Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 debmeter wrote: > > Yep, another medical > discrimination!!! Get this: I was ranting about this a few months ago, only I was mention MS since so many of our symptoms seem to be similar to MS. THe one book on MS I was reading was talking about getting referrals to specialists of all kinds of stuff that I mention to my doctor that get an " ahuh " and that's it. But then MS was like fibro when it was first noticed. They thought it was all in people's head and that they were faking things for attention. Eventually, when they could physically prove the disease existed, it suddenly got a lot of respect. I don't think we're going to get any kind of respect across the board until they can come up with a physical test to show abnormality and a reason why for some of our symptoms. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 debmeter wrote: > > Yep, another medical > discrimination!!! Get this: I was ranting about this a few months ago, only I was mention MS since so many of our symptoms seem to be similar to MS. THe one book on MS I was reading was talking about getting referrals to specialists of all kinds of stuff that I mention to my doctor that get an " ahuh " and that's it. But then MS was like fibro when it was first noticed. They thought it was all in people's head and that they were faking things for attention. Eventually, when they could physically prove the disease existed, it suddenly got a lot of respect. I don't think we're going to get any kind of respect across the board until they can come up with a physical test to show abnormality and a reason why for some of our symptoms. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 debmeter wrote: > > Yep, another medical > discrimination!!! Get this: I was ranting about this a few months ago, only I was mention MS since so many of our symptoms seem to be similar to MS. THe one book on MS I was reading was talking about getting referrals to specialists of all kinds of stuff that I mention to my doctor that get an " ahuh " and that's it. But then MS was like fibro when it was first noticed. They thought it was all in people's head and that they were faking things for attention. Eventually, when they could physically prove the disease existed, it suddenly got a lot of respect. I don't think we're going to get any kind of respect across the board until they can come up with a physical test to show abnormality and a reason why for some of our symptoms. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi Darcy; FM, CFIDS, MS, RA, atherosclerosis and the other autoimmunes like Lupus do indeed have something in common. They are all oxidative stress disorders so of course the symptoms are mainly ones of oxidative stress. For more oxidative stress information from the US Medical Archives (Medline) see: http://members.shaw.ca/widewest/medline_links.html What it all means is that if free radicals are left unquenched they take chunks out of any nearby tissue in an ongoing cascade of reactions. Glutathione is created by the body's cells for the purpose of quenching the reaction an it's the most powerful antioxidant and detoxifier; in all those diseases the client is low on glutathione, and in certain areas of insult it can be completely depleted. It can, however, be restored. Inflammation, pain and damage is all caused by free radicals. All the above also applies also to the free radical theory of aging. Most of aging is only accumulated free radical damage. (wrinkles, dysfunction, shrunken internal organs, hair loss etc..) So many doctors are giving undenatured whey to stop the damage, deactivate toxins, and support the organs, and HGH increasers to speed the rebuild process. This is the main thrust of the method Dr. Cheney uses to treat FM. best regards, Duncan > > > > > debmeter wrote: > > > > Yep, another medical > discrimination!!! Get this: > > I was ranting about this a few months ago, only I was mention MS since > so many of our symptoms seem to be similar to MS. THe one book on MS I > was reading was talking about getting referrals to specialists of all > kinds of stuff that I mention to my doctor that get an " ahuh " and that's > it. But then MS was like fibro when it was first noticed. They thought > it was all in people's head and that they were faking things for > attention. Eventually, when they could physically prove the disease > existed, it suddenly got a lot of respect. I don't think we're going to > get any kind of respect across the board until they can come up with a > physical test to show abnormality and a reason why for some of our > symptoms. > Darcy --- Duncan Crow SomaLife-gHP@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi Darcy; FM, CFIDS, MS, RA, atherosclerosis and the other autoimmunes like Lupus do indeed have something in common. They are all oxidative stress disorders so of course the symptoms are mainly ones of oxidative stress. For more oxidative stress information from the US Medical Archives (Medline) see: http://members.shaw.ca/widewest/medline_links.html What it all means is that if free radicals are left unquenched they take chunks out of any nearby tissue in an ongoing cascade of reactions. Glutathione is created by the body's cells for