Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Naperville is in Illinois, Trudy.. about 30 - 40 minutes southwest of Chicago.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 We lived in Naperville for 11 yrs. and raised our family there. Enjoyed the Riverwalk and the swimming pool, built where the old quarry used to be. (I believe that's what the lady from LaGrange was referring to). I still miss Naperville, too, although we moved to Westmont (IL) for 4 yr. before relocating to Atlanta, GA, where we live now. Good luck on your quest for this surgery for your daughter. I was chubby from the age of 8 or 9 and it was not fun. P. in GA Re: Thank you > Hi Joanne, > We've lived in Naperville 3 years now and find it a GREAT place to raise a > family, though I confess I still miss Ct. You might be talking about the > Riverfront-- it is central to life in Naperville and has been expanded > recently. Miles of beautiful trails along the river make it a fun fresh-air > venue! And of course the wonderful shops and dowtown are nearby. > > Regards, > Debbie in IL > > We used to go to the lake there many, many (about 40+) years > ago when we lived in LaGrange. Is it still nice???? > > Joanne > > DebLaMan@... wrote: > > > Hi Deb from IL, > > I am not too far from you--we live in Naperville. Thanks for the kind > words > > of support. Actually, all the many letters I received were supportive, > save > > one from a very intent person who felt we were crazy pursuing this surgery. > > She had had the surgery and was doing well herself, but suggested that > Chris > > just learn to diet. I thought that a bit odd, but that was only one out of > > 43 and we are all entitled to our opinion. I sincerely wish you the best > in > > getting approved. > > > > Debbie in IL > > >> > > ------------------------------------------------------------------------ > Old school buds here: > http://click.egroups.com/1/4057/2/_/453517/_/960501472/ > ------------------------------------------------------------------------ > > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > Please visit our web site at http://clos.net > Get the Patient Manual at http://clos.net/get_patient_manual.htm > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 This is the City of Naperville swimming pool. It is concrete on the sides, but has a large sandy beach type area where you enter the shallow end of the pool and at the deep end are diving boards and the bottom at that end is not concrete. It is sand. There used to be a quarry there years ago. It's a great place to spend the day! P. in Ga (formerly Naperville) Re: Thank you > No, I don't think it was a river - it was a manmade lake that was sandy and beachy > at one end and deep at the other with diving boards. it was like a pool/lake - it > was very nice. Perhaps it is not there anymore!!! Thanks for > responding. Joanne > > DebLaMan@... wrote: > > > Hi Joanne, > > We've lived in Naperville 3 years now and find it a GREAT place to raise a > > family, though I confess I still miss Ct. You might be talking about the > > Riverfront-- it is central to life in Naperville and has been expanded > > recently. Miles of beautiful trails along the river make it a fun fresh-air > > venue! And of course the wonderful shops and dowtown are nearby. > > > > Regards, > > Debbie in IL > > > > We used to go to the lake there many, many (about 40+) years > > ago when we lived in LaGrange. Is it still nice???? > > > > Joanne > > > > DebLaMan@... wrote: > > > > > Hi Deb from IL, > > > I am not too far from you--we live in Naperville. Thanks for the kind > > words > > > of support. Actually, all the many letters I received were supportive, > > save > > > one from a very intent person who felt we were crazy pursuing this surgery. > > > She had had the surgery and was doing well herself, but suggested that > > Chris > > > just learn to diet. I thought that a bit odd, but that was only one out of > > > 43 and we are all entitled to our opinion. I sincerely wish you the best > > in > > > getting approved. > > > > > > Debbie in IL > > > >> > > > > ------------------------------------------------------------------------ > > Old school buds here: > > http://click.egroups.com/1/4057/2/_/453517/_/960501472/ > > ------------------------------------------------------------------------ > > > > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > > Please visit our web site at http://clos.net > > Get the Patient Manual at http://clos.net/get_patient_manual.htm > > > > > ------------------------------------------------------------------------ > Remember four years of good friends, bad clothes, explosive chemistry > experiments. > http://click.egroups.com/1/4051/2/_/453517/_/960505692/ > ------------------------------------------------------------------------ > > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > Please visit our web site at http://clos.net > Get the Patient Manual at http://clos.net/get_patient_manual.htm > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 hey were is naperville? which state? trudy --- Pankonin kpankonin@...