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I have had chronic headaches & migraines since I was in the 2nd grade. The

majority of my headaches/migraines start at the base of my skull and works it's

way up to either one side or the other. When I have migraines I also have pain

behind my eyes, depends on which side my pain is on, also sensitivity to light &

sound, and severe upset stomach. I have more migraines than headaches. I pray

for headaches when I feel the pain starting in my neck, but they are usually

migraines. They have gotten progressivly worse as I have gotten older. When I

was younger I had more headaches, then back in '99 I started having more

migraines. That was before I started having problems with fibro. Most of my

doctors agree that it was attributed to several falls when I was 1 and 6. I am

so thank-ful that 'Imitrex' is available. It is a Godsend. I have nasal spray's

& the injection. Since I've been on Inderal & Neurontin I've had less migraines,

but I still have about 5 a month. Sometimes more. Rarely less. Well, I hope

everyone is feel pretty good tonight. You all are in my thoughts & prayers.

~progressivelyspray

---------------------------------

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~

I have had chronic headaches & migraines since I was in the 2nd grade. The

majority of my headaches/migraines start at the base of my skull and works it's

way up to either one side or the other. When I have migraines I also have pain

behind my eyes, depends on which side my pain is on, also sensitivity to light &

sound, and severe upset stomach. I have more migraines than headaches. I pray

for headaches when I feel the pain starting in my neck, but they are usually

migraines. They have gotten progressivly worse as I have gotten older. When I

was younger I had more headaches, then back in '99 I started having more

migraines. That was before I started having problems with fibro. Most of my

doctors agree that it was attributed to several falls when I was 1 and 6. I am

so thank-ful that 'Imitrex' is available. It is a Godsend. I have nasal spray's

& the injection. Since I've been on Inderal & Neurontin I've had less migraines,

but I still have about 5 a month. Sometimes more. Rarely less. Well, I hope

everyone is feel pretty good tonight. You all are in my thoughts & prayers.

~progressivelyspray

---------------------------------

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Guest guest

~

I have had chronic headaches & migraines since I was in the 2nd grade. The

majority of my headaches/migraines start at the base of my skull and works it's

way up to either one side or the other. When I have migraines I also have pain

behind my eyes, depends on which side my pain is on, also sensitivity to light &

sound, and severe upset stomach. I have more migraines than headaches. I pray

for headaches when I feel the pain starting in my neck, but they are usually

migraines. They have gotten progressivly worse as I have gotten older. When I

was younger I had more headaches, then back in '99 I started having more

migraines. That was before I started having problems with fibro. Most of my

doctors agree that it was attributed to several falls when I was 1 and 6. I am

so thank-ful that 'Imitrex' is available. It is a Godsend. I have nasal spray's

& the injection. Since I've been on Inderal & Neurontin I've had less migraines,

but I still have about 5 a month. Sometimes more. Rarely less. Well, I hope

everyone is feel pretty good tonight. You all are in my thoughts & prayers.

~progressivelyspray

---------------------------------

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Headaches! Boy do I have them. In fact, that is what sent me to the

doctor when I was diagnosed w/fibro. I have the 'achy's and tiredness'

but the headaches are the worst!

Location: all over my head. More pain in the frontal region, but also

behind my ears & up the back of my neck.

Severity: Generally I can 'function' with some normallcy although I

can't concentrate as well as I should & I have a very short fuse. Some

days I go around alternating ice packs & heat on the my neck...don't

know if it really helps or not, but at least I feel like I am doing

something. The meds they have had me on for about 5 years have quit

working (naturally).

Visual disturbance: Only in the aspect that when I have a severe

headache, I have difficulty reading, things seem blurry. Sunlight is

especially bad when driving.

Anyone have any suggestions on getting rid of these things?

Jeanette

> Do you have headaches? And if so, please describe them: location,

> severity, duration, any visual disturbances, etc.

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though,

if

> I've been misdiagnosed and my headaches/brain fog, etc. could be

> attributed to fibro.

> Thanks for your time.

>

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Guest guest

Headaches! Boy do I have them. In fact, that is what sent me to the

doctor when I was diagnosed w/fibro. I have the 'achy's and tiredness'

but the headaches are the worst!

Location: all over my head. More pain in the frontal region, but also

behind my ears & up the back of my neck.

