it works for you!!

Just let us now in a few weeks how you're doing, maybe you'll feel a

difference!!

Good Luck!

Hi !

I just saw Dr. St. Amand, who wrote the book (literally and

figuratively). I've just started the guai, and I'm cautiously

optimistic. If you want to check back with me in a few weeks I'll

tell you how it's going. I'm really glad to read it helped your

friend.

> Hello everybody!!

>

> Over the weekend I found out something, that really surprised me.

My friend has fibro. She never mentioned it.

> We happended to be talking about Guaifenesin and she said she is

taking a lot of it.

> She used to live in California and her doctor is actually the guy

that wrote the book " what doctors don't tell you about fibro " (I

think that is the title)

>

> She said she believes in this treatment and it makes a big

difference for her.

>

> She also told me that it will make you feel worse at first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I don't think I

ever had mono. It just had to be ruled out.

>

> I haven't been following the postings very well lately, too much

stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

[Guest guest]

Hello!!

I think it is worth a try. My friend told me that she felt worse at first, but

it is sign of it working.

I hope it works for you!!

Just let us now in a few weeks how you're doing, maybe you'll feel a

difference!!

Good Luck!

Hi !

I just saw Dr. St. Amand, who wrote the book (literally and

figuratively). I've just started the guai, and I'm cautiously

optimistic. If you want to check back with me in a few weeks I'll

tell you how it's going. I'm really glad to read it helped your

friend.

> Hello everybody!!

>

> Over the weekend I found out something, that really surprised me.

My friend has fibro. She never mentioned it.

> We happended to be talking about Guaifenesin and she said she is

taking a lot of it.

> She used to live in California and her doctor is actually the guy

that wrote the book " what doctors don't tell you about fibro " (I

think that is the title)

>

> She said she believes in this treatment and it makes a big

difference for her.

>

> She also told me that it will make you feel worse at first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I don't think I

ever had mono. It just had to be ruled out.

>

> I haven't been following the postings very well lately, too much

stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

[Guest guest]

Hello!!

I think it is worth a try. My friend told me that she felt worse at first, but

it is sign of it working.

I hope it works for you!!

Just let us now in a few weeks how you're doing, maybe you'll feel a

difference!!

Good Luck!

Hi !

I just saw Dr. St. Amand, who wrote the book (literally and

figuratively). I've just started the guai, and I'm cautiously

optimistic. If you want to check back with me in a few weeks I'll

tell you how it's going. I'm really glad to read it helped your

friend.

> Hello everybody!!

>

> Over the weekend I found out something, that really surprised me.

My friend has fibro. She never mentioned it.

> We happended to be talking about Guaifenesin and she said she is

taking a lot of it.

> She used to live in California and her doctor is actually the guy

that wrote the book " what doctors don't tell you about fibro " (I

think that is the title)

>

> She said she believes in this treatment and it makes a big

difference for her.

>

> She also told me that it will make you feel worse at first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I don't think I

ever had mono. It just had to be ruled out.

>

> I haven't been following the postings very well lately, too much

stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

[Guest guest]

-i tried it a year and a half! worst 1 1/2yrs of

my life, i gave it up, and got better. my days

are still real bad, pain level #7 is norm for me.

never any lower. w/o my meds #8+ and rising.

i cannot exercise, causes flares. i only drive

locally on not-so-bad days.

i am shopping for a scooter, i cannot walk much

due to #9 pain in my legs that go to #10 very

eazily.

my weight goes from 100lb to 120lb. depends on

my IBS.

i guess i have almost all the symptoms. i have

been given an award by work comp, i was injured

on the job.

i haven't been able to walk my collie for 4 yrs

this month. i get my free Rascal try-out next

tuesday morning. i plan to take him with me. we

hzve 5 acreas, he and i need this bad.

i cried during my whole phone conversation with

them. i am so tired of this recliner. i know i

can only do a little scootering at a time, i'll

see how it goes.

enoough, guess i am venting too.

xoxoxooxxo

Melody D.

so.calif. desert

-- In @y..., jnikegirl@a... wrote:

> Hello!!