> wrote: > This is the City of Naperville swimming pool. It is > concrete on the sides, > but has a large sandy beach type area where you > enter the shallow end of the > pool and at the deep end are diving boards and the > bottom at that end is not > concrete. It is sand. There used to be a quarry > there years ago. It's a > great place to spend the day! > > P. in Ga (formerly Naperville) > > Re: Thank you > > > > No, I don't think it was a river - it was a > manmade lake that was sandy > and beachy > > at one end and deep at the other with diving > boards. it was like a > pool/lake - it > > was very nice. Perhaps it is not there anymore!!! > Thanks for > > responding. Joanne > > > > DebLaMan@... wrote: > > > > > Hi Joanne, > > > We've lived in Naperville 3 years now and find > it a GREAT place to raise > a > > > family, though I confess I still miss Ct. You > might be talking about > the > > > Riverfront-- it is central to life in Naperville > and has been expanded > > > recently. Miles of beautiful trails along the > river make it a fun > fresh-air > > > venue! And of course the wonderful shops and > dowtown are nearby. > > > > > > Regards, > > > Debbie in IL > > > > > > We used to go to the lake there many, many > (about 40+) years > > > ago when we lived in LaGrange. Is it still > nice???? > > > > > > Joanne > > > > > > DebLaMan@... wrote: > > > > > > > Hi Deb from IL, > > > > I am not too far from you--we live in > Naperville. Thanks for the > kind > > > words > > > > of support. Actually, all the many letters I > received were > supportive, > > > save > > > > one from a very intent person who felt we > were crazy pursuing this > surgery. > > > > She had had the surgery and was doing well > herself, but suggested > that > > > Chris > > > > just learn to diet. I thought that a bit > odd, but that was only one > out of > > > > 43 and we are all entitled to our opinion. I > sincerely wish you the > best > > > in > > > > getting approved. > > > > > > > > Debbie in IL > > > > >> > > > > > > > ------------------------------------------------------------------------ > > > Old school buds here: > > > > http://click.egroups.com/1/4057/2/_/453517/_/960501472/ > > > > ------------------------------------------------------------------------ > > > > > > This message is from the Mini-Gastric Bypass > Mailing List at Onelist.com > > > Please visit our web site at http://clos.net > > > Get the Patient Manual at > http://clos.net/get_patient_manual.htm > > > > > > > > > > > ------------------------------------------------------------------------ > > Remember four years of good friends, bad clothes, > explosive chemistry > > experiments. > > > http://click.egroups.com/1/4051/2/_/453517/_/960505692/ > > > ------------------------------------------------------------------------ > > > > This message is from the Mini-Gastric Bypass > Mailing List at Onelist.com > > Please visit our web site at http://clos.net > > Get the Patient Manual at > http://clos.net/get_patient_manual.htm > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 hey were is naperville? which state? trudy --- Pankonin kpankonin@...> wrote: > This is the City of Naperville swimming pool. It is > concrete on the sides, > but has a large sandy beach type area where you > enter the shallow end of the > pool and at the deep end are diving boards and the > bottom at that end is not > concrete. It is sand. There used to be a quarry > there years ago. It's a > great place to spend the day! > > P. in Ga (formerly Naperville) > > Re: Thank you > > > > No, I don't think it was a river - it was a > manmade lake that was sandy > and beachy > > at one end and deep at the other with diving > boards. it was like a > pool/lake - it > > was very nice. Perhaps it is not there anymore!!! > Thanks for > > responding. Joanne > > > > DebLaMan@... wrote: > > > > > Hi Joanne, > > > We've lived in Naperville 3 years now and find > it a GREAT place to raise > a > > > family, though I confess I still miss Ct. You > might be talking about > the > > > Riverfront-- it is central to life in Naperville > and has been expanded > > > recently. Miles of beautiful trails along the > river make it a fun > fresh-air > > > venue! And of course the wonderful shops and > dowtown are nearby. > > > > > > Regards, > > > Debbie in IL > > > > > > We used to go to the lake there many, many > (about 40+) years > > > ago when we lived in LaGrange. Is it still > nice???? > > > > > > Joanne > > > > > > DebLaMan@... wrote: > > > > > > > Hi Deb from IL, > > > > I am not too far from you--we live in > Naperville. Thanks for the > kind > > > words > > > > of support. Actually, all the many letters I > received were > supportive, > > > save > > > > one from a very intent person who felt we > were crazy pursuing this > surgery. > > > > She had had the surgery and was doing well > herself, but suggested > that > > > Chris > > > > just learn to diet. I thought that a bit > odd, but that was only one > out of > > > > 43 and we are all entitled to our opinion. I > sincerely wish you the > best > > > in > > > > getting approved. > > > > > > > > Debbie in IL > > > > >> > > > > > > > ------------------------------------------------------------------------ > > > Old school buds here: > > > > http://click.egroups.com/1/4057/2/_/453517/_/960501472/ > > > > ------------------------------------------------------------------------ > > > > > > This message is from the Mini-Gastric Bypass > Mailing List at Onelist.com > > > Please visit our web site at http://clos.net > > > Get the Patient Manual at > http://clos.net/get_patient_manual.htm > > > > > > > > > > > ------------------------------------------------------------------------ > > Remember four years of good friends, bad clothes, > explosive chemistry > > experiments. > > > http://click.egroups.com/1/4051/2/_/453517/_/960505692/ > > > ------------------------------------------------------------------------ > > > > This message is from the Mini-Gastric Bypass > Mailing List at Onelist.com > > Please visit our web site at http://clos.net > > Get the Patient Manual at > http://clos.net/get_patient_manual.htm > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 hey were is naperville? which state? trudy --- Pankonin kpankonin@...