Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 In a message dated 6/15/2002 9:37:33 PM Pacific Daylight Time, shebagirl@... writes: > Does anyone know if FM or CFS is in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char > > Hi Char, FM and CFS both run in my family along with lupus, Rhuematoid Arthritis, and other autoimmune and neurological type diseases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 In a message dated 6/15/2002 9:37:33 PM Pacific Daylight Time, shebagirl@... writes: > Does anyone know if FM or CFS is in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char > > Hi Char, FM and CFS both run in my family along with lupus, Rhuematoid Arthritis, and other autoimmune and neurological type diseases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Does anyone know if FM or CFS is in the genes or is hereditary? Any comments anyone? Thanks. Char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Dear Char, Personally I believe that all these auto-immune diseases are genetic. My (female) cousins and I suffer from RA/OA; so far, I am the only one diagnosised with Fibro. I hate thinking I might have passed this on to my children! I watched for years my paternal Grandmother suffering from RA/OA. It sometimes scares the s#*t out of me, knowing how this all progresses. I am thankful in having companionship with all here who share in this terrible disease. In love & light, > Does anyone know if FM or CFS is in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Dear Char, Personally I believe that all these auto-immune diseases are genetic. My (female) cousins and I suffer from RA/OA; so far, I am the only one diagnosised with Fibro. I hate thinking I might have passed this on to my children! I watched for years my paternal Grandmother suffering from RA/OA. It sometimes scares the s#*t out of me, knowing how this all progresses. I am thankful in having companionship with all here who share in this terrible disease. In love & light, > Does anyone know if FM or CFS is in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 >Does anyone know if FM or CFS is in the genes or is hereditary? Any >comments anyone? > Hi Char, I'm not sure anyone knows for *sure*, but several books I've read, and my rheumatologist, think that there's a definite genetic thing there..... Bobbi C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 >Does anyone know if FM or CFS is in the genes or is hereditary? Any >comments anyone? > Hi Char, I'm not sure anyone knows for *sure*, but several books I've read, and my rheumatologist, think that there's a definite genetic thing there..... Bobbi C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 I personally do think it's hereditary. My aunt has FMS & CFS and my cousin has FMS. They are on my mom's side. My aunt was diagnosed 1st, then my cousin, and them me. So, I belive it's in the genes. ~ chargirl50 shebagirl@...> wrote: Does anyone know if FM or CFS is in the genes or is hereditary? Any comments anyone? Thanks. Char SEND POST TO: fibromyalgia-cfs HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html LIST OWNER: " Missy " Parrot004@...> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 As a therapist, in my view it could be in the genes because most people with FM are low on growth hormone, as the study below indicates. Low growth hormone could be genetic, right? Anyway, speaking as a therapist and data miner I'm finding more and more anecdotal stories, case studies and research data like the study below that raised HGH levels to reduce the pain of FM. I do know a nutritionist who has seen it dozens of times, and several doctors are talking about similar successes. Me I only know of one personally. Working on two, three and four. Duncan Crow P.S. I am a health writer and wholistic therapist in Canada. I use a variety of tools in my practice, including electricity, colloidal silver and ozone, but most of the work is done with nutritional and detoxification programs. ___________________________________- Human Growth Hormone is the Treatment that Does the Most! RM, SC, Walczyk J. A randomized, double-blind, placebo-controlled study of growth hormone in the treatment of fibromyalgia. Am J Med 1998 Mar;104(3):227-31 Department of Medicine, Oregon Health Sciences University, Portland 97201, USA. PURPOSE: The cause of fibromyalgia (FM) is not known. Low levels of insulin-like growth factor 1 (IGF-1), a surrogate marker for low growth hormone (GH) secretion, occur in about one third of patients who have many clinical features of growth hormone