RE: New to the game

[Guest guest]

Hi Rob

Glad you have found us, sorry you needed to.

At first it’s really daunting and depressing – very understandable,

but never fear. If you are like most people the shock wears off and natural

optimism takes over.

·

This isn’t a death sentence. Some of us have had the

disease for years, and still feel pretty decent with treatment.

·

Transplants aren’t the end of the world either. I’m

sure some of the folks who have already had theirs will chime in. I’m waiting

for mine. The worst part is the waiting. You have kids, so you will understand.

It feels most like being pregnant. You know you are going to the hospital, you

just don’t know when.

·

There are a lot of speculations about cause and diets. I haven’t

done as much research as some of the people here, so keep checking the list and

look through the archives. There seems to be a genetic aspect, and probably

some kind of trigger. But there is research going on to try to find a cure.

·

There are good treatments out there. Stents help some. Biliary

drainage catheters, some. Most of us take something to thin the bile and keep

it flowing. There are anti-itch meds, etc.

·

We are all in this together. Some have UC or IBS in addition to

PSC and some don’t, but we are all going to support you.

Make sure you have a good transplant center. Make sure your

doctors talk to you and explain things fully. Make sure they listen to you. You

know your body best, and you will get to know it better.

Take care,

Anita

======================

My wife and I are kind of lost at sea right now

trying to make the best

out of a situation that the medical professionals are making it to

sound like a coffin getting built.

[Guest guest]

Hi Rob. Wow you are very new to all of this. First of all, I think you did the

right thing by

joining this message board. There are PLENTY of stories of hope on here. It IS

very scary.

My husband was diagnosed 8 or 9 years ago, before I even knew him. At the time

he was a

SINGLE dad raising a little baby girl by himself. He's gone through the whole

anger,

depression, denial thing. I think all of that is totally normal. He's now at the

stage of the

game where he is about to be listed for transplant. We got for the majority of

his work up

on Feb 12. His cardiac stress test is March 2. He should be listed by mid March

hopefully.

It is all VERY scary but one thing we're learning is to lean on each other. When

he's having

a day where he feels like falling apart, I hold him up and he does the same for

me. I would

recommend educating yourself the best you can because if you end up back in the

ER,

you'll need to be able to tell the medical staff about PSC because most of them

look at

you like you have 12 heads. LOL Another word of advice-let your wife know that

it's ok if

she's scared too and that she can talk to you about however she's feeling. The

spouses are

usually over looked because we aren't the ones who are sick but as your

caregivers, we

ARE going through it with you. I'm pregnant and my hubby begged me not to go on

an

antidepressant and offered to give himself his own IV meds and help more around

the

house. I finally told him that this disease affects me too and everything we

have coming up

in our lives him doing his own meds or washing a dish once in a while ultimately

is NOT

the source of the stress. There is nothing you can do to take away the worry but

letting

her know she can talk to you about it will help. I wish you health and happiness

and enjoy

your wife and children every day that you feel well and are able. And even

though

transplant is a scary prospect, by the time you get to that point, believe me,

you will be

ready for it. It's definitely not the end of the world. If anything, it's a new

lease on life.

Hang in there and know that we are all here for you & your wife too.

Bobbi

[Guest guest]

This group is outstanding. They are

positive and knowledgeable.

Let me emphasize that PSC is not a death

sentence. I was diagnosed in 1990, but am sure I had both PSC and UC in

1987 when I had an episode that the doctors diagnosed as passing a gall stone.

After my diagnosis I was able to lead a fairly normal life. I had a few flares,

had to have regular follow-up, and had to take medication but I was able to do

all of the things I wanted to do.

In mid-2007 I had a flare and became very

sick with highly elevated liver enzymes. My bile ducts were too far gone

to do anything, so I was listed for transplant. In a lot of ways I was

very lucky that my health went downhill so fast. I did not spend a lot of

time waiting for a transplant. The transplant went well and I am back to

a regular life with no restrictions. I do watch my sugar and salt intake

and I must take medication to prevent rejection, but I no longer need the Urso

and folic acid for the PSC or the sulfasalizine for the UC. I take fewer

meds than I did pre-transplant.

I think the key is a positive attitude and

when possible keep stress as low you can. It is something that you will

develop as the initial shock and anger wear off. Getting both the UC and

PSC diagnoses in a short time is one heck of a shock. I do think, at

least in my case, that stress plays a part in the behavior of both

diseases. The higher the stress the more likely the disease will

misbehave.

