Re: Fatique

[Guest guest]

Rick,

I did not experience fatigue until I was in stage 4, about 60 days prior to my transplant. My GI physician always told me I would know when to call him by the fatigue I was experiencing. I learned to understand that statement. I thought that the fatigue I had was directly related to my biliruben number. When it got higher than 2, I became fatigued and it became worse the higher the biliruben. I now know that wasn't necessarily the reason. Even after transplant and no PSC, I am still fatigued.

Joe

To: Sent: Monday, December 15, 2008 4:54:58 PMSubject: Fatique

I am curious how some of you do with fatique. The last biopsy I had put me at stage 1 PSC, but that was 2 years ago and I may have progressed since then. I am noticing more and more significantly that I am more fatiqued now than I was even 2 years ago. At the current time, i'm trying to determine if it is diet and excercise related because both my diet and excersice routines have suffered - but a couple weeks in to "getting on track" I haven't really noticed an improvement.I can still work a full 8 hour day and play with my daughter for awhile when I get home, but feel like my arms and legs are "heavy" and I really just want to relax. This did not used to be the case for me as I used to be quite a bit more active.When did some of you really start to experience fatique? Was there a specific point in the progression of PSC that you noticed it? Was that at stage 4/cirrhosis or was it before

that? Could you tell without doubt that your fatique was caused by PSC?Thank you for any feedback here!Rick

[Guest guest]

Rick,

I did not experience fatigue until I was in stage 4, about 60 days prior to my transplant. My GI physician always told me I would know when to call him by the fatigue I was experiencing. I learned to understand that statement. I thought that the fatigue I had was directly related to my biliruben number. When it got higher than 2, I became fatigued and it became worse the higher the biliruben. I now know that wasn't necessarily the reason. Even after transplant and no PSC, I am still fatigued.

Joe

To: Sent: Monday, December 15, 2008 4:54:58 PMSubject: Fatique

I am curious how some of you do with fatique. The last biopsy I had put me at stage 1 PSC, but that was 2 years ago and I may have progressed since then. I am noticing more and more significantly that I am more fatiqued now than I was even 2 years ago. At the current time, i'm trying to determine if it is diet and excercise related because both my diet and excersice routines have suffered - but a couple weeks in to "getting on track" I haven't really noticed an improvement.I can still work a full 8 hour day and play with my daughter for awhile when I get home, but feel like my arms and legs are "heavy" and I really just want to relax. This did not used to be the case for me as I used to be quite a bit more active.When did some of you really start to experience fatique? Was there a specific point in the progression of PSC that you noticed it? Was that at stage 4/cirrhosis or was it before

that? Could you tell without doubt that your fatique was caused by PSC?Thank you for any feedback here!Rick

[Guest guest]

Rick,

I did not experience fatigue until I was in stage 4, about 60 days prior to my transplant. My GI physician always told me I would know when to call him by the fatigue I was experiencing. I learned to understand that statement. I thought that the fatigue I had was directly related to my biliruben number. When it got higher than 2, I became fatigued and it became worse the higher the biliruben. I now know that wasn't necessarily the reason. Even after transplant and no PSC, I am still fatigued.

Joe

To: Sent: Monday, December 15, 2008 4:54:58 PMSubject: Fatique

I am curious how some of you do with fatique. The last biopsy I had put me at stage 1 PSC, but that was 2 years ago and I may have progressed since then. I am noticing more and more significantly that I am more fatiqued now than I was even 2 years ago. At the current time, i'm trying to determine if it is diet and excercise related because both my diet and excersice routines have suffered - but a couple weeks in to "getting on track" I haven't really noticed an improvement.I can still work a full 8 hour day and play with my daughter for awhile when I get home, but feel like my arms and legs are "heavy" and I really just want to relax. This did not used to be the case for me as I used to be quite a bit more active.When did some of you really start to experience fatique? Was there a specific point in the progression of PSC that you noticed it? Was that at stage 4/cirrhosis or was it before

that? Could you tell without doubt that your fatique was caused by PSC?Thank you for any feedback here!Rick

[Guest guest]

I think I'm at Stage 2 PSC and I have fatigue so bad that I'm now on disability. I need several naps a day. When I walk up or down a hill I get very bad leg pains. My vitamin levels are okay. I do also suffer from pouchitis from my J-pouch. I also have autoimmune hepatitis. Marie

To: From: rick.kamp@...Date: Mon, 15 Dec 2008 22:54:58 +0000Subject: Fatique

I am curious how some of you do with fatique. The last biopsy I had

put me at stage 1 PSC, but that was 2 years ago and I may have

progressed since then. I am noticing more and more significantly

that I am more fatiqued now than I was even 2 years ago. At the

current time, i'm trying to determine if it is diet and excercise

related because both my diet and excersice routines have suffered -

but a couple weeks in to "getting on track" I haven't really noticed

an improvement.

