Recently Diagnosed and New to The Group

[Guest guest]

Hi Everyone,

My name is Jim, 45 years of age and I live in Southern California. I

was diagnosed with Fibro/CFS roughly 2 months ago, I cried like a

baby! In the several years prior to the diagnoses I couldn't even

tell you the number of doctors that I went through complaining of the

same issues and each one said that I was either to stressed out or

very depressed. What was stressing and depressing me was all

these " so called " doctors who gladly accepted my insurance payments

but offered me nothing more in return. I truly believed that I was

losing my mind for a few years there and that can really wear you

down. I am on a track now that seems to be much more appropriate,

but I still do not understand all do' and don'ts of Fibro.

Would some of you share how you feel on most days and just are the

symptoms? I would be so appreciative to all of you. I am trying to

learn as much about this as I can, because I truly believe the more

that I know, the more I can fight it.

Thanks to you all for letting me share.

Jim

[Guest guest]

Jim,

I'm truly sorry that you have this condition but there

are many here that would be glad to answer how they

deal with it day in and day out.

I personally was diagnosed in July of this year. I

only started having symptoms, bad BAD symptoms in May

of this year. So it has hit me suddenly and with

vengence. But so far, I have came to grasp my life

with it and this support group has taught me many

things that has helped me along the way.

You are totally right in you saying that the more you

know the more you can fight it. Because that is soooo

true. Please remember some things that work for others

may not work for you, so don't get discouraged, just

keep trying to find the right regimen that works for

you.

I am on Elavil at night, this keeps me sleeping at

night which also has lessened the pain for me. They

started me out with 5 mg at night, but since I have

went up to 10 mg. So far that seems to work, the

doctor asked if I wanted to increase but with the

symptoms I go through right now, I'm going to try and

stay with the less medicine I can. That way if they

increase tremendously where I am crying as well AGAIN,

then I will increase the meds. He gave me Ultracet for

pain as well as Lidocaine patches for bad

episodes(Pain Management Doctor) and physical therapy

to keep muscles flexible. I am in my 2nd week of PHY

Therapy and have one more week to go. THey are

teaching me ways for flexibility.

My symptoms started out as bad pain in my right chest

area, burning, hurting when I breathed(and ya gotta

breathe), awful soreness to touch. You could just

touch my skin, just barely touch me, and I would hurt

so badly. It was awful. Then it gradually spread to my

right arm, then my left chest, arm, back, legs,

ankles, wrists, neck, you name it, I had pain there.

NOW...after all the meds, therapy, and diet change...I

am sore daily, BUT I'm not hurting as bad as I was. I

would sit in my office and lay down my head(which hurt

my jaw) and just CRY...People here at work probably

think I am crazy, but oh well. I have to live with

this, they just have to observe. They don't

understand...WE DO!

I wish you the best,

a Faye

--- jimqca jim@...> wrote:

> Hi Everyone,

>

> My name is Jim, 45 years of age and I live in

> Southern California. I

> was diagnosed with Fibro/CFS roughly 2 months ago, I

> cried like a

> baby! In the several years prior to the diagnoses I

> couldn't even

> tell you the number of doctors that I went through

> complaining of the

> same issues and each one said that I was either to

> stressed out or

> very depressed. What was stressing and depressing

> me was all

> these " so called " doctors who gladly accepted my

> insurance payments

> but offered me nothing more in return. I truly

> believed that I was

> losing my mind for a few years there and that can

> really wear you

> down. I am on a track now that seems to be much

> more appropriate,

> but I still do not understand all do' and don'ts of

> Fibro.

>

> Would some of you share how you feel on most days

> and just are the

> symptoms? I would be so appreciative to all of you.

> I am trying to

> learn as much about this as I can, because I truly

> believe the more

> that I know, the more I can fight it.

>

> Thanks to you all for letting me share.

>

> Jim

>

>

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