Re: Newly diagnosed, with questions

[Guest guest]

Hi Youske,

Welcome to our group. I am sorry you had

to go look for us because of a PSC diagnose, but I am happy you found us.

Mayo Rochester is indeed THE place to go

for a second opinion. Dr Lindor is considered to be the most knowledgeable

for PSC there.

The most prescribed medicine for PSC is

ursodeoxycholic acid (UDCA), which is directly taken from Chinese medicine. Another

naturopathic medicine taken by more than a few people here is milk thistle. I

don't have experience with milk thistle but I do take the synthetic form of UDCA.

I am sure you will get more suggestions

from other people soon.

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of Youske Eto

Sent: Thursday, February 05, 2009

07:49

To:

Subject: Newly

diagnosed, with questions

Hello! My name is Youske from Portland, OR.

I'm 37 yrs old, originally from Japan.

I was diagnosed with PSC 2 weeks ago after an MRI/MRCP and a liver

biopsy (from which I had an internal bleed and lost over 40% of my blood

volume! Thank goodness I've recovered from that now.). So I have

some questions and I would be grateful for your suggestions/opinions.

1. I'm planning to get a second opinion re: diagnosis and treatment,

and my Hepatologist suggested the Mayo Clinic in Rochester, MN.

Any suggestions on the best doctors at Mayo Clinic in terms of

experience/expertise with PSC? I would like a doctor who

is concerned foremost re: our well being as an individual rather than being

quick to recruit us for some kind of clinical trial.

2. I also would like to know what kinds of alternative treatment are available,

such as naturopathic, Chinese medicine, etc. Recommended diet for someone

with PSC would be very helpful as well. (My PCP who is well versed re:

naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and

told me to get a book on this by Black, ND, as PSC is most

fundamentally an inflammatory process according to her.)

Thank you so much in advance for your help and I look forward to

this wonderful forum of support!

Youske

[Guest guest]

Hi Youske,

Welcome to our group. I am sorry you had

to go look for us because of a PSC diagnose, but I am happy you found us.

Mayo Rochester is indeed THE place to go

for a second opinion. Dr Lindor is considered to be the most knowledgeable

for PSC there.

The most prescribed medicine for PSC is

ursodeoxycholic acid (UDCA), which is directly taken from Chinese medicine. Another

naturopathic medicine taken by more than a few people here is milk thistle. I

don't have experience with milk thistle but I do take the synthetic form of UDCA.

I am sure you will get more suggestions

from other people soon.

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of Youske Eto

Sent: Thursday, February 05, 2009

07:49

To:

Subject: Newly

diagnosed, with questions

Hello! My name is Youske from Portland, OR.

I'm 37 yrs old, originally from Japan.

I was diagnosed with PSC 2 weeks ago after an MRI/MRCP and a liver

biopsy (from which I had an internal bleed and lost over 40% of my blood

volume! Thank goodness I've recovered from that now.). So I have

some questions and I would be grateful for your suggestions/opinions.

1. I'm planning to get a second opinion re: diagnosis and treatment,

and my Hepatologist suggested the Mayo Clinic in Rochester, MN.

Any suggestions on the best doctors at Mayo Clinic in terms of

experience/expertise with PSC? I would like a doctor who

is concerned foremost re: our well being as an individual rather than being

quick to recruit us for some kind of clinical trial.

2. I also would like to know what kinds of alternative treatment are available,

such as naturopathic, Chinese medicine, etc. Recommended diet for someone

with PSC would be very helpful as well. (My PCP who is well versed re:

naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and

told me to get a book on this by Black, ND, as PSC is most

fundamentally an inflammatory process according to her.)

Thank you so much in advance for your help and I look forward to

this wonderful forum of support!

Youske

[Guest guest]

Hi Youske,

Welcome to our group. I am sorry you had

to go look for us because of a PSC diagnose, but I am happy you found us.

Mayo Rochester is indeed THE place to go

for a second opinion. Dr Lindor is considered to be the most knowledgeable

for PSC there.