>

> I think it is worth a try. My friend told me that she felt worse

at first, but it is sign of it working.

>

> I hope it works for you!!

>

> Just let us now in a few weeks how you're doing, maybe you'll feel

a difference!!

>

> Good Luck!

>

>

>

>

>

> Hi !

>

> I just saw Dr. St. Amand, who wrote the book (literally and

> figuratively). I've just started the guai, and I'm cautiously

> optimistic. If you want to check back with me in a few weeks I'll

> tell you how it's going. I'm really glad to read it helped your

> friend.

>

>

> > Hello everybody!!

> >

> > Over the weekend I found out something, that really surprised

me.

> My friend has fibro. She never mentioned it.

> > We happended to be talking about Guaifenesin and she said she is

> taking a lot of it.

> > She used to live in California and her doctor is actually the guy

> that wrote the book " what doctors don't tell you about fibro " (I

> think that is the title)

> >

> > She said she believes in this treatment and it makes a big

> difference for her.

> >

> > She also told me that it will make you feel worse at first.

> >

> > I will have to check into this some more.

> >

> > I just got tested for Mono, and it was negative. I don't think I

> ever had mono. It just had to be ruled out.

> >

> > I haven't been following the postings very well lately, too much

> stuff to do....

> >

> > ... and fighting a cold.

> >

> > WELCOME new members!! Glad to have you all!!!

> >

> >

>

>

>

[Guest guest]

Had a sinus infection and brochitis and my doctor

prescribed guifenesen. I took it for several weeks

after as the night pain disipated considerably. Seemed

to work for a while and then pains returned. Star

--- jnikegirl@... wrote:

> Hello everybody!!

>

> Over the weekend I found out something, that really

> surprised me. My friend has fibro. She never

> mentioned it.

> We happended to be talking about Guaifenesin and she

> said she is taking a lot of it.

> She used to live in California and her doctor is

> actually the guy that wrote the book " what doctors

> don't tell you about fibro " (I think that is the

> title)

>

> She said she believes in this treatment and it makes

> a big difference for her.

>

> She also told me that it will make you feel worse at

> first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I

> don't think I ever had mono. It just had to be

> ruled out.

>

> I haven't been following the postings very well

> lately, too much stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

>

=====

__________________________________________________

[Guest guest]

Had a sinus infection and brochitis and my doctor

prescribed guifenesen. I took it for several weeks

after as the night pain disipated considerably. Seemed

to work for a while and then pains returned. Star

--- jnikegirl@... wrote:

> Hello everybody!!

>

> Over the weekend I found out something, that really

> surprised me. My friend has fibro. She never

> mentioned it.

> We happended to be talking about Guaifenesin and she

> said she is taking a lot of it.

> She used to live in California and her doctor is

> actually the guy that wrote the book " what doctors

> don't tell you about fibro " (I think that is the

> title)

>

> She said she believes in this treatment and it makes

> a big difference for her.

>

> She also told me that it will make you feel worse at

> first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I

> don't think I ever had mono. It just had to be

> ruled out.

>

> I haven't been following the postings very well

> lately, too much stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

>

=====

__________________________________________________

[Guest guest]

Had a sinus infection and brochitis and my doctor

prescribed guifenesen. I took it for several weeks

after as the night pain disipated considerably. Seemed

to work for a while and then pains returned. Star

--- jnikegirl@... wrote:

> Hello everybody!!

>

> Over the weekend I found out something, that really

> surprised me. My friend has fibro. She never

> mentioned it.

> We happended to be talking about Guaifenesin and she

> said she is taking a lot of it.

> She used to live in California and her doctor is

> actually the guy that wrote the book " what doctors

> don't tell you about fibro " (I think that is the

> title)

>

> She said she believes in this treatment and it makes

> a big difference for her.

>

> She also told me that it will make you feel worse at

> first.

>

> I will have to check into this some more.

