Re: symptoms have changed why?

[Guest guest]

Your disease may be progressing – these are all common symptoms,

assuming that the pain is high on the right side. Have you had LFT yet? Do you

keep copies of the blood test results looking for trends?

Anita

From:

[mailto: ] On Behalf

Of pssquill

Sent: Tuesday, January 06, 2009 3:04 AM

To:

Subject: symptoms have changed why?

I had PSC for 15 years, but now the symptoms

have changed. I have

right side pain (4 to 8 out of a 10 pain scale), breathless, and

fatigue. Does anyone have an idea of what this means? Has anyone

experienced these symptoms?

[Guest guest]

I am going through that right now and am trying to get into to see my

Doctor, I fear that he will think I am nuts, but something is wrong.

I am so tired and am having trouble breathing. I have this

pressure/ache on my rightside that is different then what I am used

to. My joints hurt. my eyes are really dry and I itch. No jaundice,

no temp, no swelling, no nausea. I just got tomorrow off from work so

at 9 I am going to ask my Dr to work me into his schedule for

tomorrow.

Dawn

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>

[Guest guest]

I am going through that right now and am trying to get into to see my

Doctor, I fear that he will think I am nuts, but something is wrong.

I am so tired and am having trouble breathing. I have this

pressure/ache on my rightside that is different then what I am used

to. My joints hurt. my eyes are really dry and I itch. No jaundice,

no temp, no swelling, no nausea. I just got tomorrow off from work so

at 9 I am going to ask my Dr to work me into his schedule for

tomorrow.

Dawn

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>

[Guest guest]

I am going through that right now and am trying to get into to see my

Doctor, I fear that he will think I am nuts, but something is wrong.

I am so tired and am having trouble breathing. I have this

pressure/ache on my rightside that is different then what I am used

to. My joints hurt. my eyes are really dry and I itch. No jaundice,

no temp, no swelling, no nausea. I just got tomorrow off from work so

at 9 I am going to ask my Dr to work me into his schedule for

tomorrow.

Dawn

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>

[Guest guest]

I was told almost 5 yars ago that I have small duct PSC, but have had

all the symptoms you have and more. I take something for the pain

everyday,rest when I can for the fatigue, have not had breathless, my

pain can sometimes be a 10 with out meds on board. The breathless may

be your liver in largeing from what I understand you might have that

check. I was also told they think that I have had it long than 5 years

that is just when they found out what it was. I have also turned the

such a pretty color of bright yelleow ( we laugh about it ) my boss and

good friend calls me her sunshine.hahah you have to laugh about it all

sometimes or you will cry.... I itch a lot want to pruke alot, and

sometime just want to sleep for ever, but I just keep putting one foot

in front of the other. I fell holding on to Gods hand everyday, haveing

a wonderful support group like my sister, close frineds, and my

wonderful love of my life my 17 year old son helps. When he first found

out he freked out we still have our bumps, but I would say there is not

a day that goes by that we do not talk or email each other. He lives

with his dad that seems to be easy for him he says. That way he does

not have to watch all the changes that I am going through. Which is

oaky with me as long as we can talk. More infor then you asked for .

Sorry

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>

[Guest guest]

I do keep track of the blood work but it does not show any decrease in

liver function.

>

> Your disease may be progressing - these are all common symptoms,

assuming

> that the pain is high on the right side. Have you had LFT yet? Do

you keep

> copies of the blood test results looking for trends?

>

>

>

> Anita

>

>

>

> From:

[mailto: ] On

> Behalf Of pssquill

> Sent: Tuesday, January 06, 2009 3:04 AM

> To:

> Subject: symptoms have changed why?

>

>

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>

[Guest guest]

I do keep track of the blood work but it does not show any decrease in

liver function.

>

> Your disease may be progressing - these are all common symptoms,

assuming

> that the pain is high on the right side. Have you had LFT yet? Do

you keep

> copies of the blood test results looking for trends?

>

>

>

> Anita

>

>

>

> From:

[mailto: ] On

> Behalf Of pssquill

> Sent: Tuesday, January 06, 2009 3:04 AM

> To:

> Subject: symptoms have changed why?

>

>

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>

[Guest guest]

You emailed me and asked for information as to what my doctor had to

say. I have tried to respond to you but the emails keep coming back.

If you would like more details then I have already posted please send

me an email address that I can contact you at

Dawn

>

> I had PSC for 15 years, but now the symptoms have changed. I have

> right side pain (4 to 8 out of a 10 pain scale), breathless, and

> fatigue. Does anyone have an idea of what this means? Has anyone

> experienced these symptoms?

>