the purpose of quenching the reaction an it's the most powerful antioxidant and detoxifier; in all those diseases the client is low on glutathione, and in certain areas of insult it can be completely depleted. It can, however, be restored. Inflammation, pain and damage is all caused by free radicals. All the above also applies also to the free radical theory of aging. Most of aging is only accumulated free radical damage. (wrinkles, dysfunction, shrunken internal organs, hair loss etc..) So many doctors are giving undenatured whey to stop the damage, deactivate toxins, and support the organs, and HGH increasers to speed the rebuild process. This is the main thrust of the method Dr. Cheney uses to treat FM. best regards, Duncan > > > > > debmeter wrote: > > > > Yep, another medical > discrimination!!! Get this: > > I was ranting about this a few months ago, only I was mention MS since > so many of our symptoms seem to be similar to MS. THe one book on MS I > was reading was talking about getting referrals to specialists of all > kinds of stuff that I mention to my doctor that get an " ahuh " and that's > it. But then MS was like fibro when it was first noticed. They thought > it was all in people's head and that they were faking things for > attention. Eventually, when they could physically prove the disease > existed, it suddenly got a lot of respect. I don't think we're going to > get any kind of respect across the board until they can come up with a > physical test to show abnormality and a reason why for some of our > symptoms. > Darcy --- Duncan Crow SomaLife-gHP@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi Darcy; FM, CFIDS, MS, RA, atherosclerosis and the other autoimmunes like Lupus do indeed have something in common. They are all oxidative stress disorders so of course the symptoms are mainly ones of oxidative stress. For more oxidative stress information from the US Medical Archives (Medline) see: http://members.shaw.ca/widewest/medline_links.html What it all means is that if free radicals are left unquenched they take chunks out of any nearby tissue in an ongoing cascade of reactions. Glutathione is created by the body's cells for the purpose of quenching the reaction an it's the most powerful antioxidant and detoxifier; in all those diseases the client is low on glutathione, and in certain areas of insult it can be completely depleted. It can, however, be restored. Inflammation, pain and damage is all caused by free radicals. All the above also applies also to the free radical theory of aging. Most of aging is only accumulated free radical damage. (wrinkles, dysfunction, shrunken internal organs, hair loss etc..) So many doctors are giving undenatured whey to stop the damage, deactivate toxins, and support the organs, and HGH increasers to speed the rebuild process. This is the main thrust of the method Dr. Cheney uses to treat FM. best regards, Duncan > > > > > debmeter wrote: > > > > Yep, another medical > discrimination!!! Get this: > > I was ranting about this a few months ago, only I was mention MS since > so many of our symptoms seem to be similar to MS. THe one book on MS I > was reading was talking about getting referrals to specialists of all > kinds of stuff that I mention to my doctor that get an " ahuh " and that's > it. But then MS was like fibro when it was first noticed. They thought > it was all in people's head and that they were faking things for > attention. Eventually, when they could physically prove the disease > existed, it suddenly got a lot of respect. I don't think we're going to > get any kind of respect across the board until they can come up with a > physical test to show abnormality and a reason why for some of our > symptoms. > Darcy --- Duncan Crow SomaLife-gHP@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Hello everybody!! Unfortunately I think all of relate all too well. So, Diabetes is worse than fibro? Well, no, they are totally separate things, but the medical field is set up to deal with diabetes. Not fibro. Sometimes I get really frustrated too. My husband has a back injury from a MVA, so do I. It drives me nuts when he says his accident was worse. Maybe is was, I don't care, but I am still in pain! I also am very dissapointed in almost all the doctors I've seen. So many of them don't know ANYTHING!!! The more I read the more I learn. There are a lot of treatments for fibro, there are a lot of things that can be done. The most important thing I learned is that I am in charge of my treatment. I need to be educated, I need to make decisions, I need to GET referrals, I need to take care of myself. Doing nothing makes everything worse. Believe me I know what is is like to not get out of bed. I know how it feels to be depressed and not motivated. Get help!! Search for answers!! Don't give up!! I am not full of energy, but my attitude is full of energy! LOL (go Prozac!!!) at least some of the things I want to do I will do. This is my body and I am the one in pain and I decide on treatments. I found a great doctor. He does not treat fibro, ever. But he treats soft tissue injuries, trigger points, headaches, fatigue. Just recently I started hating the word " maintenance " . No maintenance for me, I want treatment, so I can get