I can still work a full 8 hour day and play with my daughter for

awhile when I get home, but feel like my arms and legs are "heavy"

and I really just want to relax. This did not used to be the case

for me as I used to be quite a bit more active.

When did some of you really start to experience fatique? Was there a

specific point in the progression of PSC that you noticed it? Was

that at stage 4/cirrhosis or was it before that? Could you tell

without doubt that your fatique was caused by PSC?

Thank you for any feedback here!

Rick

Suspicious message? There’s an alert for that. Get your Hotmail® account now.

[Guest guest]

If I'm remembering correctly, fatigue was one of the big symptoms for me for many years prior to TX. It got progessively worse the closer I got to the time for TX. Short bursts of energy were possible, but generally there was just not much to go on. Shortness of breath, ascites, and spleen enlargement contribute to the general tiredness.

Everyone's symptoms are different.

Don

Please be a blood/organ donor

[Guest guest]

Rickas you mention and as a fellow 'PSCr' I think fatigue could mean many things including anemia and also grade of PSC. I hope you fell better soonShaulPSC UCSent via BlackBerry by AT&TFrom: "rick.kamp" Date: Mon, 15 Dec 2008 22:54:58 -0000To: < >Subject: Fatique I am curious how some of you do with fatique. The last biopsy I had put me at stage 1 PSC, but that was 2 years ago and I may have progressed since then. I am noticing more and more significantly that I am more fatiqued now than I was even 2 years ago. At the current time, i'm trying to determine if it is diet and excercise related because both my diet and excersice routines have suffered - but a couple weeks in to " getting on track " I haven't really noticed an improvement. I can still work a full 8 hour day and play with my daughter for awhile when I get home, but feel like my arms and legs are " heavy " and I really just want to relax. This did not used to be the case for me as I used to be quite a bit more active. When did some of you really start to experience fatique? Was there a specific point in the progression of PSC that you noticed it? Was that at stage 4/cirrhosis or was it before that? Could you tell without doubt that your fatique was caused by PSC? Thank you for any feedback here! Rick

[Guest guest]

I get very tired after eating a meal! Even a light breakfast can make me want to take a nap. I work two 16 hour shifts a week and I have to drink Aquafina Energize water (has caffiene) just to keep me from falling asleep at my desk.

Subject: Re: FatiqueTo: Date: Tuesday, December 16, 2008, 9:59 AM

Rickas you mention and as a fellow 'PSCr' I think fatigue could mean many things including anemia and also grade of PSC. I hope you fell better soonShaulPSC UC

Sent via BlackBerry by AT & T

From: "rick.kamp" Date: Mon, 15 Dec 2008 22:54:58 -0000To: <@ yahoogroups. com>Subject: Fatique

I am curious how some of you do with fatique. The last biopsy I had put me at stage 1 PSC, but that was 2 years ago and I may have progressed since then. I am noticing more and more significantly that I am more fatiqued now than I was even 2 years ago. At the current time, i'm trying to determine if it is diet and excercise related because both my diet and excersice routines have suffered - but a couple weeks in to "getting on track" I haven't really noticed an improvement.I can still work a full 8 hour day and play with my daughter for awhile when I get home, but feel like my arms and legs are "heavy" and I really just want to relax. This did not used to be the case for me as I used to be quite a bit more active.When did some of you really start to experience fatique? Was there a specific point in the progression of PSC that you noticed it? Was that at stage 4/cirrhosis or was it

before that? Could you tell without doubt that your fatique was caused by PSC?Thank you for any feedback here!Rick

[Guest guest]

Rick,

I also get very fatiqued each day. Some days are much worst that

others. I am lucky that my employee understands my problems and

allows me to take breaks as necessary. Kind of easy for me as i just

close my office door for a while. Usally a 20 relax gets me through

a few more hours.

But when i get home it's another story. Somedays i feel strong

enough to go the Health Club, but others i go home and nap for an

hour or so. does seem to matter how much i nap - i still sleep like

the dead each night.