deficiency, such as diminished energy, dysphoria, impaired cognition, poor general health, reduced exercise capacity, muscle weakness, and cold intolerance. To determine whether suboptimal growth hormone production could be relevant to the symptomatology of fibromyalgia, we assessed the clinical effects of treatment with growth hormone. METHODS: Fifty women with fibromyalgia and low IGF-1 levels were enrolled in a randomized, placebo-controlled, double-blind study of 9 months' duration. They gave themselves daily subcutaneous injections of growth hormone or placebo. Two outcome measures--the Fibromyalgia Impact Questionnaire and the number of fibromyalgia tender points-were evaluated at 3-monthly intervals by a blinded investigator. An unblinded investigator reviewed the IGF-1 results monthly and adjusted the growth hormone dose to achieve an IGF-1 level of about 250 ng/mL. RESULTS: Daily growth hormone injections resulted in a prompt and sustained increase in IGF-1 levels. The treatment (n=22) group showed a significant improvement over the placebo group (n=23) at 9 months in both the Fibromyalgia Impact Questionnaire score (P <0.04) and the tender point score (P <0.03). Fifteen subjects in the growth hormone group and 6 subjects in the control group experienced a global improvement (P <0.02). There was a delayed response to therapy, with most patients experiencing improvement at the 6-month mark. After discontinuing growth hormone, patients experienced a worsening of symptoms. Carpal tunnel symptoms were more prevalent in the growth hormone group (7 versus 1); no other adverse events were more common in this group. CONCLUSIONS: Women with fibromyalgia and low IGF-1 levels experienced an improvement in their overall symptomatology and number of tender points after 9 months of daily growth hormone therapy. This suggests that a secondary growth hormone deficiency may be responsible for some of the symptoms of fibromyalgia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 As a therapist, in my view it could be in the genes because most people with FM are low on growth hormone, as the study below indicates. Low growth hormone could be genetic, right? Anyway, speaking as a therapist and data miner I'm finding more and more anecdotal stories, case studies and research data like the study below that raised HGH levels to reduce the pain of FM. I do know a nutritionist who has seen it dozens of times, and several doctors are talking about similar successes. Me I only know of one personally. Working on two, three and four. Duncan Crow P.S. I am a health writer and wholistic therapist in Canada. I use a variety of tools in my practice, including electricity, colloidal silver and ozone, but most of the work is done with nutritional and detoxification programs. ___________________________________- Human Growth Hormone is the Treatment that Does the Most! RM, SC, Walczyk J. A randomized, double-blind, placebo-controlled study of growth hormone in the treatment of fibromyalgia. Am J Med 1998 Mar;104(3):227-31 Department of Medicine, Oregon Health Sciences University, Portland 97201, USA. PURPOSE: The cause of fibromyalgia (FM) is not known. Low levels of insulin-like growth factor 1 (IGF-1), a surrogate marker for low growth hormone (GH) secretion, occur in about one third of patients who have many clinical features of growth hormone deficiency, such as diminished energy, dysphoria, impaired cognition, poor general health, reduced exercise capacity, muscle weakness, and cold intolerance. To determine whether suboptimal growth hormone production could be relevant to the symptomatology of fibromyalgia, we assessed the clinical effects of treatment with growth hormone. METHODS: Fifty women with fibromyalgia and low IGF-1 levels were enrolled in a randomized, placebo-controlled, double-blind study of 9 months' duration. They gave themselves daily subcutaneous injections of growth hormone or placebo. Two outcome measures--the Fibromyalgia Impact Questionnaire and the number of fibromyalgia tender points-were evaluated at 3-monthly intervals by a blinded investigator. An unblinded investigator reviewed the IGF-1 results monthly and adjusted the growth hormone dose to achieve an IGF-1 level of about 250 ng/mL. RESULTS: Daily growth hormone injections resulted in a prompt and sustained increase in IGF-1 levels. The treatment (n=22) group showed a significant improvement over the placebo group (n=23) at 9 months in both the Fibromyalgia Impact Questionnaire score (P <0.04) and the tender point score (P <0.03). Fifteen subjects