The most prescribed medicine for PSC is

ursodeoxycholic acid (UDCA), which is directly taken from Chinese medicine. Another

naturopathic medicine taken by more than a few people here is milk thistle. I

don't have experience with milk thistle but I do take the synthetic form of UDCA.

I am sure you will get more suggestions

from other people soon.

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of Youske Eto

Sent: Thursday, February 05, 2009

07:49

To:

Subject: Newly

diagnosed, with questions

Hello! My name is Youske from Portland, OR.

I'm 37 yrs old, originally from Japan.

I was diagnosed with PSC 2 weeks ago after an MRI/MRCP and a liver

biopsy (from which I had an internal bleed and lost over 40% of my blood

volume! Thank goodness I've recovered from that now.). So I have

some questions and I would be grateful for your suggestions/opinions.

1. I'm planning to get a second opinion re: diagnosis and treatment,

and my Hepatologist suggested the Mayo Clinic in Rochester, MN.

Any suggestions on the best doctors at Mayo Clinic in terms of

experience/expertise with PSC? I would like a doctor who

is concerned foremost re: our well being as an individual rather than being

quick to recruit us for some kind of clinical trial.

2. I also would like to know what kinds of alternative treatment are available,

such as naturopathic, Chinese medicine, etc. Recommended diet for someone

with PSC would be very helpful as well. (My PCP who is well versed re:

naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and

told me to get a book on this by Black, ND, as PSC is most

fundamentally an inflammatory process according to her.)

Thank you so much in advance for your help and I look forward to

this wonderful forum of support!

Youske

[Guest guest]

I suggest Dr. Lindor at the Mayo Clinic. He is the world's leading authority on PSC. I have been seeing him for 15 years and he is a great guy as well.Subject: Newly diagnosed, with questionsTo: Date: Thursday, February 5, 2009, 5:48 AM

Hello! My name is Youske from Portland, OR. I'm 37 yrs old, originally from Japan. I was diagnosed with PSC 2 weeks ago after an MRI/MRCP and a liver biopsy (from which I had an internal bleed and lost over 40% of my blood volume! Thank goodness I've recovered from that now.). So I have some questions and I would be grateful for your suggestions/ opinions.

1. I'm planning to get a second opinion re: diagnosis and treatment, and my Hepatologist suggested the Mayo Clinic in Rochester, MN. Any suggestions on the best doctors at Mayo Clinic in terms of experience/expertis e with PSC? I would like a doctor who is concerned foremost re: our well being as an individual rather than being quick to recruit us for some kind of clinical trial. 2. I also would like to know what kinds of alternative treatment are available, such as naturopathic, Chinese medicine, etc. Recommended diet for someone with PSC would be very helpful as well. (My PCP who is well versed re: naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and told me to get a book on this by Black, ND, as PSC is most fundamentally an inflammatory process according to her.)

Thank you so much in advance for your help and I look forward to this wonderful forum of support!

Youske

[Guest guest]

PSC is most likely an autoimmune disease resulting in an inflammatory response (not caused by). It is known to have genetic components and, most probably, some unidentified environmental trigger.

I wouldn't recommend following a specific diet without consulting your hepatologist. In many cases, PSC is known to result in certain vitamin deficiencies, for example. PSC is not a simple disease, and there does not appear to be a well established progression.

I concur with recommendations for Mayo, and Dr. Lindor as an expert. He was the keynote speaker at one of the Partners Seeking a Cure conferences a few years ago.

Excellent questions - knowledge can only make you a better patient! Welcome!

Arne

57 - UC 1977, PSC 2000

Alive and well in Minnesota

PSC is most likely an autoimmune disease resulting in an inflammatory process. I'd be careful about

....(My PCP who is well versed re: naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and told me to get a book on this by Black, ND, as PSC is most fundamentally an inflammatory process according to her.)

[Guest guest]

PSC is most likely an autoimmune disease resulting in an inflammatory response (not caused by). It is known to have genetic components and, most probably, some unidentified environmental trigger.