I am going to begin evaluation for a TX soon and one of the things

they mention in there literature is they can help with the fatique.

I will be interested to see what they come up with.

Hang in there.

Jeff

>

> I am curious how some of you do with fatique. The last biopsy I

had

> put me at stage 1 PSC, but that was 2 years ago and I may have

> progressed since then. I am noticing more and more significantly

> that I am more fatiqued now than I was even 2 years ago. At the

> current time, i'm trying to determine if it is diet and excercise

> related because both my diet and excersice routines have suffered -

> but a couple weeks in to " getting on track " I haven't really

noticed

> an improvement.

>

> I can still work a full 8 hour day and play with my daughter for

> awhile when I get home, but feel like my arms and legs are " heavy "

> and I really just want to relax. This did not used to be the case

> for me as I used to be quite a bit more active.

>

> When did some of you really start to experience fatique? Was there

a

> specific point in the progression of PSC that you noticed it? Was

> that at stage 4/cirrhosis or was it before that? Could you tell

> without doubt that your fatique was caused by PSC?

>

> Thank you for any feedback here!

>

> Rick

>

[Guest guest]

Rick,

I also get very fatiqued each day. Some days are much worst that

others. I am lucky that my employee understands my problems and

allows me to take breaks as necessary. Kind of easy for me as i just

close my office door for a while. Usally a 20 relax gets me through

a few more hours.

But when i get home it's another story. Somedays i feel strong

enough to go the Health Club, but others i go home and nap for an

hour or so. does seem to matter how much i nap - i still sleep like

the dead each night.

I am going to begin evaluation for a TX soon and one of the things

they mention in there literature is they can help with the fatique.

I will be interested to see what they come up with.

Hang in there.

Jeff

>

> I am curious how some of you do with fatique. The last biopsy I

had

> put me at stage 1 PSC, but that was 2 years ago and I may have

> progressed since then. I am noticing more and more significantly

> that I am more fatiqued now than I was even 2 years ago. At the

> current time, i'm trying to determine if it is diet and excercise

> related because both my diet and excersice routines have suffered -

> but a couple weeks in to " getting on track " I haven't really

noticed

> an improvement.

>

> I can still work a full 8 hour day and play with my daughter for

> awhile when I get home, but feel like my arms and legs are " heavy "

> and I really just want to relax. This did not used to be the case

> for me as I used to be quite a bit more active.

>

> When did some of you really start to experience fatique? Was there

a

> specific point in the progression of PSC that you noticed it? Was

> that at stage 4/cirrhosis or was it before that? Could you tell

> without doubt that your fatique was caused by PSC?

>

> Thank you for any feedback here!

>

> Rick

>

[Guest guest]

Thank you all for your responses here. I feel more like I am not

alone with the fatigue issue which is helpful but is still not an

excuse for laziness. My biggest problem seems to be my " hometime "

because I'm working 50+ hours a week my time at home seems to be a

lot less productive which my wife doesn't like so much.

At any rate, I do feel fairly well otherwise so I guess I should be

happy. Thanks again everyone for the feedback.

Rick

>

> I am curious how some of you do with fatique. The last biopsy I

had

> put me at stage 1 PSC, but that was 2 years ago and I may have

> progressed since then. I am noticing more and more significantly

> that I am more fatiqued now than I was even 2 years ago. At the

> current time, i'm trying to determine if it is diet and excercise

> related because both my diet and excersice routines have suffered -

> but a couple weeks in to " getting on track " I haven't really

noticed

> an improvement.

>

> I can still work a full 8 hour day and play with my daughter for

> awhile when I get home, but feel like my arms and legs are " heavy "

> and I really just want to relax. This did not used to be the case

> for me as I used to be quite a bit more active.

>

> When did some of you really start to experience fatique? Was there

a

> specific point in the progression of PSC that you noticed it? Was

> that at stage 4/cirrhosis or was it before that? Could you tell

> without doubt that your fatique was caused by PSC?

>

> Thank you for any feedback here!

>

> Rick

>

[Guest guest]

Thank you all for your responses here. I feel more like I am not

alone with the fatigue issue which is helpful but is still not an

excuse for laziness. My biggest problem seems to be my " hometime "

because I'm working 50+ hours a week my time at home seems to be a

lot less productive which my wife doesn't like so much.

At any rate, I do feel fairly well otherwise so I guess I should be

happy. Thanks again everyone for the feedback.