in the growth hormone group and 6 subjects in the control group experienced a global improvement (P <0.02). There was a delayed response to therapy, with most patients experiencing improvement at the 6-month mark. After discontinuing growth hormone, patients experienced a worsening of symptoms. Carpal tunnel symptoms were more prevalent in the growth hormone group (7 versus 1); no other adverse events were more common in this group. CONCLUSIONS: Women with fibromyalgia and low IGF-1 levels experienced an improvement in their overall symptomatology and number of tender points after 9 months of daily growth hormone therapy. This suggests that a secondary growth hormone deficiency may be responsible for some of the symptoms of fibromyalgia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 No one in my family has had FMS or CFS, just me. Sherri > > I personally do think it's hereditary. My aunt has FMS & CFS and my cousin has > FMS. They are on my mom's side. My aunt was diagnosed 1st, then my cousin, and > them me. So, I belive it's in the genes. > ~ > > > chargirl50 shebagirl@...> wrote: Does anyone know if FM or CFS is > in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char > > > SEND POST TO: fibromyalgia-cfs > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > LIST OWNER: " Missy " Parrot004@...> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 No one in my family has had FMS or CFS, just me. Sherri > > I personally do think it's hereditary. My aunt has FMS & CFS and my cousin has > FMS. They are on my mom's side. My aunt was diagnosed 1st, then my cousin, and > them me. So, I belive it's in the genes. > ~ > > > chargirl50 shebagirl@...> wrote: Does anyone know if FM or CFS is > in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char > > > SEND POST TO: fibromyalgia-cfs > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > LIST OWNER: " Missy " Parrot004@...> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 No one in my family has had FMS or CFS, just me. Sherri > > I personally do think it's hereditary. My aunt has FMS & CFS and my cousin has > FMS. They are on my mom's side. My aunt was diagnosed 1st, then my cousin, and > them me. So, I belive it's in the genes. > ~ > > > chargirl50 shebagirl@...> wrote: Does anyone know if FM or CFS is > in the genes or is hereditary? Any > comments anyone? > > Thanks. > > Char > > > SEND POST TO: fibromyalgia-cfs > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > LIST OWNER: " Missy " Parrot004@...> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Thank you for the helpful info. I will certainly keep my children informed about this possibility. Star --- Duncan Crow duncancrow@...> wrote: > As a therapist, in my view it could be in the genes > because most people with FM are low on growth > hormone, as the study > below indicates. Low growth hormone could be > genetic, right? > > Anyway, speaking as a therapist and data miner I'm > finding more and more anecdotal stories, case > studies and research data > like the study below that raised HGH levels to > reduce the pain of FM. > > I do know a nutritionist who has seen it dozens of > times, and several doctors are talking about similar > successes. Me I only > know of one personally. Working on two, three and > four. > > Duncan Crow > > P.S. I am a health writer and wholistic therapist in > Canada. I use a variety of tools in my practice, > including electricity, colloidal > silver and ozone, but most of the work is done with > nutritional and detoxification programs. > > ___________________________________- > Human Growth Hormone is the Treatment that Does the > Most! > > RM, SC, Walczyk J. A randomized, > double-blind, placebo-controlled study of growth > hormone in the treatment > of fibromyalgia. Am J Med 1998 Mar;104(3):227-31 > Department of Medicine, Oregon Health Sciences > University, Portland > 97201, USA. > > PURPOSE: The cause of fibromyalgia (FM) is not > known. Low levels of insulin-like growth factor 1 > (IGF-1), a surrogate > marker for low growth hormone (GH) secretion, occur > in about one third of patients who have many > clinical features of growth > hormone deficiency, such as diminished energy, > dysphoria, impaired cognition, poor general health, > reduced exercise capacity, > muscle weakness, and cold intolerance. To determine > whether suboptimal growth hormone production could > be relevant to the > symptomatology of fibromyalgia, we assessed the > clinical effects of treatment with growth hormone. > METHODS: Fifty women > with fibromyalgia and low IGF-1 