I wouldn't recommend following a specific diet without consulting your hepatologist. In many cases, PSC is known to result in certain vitamin deficiencies, for example. PSC is not a simple disease, and there does not appear to be a well established progression.

I concur with recommendations for Mayo, and Dr. Lindor as an expert. He was the keynote speaker at one of the Partners Seeking a Cure conferences a few years ago.

Excellent questions - knowledge can only make you a better patient! Welcome!

Arne

57 - UC 1977, PSC 2000

Alive and well in Minnesota

PSC is most likely an autoimmune disease resulting in an inflammatory process. I'd be careful about

....(My PCP who is well versed re: naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and told me to get a book on this by Black, ND, as PSC is most fundamentally an inflammatory process according to her.)

[Guest guest]

PSC is most likely an autoimmune disease resulting in an inflammatory response (not caused by). It is known to have genetic components and, most probably, some unidentified environmental trigger.

I wouldn't recommend following a specific diet without consulting your hepatologist. In many cases, PSC is known to result in certain vitamin deficiencies, for example. PSC is not a simple disease, and there does not appear to be a well established progression.

I concur with recommendations for Mayo, and Dr. Lindor as an expert. He was the keynote speaker at one of the Partners Seeking a Cure conferences a few years ago.

Excellent questions - knowledge can only make you a better patient! Welcome!

Arne

57 - UC 1977, PSC 2000

Alive and well in Minnesota

PSC is most likely an autoimmune disease resulting in an inflammatory process. I'd be careful about

....(My PCP who is well versed re: naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and told me to get a book on this by Black, ND, as PSC is most fundamentally an inflammatory process according to her.)

[Guest guest]

Hello Youske,

Welcome

Nita

[Guest guest]

Thank you for your kind suggestions and support. I'll try to get in with Dr. Lindor.

You all are in my prayers. May the cure for this terrible illness be found quickly.

Youske

[Guest guest]

Youske,

Hi! Welcome to the group. As we all say, we're sorry you need us, but glad you

found us! I'll do my best to answer your questions and I'm sure others will

chime in, too.

As to the Mayo Clinic, I've found that most doctors within the Mayo facilities

are very thorough and caring and do their best to recognize that their patients

are people and not just patients or body parts. My guess is that when you set

up your appointments and tell the Clinic that you're coming for PSC related

information/matters that they will put you in with a PSC doctor. That being

said, if at any time in their care you'd like to switch to another doctor, you

can always ask for the change. It is completely within your rights to do so.

The other thing about Mayo is that they tend to work as a team and so even

though you may only see one doctor, multiple doctors may be

seeing/sharing/reviewing your results.

In regard to alternative treatments, it's sort of a mixed bag. As you may or

may not know, PSC is an incredibly odd disease in that it doesn't necessarily

affect any two of us the same way. Some people report accupuncture or tanning

beds help their conditions, some swear by Sam-E or Juice Plus. It really is a

matter of what works for you and your symptoms. Are you experiencing any

symptoms at this point? Perhaps if we know what you're facing we can give you

more pointed suggestions. There is unfortunately no " diet " for PSC. Most

doctors do advise a low-fat diet with attention to nutrition. PSCers tend to be

low in fat soluble vitamins (Vitamins A, D, K, etc.), things like Potassium.

You may also want to keep an eye on your calcium since that is a worry for many

PSCers. There are some doctors who advise eschewing dairy and some patients

find that useful. I haven't tried that, so I can't speak to it. I'm not

familiar with the book you mentioned,

but maybe somebody else will have some ideas about that.

One last thing, I don't know if you're aware or not or if you're a Facebook

member, but we also have a PSC group that's dedicated to those in their 20s/30s

and around that age where, much like this group, we offer support, ask each

other questions, share stories, etc. We'd love it if you'd like to join us on

that as well. In order to find it, you'll need a Facebook account. If you

don't already have one, you just go to www.Facebook.com and follow the prompts

to set up a free account. From there, you can either search PSC Partners groups

or you can contact me, Sandi Pearlman, and I can send you the link.

