symptoms

[Guest guest]

I have been reading some of the messages on this site and its so sad

that it takes the medical profession so long to come up with a)a

diagnosis and b)some useful help. I went to see my GP rhw other day

and I saw the look in her eyes as she saw me - I don't think I will

ever trust her again to be honest with me. I went to see her because

of the joint pains I have been having in my shoulders,it feels as if

my right shoulder is on fire and my hips lock up when I have bee

standing for too long -come to think of it, sometimes when I have

been standing for no time at all!

I also have RSD and the overlay of one condition over the other is

very hard to deal with. I live very quietly except for my teaching

piano - you guessed it from my name!- and doing some art work and

journaling when I feel up to it. The list of symptoms is

endless,blurred vision,ringing in my ears,sleep problems - I

sometimes feel as if I have spent the night floating above the bed

rather than sleeping in it.I suffer from a very dry mouth, and it

sometimes is covered in ulcers, I can't sit out in the sun which is

tragic as we get very little here in England!

The best thing is a sense of humour so I look at the joke sites on

the net. Lots oflove to you all, sara