> wrote: > This is the City of Naperville swimming pool. It is > concrete on the sides, > but has a large sandy beach type area where you > enter the shallow end of the > pool and at the deep end are diving boards and the > bottom at that end is not > concrete. It is sand. There used to be a quarry > there years ago. It's a > great place to spend the day! > > P. in Ga (formerly Naperville) > > Re: Thank you > > > > No, I don't think it was a river - it was a > manmade lake that was sandy > and beachy > > at one end and deep at the other with diving > boards. it was like a > pool/lake - it > > was very nice. Perhaps it is not there anymore!!! > Thanks for > > responding. Joanne > > > > DebLaMan@... wrote: > > > > > Hi Joanne, > > > We've lived in Naperville 3 years now and find > it a GREAT place to raise > a > > > family, though I confess I still miss Ct. You > might be talking about > the > > > Riverfront-- it is central to life in Naperville > and has been expanded > > > recently. Miles of beautiful trails along the > river make it a fun > fresh-air > > > venue! And of course the wonderful shops and > dowtown are nearby. > > > > > > Regards, > > > Debbie in IL > > > > > > We used to go to the lake there many, many > (about 40+) years > > > ago when we lived in LaGrange. Is it still > nice???? > > > > > > Joanne > > > > > > DebLaMan@... wrote: > > > > > > > Hi Deb from IL, > > > > I am not too far from you--we live in > Naperville. Thanks for the > kind > > > words > > > > of support. Actually, all the many letters I > received were > supportive, > > > save > > > > one from a very intent person who felt we > were crazy pursuing this > surgery. > > > > She had had the surgery and was doing well > herself, but suggested > that > > > Chris > > > > just learn to diet. I thought that a bit > odd, but that was only one > out of > > > > 43 and we are all entitled to our opinion. I > sincerely wish you the > best > > > in > > > > getting approved. > > > > > > > > Debbie in IL > > > > >> > > > > > > > ------------------------------------------------------------------------ > > > Old school buds here: > > > > http://click.egroups.com/1/4057/2/_/453517/_/960501472/ > > > > ------------------------------------------------------------------------ > > > > > > This message is from the Mini-Gastric Bypass > Mailing List at Onelist.com > > > Please visit our web site at http://clos.net > > > Get the Patient Manual at > http://clos.net/get_patient_manual.htm > > > > > > > > > > > ------------------------------------------------------------------------ > > Remember four years of good friends, bad clothes, > explosive chemistry > > experiments. > > > http://click.egroups.com/1/4051/2/_/453517/_/960505692/ > > > ------------------------------------------------------------------------ > > > > This message is from the Mini-Gastric Bypass > Mailing List at Onelist.com > > Please visit our web site at http://clos.net > > Get the Patient Manual at > http://clos.net/get_patient_manual.htm > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 Hi ! Yep, I figured out it was indeed the pool--now called Centennial Beach--that she was referring to. The Riverwalk has been expanded to the east (and even a bit to the west) and the downtown has grown and changed. Parking is the big concern now that the city center is jam-packed with shoppers, diners, etc. After much debate and many meetings, the city council has approved a 5 level parking garage. The 2nd high school has been built, at a cost of 65 million dollars, making it the most expensive in the nation. Looks more like a college campus than a HS, IMO. There are 20-some grade schools, and neighborhoods still being built for several more years. I've never lived in such a large place with such a " small town " feel. Hope life in Atlanta is good. The second time we moved from IL (Elmhurst) we moved to Louisville and I loved the " southern ways! " << We lived in Naperville for 11 yrs. and raised our family there. Enjoyed the Riverwalk and the swimming pool, built where the old quarry used to be. (I believe that's what the lady from LaGrange was referring to). I still miss Naperville, too, although we moved to Westmont (IL) for 4 yr. before relocating to Atlanta, GA, where we live now. Good luck on your quest for this surgery for your daughter. I was chubby from the age of 8 or 9 and it was not fun. P. in GA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 Hi ! Yep, I figured out it was indeed the pool--now called Centennial Beach--that she was referring to. The Riverwalk has been expanded to the east (and even a bit to the west) and the downtown has