Best of luck with your second opinions and finding the things that work for you.

If you have any other questions or ever want to share an update or a story,

please don't hesitate. We'd love to hear from you! We're also having our 5th

annual PSC Partners conference in Chicago May 1-3rd which is a great place to

learn about the newest research, meet other PSCers and hear from some incredible

doctors/speakers who are fighting the fight to cure PSC. If you'd like anymore

information on it, just let me know and I'll be happy to fill you in.

Sandi in VA

[Guest guest]

Youske,

Hi! Welcome to the group. As we all say, we're sorry you need us, but glad you

found us! I'll do my best to answer your questions and I'm sure others will

chime in, too.

As to the Mayo Clinic, I've found that most doctors within the Mayo facilities

are very thorough and caring and do their best to recognize that their patients

are people and not just patients or body parts. My guess is that when you set

up your appointments and tell the Clinic that you're coming for PSC related

information/matters that they will put you in with a PSC doctor. That being

said, if at any time in their care you'd like to switch to another doctor, you

can always ask for the change. It is completely within your rights to do so.

The other thing about Mayo is that they tend to work as a team and so even

though you may only see one doctor, multiple doctors may be

seeing/sharing/reviewing your results.

In regard to alternative treatments, it's sort of a mixed bag. As you may or

may not know, PSC is an incredibly odd disease in that it doesn't necessarily

affect any two of us the same way. Some people report accupuncture or tanning

beds help their conditions, some swear by Sam-E or Juice Plus. It really is a

matter of what works for you and your symptoms. Are you experiencing any

symptoms at this point? Perhaps if we know what you're facing we can give you

more pointed suggestions. There is unfortunately no " diet " for PSC. Most

doctors do advise a low-fat diet with attention to nutrition. PSCers tend to be

low in fat soluble vitamins (Vitamins A, D, K, etc.), things like Potassium.

You may also want to keep an eye on your calcium since that is a worry for many

PSCers. There are some doctors who advise eschewing dairy and some patients

find that useful. I haven't tried that, so I can't speak to it. I'm not

familiar with the book you mentioned,

but maybe somebody else will have some ideas about that.

One last thing, I don't know if you're aware or not or if you're a Facebook

member, but we also have a PSC group that's dedicated to those in their 20s/30s

and around that age where, much like this group, we offer support, ask each

other questions, share stories, etc. We'd love it if you'd like to join us on

that as well. In order to find it, you'll need a Facebook account. If you

don't already have one, you just go to www.Facebook.com and follow the prompts

to set up a free account. From there, you can either search PSC Partners groups

or you can contact me, Sandi Pearlman, and I can send you the link.

Best of luck with your second opinions and finding the things that work for you.

If you have any other questions or ever want to share an update or a story,

please don't hesitate. We'd love to hear from you! We're also having our 5th

annual PSC Partners conference in Chicago May 1-3rd which is a great place to

learn about the newest research, meet other PSCers and hear from some incredible

doctors/speakers who are fighting the fight to cure PSC. If you'd like anymore

information on it, just let me know and I'll be happy to fill you in.

Sandi in VA

[Guest guest]

" There are some doctors who advise eschewing dairy "

Sandi

I did not know what " eschewing " meant, so I copied it into ms word and used the Thesaurus. A Synonym is avoid! Now thats a word I understand. I also didn't know there are some doctors who advise avoiding dairy! I usually have a cup of chocolate milk warmed up in the microwave and sprinkled with cinnomin each night before bed. I'm not planning to change that!

Ian (52) PSC 89

eschewing

[Guest guest]

" There are some doctors who advise eschewing dairy "

Sandi

I did not know what " eschewing " meant, so I copied it into ms word and used the Thesaurus. A Synonym is avoid! Now thats a word I understand. I also didn't know there are some doctors who advise avoiding dairy! I usually have a cup of chocolate milk warmed up in the microwave and sprinkled with cinnomin each night before bed. I'm not planning to change that!