Rick

>

> I am curious how some of you do with fatique. The last biopsy I

had

> put me at stage 1 PSC, but that was 2 years ago and I may have

> progressed since then. I am noticing more and more significantly

> that I am more fatiqued now than I was even 2 years ago. At the

> current time, i'm trying to determine if it is diet and excercise

> related because both my diet and excersice routines have suffered -

> but a couple weeks in to " getting on track " I haven't really

noticed

> an improvement.

>

> I can still work a full 8 hour day and play with my daughter for

> awhile when I get home, but feel like my arms and legs are " heavy "

> and I really just want to relax. This did not used to be the case

> for me as I used to be quite a bit more active.

>

> When did some of you really start to experience fatique? Was there

a

> specific point in the progression of PSC that you noticed it? Was

> that at stage 4/cirrhosis or was it before that? Could you tell

> without doubt that your fatique was caused by PSC?

>

> Thank you for any feedback here!

>

> Rick

>

[Guest guest]

Thank you all for your responses here. I feel more like I am not

alone with the fatigue issue which is helpful but is still not an

excuse for laziness. My biggest problem seems to be my " hometime "

because I'm working 50+ hours a week my time at home seems to be a

lot less productive which my wife doesn't like so much.

At any rate, I do feel fairly well otherwise so I guess I should be

happy. Thanks again everyone for the feedback.

Rick

>

> I am curious how some of you do with fatique. The last biopsy I

had

> put me at stage 1 PSC, but that was 2 years ago and I may have

> progressed since then. I am noticing more and more significantly

> that I am more fatiqued now than I was even 2 years ago. At the

> current time, i'm trying to determine if it is diet and excercise

> related because both my diet and excersice routines have suffered -

> but a couple weeks in to " getting on track " I haven't really

noticed

> an improvement.

>

> I can still work a full 8 hour day and play with my daughter for

> awhile when I get home, but feel like my arms and legs are " heavy "

> and I really just want to relax. This did not used to be the case

> for me as I used to be quite a bit more active.

>

> When did some of you really start to experience fatique? Was there

a

> specific point in the progression of PSC that you noticed it? Was

> that at stage 4/cirrhosis or was it before that? Could you tell

> without doubt that your fatique was caused by PSC?

>

> Thank you for any feedback here!

>

> Rick

>

[Guest guest]

Rick,

I can sure relate to the fatigue at home. I met my husband for lunch

today. Usually our work schedule is so crazy we can't connect during

the lunch hour. He said to me, Nice to see you in an upright position

and dressed!

By the time I get home from work I am so wiped out that I am usually

dressed for bed by 6 and on the couch so that I can get enough rest to

get up and go back to work the next day. I am only working 32 hours a

week. I have to have one day off during the week to rest or I cannot

make it thru the week. Many days I wonder how I am going to get thru

the day. I say I just keep leaning forward and collapse when I get

home. On the weekend I usually take a 4 hour nap each day.

PSC 5/07 stage 4, Listed

[Guest guest]

Rick,

I can sure relate to the fatigue at home. I met my husband for lunch

today. Usually our work schedule is so crazy we can't connect during

the lunch hour. He said to me, Nice to see you in an upright position

and dressed!

By the time I get home from work I am so wiped out that I am usually

dressed for bed by 6 and on the couch so that I can get enough rest to

get up and go back to work the next day. I am only working 32 hours a

week. I have to have one day off during the week to rest or I cannot

make it thru the week. Many days I wonder how I am going to get thru

the day. I say I just keep leaning forward and collapse when I get

home. On the weekend I usually take a 4 hour nap each day.

PSC 5/07 stage 4, Listed

[Guest guest]

I can relate to this I have very serve fatigue but I have had it since

I was first told I had psc.I get it so bad that I have to sleep in the

afternoons to be able to function properly.I used to only need an hour

to hour and half to be able to cope with day to day life but now it

seems to be getting longer and longer times I need to sleep I usually

need at least 2 hours now to get some kind of benefit. I think its

different for everyone but most psc suffers have it.its just part of

the parcel of this horrible disease we have.

[Guest guest]

I can relate to this I have very serve fatigue but I have had it since

I was first told I had psc.I get it so bad that I have to sleep in the

afternoons to be able to function properly.I used to only need an hour

to hour and half to be able to cope with day to day life but now it

seems to be getting longer and longer times I need to sleep I usually

need at least 2 hours now to get some kind of benefit. I think its

different for everyone but most psc suffers have it.its just part of

the parcel of this horrible disease we have.