Joe

PSC & UC -

1990; Liver Transplant - 2007

From:

[mailto: ] On Behalf Of robnjanine2001

Sent: Sunday, February 08, 2009

7:58 AM

To:

Subject: New to the

game

hi everyone. I just was diagnosed on 2/4/09 and never

saw it coming. Im

glad that some people have a positive outlook on this board because

when I found out I was terrified and the web didnt offer me much more

that panic. I went to the ER on the 2nd for elevated pancreatic and

liver enzymes that my DR found and just got home yesterday with 2

stents and a very strict diet. I have been very upset about this

because I never saw it coming, im a married 32 year old father of 3 and

the youngest is only 3.5 months old. Then all of the sudden out of the

blue I have my G.I. talking about transplants and pain( although i

already new about pain, the stents were very challenging for the

doctors and I woke up screaming until put on a full morphine drip)and

all of these other complications so Im obviosly a little depressed.

Does anyone know about alternative treatments or better eating ideas?

My wife and I are kind of lost at sea right now trying to make the best

out of a situation that the medical professionals are making it to

sound like a coffin getting built.

[Guest guest]

Rob,

Welcome to the group. You situation sounds a lot like mine when I was first diagnose. I was 33 and had 2 young sons and became very ill. They operated; took out the gall bladder, part of the pancreas, and all the bile ducts outside of the liver (they replaced them with a section off bowel). Shortly after the diagnosis we were given an old medical text that gave a life expectancy of someone diagnosed with PSC and symptomatic at 6 years. We were devastated. The good news is that was almost 20 years ago.. We now have 4 sons (23, 21, 17 & 14), I'm for the most part symptom free (Some fatigue and occasional mild itching), I still have my God given liver, do not expect to need liver transplant anytime soon (but it nice to have that possibility to fall back on). They are continually making medical advances and that old text and a lot of what you find on the Internet is dated. Its good to find this group and know you are not alone (I didn't find it until 18 years after diagnosis), there are several in this group that were diagnosed before me so you can still look forward to a long life. Keep the faith and the faith will keep you.

Ian (52) PSC 89

P.S.. we will pray for you and your family!

hi everyone. I just was diagnosed on 2/4/09 and never saw it coming. Im glad that some people have a positive outlook on this board because when I found out I was terrified and the web didnt offer me much more

that panic. I went to the ER on the 2nd for elevated pancreatic and liver enzymes that my DR found and just got home yesterday with 2 stents and a very strict diet. I have been very upset about this because I never saw it coming, im a married 32 year old father of 3 and

the youngest is only 3.5 months old. Then all of the sudden out of the blue I have my G.I. talking about transplants and pain( although i already new about pain, the stents were very challenging for the doctors and I woke up screaming until put on a full morphine drip)and

all of these other complications so Im obviosly a little depressed. Does anyone know about alternative treatments or better eating ideas? My wife and I are kind of lost at sea right now trying to make the best

out of a situation that the medical professionals are making it to sound like a coffin getting built.

-- Ian Cribb P.Eng. (6...

[Guest guest]

Rob,

Welcome to the group. You situation sounds a lot like mine when I was first diagnose. I was 33 and had 2 young sons and became very ill. They operated; took out the gall bladder, part of the pancreas, and all the bile ducts outside of the liver (they replaced them with a section off bowel). Shortly after the diagnosis we were given an old medical text that gave a life expectancy of someone diagnosed with PSC and symptomatic at 6 years. We were devastated. The good news is that was almost 20 years ago.. We now have 4 sons (23, 21, 17 & 14), I'm for the most part symptom free (Some fatigue and occasional mild itching), I still have my God given liver, do not expect to need liver transplant anytime soon (but it nice to have that possibility to fall back on). They are continually making medical advances and that old text and a lot of what you find on the Internet is dated. Its good to find this group and know you are not alone (I didn't find it until 18 years after diagnosis), there are several in this group that were diagnosed before me so you can still look forward to a long life. Keep the faith and the faith will keep you.