Ian (52) PSC 89

eschewing

[Guest guest]

Ian,

Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself,

try adding a little nutmeg to it too, it's delicious!

Sandi in VA

[Guest guest]

I'll be seeing Dr. Lindor at Mayo Clinic at the end of this month! Thank you all for your recommendations and encouragement!

Re: dairy, I've been reading that it tends to cause immune reactions to many people with varying degrees, from no to slight sensitivity, upto severe allergic reactions. If we do have some kind of sensitivity to dairy (or whatever food we have sensitivities to), the repeated ingestion, thus repeated immune response, can cause chronic inflammation, increasing the potential for autoimmune reactions. And as we know, PSC seems to have a strong autoimmune component. My nose gets stuffy when I take dairy products as well as many other food (such as wheat, peanuts, alcohol, etc.), so I've decided to avoid them as much as I can. The book I'm reading also suggests eating as much organic products as possible to reduce the intake of toxins that cause inflammatory response, such as pesticides residues, hormones, and antibiotic residues found in non-organic vegetables, dairy, and meat. I figure going organic

doesn't hurt, except my wallet a bit which in the big picture is not such a big deal considering the cost of healthcare!

Youske

To: Sent: Sunday, February 8, 2009 7:08:24 AMSubject: Re: Newly diagnosed, with questions

Ian, Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself, try adding a little nutmeg to it too, it's delicious!Sandi in VA

[Guest guest]

YouskeI was wondering what book you were referring to? I have found that when I eat a diet which consists of mostly organic fruits and veggies, I feel much better. SerbrinaSent via BlackBerry by AT&TFrom: Youske Eto Date: Sun, 8 Feb 2009 22:01:47 -0800 (PST)To: < >Subject: Re: Newly diagnosed, with questions I'll be seeing Dr. Lindor at Mayo Clinic at the end of this month! Thank you all for your recommendations and encouragement! Re: dairy, I've been reading that it tends to cause immune reactions to many people with varying degrees, from no to slight sensitivity, upto severe allergic reactions. If we do have some kind of sensitivity to dairy (or whatever food we have sensitivities to), the repeated ingestion, thus repeated immune response, can cause chronic inflammation, increasing the potential for autoimmune reactions. And as we know, PSC seems to have a strong autoimmune component. My nose gets stuffy when I take dairy products as well as many other food (such as wheat, peanuts, alcohol, etc.), so I've decided to avoid them as much as I can. The book I'm reading also suggests eating as much organic products as possible to reduce the intake of toxins that cause inflammatory response, such as pesticides residues, hormones, and antibiotic residues found in non-organic vegetables, dairy, and meat. I figure going organic doesn't hurt, except my wallet a bit which in the big picture is not such a big deal considering the cost of healthcare! YouskeFrom: Sandi Pearlman <kizzersmom (AT) yahoo (DOT) com>To: Sent: Sunday, February 8, 2009 7:08:24 AMSubject: Re: Newly diagnosed, with questionsIan, Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself, try adding a little nutmeg to it too, it's delicious!Sandi in VA

[Guest guest]

Serbrina,

The book is called "The Anti-Inflammation Diet and Recipe Book" by Black, ND. Good scientific explanations and nice recipes too!

Youske

To: Sent: Sunday, February 8, 2009 10:22:12 PMSubject: Re: Newly diagnosed, with questions

YouskeI was wondering what book you were referring to? I have found that when I eat a diet which consists of mostly organic fruits and veggies, I feel much better. Serbrina

Sent via BlackBerry by AT & T

From: Youske Eto Date: Sun, 8 Feb 2009 22:01:47 -0800 (PST)To: <@ yahoogroups. com>Subject: Re: Newly diagnosed, with questions

I'll be seeing Dr. Lindor at Mayo Clinic at the end of this month! Thank you all for your recommendations and encouragement!

