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  • 2 weeks later...
Guest guest

Thanks for keeping us updated. was looking for you, couldn't find

you, but found a guy named BILL in the process.

I don't know whether you should be happy or not about your doctors arguing

about your need of hospital. I guess, they care, but that didn't solve

anything right? Hope you feel better soon and that the hives do go away.

I've been on a sabatical at home today since it is raining cats and dogs all

day and swim practice was cxld as well as dive meet. We needed the rain

though, so I'm happy I'm getting the rest, but kids are getting restless at

home since I don't let them watch TV all day or play computer or Gameboy

games. So they amuse themselves making too much noise and running around in

our small house. It feels like the floor is about to give up and we'll be

living in the basement soon. It would almost be a pleasure to let them watch

TV, but they've watched more than enough already anyway so I'll bear it out.

Take care of yourself.

Mojo

Hi all

> Hi everyone,

> I spent the weekend at my moms...

> Here is the latest for all you inquiring minds =)

>

> Friday morning rhuemy wanted me to be admitted into hosp, but since

> he does not have hospital privledges (because he doesn't want to be

> limited to the amount of time he spends with a patient - he chooses

> not to have privledges so he can spend as much time as he wants =)..)

> He has to go through my primary to get me admitted. Well primary

> didn't feel I needed admitted that I was fine, and that whatever was

> going on was most likely viral and if that is the case there is

> nothing anyone could do for me anyways. GRRRR So the two argued from

> what I was told and right now neither are very happy with one

> another. So rhuemy told me to go have a chest x-ray done over at the

> hospital - I did and apparently there is no change with my lungs

> since my last chest x-ray 2 months ago. Rhuemy did have me double up

> on the zithromax so I was done with it Friday - but did not notice a

> change. So Rhuemy told me that since he knows I know myself that if I

> feel I need to go to the hospital to go ahead and go and give him a

> buzz on his cell phone. Mike decided it would be best if we spent the

> weekend at my mom's since she is a nurse, so that is what we did.

>

> Spent most of the weekend in bed but itching like crazy and broke out

> in hives. Hmmmm seems to be that I have now developed an allergy to

> the one and ONLY antibiotic I have been able to take, so I am screwed

> big time when the time comes that I need an antibiotic - UGGGGG Been

> eating benedryl like candy and it isn't touching the hives nor the

> itching - its not any of my other meds because I was told to stop

> them earlier last week. I am starting to feel a little better today

> but still very warn out, and still coughing like crazy. I just

> started getting my voice back but I noticed when I try to talk a

> little bit I go into a coughing frenzy so I try not to talk unless I

> have to. Mike is checking in on me through the cell and the rhuemy is

> keeping tabs on me as well. I see Rhuemy in two weeks as well as

> primary and I am going to ask primary why he seems to be not

> following me as closely as he did in the past - I mean he use to be

> great and work well with all my other docs and now it seems as though

> he is just slacking and not too concerned and well that aint going to

> cut it with me and if I have to remind him that he missed my very

> first stroke and rub it in his face and also remind him he is lucky I

> did not go after him for malpractice well then I will!!!!! He does

> not want to piss me off - and he knows it!!! ( When it comes to my

> health do not f*&^ with me - you better be on top of everything ) all

> my doctors know that, and they know I will speak my mind if I do not

> feel they are doing a good job - I have the best of the best for a

> reason - not to be blown off because you don't have time, or because

> you just can't figure me out - They know I am not afraid to swear at

> them, and they know if I feel they are doing a shitty job I WILL tell

> them =)

> My mom labels me the bitch patient from hell at times hehehehehe I

> look at it like this - they went into their fields to help people,

> and to always continue to learn throughout their time as doctors -

> therefore, when patients like me come to them and they are stumped

> well you know what - it is time to open up their medical books and

> start learning again, refreshing themselves, researching, placing

> calls to others, etc. so they can continue to help patients - geez

> that is what they are making the big $$ for - because they sure in

> the hell are not going to share their wealth with those of us who are

> sick and can't afford the things they can - so they better be damn

> good at their job...

> Boy, do I feel sorry for my primary when I see him in two weeks, he

> is going to get an earful from me...

> I am glad I didn't get hospitalized because I hate the damn place but

> if this doesn't get better soon and then come to find out I should

> have been hospitalized - some heads are going to roll...

>

> So I am home, laying low, and following rhuemy's orders!!!

> I got your messages on the answering machine - I didn't know

> if you are working or not today - so if your home give me a buzz or

> give me a buzz tomorrow.....

>

> Hope everyone had a great, painfree, and peaceful weekend...

> Time for me to go back to the recliner...

>

> Huggles

> Deanna

> P.S. I have not even had a chance to view the messages on the board

> will try to catch up tomorrow... XOXOXOXO

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

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Guest guest

Thanks for keeping us updated. was looking for you, couldn't find

you, but found a guy named BILL in the process.

I don't know whether you should be happy or not about your doctors arguing

about your need of hospital. I guess, they care, but that didn't solve

anything right? Hope you feel better soon and that the hives do go away.

I've been on a sabatical at home today since it is raining cats and dogs all

day and swim practice was cxld as well as dive meet. We needed the rain

though, so I'm happy I'm getting the rest, but kids are getting restless at

home since I don't let them watch TV all day or play computer or Gameboy

games. So they amuse themselves making too much noise and running around in

our small house. It feels like the floor is about to give up and we'll be

living in the basement soon. It would almost be a pleasure to let them watch

TV, but they've watched more than enough already anyway so I'll bear it out.