Severity: Generally I can 'function' with some normallcy although I

can't concentrate as well as I should & I have a very short fuse. Some

days I go around alternating ice packs & heat on the my neck...don't

know if it really helps or not, but at least I feel like I am doing

something. The meds they have had me on for about 5 years have quit

working (naturally).

Visual disturbance: Only in the aspect that when I have a severe

headache, I have difficulty reading, things seem blurry. Sunlight is

especially bad when driving.

Anyone have any suggestions on getting rid of these things?

Jeanette

> Do you have headaches? And if so, please describe them: location,

> severity, duration, any visual disturbances, etc.

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though,

if

> I've been misdiagnosed and my headaches/brain fog, etc. could be

> attributed to fibro.

> Thanks for your time.

>

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Guest guest

Headaches! Boy do I have them. In fact, that is what sent me to the

doctor when I was diagnosed w/fibro. I have the 'achy's and tiredness'

but the headaches are the worst!

Location: all over my head. More pain in the frontal region, but also

behind my ears & up the back of my neck.

Severity: Generally I can 'function' with some normallcy although I

can't concentrate as well as I should & I have a very short fuse. Some

days I go around alternating ice packs & heat on the my neck...don't

know if it really helps or not, but at least I feel like I am doing

something. The meds they have had me on for about 5 years have quit

working (naturally).

Visual disturbance: Only in the aspect that when I have a severe

headache, I have difficulty reading, things seem blurry. Sunlight is

especially bad when driving.

Anyone have any suggestions on getting rid of these things?

Jeanette

> Do you have headaches? And if so, please describe them: location,

> severity, duration, any visual disturbances, etc.

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though,

if

> I've been misdiagnosed and my headaches/brain fog, etc. could be

> attributed to fibro.

> Thanks for your time.

>

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samiam997 wrote:

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though, if

> I've been misdiagnosed and my headaches/brain fog, etc. could be

> attributed to fibro.

I have such a range of headaches that I'm not much help. They range

from mild to migraines, and from one spot on my head, to my forehead,

side of my head, or the base of my skull. I'm just curious, why do you

think they might be wrong in what they've diagnosed you with? Surely,

they have a set of standards that they went by in diagnosing you with

this. I don't have visual disturbances. I know I'm not much help for

you.

Darcy

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samiam997 wrote:

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though, if

> I've been misdiagnosed and my headaches/brain fog, etc. could be

> attributed to fibro.

I have such a range of headaches that I'm not much help. They range

from mild to migraines, and from one spot on my head, to my forehead,

side of my head, or the base of my skull. I'm just curious, why do you

think they might be wrong in what they've diagnosed you with? Surely,

they have a set of standards that they went by in diagnosing you with

this. I don't have visual disturbances. I know I'm not much help for

you.

Darcy

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samiam997 wrote:

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though, if

> I've been misdiagnosed and my headaches/brain fog, etc. could be

> attributed to fibro.

I have such a range of headaches that I'm not much help. They range

from mild to migraines, and from one spot on my head, to my forehead,

side of my head, or the base of my skull. I'm just curious, why do you

think they might be wrong in what they've diagnosed you with? Surely,

they have a set of standards that they went by in diagnosing you with

this. I don't have visual disturbances. I know I'm not much help for

you.

Darcy

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Guest guest

Hello !

I have headaches that come from my trigger points in my neck, shoulders and base

of the skull.

My headaches start at the base of the skull and on the side of the head. It

just gets worse from there. I have had one continous headache for 4.5 years.

It gets better when the trigger points get better.

This sounds very different from what you have, maybe? The muscle tightness can

definetly cause headaches and headaches can cause brain fog.

I have vision problems due to a closed head injury. I did vision therapy and it

helped a lot.

Hope this helps,

, CO

In a message dated Mon, 17 Jun 2002 5:17:22 PM Eastern Standard Time,

samiam997@... writes:

> Hi all,

> Do you have headaches? And if so, please describe them: location,

> severity, duration, any visual disturbances, etc.

> I also have a condition called pseudotumor cerebri which causes

> severe headaches and visual disturbances. I'm wondering, though, if

> I've been misdiagnosed and my headaches/brain fog, etc.

> could be

> attributed to fibro.

> Thanks for your time.

>

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