levels were enrolled > in a randomized, placebo-controlled, double-blind > study of 9 months' > duration. They gave themselves daily subcutaneous > injections of growth hormone or placebo. Two outcome > measures--the > Fibromyalgia Impact Questionnaire and the number of > fibromyalgia tender points-were evaluated at > 3-monthly intervals by a > blinded investigator. An unblinded investigator > reviewed the IGF-1 results monthly and adjusted the > growth hormone dose to > achieve an IGF-1 level of about 250 ng/mL. RESULTS: > Daily growth hormone injections resulted in a prompt > and sustained > increase in IGF-1 levels. The treatment (n=22) group > showed a significant improvement over the placebo > group (n=23) at 9 > months in both the Fibromyalgia Impact Questionnaire > score (P <0.04) and the tender point score (P > <0.03). Fifteen subjects in > the growth hormone group and 6 subjects in the > control group experienced a global improvement (P > <0.02). There was a > delayed response to therapy, with most patients > experiencing improvement at the 6-month mark. After > discontinuing growth > hormone, patients experienced a worsening of > symptoms. Carpal tunnel symptoms were more prevalent > in the growth hormone > group (7 versus 1); no other adverse events were > more common in this group. CONCLUSIONS: Women with > fibromyalgia > and low IGF-1 levels experienced an improvement in > their overall symptomatology and number of tender > points after 9 months > of daily growth hormone therapy. This suggests that > a secondary growth hormone deficiency may be > responsible for some of the > symptoms of fibromyalgia. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Thank you for the helpful info. I will certainly keep my children informed about this possibility. Star --- Duncan Crow duncancrow@...> wrote: > As a therapist, in my view it could be in the genes > because most people with FM are low on growth > hormone, as the study > below indicates. Low growth hormone could be > genetic, right? > > Anyway, speaking as a therapist and data miner I'm > finding more and more anecdotal stories, case > studies and research data > like the study below that raised HGH levels to > reduce the pain of FM. > > I do know a nutritionist who has seen it dozens of > times, and several doctors are talking about similar > successes. Me I only > know of one personally. Working on two, three and > four. > > Duncan Crow > > P.S. I am a health writer and wholistic therapist in > Canada. I use a variety of tools in my practice, > including electricity, colloidal > silver and ozone, but most of the work is done with > nutritional and detoxification programs. > > ___________________________________- > Human Growth Hormone is the Treatment that Does the > Most! > > RM, SC, Walczyk J. A randomized, > double-blind, placebo-controlled study of growth > hormone in the treatment > of fibromyalgia. Am J Med 1998 Mar;104(3):227-31 > Department of Medicine, Oregon Health Sciences > University, Portland > 97201, USA. > > PURPOSE: The cause of fibromyalgia (FM) is not > known. Low levels of insulin-like growth factor 1 > (IGF-1), a surrogate > marker for low growth hormone (GH) secretion, occur > in about one third of patients who have many > clinical features of growth > hormone deficiency, such as diminished energy, > dysphoria, impaired cognition, poor general health, > reduced exercise capacity, > muscle weakness, and cold intolerance. To determine > whether suboptimal growth hormone production could > be relevant to the > symptomatology of fibromyalgia, we assessed the > clinical effects of treatment with growth hormone. > METHODS: Fifty women > with fibromyalgia and low IGF-1 levels were enrolled > in a randomized, placebo-controlled, double-blind > study of 9 months' > duration. They gave themselves daily subcutaneous > injections of growth hormone or placebo. Two outcome > measures--the > Fibromyalgia Impact Questionnaire and the number of > fibromyalgia tender points-were evaluated at > 3-monthly intervals by a > blinded investigator. An unblinded investigator > reviewed the IGF-1 results monthly and adjusted the > growth hormone dose to > achieve an IGF-1 level of about 250 ng/mL. RESULTS: > Daily growth hormone injections resulted in a prompt > and sustained > increase in IGF-1 levels. The treatment (n=22) group > showed a significant improvement over the placebo > group (n=23) at 9 > months in both the Fibromyalgia Impact Questionnaire > score (P <0.04) and the tender point score (P > <0.03). Fifteen subjects in > the growth