Re: dairy, I've been reading that it tends to cause immune reactions to many people with varying degrees, from no to slight sensitivity, upto severe allergic reactions. If we do have some kind of sensitivity to dairy (or whatever food we have sensitivities to), the repeated ingestion, thus repeated immune response, can cause chronic inflammation, increasing the potential for autoimmune reactions. And as we know, PSC seems to have a strong autoimmune component. My nose gets stuffy when I take dairy products as well as many other food (such as wheat, peanuts, alcohol, etc.), so I've decided to avoid them as much as I can. The book I'm reading also suggests eating as much organic products as possible to reduce the intake of toxins that cause inflammatory response, such as pesticides residues, hormones, and antibiotic residues found in non-organic vegetables, dairy, and meat. I figure going organic

doesn't hurt, except my wallet a bit which in the big picture is not such a big deal considering the cost of healthcare!

Youske

From: Sandi Pearlman <kizzersmom (AT) yahoo (DOT) com>To: @ yahoogroups. comSent: Sunday, February 8, 2009 7:08:24 AMSubject: Re: Newly diagnosed, with questions

Ian, Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself, try adding a little nutmeg to it too, it's delicious!Sandi in VA

[Guest guest]

Thanks I'll have to check it out.Sent via BlackBerry by AT&TFrom: Youske Eto Date: Mon, 9 Feb 2009 17:18:36 -0800 (PST)To: < >Subject: Re: Newly diagnosed, with questions Serbrina, The book is called "The Anti-Inflammation Diet and Recipe Book" by Black, ND. Good scientific explanations and nice recipes too! YouskeFrom: "serbrinamv (AT) sbcglobal (DOT) net" <serbrinamv (AT) sbcglobal (DOT) net>To: Sent: Sunday, February 8, 2009 10:22:12 PMSubject: Re: Newly diagnosed, with questionsYouskeI was wondering what book you were referring to? I have found that when I eat a diet which consists of mostly organic fruits and veggies, I feel much better. SerbrinaSent via BlackBerry by AT & TFrom: Youske Eto Date: Sun, 8 Feb 2009 22:01:47 -0800 (PST)To: <@ yahoogroups. com>Subject: Re: Newly diagnosed, with questionsI'll be seeing Dr. Lindor at Mayo Clinic at the end of this month! Thank you all for your recommendations and encouragement! Re: dairy, I've been reading that it tends to cause immune reactions to many people with varying degrees, from no to slight sensitivity, upto severe allergic reactions. If we do have some kind of sensitivity to dairy (or whatever food we have sensitivities to), the repeated ingestion, thus repeated immune response, can cause chronic inflammation, increasing the potential for autoimmune reactions. And as we know, PSC seems to have a strong autoimmune component. My nose gets stuffy when I take dairy products as well as many other food (such as wheat, peanuts, alcohol, etc.), so I've decided to avoid them as much as I can. The book I'm reading also suggests eating as much organic products as possible to reduce the intake of toxins that cause inflammatory response, such as pesticides residues, hormones, and antibiotic residues found in non-organic vegetables, dairy, and meat. I figure going organic doesn't hurt, except my wallet a bit which in the big picture is not such a big deal considering the cost of healthcare! YouskeFrom: Sandi Pearlman <kizzersmom (AT) yahoo (DOT) com>To: @ yahoogroups. comSent: Sunday, February 8, 2009 7:08:24 AMSubject: Re: Newly diagnosed, with questionsIan, Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself, try adding a little nutmeg to it too, it's delicious!Sandi in VA

[Guest guest]

