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Frequency of Cholangitis

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Hi everyone,

I was wondering how often people here in the group have a cholangitis

epispode and the various symptoms they have.

I know that it's extremely individual, nevertheless, I think it's

important to have the bigger picture.

I'm particular interested in those who do NOT have UC.

Thank you,

Ellen

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Seem to have them every few months or so. to start with it is just a

feeling of being run down over tried and feeling off colour then I get

pain under the ribs on the right side,chills,fever and hot and cold

sweats I usually get a high temperature as well but I didn't with my

last attack.

it will be interesting to see what others say.

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Seem to have them every few months or so. to start with it is just a

feeling of being run down over tried and feeling off colour then I get

pain under the ribs on the right side,chills,fever and hot and cold

sweats I usually get a high temperature as well but I didn't with my

last attack.

it will be interesting to see what others say.

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Ellen,For my first year after diagnosis I had cholangitis episodes every few months. Unfortunately since Sept I have had 4 episodes. The episodes have become frequent and severe enough that my gastro has now put me on a daily dose of antibiotics to try to minimize them.My symptoms are usually a fever, bad chills, nausea w/ the inability to eat and RUQ pain. I do not have UC or Crohns.Hope this helps.DarcySent from my Verizon Wireless BlackBerryFrom: "e_boermeester" Date: Thu, 11 Dec 2008 07:06:05 -0000To: < >Subject: Frequency of Cholangitis Hi everyone, I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have. I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture. I'm particular interested in those who do NOT have UC. Thank you, Ellen

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Ellen,For my first year after diagnosis I had cholangitis episodes every few months. Unfortunately since Sept I have had 4 episodes. The episodes have become frequent and severe enough that my gastro has now put me on a daily dose of antibiotics to try to minimize them.My symptoms are usually a fever, bad chills, nausea w/ the inability to eat and RUQ pain. I do not have UC or Crohns.Hope this helps.DarcySent from my Verizon Wireless BlackBerryFrom: "e_boermeester" Date: Thu, 11 Dec 2008 07:06:05 -0000To: < >Subject: Frequency of Cholangitis Hi everyone, I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have. I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture. I'm particular interested in those who do NOT have UC. Thank you, Ellen

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Ellen,For my first year after diagnosis I had cholangitis episodes every few months. Unfortunately since Sept I have had 4 episodes. The episodes have become frequent and severe enough that my gastro has now put me on a daily dose of antibiotics to try to minimize them.My symptoms are usually a fever, bad chills, nausea w/ the inability to eat and RUQ pain. I do not have UC or Crohns.Hope this helps.DarcySent from my Verizon Wireless BlackBerryFrom: "e_boermeester" Date: Thu, 11 Dec 2008 07:06:05 -0000To: < >Subject: Frequency of Cholangitis Hi everyone, I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have. I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture. I'm particular interested in those who do NOT have UC. Thank you, Ellen

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Ellen,

My husband has never had a cholangitis attack that we know of. Hepatic Encephalogy is entirely a different story.

LOVE & LIGHT

Barbara (Wife of , PSC'07, HE, Chronic Pancr, Osteo, Diabetes, Listed)

Subject: Frequency of CholangitisTo: Date: Thursday, December 11, 2008, 12:06 AM

Hi everyone,I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have.I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture.I'm particular interested in those who do NOT have UC.Thank you,Ellen

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Ellen,

My husband has never had a cholangitis attack that we know of. Hepatic Encephalogy is entirely a different story.

LOVE & LIGHT

Barbara (Wife of , PSC'07, HE, Chronic Pancr, Osteo, Diabetes, Listed)

Subject: Frequency of CholangitisTo: Date: Thursday, December 11, 2008, 12:06 AM

Hi everyone,I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have.I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture.I'm particular interested in those who do NOT have UC.Thank you,Ellen

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