RE: Re: Fatique

[Guest guest]

I agree that URSO has a positive impact on

fatigue. In the peak of my career I would work upwards of 60 hours per

week and still take care of a big yard and help my wife with the

housework. I too went off of URSO for a week (forgot to take it on a trip

to Mexico)

and I was really fatigued when I got home. Of course, eating right and

taking care of your body/liver helps too.

Joe

From:

[mailto: ] On

Behalf Of Debbie Rasa

Sent: Tuesday, January 06, 2009

4:41 PM

To:

Subject: Re: Fatique

I was having a lot of problems with fatigue several

years ago, and running blood tests to

try to find the source of the fatigue revealed my elevated LFTs and lead to my

eventual

diagnosis of PSC. Fatigue is really the only symptom I've had. At that time, it

would hit

me in the evening around dinner time & it was like I had run into a brick

wall. My husband

had to run out & get fast food dinners & then be solely responsible for

putting our son to

bed many nights during that time because I would just quit & be done for

the day.

After I got my diagnosis, I started taking better care of myself, eating

healthier and cutting

back on soda, which I used to drink almost constantly. I also started on Urso,

and I

eventually got a lot of relief from the fatigue. I don't know how much was the

Urso and

how much was the lifestyle change. It only makes sense that eating healthier

and cutting

out harmful things will impact the functioning of your liver. But since then I

have had a

couple of times when I have gone off Urso and once I've been off of it for a

week, I can feel

some of the fatigue returning.

I have not been told what the stage of my disease is, but I know it is fairly

early and my

liver function is excellent, according to my doctors. So, it is surprising that

I would have

that much fatigue at an early stage, but my understanding is that PSC affects

us all in very

different ways and that severity of symptoms is not necessarily related to

stage or

progression of the disease. I should also add that I have just recently been

diagnosed

with premature menopause (and I've had that going on for several years), which

also

causes fatigue. So, it may not all be related to PSC. But Urso definitely makes

a difference

for me.

I still get tired in the evenings and sometimes run out of energy, but it

doesn't happen

until 9 or 10:00, and I can push through it if I need to. It's not like hitting

a brick wall any

more.

Debbie in Atlanta

> 1. For those of you that suffer from fatique - do you find that that

> any combination of good excercise routines and healthy

> eating/lifestyle are at all helpful?

> 2. Is there any way to actually put a measurement on the amount of

> fatique you feel? I am used to being a very active person - I played

> hockey in college, and many other sports in high school and

> thereafter. But now, I don't find the energy for it and I'm

> wondering if there is a way to measure how much fatique a person

> feels.

> 3. For those of you that do suffer from PSC related fatique - was

> there anything that you did or are doing that was or is helpful?

>