Re: Happy Anniversary, dear Tiff!

[Guest guest]

Dear PSC Moderator, ,

Thank you for taking the time to start this support group! You know how I feel about you and the results of your endeavor, but I'm going to repeat them here. I lived with PSC for 18 years without ever knowing of another PSC patient. That means, I had no one to discuss the "norms" or consequences of the disease, including things as common as infections, pruritus, transplant, etc. Finding this group changed my life. Then, just when I thought it couldn't get any better, the PSC Foundation was born. It was born out of the hearts and minds of members here - thank you Lee & Ricky, it was a proud moment saluting the "co-founders" at the 2005 conference! When I was diagnosed there was only a few sentences to describe what was known about PSC, and it was really only known to the National Organization of Rare Diseases. Needless to say, no funding was made available for us, so this foundation is the hope we deserve. Some of you may wonder what the view is like on the other side of transplant, regarding these issues, but my perspective has not changed - I want a cure! Even if there was no risk involved for recurrent PSC, I hope and pray, daily, that everyone can be spared from the grip of this disease. Therefore, miss , adopted family member, thank you a hundred times over and allow us to support you and encourage you when things are top notch - afterall, that's why we're here.

Love and hugs,

Happy Anniversary!

It's been ten years since the start of ! So Happy

Anniversary to all of you. You are why has grown to the

huge family that it is.

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[Guest guest]

Dear ,

I came home yesterday and started slugging through the emails.

Emails I wouldn't have but for this group. Over 200 emails came in the

week I was away and

when I get back I look at every one of them. So I thank you for

starting a much needed group.

While I hate to see this group grow, I know that for those newly

diagnosed it is a blessing.

Thanks to Arne and for keeping us all on the straight and

narrow and for reminding us of email etiquette.

That Partners sprang from this support group is amazing. Thank you

Ricky for starting out on your own

and letting us join you. Big thanks to for helping make Partners

what it is and thanks to all the board

members for making it grow to a mature foundation already changing how

future PSC patients will

cope and deal with this disease. The conferences are a Godsend and are

put together professionally and

yet custom made for the needs of those with PSC and their caregivers.

If you have never been, please do

all you can to come to Chicago May 1-3. You will be so glad you did.

Lastly, I wouldn't be me if I didn't put in

a plug for the " Itching for a cure, Road to Chicago fundraiser " . It

is an amazing opportunity to double your

donation thanks to a very generous anonymous donor. Thank you, thank

you anonymous donor for your incredible

generosity.

Thanks to all those who give much needed advice and feedback here and

to all those that support the

efforts of PSC Partners to make a difference.

Bravo,

Lee

[Guest guest]

Dear ,

I came home yesterday and started slugging through the emails.

Emails I wouldn't have but for this group. Over 200 emails came in the

week I was away and

when I get back I look at every one of them. So I thank you for

starting a much needed group.

While I hate to see this group grow, I know that for those newly

diagnosed it is a blessing.

Thanks to Arne and for keeping us all on the straight and

narrow and for reminding us of email etiquette.

That Partners sprang from this support group is amazing. Thank you

Ricky for starting out on your own

and letting us join you. Big thanks to for helping make Partners

what it is and thanks to all the board

members for making it grow to a mature foundation already changing how

future PSC patients will

cope and deal with this disease. The conferences are a Godsend and are

put together professionally and

yet custom made for the needs of those with PSC and their caregivers.

If you have never been, please do

all you can to come to Chicago May 1-3. You will be so glad you did.

Lastly, I wouldn't be me if I didn't put in

a plug for the " Itching for a cure, Road to Chicago fundraiser " . It

is an amazing opportunity to double your

donation thanks to a very generous anonymous donor. Thank you, thank

you anonymous donor for your incredible

generosity.

Thanks to all those who give much needed advice and feedback here and

to all those that support the

efforts of PSC Partners to make a difference.

Bravo,

Lee

[Guest guest]

Dear ,

I came home yesterday and started slugging through the emails.

Emails I wouldn't have but for this group. Over 200 emails came in the

week I was away and

when I get back I look at every one of them. So I thank you for

starting a much needed group.

While I hate to see this group grow, I know that for those newly

diagnosed it is a blessing.

Thanks to Arne and for keeping us all on the straight and

narrow and for reminding us of email etiquette.

That Partners sprang from this support group is amazing. Thank you

Ricky for starting out on your own

and letting us join you. Big thanks to for helping make Partners

what it is and thanks to all the board

members for making it grow to a mature foundation already changing how

future PSC patients will

cope and deal with this disease. The conferences are a Godsend and are

put together professionally and

yet custom made for the needs of those with PSC and their caregivers.

If you have never been, please do

all you can to come to Chicago May 1-3. You will be so glad you did.

Lastly, I wouldn't be me if I didn't put in

a plug for the " Itching for a cure, Road to Chicago fundraiser " . It

is an amazing opportunity to double your

donation thanks to a very generous anonymous donor. Thank you, thank

you anonymous donor for your incredible

generosity.

Thanks to all those who give much needed advice and feedback here and

to all those that support the

efforts of PSC Partners to make a difference.

Bravo,

Lee