Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 In a message dated 11/16/2002 11:46:52 PM Central Standard Time, MissGooberGirl@... writes: > Becki > I am so sorry to hear that you feel so shitty! You need to think positive!! The doctors are not always right and you need to prove them wrong by getting better!!! Keep your chin up!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 In a message dated 11/16/2002 11:46:52 PM Central Standard Time, MissGooberGirl@... writes: > Becki > I am so sorry to hear that you feel so shitty! You need to think positive!! The doctors are not always right and you need to prove them wrong by getting better!!! Keep your chin up!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Oh hon, sorry you're having such an awful time of it. Shanna mom of Triana, age 2 wcf Hey Hey They bronched me to try to suction me out but I just filled right back up.That just stinks. I used to be able to bounce back after a few days in the hospital but now they say theres not much they can do.I have a week left of Zosyn and then I'll see how I feel.Ive had the chills so bad I literally just shake. Plus I lost a lot of weight this time. They were trying to shove supplements down my throat but I just couldn't eat...some of the nurses started bringing in food for me to eat.Home Made Soup and stuff. It pretty much sucks when they say there isn't much they can do and they will NEVER be able to clear my lungs again.Nothing left to work except new lungs. I can't talk to my family,Brad, or his family b/c I don't want to have them worry or make them sad. I can't tell them whats really going through my mind...how scard I am that I am not going to live to see a rip old age.I am so scard of Brad moving on without me. I have friends desperately waiting for TX. Sorry this is such a crappy letter. I just don't feel well. I need to up my celexa or something. On a lighter note my sis is getting married soon.Actually she's already married.They gave me a pass at the hospital so that I could see he go to the JP to get married last weekend.They got orders to Africa so they wanted to be sure they were married before they left.But the big wedding is still set for January 4th. We picked out the Brides Maids Dresses today....Very Pretty.Her dress is gorgous.Brendon is getting married in his dress blues. Anyways...Sorry this is so shitty...I'll write a cheerer one later...=) Becki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Oh hon, sorry you're having such an awful time of it. Shanna mom of Triana, age 2 wcf Hey Hey They bronched me to try to suction me out but I just filled right back up.That just stinks. I used to be able to bounce back after a few days in the hospital but now they say theres not much they can do.I have a week left of Zosyn and then I'll see how I feel.Ive had the chills so bad I literally just shake. Plus I lost a lot of weight this time. They were trying to shove supplements down my throat but I just couldn't eat...some of the nurses started bringing in food for me to eat.Home Made Soup and stuff. It pretty much sucks when they say there isn't much they can do and they will NEVER be able to clear my lungs again.Nothing left to work except new lungs. I can't talk to my family,Brad, or his family b/c I don't want to have them worry or make them sad. I can't tell them whats really going through my mind...how scard I am that I am not going to live to see a rip old age.I am so scard of Brad moving on without me. I have friends desperately waiting for TX. Sorry this is such a crappy letter. I just don't feel well. I need to up my celexa or something. On a lighter note my sis is getting married soon.Actually she's already married.They gave me a pass at the hospital so that I could see he go to the JP to get married last weekend.They got orders to Africa so they wanted to be sure they were married before they left.But the big wedding is still set for January 4th. We picked out the Brides Maids Dresses today....Very Pretty.Her dress is gorgous.Brendon is getting married in his dress blues. Anyways...Sorry this is so shitty...I'll write a cheerer one later...=) Becki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Becki --- You have every right to feel shitty. It sucks. I know there is nothing I can say but I can listen. I am sure Brad and your family are thinking the same things as you but everyone is afraid to verbalize it. This might not help but tell me how you met Brad. Does he have CF? Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Becki --- You have every right to feel shitty. It sucks. I know there is nothing I can say but I can listen. I am sure Brad and your family are thinking the same things as you but everyone is afraid to verbalize it. This might not help but tell me how you met Brad. Does he have CF? Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Becki --- You have every right to feel shitty. It sucks. I know there is nothing I can say but I can listen. I am sure Brad and your family are thinking the same things as you but everyone is afraid to verbalize it. This might not help but tell me how you met Brad. Does he have CF? Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 First of all even though I'm new congrats to Tom. In reply to all of your warm welcomes, thanks. I'm definitely trying to be less angry and depressed and I am keeping open communications with my wife. But right now it's mostly fear, nausea, and gut wrenching pain. I wish they would have given me a mild painkiller or sedative. Oh well. I hope everyone keeps a positive thought in their hearts as we battle on. Rob Quote Link to comment Share on other sites More sharing options...
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