Ian (52) PSC 89

P.S.. we will pray for you and your family!

hi everyone. I just was diagnosed on 2/4/09 and never saw it coming. Im glad that some people have a positive outlook on this board because when I found out I was terrified and the web didnt offer me much more

that panic. I went to the ER on the 2nd for elevated pancreatic and liver enzymes that my DR found and just got home yesterday with 2 stents and a very strict diet. I have been very upset about this because I never saw it coming, im a married 32 year old father of 3 and

the youngest is only 3.5 months old. Then all of the sudden out of the blue I have my G.I. talking about transplants and pain( although i already new about pain, the stents were very challenging for the doctors and I woke up screaming until put on a full morphine drip)and

all of these other complications so Im obviosly a little depressed. Does anyone know about alternative treatments or better eating ideas? My wife and I are kind of lost at sea right now trying to make the best

out of a situation that the medical professionals are making it to sound like a coffin getting built.

-- Ian Cribb P.Eng. (6...

[Guest guest]

Joe,

I couldn't agree with you more. I had

several episodes of cholangitis lately, and they were all when I was in a lot

of stress at work.

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of Joe Berry

Sent: Sunday, February 08, 2009

19:01

To:

Subject: RE: New to

the game

This group is outstanding. They are positive and

knowledgeable.

Let me emphasize that PSC is not a death sentence. I was

diagnosed in 1990, but am sure I had both PSC and UC in 1987 when I had an

episode that the doctors diagnosed as passing a gall stone. After my

diagnosis I was able to lead a fairly normal life. I had a few flares,

had to have regular follow-up, and had to take medication but I was able to do

all of the things I wanted to do.

In mid-2007 I had a flare and became very sick with highly elevated

liver enzymes. My bile ducts were too far gone to do anything, so I was

listed for transplant. In a lot of ways I was very lucky that my health

went downhill so fast. I did not spend a lot of time waiting for a

transplant. The transplant went well and I am back to a regular life with

no restrictions. I do watch my sugar and salt intake and I must take

medication to prevent rejection, but I no longer need the Urso and folic acid

for the PSC or the sulfasalizine for the UC. I take fewer meds than I did

pre-transplant.

I think the key is a positive attitude and when possible keep

stress as low you can. It is something that you will develop as the

initial shock and anger wear off. Getting both the UC and PSC diagnoses

in a short time is one heck of a shock. I do think, at least in my case,

that stress plays a part in the behavior of both diseases. The higher the

stress the more likely the disease will misbehave.

Joe

PSC & UC - 1990; Liver Transplant - 2007

From:

[mailto: ]

On Behalf Of robnjanine2001

Sent: Sunday, February 08, 2009

7:58 AM

To:

Subject: New to the

game

hi

everyone. I just was diagnosed on 2/4/09 and never saw it coming. Im

glad that some people have a positive outlook on this board because

when I found out I was terrified and the web didnt offer me much more

that panic. I went to the ER on the 2nd for elevated pancreatic and

liver enzymes that my DR found and just got home

yesterday with 2

stents and a very strict diet. I have been very upset about this

because I never saw it coming, im a married 32 year old father of 3 and

the youngest is only 3.5 months old. Then all of the sudden out of the

blue I have my G.I. talking about transplants and pain( although i

already new about pain, the stents were very challenging for the

doctors and I woke up screaming until put on a full morphine drip)and

all of these other complications so Im obviosly a little depressed.

Does anyone know about alternative treatments or better eating ideas?

My wife and I are kind of lost at sea right now trying to make the best

out of a situation that the medical professionals are making it to

sound like a coffin getting built.

[Guest guest]

Both of mine were at company conferences away from home. As I was

actually closer to the hospital at the conference than if I'd been at

home, I drove myself to the ER both times.

Arne

================

I couldn't agree with you more. I had several episodes of cholangitis

lately, and they were all when I was in a lot of stress at work.

[Guest guest]

Hey Chaim,

I live in Beitar Elite. How old are and how long have you had psc? do you know others i israel that have late stagepsc? what do you do if you need a tansplant over here? you go to america? do you have coverage there?

buy the way what do you mean by bouts of cholongitis?

hershel

Subject: RE: New to the gameTo: Date: Monday, February 9, 2009, 12:49 PM

Joe,

I couldn't agree with you more. I had several episodes of cholangitis lately, and they were all when I was in a lot of stress at work.

Regards,

Chaim Boermeester, Israel

From: @ yahoogroups. com [mailto: @ yahoogroups. com ] On Behalf Of Joe BerrySent: Sunday, February 08, 2009 19:01To: @ yahoogroups. comSubject: RE: New to the game

This group is outstanding. They are positive and knowledgeable.