Thanks I'll have to check it out.Sent via BlackBerry by AT&TFrom: Youske Eto Date: Mon, 9 Feb 2009 17:18:36 -0800 (PST)To: < >Subject: Re: Newly diagnosed, with questions Serbrina, The book is called "The Anti-Inflammation Diet and Recipe Book" by Black, ND. Good scientific explanations and nice recipes too! YouskeFrom: "serbrinamv (AT) sbcglobal (DOT) net" <serbrinamv (AT) sbcglobal (DOT) net>To: Sent: Sunday, February 8, 2009 10:22:12 PMSubject: Re: Newly diagnosed, with questionsYouskeI was wondering what book you were referring to? I have found that when I eat a diet which consists of mostly organic fruits and veggies, I feel much better. SerbrinaSent via BlackBerry by AT & TFrom: Youske Eto Date: Sun, 8 Feb 2009 22:01:47 -0800 (PST)To: <@ yahoogroups. com>Subject: Re: Newly diagnosed, with questionsI'll be seeing Dr. Lindor at Mayo Clinic at the end of this month! Thank you all for your recommendations and encouragement! Re: dairy, I've been reading that it tends to cause immune reactions to many people with varying degrees, from no to slight sensitivity, upto severe allergic reactions. If we do have some kind of sensitivity to dairy (or whatever food we have sensitivities to), the repeated ingestion, thus repeated immune response, can cause chronic inflammation, increasing the potential for autoimmune reactions. And as we know, PSC seems to have a strong autoimmune component. My nose gets stuffy when I take dairy products as well as many other food (such as wheat, peanuts, alcohol, etc.), so I've decided to avoid them as much as I can. The book I'm reading also suggests eating as much organic products as possible to reduce the intake of toxins that cause inflammatory response, such as pesticides residues, hormones, and antibiotic residues found in non-organic vegetables, dairy, and meat. I figure going organic doesn't hurt, except my wallet a bit which in the big picture is not such a big deal considering the cost of healthcare! YouskeFrom: Sandi Pearlman <kizzersmom (AT) yahoo (DOT) com>To: @ yahoogroups. comSent: Sunday, February 8, 2009 7:08:24 AMSubject: Re: Newly diagnosed, with questionsIan, Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself, try adding a little nutmeg to it too, it's delicious!Sandi in VA

[Guest guest]

Thanks I'll have to check it out.Sent via BlackBerry by AT&TFrom: Youske Eto Date: Mon, 9 Feb 2009 17:18:36 -0800 (PST)To: < >Subject: Re: Newly diagnosed, with questions Serbrina, The book is called "The Anti-Inflammation Diet and Recipe Book" by Black, ND. Good scientific explanations and nice recipes too! YouskeFrom: "serbrinamv (AT) sbcglobal (DOT) net" <serbrinamv (AT) sbcglobal (DOT) net>To: Sent: Sunday, February 8, 2009 10:22:12 PMSubject: Re: Newly diagnosed, with questionsYouskeI was wondering what book you were referring to? I have found that when I eat a diet which consists of mostly organic fruits and veggies, I feel much better. SerbrinaSent via BlackBerry by AT & TFrom: Youske Eto Date: Sun, 8 Feb 2009 22:01:47 -0800 (PST)To: <@ yahoogroups. com>Subject: Re: Newly diagnosed, with questionsI'll be seeing Dr. Lindor at Mayo Clinic at the end of this month! Thank you all for your recommendations and encouragement! Re: dairy, I've been reading that it tends to cause immune reactions to many people with varying degrees, from no to slight sensitivity, upto severe allergic reactions. If we do have some kind of sensitivity to dairy (or whatever food we have sensitivities to), the repeated ingestion, thus repeated immune response, can cause chronic inflammation, increasing the potential for autoimmune reactions. And as we know, PSC seems to have a strong autoimmune component. My nose gets stuffy when I take dairy products as well as many other food (such as wheat, peanuts, alcohol, etc.), so I've decided to avoid them as much as I can. The book I'm reading also suggests eating as much organic products as possible to reduce the intake of toxins that cause inflammatory response, such as pesticides residues, hormones, and antibiotic residues found in non-organic vegetables, dairy, and meat. I figure going organic doesn't hurt, except my wallet a bit which in the big picture is not such a big deal considering the cost of healthcare! YouskeFrom: Sandi Pearlman <kizzersmom (AT) yahoo (DOT) com>To: @ yahoogroups. comSent: Sunday, February 8, 2009 7:08:24 AMSubject: Re: Newly diagnosed, with questionsIan, Glad I could broaden your vocabulary! I'm a fan of the hot cocoa myself, try adding a little nutmeg to it too, it's delicious!Sandi in VA