[Guest guest]

I am really sad to hear just how much fatigue affects sufferers of

PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he works

long and hard, we used to assume that is was due to that. When he was

diagnosed, I think it allowed him, mentally, to accept that there was

another reason for being so tired and it seems to be worse now than it

was 6 months ago. I don't know if this is psychological or

physiological...or maybe a bot of both. I guess now that he has 3

weeks off over Christmas, we will see if there is any improvement in

his energy levels.

Since reading all the posts about how fatigued so many of you are, I

will try to be more sympathetic towards Brad, not that I think I have

been anything less!

He has an appointment this coming Tuesday to get the results of his

Fibro Scan, so wish him luck!

[Guest guest]

I am really sad to hear just how much fatigue affects sufferers of

PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he works

long and hard, we used to assume that is was due to that. When he was

diagnosed, I think it allowed him, mentally, to accept that there was

another reason for being so tired and it seems to be worse now than it

was 6 months ago. I don't know if this is psychological or

physiological...or maybe a bot of both. I guess now that he has 3

weeks off over Christmas, we will see if there is any improvement in

his energy levels.

Since reading all the posts about how fatigued so many of you are, I

will try to be more sympathetic towards Brad, not that I think I have

been anything less!

He has an appointment this coming Tuesday to get the results of his

Fibro Scan, so wish him luck!

[Guest guest]

I have a stupid question. I have PSC and have noticed individuals

say they are stage 3 or 4 or ? What are the stages? I am currently

going through evaluation for a Liver TX and have never been told my

stage?

>

> I am really sad to hear just how much fatigue affects sufferers of

> PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he

works

> long and hard, we used to assume that is was due to that. When he

was

> diagnosed, I think it allowed him, mentally, to accept that there

was

> another reason for being so tired and it seems to be worse now than

it

> was 6 months ago. I don't know if this is psychological or

> physiological...or maybe a bot of both. I guess now that he has 3

> weeks off over Christmas, we will see if there is any improvement

in

> his energy levels.

>

> Since reading all the posts about how fatigued so many of you are,

I

> will try to be more sympathetic towards Brad, not that I think I

have

> been anything less!

>

> He has an appointment this coming Tuesday to get the results of his

> Fibro Scan, so wish him luck!

>

[Guest guest]

I have a stupid question. I have PSC and have noticed individuals

say they are stage 3 or 4 or ? What are the stages? I am currently

going through evaluation for a Liver TX and have never been told my

stage?

>

> I am really sad to hear just how much fatigue affects sufferers of

> PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he

works

> long and hard, we used to assume that is was due to that. When he

was

> diagnosed, I think it allowed him, mentally, to accept that there

was

> another reason for being so tired and it seems to be worse now than

it

> was 6 months ago. I don't know if this is psychological or

> physiological...or maybe a bot of both. I guess now that he has 3

> weeks off over Christmas, we will see if there is any improvement

in

> his energy levels.

>

> Since reading all the posts about how fatigued so many of you are,

I

> will try to be more sympathetic towards Brad, not that I think I

have

> been anything less!

>

> He has an appointment this coming Tuesday to get the results of his

> Fibro Scan, so wish him luck!

>

[Guest guest]

I have a stupid question. I have PSC and have noticed individuals

say they are stage 3 or 4 or ? What are the stages? I am currently

going through evaluation for a Liver TX and have never been told my

stage?

>

> I am really sad to hear just how much fatigue affects sufferers of

> PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he

works

> long and hard, we used to assume that is was due to that. When he

was

> diagnosed, I think it allowed him, mentally, to accept that there

was

> another reason for being so tired and it seems to be worse now than

it

> was 6 months ago. I don't know if this is psychological or

> physiological...or maybe a bot of both. I guess now that he has 3

> weeks off over Christmas, we will see if there is any improvement

in

> his energy levels.

>

> Since reading all the posts about how fatigued so many of you are,

I

> will try to be more sympathetic towards Brad, not that I think I

have

> been anything less!

>

> He has an appointment this coming Tuesday to get the results of his

> Fibro Scan, so wish him luck!

>

[Guest guest]

I guess i answered my own question. I did a google on the statges

and found them on the Mayo Site.