Let me emphasize that PSC is not a death sentence. I was diagnosed in 1990, but am sure I had both PSC and UC in 1987 when I had an episode that the doctors diagnosed as passing a gall stone. After my diagnosis I was able to lead a fairly normal life. I had a few flares, had to have regular follow-up, and had to take medication but I was able to do all of the things I wanted to do.

In mid-2007 I had a flare and became very sick with highly elevated liver enzymes. My bile ducts were too far gone to do anything, so I was listed for transplant. In a lot of ways I was very lucky that my health went downhill so fast. I did not spend a lot of time waiting for a transplant. The transplant went well and I am back to a regular life with no restrictions. I do watch my sugar and salt intake and I must take medication to prevent rejection, but I no longer need the Urso and folic acid for the PSC or the sulfasalizine for the UC. I take fewer meds than I did pre-transplant.

I think the key is a positive attitude and when possible keep stress as low you can. It is something that you will develop as the initial shock and anger wear off. Getting both the UC and PSC diagnoses in a short time is one heck of a shock. I do think, at least in my case, that stress plays a part in the behavior of both diseases. The higher the stress the more likely the disease will misbehave.

Joe

PSC & UC - 1990; Liver Transplant - 2007

From: @ yahoogroups. com [mailto: psc- support@yahoogro ups.com ] On Behalf Of robnjanine2001Sent: Sunday, February 08, 2009 7:58 AMTo: @ yahoogroups. comSubject: New to the game

hi everyone. I just was diagnosed on 2/4/09 and never saw it coming. Im glad that some people have a positive outlook on this board because when I found out I was terrified and the web didnt offer me much more that panic. I went to the ER on the 2nd for elevated pancreatic and liver enzymes that my DR found and just got home yesterday with 2 stents and a very strict diet. I have been very upset about this because I never saw it coming, im a married 32 year old father of 3 and the youngest is only 3.5 months old. Then all of the sudden out of the blue I have my G.I. talking about transplants and pain( although i already new about pain, the stents were very challenging for the doctors and I woke up screaming until put on a full morphine drip)and all of these other complications so Im obviosly a little depressed. Does anyone know about

alternative treatments or better eating ideas? My wife and I are kind of lost at sea right now trying to make the best out of a situation that the medical professionals are making it to sound like a coffin getting built.

[Guest guest]

Hey Chaim,

I live in Beitar Elite. How old are and how long have you had psc? do you know others i israel that have late stagepsc? what do you do if you need a tansplant over here? you go to america? do you have coverage there?

buy the way what do you mean by bouts of cholongitis?

hershel

Subject: RE: New to the gameTo: Date: Monday, February 9, 2009, 12:49 PM

Joe,

I couldn't agree with you more. I had several episodes of cholangitis lately, and they were all when I was in a lot of stress at work.

Regards,

Chaim Boermeester, Israel

From: @ yahoogroups. com [mailto: @ yahoogroups. com ] On Behalf Of Joe BerrySent: Sunday, February 08, 2009 19:01To: @ yahoogroups. comSubject: RE: New to the game

This group is outstanding. They are positive and knowledgeable.

Let me emphasize that PSC is not a death sentence. I was diagnosed in 1990, but am sure I had both PSC and UC in 1987 when I had an episode that the doctors diagnosed as passing a gall stone. After my diagnosis I was able to lead a fairly normal life. I had a few flares, had to have regular follow-up, and had to take medication but I was able to do all of the things I wanted to do.

In mid-2007 I had a flare and became very sick with highly elevated liver enzymes. My bile ducts were too far gone to do anything, so I was listed for transplant. In a lot of ways I was very lucky that my health went downhill so fast. I did not spend a lot of time waiting for a transplant. The transplant went well and I am back to a regular life with no restrictions. I do watch my sugar and salt intake and I must take medication to prevent rejection, but I no longer need the Urso and folic acid for the PSC or the sulfasalizine for the UC. I take fewer meds than I did pre-transplant.

I think the key is a positive attitude and when possible keep stress as low you can. It is something that you will develop as the initial shock and anger wear off. Getting both the UC and PSC diagnoses in a short time is one heck of a shock. I do think, at least in my case, that stress plays a part in the behavior of both diseases. The higher the stress the more likely the disease will misbehave.