grown and changed. Parking is the big concern now that the city center is jam-packed with shoppers, diners, etc. After much debate and many meetings, the city council has approved a 5 level parking garage. The 2nd high school has been built, at a cost of 65 million dollars, making it the most expensive in the nation. Looks more like a college campus than a HS, IMO. There are 20-some grade schools, and neighborhoods still being built for several more years. I've never lived in such a large place with such a " small town " feel. Hope life in Atlanta is good. The second time we moved from IL (Elmhurst) we moved to Louisville and I loved the " southern ways! " << We lived in Naperville for 11 yrs. and raised our family there. Enjoyed the Riverwalk and the swimming pool, built where the old quarry used to be. (I believe that's what the lady from LaGrange was referring to). I still miss Naperville, too, although we moved to Westmont (IL) for 4 yr. before relocating to Atlanta, GA, where we live now. Good luck on your quest for this surgery for your daughter. I was chubby from the age of 8 or 9 and it was not fun. P. in GA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 ---Hi , Yes Elisabeth did present at birth similar to your little one but she did not experience either the klebsiella of RSV. She had her surgery 24 hours after birth and then was in the hospital 2 months. When she was released- we has two monitors, a feeding pump and an Oxygen machine to take home with us. A week to the day after she got home the monitors started going beserk and we took her into the emergency room about midnight. She had developed aspirated Pneumonia. so was in almost 3 weeks to clear that up. We found out she has some pretty severe reflux during that time. She has been hospitalized 2x since- as I said after " family holidays " . But come this January it will be 2 years since a hospitalization!!!! : ) Noooo I do not think you are a crazed mother- you sound like a very concerned mother who wants the best for her child and there is absolutely NOTHING wrond with that!!!!! Yes, the social isolation can be tough sometimes I know. I hope this list proves to be one of the ways to help that a little. The parents and grandparents here that deal with CF day in and day out can relate sometimes better than even our own family members. I know if I am talking about medically related CF stuff with one my foster sisters it mostly goes over her head : ) lol. Dont know if any of that helped : ). Have a great day and give your little one a big hug : ) Deborah McClintock- homeschooling mother of 3- the youngest - Elisabeth- 4- with CF In cfparents@y..., blruf@a... wrote: > Thanks for your notes - it helps so much to talk with > people that deal with the same fears I do. I've kind of > hushed up talking about CF with some of my friends for > fear of " wearing them out " . > > I think one of the more difficult things for me > to deal with in CF will be the social isolation during > the winter months. I used to have the " if it doesn't > kill you it makes you stronger " sort of approach to > illnesses, and its probably my 180 on this subject that > baffles some folks. I think sometimes, the fact that > there are so many examples of healthy looking productive > young adults with CF, and the fact a cure is thought to > be " right around the corner " minimizes the threat of > this disease in the eyes those don't deal with it > directly. > > However, the fact there is a " cure around the corner " > and a chance that my child may not reach end-stage CF, > makes me even more driven to protect Ellie. If a cure > (or break-through treatment) becomes available next > month, 2 years from now, or 10 years from now, whatever > lung capacity Ellie has left at that point will likely > be what she has to work with for the rest of her life. > > Deborah - Here is something maybe you can comment on > since your baby presented CF similar to Eleanor. > > About two weeks after she came home from the hospital (6 > wks old, 6wks after surgery) she started to cough > without any other symptoms, we brought her in, no > crackles, but she cultured positive for Klebsiella. > Bactrim cleared up the cough, but 3 weeks later she got > RSV (she was a mess & had trouble eating but it appeared > to be mostly upper respiratory and she didn't need > hospitalization) - she cultured positive again for > Klebsiella, and oral cephalexin sp? appeared to clear up > the cough. My mother-in-law (a former nurse) thought > that maybe this wasn't necessarily the onset of > pulmonary symptoms, but might simply be a bacteria she > caught from the respirator? There has been nothing but a > few runny noses since. > > What do you think - did you see anything similar? > > or- > > Am I just a crazed mother hoping for a mild pulmonary > case in spite of all evidence that suggests > otherwise?...on second thought don't answer this last > question just yet.... just let me just sit here in total > denial for a few more months.... > > > > > -Welcome : ) > > My daughter was born premature with a perforated bowel- " meconium > > illeus " so Im sure I can relate to your " long story " . Touching on > > the Holiday thing- I know from experience that family get togethers > > are not always the best things for a CF child those first couple > > years of