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Re: Re: Tracking, Mapping, and Posting LFT results

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,

I did receive it, thank you very much. I like that you noted

anything significant at the bottom. And, it looks like your panels are showing

steady improvement which is great. Thanks again, it was helpful to do a

comparison.

Rick

From:

[mailto: ] On Behalf

Of J

Sent: Sunday, January 04, 2009 7:13 PM

To:

Subject: Re: Tracking, Mapping, and Posting LFT results

Hi Rick

just send you an email, please let me know after a day or two if you

have not received it. I am not that computer savvy and may have not

pushed the right buttons....grin

thanks Heatehr

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,

I did receive it, thank you very much. I like that you noted

anything significant at the bottom. And, it looks like your panels are showing

steady improvement which is great. Thanks again, it was helpful to do a

comparison.

Rick

From:

[mailto: ] On Behalf

Of J

Sent: Sunday, January 04, 2009 7:13 PM

To:

Subject: Re: Tracking, Mapping, and Posting LFT results

Hi Rick

just send you an email, please let me know after a day or two if you

have not received it. I am not that computer savvy and may have not

pushed the right buttons....grin

thanks Heatehr

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Share on other sites

,

I did receive it, thank you very much. I like that you noted

anything significant at the bottom. And, it looks like your panels are showing

steady improvement which is great. Thanks again, it was helpful to do a

comparison.

Rick

From:

[mailto: ] On Behalf

Of J

Sent: Sunday, January 04, 2009 7:13 PM

To:

Subject: Re: Tracking, Mapping, and Posting LFT results

Hi Rick

just send you an email, please let me know after a day or two if you

have not received it. I am not that computer savvy and may have not

pushed the right buttons....grin

thanks Heatehr

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Share on other sites

> How long ago did you have your transplant?

Nearly two years ago now...

>Do they still track your cancer markers and what were yours before

>your transplant?-

They don't track cancer markers any more.. I suppose if the PSC were to

come back they'd probably start again, but I haven't had any since the

transplant. They varied a lot before the transplant. CA19-9 had a

high of 165, and Alpha Fetoprotein had a high of 4.8.

I've posted an Excel file with all my labs pretransplant on the files

section.

athan

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athan,

Thank you for sharing your numbers with us. I’ve

found it very helpful and it has eased my anxiety about where I am right now a

little bit. It’s especially helpful since you are not “on the

other side” with receiving a transplant and we can see how things ramped

up there just before TX. It gives me hope that I may have many years

ahead before I need my TX – if labwork mapping is any indication.

If I may ask (and please don’t feel obligated this might be too

personal), what happened in 1991? It looks like your liver panels were

quite high there and then returned to a more normal level within 6

months. Was this when you were first diagnosed? And, were you put

on any treatment at that time?

Rick

From:

[mailto: ] On Behalf

Of athan

Sent: Wednesday, January 07, 2009 1:50 PM

To:

Subject: Re: Re: Tracking, Mapping, and Posting LFT

results

> How long ago did you have your transplant?

Nearly two years ago now...

>Do they still track your cancer markers and what were yours before

>your transplant?-

They don't track cancer markers any more.. I suppose if the PSC were to

come back they'd probably start again, but I haven't had any since the

transplant. They varied a lot before the transplant. CA19-9 had a

high of 165, and Alpha Fetoprotein had a high of 4.8.

I've posted an Excel file with all my labs pretransplant on the files

section.

athan

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Share on other sites

athan,

Thank you for sharing your numbers with us. I’ve

found it very helpful and it has eased my anxiety about where I am right now a

little bit. It’s especially helpful since you are not “on the

other side” with receiving a transplant and we can see how things ramped

up there just before TX. It gives me hope that I may have many years

ahead before I need my TX – if labwork mapping is any indication.

If I may ask (and please don’t feel obligated this might be too

personal), what happened in 1991? It looks like your liver panels were

quite high there and then returned to a more normal level within 6

months. Was this when you were first diagnosed? And, were you put

on any treatment at that time?

Rick

From:

[mailto: ] On Behalf

Of athan

Sent: Wednesday, January 07, 2009 1:50 PM

To:

Subject: Re: Re: Tracking, Mapping, and Posting LFT

results

> How long ago did you have your transplant?

Nearly two years ago now...

>Do they still track your cancer markers and what were yours before

>your transplant?-

They don't track cancer markers any more.. I suppose if the PSC were to

come back they'd probably start again, but I haven't had any since the

transplant. They varied a lot before the transplant. CA19-9 had a

high of 165, and Alpha Fetoprotein had a high of 4.8.

I've posted an Excel file with all my labs pretransplant on the files

section.

athan

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Share on other sites

athan,

Thank you for sharing your numbers with us. I’ve

found it very helpful and it has eased my anxiety about where I am right now a

little bit. It’s especially helpful since you are not “on the

other side” with receiving a transplant and we can see how things ramped

up there just before TX. It gives me hope that I may have many years

ahead before I need my TX – if labwork mapping is any indication.

If I may ask (and please don’t feel obligated this might be too

personal), what happened in 1991? It looks like your liver panels were

quite high there and then returned to a more normal level within 6

months. Was this when you were first diagnosed? And, were you put

on any treatment at that time?

Rick

From:

[mailto: ] On Behalf

Of athan

Sent: Wednesday, January 07, 2009 1:50 PM

To:

Subject: Re: Re: Tracking, Mapping, and Posting LFT

results

> How long ago did you have your transplant?

Nearly two years ago now...

>Do they still track your cancer markers and what were yours before

>your transplant?-

They don't track cancer markers any more.. I suppose if the PSC were to

come back they'd probably start again, but I haven't had any since the

transplant. They varied a lot before the transplant. CA19-9 had a

high of 165, and Alpha Fetoprotein had a high of 4.8.

I've posted an Excel file with all my labs pretransplant on the files

section.

athan

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In '91 I'd been having what turned out to be gallbladder problems for a

while. I ended up with a bad blockage, likely due to a stone. They

suspected PSC, because of a history of UC in my family and because I

didn't fit the demographic for gallstones. It turned out that the

gallstones were cause by the PSC. The blockage cleared on it's own the

day before my first ERCP.

athan

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In '91 I'd been having what turned out to be gallbladder problems for a

while. I ended up with a bad blockage, likely due to a stone. They

suspected PSC, because of a history of UC in my family and because I

didn't fit the demographic for gallstones. It turned out that the

gallstones were cause by the PSC. The blockage cleared on it's own the

day before my first ERCP.

athan

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Share on other sites

In '91 I'd been having what turned out to be gallbladder problems for a

while. I ended up with a bad blockage, likely due to a stone. They

suspected PSC, because of a history of UC in my family and because I

didn't fit the demographic for gallstones. It turned out that the

gallstones were cause by the PSC. The blockage cleared on it's own the

day before my first ERCP.

athan

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