Take care of yourself.

Mojo

Hi all

> Hi everyone,

> I spent the weekend at my moms...

> Here is the latest for all you inquiring minds =)

>

> Friday morning rhuemy wanted me to be admitted into hosp, but since

> he does not have hospital privledges (because he doesn't want to be

> limited to the amount of time he spends with a patient - he chooses

> not to have privledges so he can spend as much time as he wants =)..)

> He has to go through my primary to get me admitted. Well primary

> didn't feel I needed admitted that I was fine, and that whatever was

> going on was most likely viral and if that is the case there is

> nothing anyone could do for me anyways. GRRRR So the two argued from

> what I was told and right now neither are very happy with one

> another. So rhuemy told me to go have a chest x-ray done over at the

> hospital - I did and apparently there is no change with my lungs

> since my last chest x-ray 2 months ago. Rhuemy did have me double up

> on the zithromax so I was done with it Friday - but did not notice a

> change. So Rhuemy told me that since he knows I know myself that if I

> feel I need to go to the hospital to go ahead and go and give him a

> buzz on his cell phone. Mike decided it would be best if we spent the

> weekend at my mom's since she is a nurse, so that is what we did.

>

> Spent most of the weekend in bed but itching like crazy and broke out

> in hives. Hmmmm seems to be that I have now developed an allergy to

> the one and ONLY antibiotic I have been able to take, so I am screwed

> big time when the time comes that I need an antibiotic - UGGGGG Been

> eating benedryl like candy and it isn't touching the hives nor the

> itching - its not any of my other meds because I was told to stop

> them earlier last week. I am starting to feel a little better today

> but still very warn out, and still coughing like crazy. I just

> started getting my voice back but I noticed when I try to talk a

> little bit I go into a coughing frenzy so I try not to talk unless I

> have to. Mike is checking in on me through the cell and the rhuemy is

> keeping tabs on me as well. I see Rhuemy in two weeks as well as

> primary and I am going to ask primary why he seems to be not

> following me as closely as he did in the past - I mean he use to be

> great and work well with all my other docs and now it seems as though

> he is just slacking and not too concerned and well that aint going to

> cut it with me and if I have to remind him that he missed my very

> first stroke and rub it in his face and also remind him he is lucky I

> did not go after him for malpractice well then I will!!!!! He does

> not want to piss me off - and he knows it!!! ( When it comes to my

> health do not f*&^ with me - you better be on top of everything ) all

> my doctors know that, and they know I will speak my mind if I do not

> feel they are doing a good job - I have the best of the best for a

> reason - not to be blown off because you don't have time, or because

> you just can't figure me out - They know I am not afraid to swear at

> them, and they know if I feel they are doing a shitty job I WILL tell

> them =)

> My mom labels me the bitch patient from hell at times hehehehehe I

> look at it like this - they went into their fields to help people,

> and to always continue to learn throughout their time as doctors -

> therefore, when patients like me come to them and they are stumped

> well you know what - it is time to open up their medical books and

> start learning again, refreshing themselves, researching, placing

> calls to others, etc. so they can continue to help patients - geez

> that is what they are making the big $$ for - because they sure in

> the hell are not going to share their wealth with those of us who are

> sick and can't afford the things they can - so they better be damn

> good at their job...

> Boy, do I feel sorry for my primary when I see him in two weeks, he

> is going to get an earful from me...

> I am glad I didn't get hospitalized because I hate the damn place but

> if this doesn't get better soon and then come to find out I should

> have been hospitalized - some heads are going to roll...

>

> So I am home, laying low, and following rhuemy's orders!!!

> I got your messages on the answering machine - I didn't know

> if you are working or not today - so if your home give me a buzz or

> give me a buzz tomorrow.....

>

> Hope everyone had a great, painfree, and peaceful weekend...

> Time for me to go back to the recliner...

>

> Huggles

> Deanna

> P.S. I have not even had a chance to view the messages on the board

> will try to catch up tomorrow... XOXOXOXO

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

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  • 2 weeks later...
Guest guest

Helen, I'm sorry for the loss of what your relationship with your stepmother could have been. Seems

like that is the worse kind of loss, doesn't it? Don't let it stress you out so that you go into another

flare. Take care, and know we are thinking of you. Hugs, MM

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Guest guest

Helen, I'm sorry for the loss of what your relationship with your stepmother could have been. Seems

like that is the worse kind of loss, doesn't it? Don't let it stress you out so that you go into another

flare. Take care, and know we are thinking of you. Hugs, MM

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Guest guest

Hi, everybody. I'm making an effort to post more. I'm so bad about updates. I usually only post every few months. I'm going to try to stop by and say hi every week. Well, I finished my round of Prednisone. I am feeling alittle stiff today. Only 2 days off of it and I am already starting to notice. Everybody pray that I don't break out again. Well, my step mother passed away a few days ago. She married my dad when I was about 4yrs old. She never really liked me anyways, but I guess I'll go to the funeral or at least stop by. When my dad passed a few yrs ago she treated us like pooh. We didn't get any of his personal items to remember him by. Well, thats all just stuff. I hope everyone has a pain-free day. Helen

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