life. We went to visit family her 1st and 2nd Christmas- > > both times she ended up in the hospital in January. And that was with > > my family all seemingly in good health. I have decided just to stay > > home- at least for Christmas and let others come our way- HEALTHY > > that is. I try to make up for lack of family by instituting our own > > family traditions. > > I have 2 older ones without Cf like you. I think one of the > > ways to get your older ones not feeling like they are lacking in > > attention is by letting them participate " as much as they can " in > > the care of the little one- it makes them feel important and helpful. > > > > Again Welcome, > > Deborah McClintock- homeschooling mother of 3- the youngest - > > Elisabeth -4 with CF > > > > > > > > > > > > > > -- In cfparents@y..., " blruf " wrote: > > > I am brand new to CF parents - Our daughter Eleanor was diagnosed a > > > week after her birth - she was born with a strangulated, perforated > > > bowel, a long, horrific story..... but she's doing incredibly well > > > now, (she's nearly a year old) and I am so thankful! I am also so > > > thankful that my two older children tested negative ... > > > > > > My questions for the veterans out there center around the rest of > > the > > > family. > > > > > > 1) Do you get together with extended family at Christmas, etc? - > > > Everyone has kids, and it seems as if someone is always sick... We > > > have been asked by relatives a few times to host either > > Thanksgiving > > > or Christmas this year, and it scares me to death. This year we've > > > asked that someone else host the holidays, so that if someone is > > > sick - we would be the ones to stay home, rather than being put in > > > the position of asking someone who is sick not to come. I've > > > heard " through the grapevine " that some think we are overreacting > > to > > > this illness, and maybe we are. On the hand, last year, even > > taking > > > every precaution we could think of, Eleanor caught RSV @ 3 months > > of > > > age- and watching that tiny little baby cough just ripped my heart > > > out. - How do you handle this? > > > > > > 2) How do you deal with a healthy, older child that " wants " to be > > > sick. My 6 yr old daughter almost " wishes " to be sick. > > Her > > > 4 yr old brother doesn't have CF, but he gets a really bad case of > > > croup every few weeks during the winter, and has been doing this > > > since he was 18 months old, and of course her baby sister has CF. > > So > > > far I have played along to a limited extent, giving her some extra > > > attention, taking her temperature, etc. Does anyone else see > > > this? > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hi All, This is in response to an e-mail forwarded to me from a friend. To paula_thurston2002 --- asked if there was a Chiari specialist in Mid. TN Dr. Konrad at Vanderbilt University is most excellent. If you would like more information, you can e-mail me private at grammy007@... Wishing you Rainbows, Grammy http://www.wishesandrainbows.org " >wishes and rainbows Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hi! First of all I'd like to say I've never posted to the group, but I have responded to some of the e-mail. I have Chiari and found out in March 2003, I'm going in for Decompression ( I hope to say goodbye to all the pain, most of it anyway) on Wednesday May 28( I'm really scared) I've read a lot about other surgeries and everyday I read the posts. I want to thank you all for being such a great group of people, my thoughts and prayers are always with each and everyone of you. Wish me luck(I know I'll be fine, just a little scared) LOL, H. from Idaho _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hi! First of all I'd like to say I've never posted to the group, but I have responded to some of the e-mail. I have Chiari and found out in March 2003, I'm going in for Decompression ( I hope to say goodbye to all the pain, most of it anyway) on Wednesday May 28( I'm really scared) I've read a lot about other surgeries and everyday I read the posts. I want to thank you all for being such a great group of people, my thoughts and prayers are always with each and everyone of you. Wish me luck(I know I'll be fine, just a little scared) LOL, H. from Idaho _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hi! First of all I'd like to say I've never posted to the group, but I have responded to some of the e-mail. I have Chiari and found out in March 2003, I'm going in for Decompression ( I hope to say goodbye to all the pain, most of it anyway) on Wednesday May 28( I'm really scared) I've read a lot about other surgeries and everyday I read the posts. I want to thank you all for being such a great group of people, my thoughts and prayers are always with each and everyone of you. Wish me luck(I know I'll be fine, just a little scared) LOL, H. from Idaho _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Thank you for your kind words. Ive got UC also and was only diagnosed with that 4 days before PSC. Its been a lot in a short period of time to wrap my brain around. Glad there is help out there and thank you again, I'll be posting as regularly as I can Rob Quote Link to comment Share on other sites More sharing options...
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