>

> I just got tested for Mono, and it was negative. I

> don't think I ever had mono. It just had to be

> ruled out.

>

> I haven't been following the postings very well

> lately, too much stuff to do....

>

> ... and fighting a cold.

>

> WELCOME new members!! Glad to have you all!!!

>

>

>

=====

__________________________________________________

[Guest guest]

May be there is some kind of analgesic that dulls the pain somewhat.

There is a website that list prescription drugs and what they

contain. I need to find it again and look it up.

Char

I'm also taking it off and on. It helped a lot, but I have to take

it religiously all the time, everyday. It's cheap enough, but I kept

forgetting.

Nobody knows why it works, but with me, it made me lose a lot of

excess water, so I guess it helps the inflammation (that the doctor

says really isn't there).... .....

Bobbi C.

-------

Had a sinus infection and brochitis and my doctor

prescribed guifenesen. I took it for several weeks

after as the night pain disipated considerably. Seemed

to work for a while and then pains returned. Star

[Guest guest]

May be there is some kind of analgesic that dulls the pain somewhat.

There is a website that list prescription drugs and what they

contain. I need to find it again and look it up.

Char

I'm also taking it off and on. It helped a lot, but I have to take

it religiously all the time, everyday. It's cheap enough, but I kept

forgetting.

Nobody knows why it works, but with me, it made me lose a lot of

excess water, so I guess it helps the inflammation (that the doctor

says really isn't there).... .....

Bobbi C.

-------

Had a sinus infection and brochitis and my doctor

prescribed guifenesen. I took it for several weeks

after as the night pain disipated considerably. Seemed

to work for a while and then pains returned. Star

[Guest guest]

Hello!!

I think I might have mentioned this before.

My friend used to live in California and was treated by the doctor who wrote the

book " what your doctor might not tell you about fibro " (or very close to that)

He explains the guiafenesin in his book and also his website.

She has been taking it for a long time. Her fibro got less with it.

It is normal for it to go in cycles. The end result should be that you feel

better overall, but there will still be times when the pain comes back. It is

supposed to makes those times less.

I am not very comfortable to start taking this stuff on my own. There are also

different dosages for different people, so I really want a doctor to supervise.

Also it is to be expected that at first the body gets rid of a bunch of toxins

and you actually feel worse, and then it gets better long term.

I'll be seeing my doctor today. I will ask about Guiafenesin and also Human

Groth Hormone.

There is always something else I have not tried to make me better. I think all

these symptoms I'm having a a vicious circle. If I can just break it a little,

maybe everyhting else I can do will help just a little more then.

Take care,

In a message dated Sat, 15 Jun 2002 10:16:17 PM Eastern Daylight Time,

bobbi@... writes:

> I'm also taking it off and on. It helped a lot, but I have to take it

> religiously all the time, everyday. It's cheap enough, but I kept

> forgetting.

>

> Nobody knows why it works, but with me, it made me lose a lot of excess

> water, so I guess it helps the inflammation (that the doctor says really

> isn't there).... .....

>

> Bobbi C.

> -------

>

> >Had a sinus infection and brochitis and my doctor

> >prescribed guifenesen. I took it for several weeks

> >after as the night pain disipated considerably. Seemed

> >to work for a while and then pains returned. Star

>

>

>

>

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME

> PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER

[Guest guest]

I've been on 600 mg Guai for four months...thought it was helping at

first. Got worse, but turned out to just be a flare...I am still

taking it since I have the Chron. Sinusitis and Asthma. As other

replys have stated, its cheap, few if any side effects, and can help

with other problems as well.

You won't know unless you try...just make sure it is PURE guai...and

stay away from the Guainfenesin-LA...it is not as effective.

Good luck....

Calla

> Hello!!

>

> I think I might have mentioned this before.

> My friend used to live in California and was treated by the doctor

who wrote the book " what your doctor might not tell you about

fibro " (or very close to that)

> He explains the guiafenesin in his book and also his website.

