Re: Re: Please Help Sick hubby!

March 10, 2009

I agree. I'd would get him to the nearest ER. They may not be experts on the disease, but they can proably get you in to see an expert sooner.

Ian

Clearly something is not right here. Is he running a fever? What about pain? How long was he on the antibiotics -- could he be having a slightly delayed allergic reaction? I, personally, would not want to wait because bringing liquids back up after drinking sounds like an emergency to me, but I am hoping someone else can give you a more educated answer. I'm thinking that waiting for morning and a two hour drive might be too much of a delay. Anybody else have a comment?

Penny

> allergies or anything. When he drinks liquids it comes right back up most of the time.He keeps going to the Dr and they don't know what to do for him. We are very frustrated that no one can do anything for him. We have been waiting for two weeks to get an appointment with a specialist at Shands in Gainesville, FL and can't even get an answer as to when he can be seen.

> I know you are not Dr'sbut I am very concerned and wondering if I should drive the 2 hours tomorrow to take him to Shands myself. It might be something bad wrong with him and all this time waiting he is getting worse. Could this be sepsys?

> > > >

-- Ian Cribb P.Eng. (6...

March 15, 2009

Andi,

Why do you say that the night sweats are

not PSC related? I do not have IBD (I just had another colonoscopy to rule it

out again) but I do have severe night sweats.

What do you do against night sweats?

Regards,

Chaim Boermeester, Israel

From:

[mailto: ] On

Behalf Of kxcp236v

Sent: Sunday, March 15, 2009 13:57

To:

Subject: Re: Please

Help Sick hubby!

Cheryl,

Iam feeling fair..what a complicated mess Crohns is. Terrible night sweats and

chills (not PSC). Unable to eat even a peice of bread. Finally hospitalization

and the thought that I might have to deal with parenteral nutrition. I was on

Injectable Medrol for nine days and only drank broth. Then of course there is

the heparin..

Its very very taxing mentally..

I know that you have been thru some awful times Cheryl..honestly I dont know

how you do it.

I have not had any problems with my eyes other than the steroid related blur.

Iam on 40 mg of Prednisone for one month as we speak.

I remember someone else in the group mentioning polychondritis.

Its good to hear from you.

Warm thoughts your way!

Andi PSC/Crohns 01/02 Modesto

California (where every tree is

in bloom)

>

> Andi,

> Hi! I just got active again. I was wondering how you were. I'm so sorry

you've been in the hospital AGAIN. I think of you often. We first met on the

liver support group late '00 thinking we had Autoimmune Hepatitis and then you

got your correct diagnosis and moved here, a month or so later I also got a

corrected diagnosis and moved over. Obviously, you've had some new problems.

After about 5 years of being told I was imagining or exaggerating conditions,

I've been diagnosed with Relapsing Polychondritis. Haven't decided how to treat

it yet. In day-to-day living, it is causing me more pain and therefore more

problems than the PSC. What's the update on your conditions. Have your eyes

bothered you lately? Hope to hear from you soon. Cheryl ID

March 15, 2009