Joe

PSC & UC - 1990; Liver Transplant - 2007

From: @ yahoogroups. com [mailto: psc- support@yahoogro ups.com ] On Behalf Of robnjanine2001Sent: Sunday, February 08, 2009 7:58 AMTo: @ yahoogroups. comSubject: New to the game

hi everyone. I just was diagnosed on 2/4/09 and never saw it coming. Im glad that some people have a positive outlook on this board because when I found out I was terrified and the web didnt offer me much more that panic. I went to the ER on the 2nd for elevated pancreatic and liver enzymes that my DR found and just got home yesterday with 2 stents and a very strict diet. I have been very upset about this because I never saw it coming, im a married 32 year old father of 3 and the youngest is only 3.5 months old. Then all of the sudden out of the blue I have my G.I. talking about transplants and pain( although i already new about pain, the stents were very challenging for the doctors and I woke up screaming until put on a full morphine drip)and all of these other complications so Im obviosly a little depressed. Does anyone know about

alternative treatments or better eating ideas? My wife and I are kind of lost at sea right now trying to make the best out of a situation that the medical professionals are making it to sound like a coffin getting built.

[Guest guest]

Hey Chaim,

I live in Beitar Elite. How old are and how long have you had psc? do you know others i israel that have late stagepsc? what do you do if you need a tansplant over here? you go to america? do you have coverage there?

buy the way what do you mean by bouts of cholongitis?

hershel

Subject: RE: New to the gameTo: Date: Monday, February 9, 2009, 12:49 PM

Joe,

I couldn't agree with you more. I had several episodes of cholangitis lately, and they were all when I was in a lot of stress at work.

Regards,

Chaim Boermeester, Israel

From: @ yahoogroups. com [mailto: @ yahoogroups. com ] On Behalf Of Joe BerrySent: Sunday, February 08, 2009 19:01To: @ yahoogroups. comSubject: RE: New to the game

This group is outstanding. They are positive and knowledgeable.

Let me emphasize that PSC is not a death sentence. I was diagnosed in 1990, but am sure I had both PSC and UC in 1987 when I had an episode that the doctors diagnosed as passing a gall stone. After my diagnosis I was able to lead a fairly normal life. I had a few flares, had to have regular follow-up, and had to take medication but I was able to do all of the things I wanted to do.

In mid-2007 I had a flare and became very sick with highly elevated liver enzymes. My bile ducts were too far gone to do anything, so I was listed for transplant. In a lot of ways I was very lucky that my health went downhill so fast. I did not spend a lot of time waiting for a transplant. The transplant went well and I am back to a regular life with no restrictions. I do watch my sugar and salt intake and I must take medication to prevent rejection, but I no longer need the Urso and folic acid for the PSC or the sulfasalizine for the UC. I take fewer meds than I did pre-transplant.

I think the key is a positive attitude and when possible keep stress as low you can. It is something that you will develop as the initial shock and anger wear off. Getting both the UC and PSC diagnoses in a short time is one heck of a shock. I do think, at least in my case, that stress plays a part in the behavior of both diseases. The higher the stress the more likely the disease will misbehave.

Joe

PSC & UC - 1990; Liver Transplant - 2007

From: @ yahoogroups. com [mailto: psc- support@yahoogro ups.com ] On Behalf Of robnjanine2001Sent: Sunday, February 08, 2009 7:58 AMTo: @ yahoogroups. comSubject: New to the game

hi everyone. I just was diagnosed on 2/4/09 and never saw it coming. Im glad that some people have a positive outlook on this board because when I found out I was terrified and the web didnt offer me much more that panic. I went to the ER on the 2nd for elevated pancreatic and liver enzymes that my DR found and just got home yesterday with 2 stents and a very strict diet. I have been very upset about this because I never saw it coming, im a married 32 year old father of 3 and the youngest is only 3.5 months old. Then all of the sudden out of the blue I have my G.I. talking about transplants and pain( although i already new about pain, the stents were very challenging for the doctors and I woke up screaming until put on a full morphine drip)and all of these other complications so Im obviosly a little depressed. Does anyone know about

alternative treatments or better eating ideas? My wife and I are kind of lost at sea right now trying to make the best out of a situation that the medical professionals are making it to sound like a coffin getting built.