Stages of PSC

Stage 1 — Fibrosis or scar tissue limited to a few spots called

portal areas, little areas of " plumbing " or ductwork in the liver

tissue

Stage 2 — Fibrosis begins to appear outside the portal areas. The

strands of fibrosis are not yet connected to each other.

Stage 3 — Areas of fibrosis connecting to each other

Stage 4 — Widespread, honeycomblike scarring known as cirrhosis

My biopsy showed advancing cirrhosis - so i guess that means I'm am

stage 4. Oh - well - just another day in Paradise.

> >

> > I am really sad to hear just how much fatigue affects sufferers

of

> > PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he

> works

> > long and hard, we used to assume that is was due to that. When

he

> was

> > diagnosed, I think it allowed him, mentally, to accept that there

> was

> > another reason for being so tired and it seems to be worse now

than

> it

> > was 6 months ago. I don't know if this is psychological or

> > physiological...or maybe a bot of both. I guess now that he has

3

> > weeks off over Christmas, we will see if there is any improvement

> in

> > his energy levels.

> >

> > Since reading all the posts about how fatigued so many of you

are,

> I

> > will try to be more sympathetic towards Brad, not that I think I

> have

> > been anything less!

> >

> > He has an appointment this coming Tuesday to get the results of

his

> > Fibro Scan, so wish him luck!

> >

>

[Guest guest]

I guess i answered my own question. I did a google on the statges

and found them on the Mayo Site.

Stages of PSC

Stage 1 — Fibrosis or scar tissue limited to a few spots called

portal areas, little areas of " plumbing " or ductwork in the liver

tissue

Stage 2 — Fibrosis begins to appear outside the portal areas. The

strands of fibrosis are not yet connected to each other.

Stage 3 — Areas of fibrosis connecting to each other

Stage 4 — Widespread, honeycomblike scarring known as cirrhosis

My biopsy showed advancing cirrhosis - so i guess that means I'm am

stage 4. Oh - well - just another day in Paradise.

> >

> > I am really sad to hear just how much fatigue affects sufferers

of

> > PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he

> works

> > long and hard, we used to assume that is was due to that. When

he

> was

> > diagnosed, I think it allowed him, mentally, to accept that there

> was

> > another reason for being so tired and it seems to be worse now

than

> it

> > was 6 months ago. I don't know if this is psychological or

> > physiological...or maybe a bot of both. I guess now that he has

3

> > weeks off over Christmas, we will see if there is any improvement

> in

> > his energy levels.

> >

> > Since reading all the posts about how fatigued so many of you

are,

> I

> > will try to be more sympathetic towards Brad, not that I think I

> have

> > been anything less!

> >

> > He has an appointment this coming Tuesday to get the results of

his

> > Fibro Scan, so wish him luck!

> >

>

[Guest guest]

I guess i answered my own question. I did a google on the statges

and found them on the Mayo Site.

Stages of PSC

Stage 1 — Fibrosis or scar tissue limited to a few spots called

portal areas, little areas of " plumbing " or ductwork in the liver

tissue

Stage 2 — Fibrosis begins to appear outside the portal areas. The

strands of fibrosis are not yet connected to each other.

Stage 3 — Areas of fibrosis connecting to each other

Stage 4 — Widespread, honeycomblike scarring known as cirrhosis

My biopsy showed advancing cirrhosis - so i guess that means I'm am

stage 4. Oh - well - just another day in Paradise.

> >

> > I am really sad to hear just how much fatigue affects sufferers

of

> > PSC. My husband is at Stage 3-4 and is ALWAYS tired but as he

> works

> > long and hard, we used to assume that is was due to that. When

he

> was

> > diagnosed, I think it allowed him, mentally, to accept that there

> was

> > another reason for being so tired and it seems to be worse now

than

> it

> > was 6 months ago. I don't know if this is psychological or

> > physiological...or maybe a bot of both. I guess now that he has

3

> > weeks off over Christmas, we will see if there is any improvement

> in

> > his energy levels.

> >

> > Since reading all the posts about how fatigued so many of you

are,

> I

> > will try to be more sympathetic towards Brad, not that I think I

> have

> > been anything less!

> >

> > He has an appointment this coming Tuesday to get the results of

his

> > Fibro Scan, so wish him luck!

> >

>

[Guest guest]

I think the most important thing is to try and stay positive even when

you feel at your worse as it has been proven that people who give up

die far quicker than people who are per paired to fight so please to

remember that when things gets worse.