>

> She has been taking it for a long time. Her fibro got less with

it.

>

> It is normal for it to go in cycles. The end result should be

that you feel better overall, but there will still be times when the

pain comes back. It is supposed to makes those times less.

>

> I am not very comfortable to start taking this stuff on my own.

There are also different dosages for different people, so I really

want a doctor to supervise.

>

> Also it is to be expected that at first the body gets rid of a

bunch of toxins and you actually feel worse, and then it gets better

long term.

>

> I'll be seeing my doctor today. I will ask about Guiafenesin and

also Human Groth Hormone.

>

> There is always something else I have not tried to make me

better. I think all these symptoms I'm having a a vicious circle.

If I can just break it a little, maybe everyhting else I can do will

help just a little more then.

>

> Take care,

>

>

>

>

> In a message dated Sat, 15 Jun 2002 10:16:17 PM Eastern Daylight

Time, bobbi@b... writes:

>

> > I'm also taking it off and on. It helped a lot, but I have to

take it

> > religiously all the time, everyday. It's cheap enough, but I

kept

> > forgetting.

> >

> > Nobody knows why it works, but with me, it made me lose a lot of

excess

> > water, so I guess it helps the inflammation (that the doctor

says really

> > isn't there).... .....

> >

> > Bobbi C.

> > -------

> >

> > >Had a sinus infection and brochitis and my doctor

> > >prescribed guifenesen. I took it for several weeks

> > >after as the night pain disipated considerably. Seemed

> > >to work for a while and then pains returned. Star

> >

> >

> >

> >

> >

> >

> > SEND POST TO: fibromyalgia-cfs@y...

> >

> > HOME

> > PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

cfs.html

> > LIST OWNER

[Guest guest]

I've been on 600 mg Guai for four months...thought it was helping at

first. Got worse, but turned out to just be a flare...I am still

taking it since I have the Chron. Sinusitis and Asthma. As other

replys have stated, its cheap, few if any side effects, and can help

with other problems as well.

You won't know unless you try...just make sure it is PURE guai...and

stay away from the Guainfenesin-LA...it is not as effective.

Good luck....

Calla

> Hello!!

>

> I think I might have mentioned this before.

> My friend used to live in California and was treated by the doctor

who wrote the book " what your doctor might not tell you about

fibro " (or very close to that)

> He explains the guiafenesin in his book and also his website.

>

> She has been taking it for a long time. Her fibro got less with

it.

>

> It is normal for it to go in cycles. The end result should be

that you feel better overall, but there will still be times when the

pain comes back. It is supposed to makes those times less.

>

> I am not very comfortable to start taking this stuff on my own.

There are also different dosages for different people, so I really

want a doctor to supervise.

>

> Also it is to be expected that at first the body gets rid of a

bunch of toxins and you actually feel worse, and then it gets better

long term.

>

> I'll be seeing my doctor today. I will ask about Guiafenesin and

also Human Groth Hormone.

>

> There is always something else I have not tried to make me

better. I think all these symptoms I'm having a a vicious circle.

If I can just break it a little, maybe everyhting else I can do will

help just a little more then.

>

> Take care,

>

>

>

>

> In a message dated Sat, 15 Jun 2002 10:16:17 PM Eastern Daylight

Time, bobbi@b... writes:

>

> > I'm also taking it off and on. It helped a lot, but I have to

take it

> > religiously all the time, everyday. It's cheap enough, but I

kept

> > forgetting.

> >

> > Nobody knows why it works, but with me, it made me lose a lot of

excess

> > water, so I guess it helps the inflammation (that the doctor

says really

> > isn't there).... .....

> >

> > Bobbi C.

> > -------

> >

> > >Had a sinus infection and brochitis and my doctor

> > >prescribed guifenesen. I took it for several weeks

> > >after as the night pain disipated considerably. Seemed

> > >to work for a while and then pains returned. Star

> >

> >

> >

> >

> >

> >

> > SEND POST TO: fibromyalgia-cfs@y...

> >

> > HOME

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