Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 To the exemplary volunteers of this group: I would like to sincerely thank all the volunteers who've so graciously hosted and posted in this group for the prior ten years. I must say that I've learned a lot from the fine people who are members of the group. With much gratitude, Shaul PSC UC Sent via BlackBerry by AT&T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Rob I too am very new to this group. I'm 30 years old and was diagnosed with UC in 2001 and PSC in 2004 even though I had elevated liver enzymes for years before my diagnosis. I was devasted when I learned of the disease. I honestly thought it was a death sentence but it really doesn't have to be. Once the intial shock, anger, sadness, depression, etc. minimized I realized THIS IS NOT GOING TO TAKE ME DOWN. I tell myself that every day, even on the worst days, and somehow it seems to work. I am glad you found this group to help you through. We're all in this together. Serbrina > > Thank you for your kind words. Ive got UC also and was only diagnosed > with that 4 days before PSC. Its been a lot in a short period of time > to wrap my brain around. Glad there is help out there and thank you > again, I'll be posting as regularly as I can > Rob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Rob, I just got diagnosed a couple of weeks ago as well. I've decided to get a second opinion to confirm the diagnosis, learn more about the disease and the treatment options, and I got multiple recommendations from different sources for Dr. Lindor at the Mayo Clinic in Rochester, Minnesota who is considered to be the authority in the field of PSC. I will be seeing him at the end of this month, and he seems to be very thorough, as the second opinion alone will take 3-5 days of outpatient visits, tests, etc. I checked with my insurance, and fortunately, it will cover the cost of the visits. It's a bit spendy to fly from Portland, OR and stay at a hotel for 6 days, but I decided it's worthwhile in the long run. If you haven't gotten a second opinion and able to afford it somehow (my family members are helping me with the cost of the trip), it seems like a really beneficial thing to do. Keeping you in my prayers, my friend. Youske To: Sent: Sunday, February 8, 2009 8:07:31 AMSubject: Thank You Thank you for your kind words. Ive got UC also and was only diagnosed with that 4 days before PSC. Its been a lot in a short period of time to wrap my brain around. Glad there is help out there and thank you again, I'll be posting as regularly as I canRob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Rob, I just got diagnosed a couple of weeks ago as well. I've decided to get a second opinion to confirm the diagnosis, learn more about the disease and the treatment options, and I got multiple recommendations from different sources for Dr. Lindor at the Mayo Clinic in Rochester, Minnesota who is considered to be the authority in the field of PSC. I will be seeing him at the end of this month, and he seems to be very thorough, as the second opinion alone will take 3-5 days of outpatient visits, tests, etc. I checked with my insurance, and fortunately, it will cover the cost of the visits. It's a bit spendy to fly from Portland, OR and stay at a hotel for 6 days, but I decided it's worthwhile in the long run. If you haven't gotten a second opinion and able to afford it somehow (my family members are helping me with the cost of the trip), it seems like a really beneficial thing to do. Keeping you in my prayers, my friend. Youske To: Sent: Sunday, February 8, 2009 8:07:31 AMSubject: Thank You Thank you for your kind words. Ive got UC also and was only diagnosed with that 4 days before PSC. Its been a lot in a short period of time to wrap my brain around. Glad there is help out there and thank you again, I'll be posting as regularly as I canRob Quote Link to comment Share on other sites More sharing options...
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