Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Hi everyone, I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have. I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture. I'm particular interested in those who do NOT have UC. Thank you, Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 > I was wondering how often people here in the group have a cholangitis > epispode and the various symptoms they have. I don't have UC, and its been a long time since I had a cholangitis attack. But back in 1990, shortly after I had a roux-en-y to replace my common bile duct, I had a series of recurrent mild fevers. I'd have chills with a temperature just over 100 F, which would last less than a full day and I'd feel crappy for another day or two. The first came and went. I was glad I was over whatever that was. The second hit about 2 weeks later. Funny, I seemed to have it again. Another two weeks and a third episode. So I call my doctor. Of course by the time I was seen the fever was gone but we agreed on a plan of antibiotic treatment - I don't remember if it was immediate or if I waited for another episode. My doctor also consulted the GI who had diagnosed PSC the year before and they came to the conclusion that these were cholangitis attacks and that some sort of long term treatment would be necessary. The options were to hit occurrences with antibiotics or to be on continuous antibiotics. We decided on the first option. After treatment attacks occurred about 12 to 18 months apart. Still had the same symptoms - initial chills, fever with aches and malaise, followed by a day of very low energy. After my transplant in 1998 I had no attacks until 2002, the year rPSC was diagnosed. Treatment was again to use antibiotics but also in November of 2002 to put in a PTC tube to allow drainage of the bile through the blocked ducts. That worked, with the disadvantage that I had a tube sticking out between my ribs for four and a half years. The site of that tube is still readily apparent. Tim R, ltx 4/4/98, 6/19/07 & 7/7/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 > I was wondering how often people here in the group have a cholangitis > epispode and the various symptoms they have. I don't have UC, and its been a long time since I had a cholangitis attack. But back in 1990, shortly after I had a roux-en-y to replace my common bile duct, I had a series of recurrent mild fevers. I'd have chills with a temperature just over 100 F, which would last less than a full day and I'd feel crappy for another day or two. The first came and went. I was glad I was over whatever that was. The second hit about 2 weeks later. Funny, I seemed to have it again. Another two weeks and a third episode. So I call my doctor. Of course by the time I was seen the fever was gone but we agreed on a plan of antibiotic treatment - I don't remember if it was immediate or if I waited for another episode. My doctor also consulted the GI who had diagnosed PSC the year before and they came to the conclusion that these were cholangitis attacks and that some sort of long term treatment would be necessary. The options were to hit occurrences with antibiotics or to be on continuous antibiotics. We decided on the first option. After treatment attacks occurred about 12 to 18 months apart. Still had the same symptoms - initial chills, fever with aches and malaise, followed by a day of very low energy. After my transplant in 1998 I had no attacks until 2002, the year rPSC was diagnosed. Treatment was again to use antibiotics but also in November of 2002 to put in a PTC tube to allow drainage of the bile through the blocked ducts. That worked, with the disadvantage that I had a tube sticking out between my ribs for four and a half years. The site of that tube is still readily apparent. Tim R, ltx 4/4/98, 6/19/07 & 7/7/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Thank you to the early birds. One point I left out, but would also like to know about is: how was the cholangitis treated? Purely with antibotics or antibotics + an ERCP? Thank you again, Ellen > > Hi everyone, > I was wondering how often people here in the group have a cholangitis > epispode and the various symptoms they have. > I know that it's extremely individual, nevertheless, I think it's > important to have the bigger picture. > I'm particular interested in those who do NOT have UC. > > Thank you, > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Thank you to the early birds. One point I left out, but would also like to know about is: how was the cholangitis treated? Purely with antibotics or antibotics + an ERCP? Thank you again, Ellen > > Hi everyone, > I was wondering how often people here in the group have a cholangitis > epispode and the various symptoms they have. > I know that it's extremely individual, nevertheless, I think it's > important to have the bigger picture. > I'm particular interested in those who do NOT have UC. > > Thank you, > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Thank you to the early birds. One point I left out, but would also like to know about is: how was the cholangitis treated? Purely with antibotics or antibotics + an ERCP? Thank you again, Ellen > > Hi everyone, > I was wondering how often people here in the group have a cholangitis > epispode and the various symptoms they have. > I know that it's extremely individual, nevertheless, I think it's > important to have the bigger picture. > I'm particular interested in those who do NOT have UC. > > Thank you, > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Ellen, My husband has never had a cholangitis attack that we know of. Hepatic Encephalogy is entirely a different story. LOVE & LIGHT Barbara (Wife of , PSC'07, HE, Chronic Pancr, Osteo, Diabetes, Listed) Subject: Frequency of CholangitisTo: Date: Thursday, December 11, 2008, 12:06 AM Hi everyone,I was wondering how often people here in the group have a cholangitis epispode and the various symptoms they have.I know that it's extremely individual, nevertheless, I think it's important to have the bigger picture.I'm particular interested in those who do NOT have UC.Thank you,Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 I have anti botic tablets first then if they don't work IV anti botics and then if they don't work an ERCP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 My cholangitis is only treated w/antibiotics. I have ERCP's every 3 months to change a stent so they have a pretty good idea of what's going on w/out additional ERCP's. Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 My cholangitis is only treated w/antibiotics. I have ERCP's every 3 months to change a stent so they have a pretty good idea of what's going on w/out additional ERCP's. Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Hi Ellen, Since I don't have UC, I'm answering your request. When I was first diagnosed five years ago, I had repeated cholangitis attacks. They would come out of nowhere for me. I would be fine one moment, and almost immediately, my temperature would go sky high accompanied by chills, and I would have RUQ pain. My attacks were treated with antibiotics,but also with a series of ERCPs where I was stented. They actually did a routine of increasingly larger stents (every two months) for about six months. They took out the last stent about four and a half years ago, and (so far), I haven't had another cholangitis attack. I know that we're all different, but that's my story. Ricky PSC 2003> To: > Date: Thu, 11 Dec 2008 17:21:19 +0000> Subject: Re: Frequency of Cholangitis> > Thank you to the early birds.> > One point I left out, but would also like to know about is: how was> the cholangitis treated? Purely with antibotics or antibotics + an ERCP? > > Thank you again,> Ellen> > Send e-mail anywhere. No map, no compass. Get your Hotmail® account now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Hi Ellen, Since I don't have UC, I'm answering your request. When I was first diagnosed five years ago, I had repeated cholangitis attacks. They would come out of nowhere for me. I would be fine one moment, and almost immediately, my temperature would go sky high accompanied by chills, and I would have RUQ pain. My attacks were treated with antibiotics,but also with a series of ERCPs where I was stented. They actually did a routine of increasingly larger stents (every two months) for about six months. They took out the last stent about four and a half years ago, and (so far), I haven't had another cholangitis attack. I know that we're all different, but that's my story. Ricky PSC 2003> To: > Date: Thu, 11 Dec 2008 17:21:19 +0000> Subject: Re: Frequency of Cholangitis> > Thank you to the early birds.> > One point I left out, but would also like to know about is: how was> the cholangitis treated? Purely with antibotics or antibotics + an ERCP? > > Thank you again,> Ellen> > Send e-mail anywhere. No map, no compass. Get your Hotmail® account now. Quote Link to comment Share on other sites More sharing options...
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