[Guest guest]

Hi Hershel,

I am 40 years old, and I was diagnosed in

2003, but I had elevated liver enzymes in 2001 already.

I do know several other PSC patients in Israel, but

from only one I could say that he is in a late stage. He had his evaluation for

transplant two years ago.

There are transplants performed here in Israel

of course, but the demand is way higher than the supply.

I am lucky to have an insurance (at my

work) that insures transplants outside Israel as well. I don't think the US is the best

option for me. I have Dutch citizenship so maybe I will go somewhere in Europe.

With cholangitis I mean that I had an

infection in my bile ducts, caused (probably) by a blockage in the bile ducts. I

had high fever and chills and had to go to the hospital to get IV antibiotics.

I had two ERCPs performed in the last two months.

Attached please find the Hebrew version of

the PSC partners brochure.

If you have any further questions, please

contact me at:

Sykoh1@...

Chaim Boermeester, Netanya, Israel

From: [mailto: ] On Behalf Of Bob Gruenberg

Sent: Monday, February 09, 2009

21:48

To:

Subject: RE: New to

the game

Hey Chaim,

I live in Beitar Elite. How old are and how

long have you had psc? do you know others i israel that have late stage

psc? what do you do if you need a tansplant over here? you go to america?

do you have coverage there?

buy the way what do you mean by bouts of

cholongitis?

hershel

From: Chaim Boermeester

<cboer (AT) rugged (DOT) com>

Subject: RE: New to the game

To:

Date: Monday, February 9, 2009, 12:49 PM

Joe,

I couldn't agree with you more. I had several episodes of

cholangitis lately, and they were all when I was in a lot of stress at work.

Regards,

Chaim Boermeester, Israel

From: @ yahoogroups. com

[mailto: @ yahoogroups. com ] On

Behalf Of Joe Berry

Sent: Sunday, February 08, 2009

19:01

To: @ yahoogroups.

com

Subject: RE: New

to the game

This group is outstanding. They are positive and

knowledgeable.

Let me emphasize that PSC is not a death sentence. I was

diagnosed in 1990, but am sure I had both PSC and UC in 1987 when I had an

episode that the doctors diagnosed as passing a gall stone. After my

diagnosis I was able to lead a fairly normal life. I had a few flares,

had to have regular follow-up, and had to take medication but I was able to

do all of the things I wanted to do.

In mid-2007 I had a flare and became very sick with highly

elevated liver enzymes. My bile ducts were too far gone to do anything,

so I was listed for transplant. In a lot of ways I was very lucky that

my health went downhill so fast. I did not spend a lot of time waiting

for a transplant. The transplant went well and I am back to a regular

life with no restrictions. I do watch my sugar and salt intake and I

must take medication to prevent rejection, but I no longer need the Urso and

folic acid for the PSC or the sulfasalizine for the UC. I take fewer

meds than I did pre-transplant.

I think the key is a positive attitude and when possible keep

stress as low you can. It is something that you will develop as the

initial shock and anger wear off. Getting both the UC and PSC diagnoses

in a short time is one heck of a shock. I do think, at least in my

case, that stress plays a part in the behavior of both diseases. The

higher the stress the more likely the disease will misbehave.

Joe

PSC & UC - 1990; Liver Transplant

- 2007

From: @ yahoogroups. com

[mailto: psc- support@yahoogro ups.com ] On

Behalf Of robnjanine2001

Sent: Sunday, February 08, 2009

7:58 AM

To: @ yahoogroups.

com

Subject: New to

the game

hi everyone. I just was diagnosed on 2/4/09 and

never saw it coming. Im

glad that some people have a positive outlook on this board because

when I found out I was terrified and the web didnt offer me much more

that panic. I went to the ER on the 2nd for elevated pancreatic and

liver enzymes that my DR found and just got home

yesterday with 2

stents and a very strict diet. I have been very upset about this

because I never saw it coming, im a married 32 year old father of 3 and

the youngest is only 3.5 months old. Then all of the sudden out of the

blue I have my G.I. talking about transplants and pain( although i

already new about pain, the stents were very challenging for the

doctors and I woke up screaming until put on a full morphine drip)and

all of these other complications so Im obviosly a little depressed.

Does anyone know about alternative treatments or better eating ideas?

My wife and I are kind of lost at sea right now trying to make the best

out of a situation that the medical professionals are making it to

sound like a coffin getting built.