better!!! There are so many things I could do!! And I will do everything it takes to get better!!! no all in one day, but I have a plan of attack!! I started taking vitamins and supplements last week. I just read about how important all this is. I will exercise. Tonight I will either go to water aerobics or yoga, depending on when I can get my car out of the shop :-( 2 steps toward a better me! I don't think without the Prozac I would be taking any steps. Don't give up anybody!! Something that maybe didn't help some other time might be helping now. Physical therapy at the wrong time of soreness makes everything worse, at the right time it helps. I need to figure out my own body and do what is good for me. Exercising tight muscles hurts me a lot. But I know that now. So I need to exercise when I'm not completely tight. Well, here is something to cheer you up. I am seriously considering starting my own business. I will offer classes for people in understanding fibro, chronic fatigue, chronic pain, PMS, and women. There you can drop off your spouse and have them learn to be understanding, compassionate, and supportive. Great plan!! isn't it?? :-) , CO In a message dated Mon, 17 Jun 2002 1:19:05 AM Eastern Daylight Time, dpmonk@... writes: > Hi everyone....you don't hear from me very often....seems I usually > don't have much to say, but I'm so tired of being discriminated > against. No, this isn't a racist thing!!!! Yep, another medical > discrimination!!! Get this: > > I was diagnosed with Fibro about 10 years ago....I've been to doctor > after doctor....just like the rest of you....and at this time I don't > have much relief. I don't want miracles (well, a couple might not > hurt!), but I just would like to be able to do my house and yard work > and maybe have a job...without being in so much pain. I've told my > husband the symtoms of Fibro and he's said he understood..... > > Now, about 6 weeks ago, my husband was diagnosed with Diabetes. > Please don't get me wrong, I KNOW the seriousness of this disease, > but listen to this. His doctor prescribes to him all the meds he > needs,(that's good)and sets him up with a hospital for an 8 hour > class on managing Diabetes. I gladly went with him to this 8 hour > class...so I can be more helpful with this. I learned about his > feet, how to plan his menus, checking his blood (I can even do it > now),what kind of exercise he needs, etc. etc. etc. I sat there in > this freezing room for 8 hours...in pain. Do you guys know where I'm > headed???? Has ANYONE EVER set any of us up with an insurance, paid > class to help us AND OUR SPOUSES or family understand OUR > disease???? Does our families care about our menus? When I can't > sleep,(which is almost every night) my husband will ask why I can't > sleep...even though I've told him repeatedly that it IS a symptom of > Fibro. I think our disease is basically ignored (unless we complain > loud enough) because it can't be seen....but funny, Diabetes can't be > seen! Well, it does show up on blood tests. My husband ever so > faithfully checks his blood several times a day...my current medicine > escapade doesn't work, but he sort of ignores this fact. Unless I'm > moaning, smelling like menthol, rubbing my knees, hips or back, no > one even thinks that there is anything wrong. My family 'thinks' I'm > not in pain. I truly try not to say anything about the fibro, because > sometimes I even wonder if anyone believes me. My doctor hasn't sent > me to a Rheumy, prescribed physical therapy, or anything, except give > me Zanaflex which I feel is quite poisonous! > > Anyway, thanks for listening. I'm glad there is someone > out there > who knows how I feel....thanks! > Debmeter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 > > Hi , Thanks so much for the advise....and thanks to Darcy and Char too!!! Well, you've created a maniac...tomorrow I'M taking control of my care. The doctor that seems to not care about my symptoms....HE'S OUT OF HERE! I had been thinking about taking a water aerobic class, but kept putting it off because of how I felt....guess I'm going to have to push myself. You made some very good points that I think would apply to many different diseases. Most of all, (and I'm sorry you are experiencing this also) I feel better knowing that someone knows how I feel. Thanks for your help...and I'll pray for your car. Have a great day...may any pains be tiny ones Debmeter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 > > Hi , Thanks so much for the advise....and thanks to Darcy and Char too!!! Well, you've created a maniac...tomorrow I'M taking control of my care. The doctor that seems to not care about my symptoms....HE'S OUT OF HERE! I had been thinking about taking a water aerobic class, but kept putting it off because of how I felt....guess I'm going to have to push myself. You made some very good points that I think would apply to many different diseases. Most of all, (and I'm sorry you are experiencing this also) I feel better knowing that someone knows how I feel. Thanks for your help...and I'll pray for your car. Have a great day...may any pains be tiny ones Debmeter Quote Link to comment Share on other sites More sharing options...
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