Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 I just joined the group a short time ago and haven't posted much as I have been feeling really good and been out and about enjoying myself! Anywayz I myself was on chemo for a short time after I was diagnosed with lupus. Called Cytoxan. It made me really nauseas, and the Dr put me on a drug called Zofran. It helped a lot with the nausea, but it is very expensive, about $8 a pill! The chemo did not work for me as they had hoped though as my kidneys were getting worse. So they took me off of it. If you have any other questions feel free to ask me I am always willing to help out where I can I've read a lot of the stories about bad Dr's I have been very lucky with my Dr's they are great! I have a Rheumy and Neuphrologist, I also have a PCP but he doesn't deal to much with me which is fine with me cuz less people messin with my body the better as I see it! Both my Dr's have sat with me all night in the hospital on many occasions to make sure I was all right. They also go over EVERYTHING with me and listen to my complaints and problems and try to find a way to make that not so much a problem anymore. They also make sure I have an input in my care, which really helps me to feel that I have some control over this damn disease! Hi to all the other new members! And Happy B-day's and anniversaries that I missed! I know I went on for a bit sorry bout that but just thought I'd put my two cents in. Hope all that are sick get feeling super better soon! Talk to yall laterz! ~Laci~ Subject: I have not got response.I am still waiting to talk to some one about this chemo stuff. I really would like to know is it helpful or is it something I need to say no!!!!!! I have the option. I asked for some time to talk it over with my family. My home family will not talk to me about it so now I have to rely just on my lupie family. Love bunches MISSY Quote Link to comment Share on other sites More sharing options...
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