hormone group and 6 subjects in the > control group experienced a global improvement (P > <0.02). There was a > delayed response to therapy, with most patients > experiencing improvement at the 6-month mark. After > discontinuing growth > hormone, patients experienced a worsening of > symptoms. Carpal tunnel symptoms were more prevalent > in the growth hormone > group (7 versus 1); no other adverse events were > more common in this group. CONCLUSIONS: Women with > fibromyalgia > and low IGF-1 levels experienced an improvement in > their overall symptomatology and number of tender > points after 9 months > of daily growth hormone therapy. This suggests that > a secondary growth hormone deficiency may be > responsible for some of the > symptoms of fibromyalgia. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Thank you for the helpful info. I will certainly keep my children informed about this possibility. Star --- Duncan Crow duncancrow@...> wrote: > As a therapist, in my view it could be in the genes > because most people with FM are low on growth > hormone, as the study > below indicates. Low growth hormone could be > genetic, right? > > Anyway, speaking as a therapist and data miner I'm > finding more and more anecdotal stories, case > studies and research data > like the study below that raised HGH levels to > reduce the pain of FM. > > I do know a nutritionist who has seen it dozens of > times, and several doctors are talking about similar > successes. Me I only > know of one personally. Working on two, three and > four. > > Duncan Crow > > P.S. I am a health writer and wholistic therapist in > Canada. I use a variety of tools in my practice, > including electricity, colloidal > silver and ozone, but most of the work is done with > nutritional and detoxification programs. > > ___________________________________- > Human Growth Hormone is the Treatment that Does the > Most! > > RM, SC, Walczyk J. A randomized, > double-blind, placebo-controlled study of growth > hormone in the treatment > of fibromyalgia. Am J Med 1998 Mar;104(3):227-31 > Department of Medicine, Oregon Health Sciences > University, Portland > 97201, USA. > > PURPOSE: The cause of fibromyalgia (FM) is not > known. Low levels of insulin-like growth factor 1 > (IGF-1), a surrogate > marker for low growth hormone (GH) secretion, occur > in about one third of patients who have many > clinical features of growth > hormone deficiency, such as diminished energy, > dysphoria, impaired cognition, poor general health, > reduced exercise capacity, > muscle weakness, and cold intolerance. To determine > whether suboptimal growth hormone production could > be relevant to the > symptomatology of fibromyalgia, we assessed the > clinical effects of treatment with growth hormone. > METHODS: Fifty women > with fibromyalgia and low IGF-1 levels were enrolled > in a randomized, placebo-controlled, double-blind > study of 9 months' > duration. They gave themselves daily subcutaneous > injections of growth hormone or placebo. Two outcome > measures--the > Fibromyalgia Impact Questionnaire and the number of > fibromyalgia tender points-were evaluated at > 3-monthly intervals by a > blinded investigator. An unblinded investigator > reviewed the IGF-1 results monthly and adjusted the > growth hormone dose to > achieve an IGF-1 level of about 250 ng/mL. RESULTS: > Daily growth hormone injections resulted in a prompt > and sustained > increase in IGF-1 levels. The treatment (n=22) group > showed a significant improvement over the placebo > group (n=23) at 9 > months in both the Fibromyalgia Impact Questionnaire > score (P <0.04) and the tender point score (P > <0.03). Fifteen subjects in > the growth hormone group and 6 subjects in the > control group experienced a global improvement (P > <0.02). There was a > delayed response to therapy, with most patients > experiencing improvement at the 6-month mark. After > discontinuing growth > hormone, patients experienced a worsening of > symptoms. Carpal tunnel symptoms were more prevalent > in the growth hormone > group (7 versus 1); no other adverse events were > more common in this group. CONCLUSIONS: Women with > fibromyalgia > and low IGF-1 levels experienced an improvement in > their overall symptomatology and number of tender > points after 9 months > of daily growth hormone therapy. This suggests that > a secondary growth hormone deficiency may be > responsible for some of the > symptoms of fibromyalgia. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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