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Re: Re: HELP ME New test results and a med reduction...

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In a message dated 3/24/2005 9:57:41 PM Eastern Standard Time,

myidahobeachbum@... writes:

> ...but what do you do when your

> refill is three weeks ahead of schedule? THAT is where I see a

> problem.... how do you handle that part of it?

>

internet ordering.

cindi

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In a message dated 3/24/2005 9:57:41 PM Eastern Standard Time,

myidahobeachbum@... writes:

> ...but what do you do when your

> refill is three weeks ahead of schedule? THAT is where I see a

> problem.... how do you handle that part of it?

>

internet ordering.

cindi

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Oh, is that what has been going on....argh! Wow! I didn't know that! Makes

sense now.

I have been heat intolerant and the opposite of constipated...always made me

wonder a bit. Never cold....never constipated.

~Inga

oh heck...i left constipation way back in my late 30s (now 49)....damage

from

hypo can get so get so bad that everything then starts just running thru

you.

count your blessings. :)

cindi

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In a message dated 3/25/2005 12:24:43 AM Eastern Standard Time,

nk_laurie@... writes:

> I don't know why your doc is stressing about your dose, b/c although

> your tsh is a hair low so is your T4 and Free T3!! Those should

> matter more than your TSH!!Is

I think we probably need to remember why docs look at the TSH and don't worry

about low Free levels. Docs have been taught that TSH is the the only thing

that matters...and that this number controls the thyroid hormones...and thus

if it is " in range " ...then those Free levels must be what is right for the

person . Because after all...TSH is God.

If this is what they've been taught, then it is understandable that they

don't consider low Free levels as long as they are in range.

There is some information out there about how those ranges need to be higher

when a person is on oral thyroid hormone replacement....and even logic tells a

person that a person taking oral hormone may need to have a bit more

circulating to compensate for the thyroid's non-production.

It would probably be good to remind our doctors that our systems are

" broke " ...and why would he/she think the TSH is reliable anymore.

But just wanted to point out that doctors think if he TSH is in range...then

the Free levels are the appropriate ones for the patient.

Cindi

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In a message dated 3/25/2005 12:24:43 AM Eastern Standard Time,

nk_laurie@... writes:

> I don't know why your doc is stressing about your dose, b/c although

> your tsh is a hair low so is your T4 and Free T3!! Those should

> matter more than your TSH!!Is

I think we probably need to remember why docs look at the TSH and don't worry

about low Free levels. Docs have been taught that TSH is the the only thing

that matters...and that this number controls the thyroid hormones...and thus

if it is " in range " ...then those Free levels must be what is right for the

person . Because after all...TSH is God.

If this is what they've been taught, then it is understandable that they

don't consider low Free levels as long as they are in range.

There is some information out there about how those ranges need to be higher

when a person is on oral thyroid hormone replacement....and even logic tells a

person that a person taking oral hormone may need to have a bit more

circulating to compensate for the thyroid's non-production.

It would probably be good to remind our doctors that our systems are

" broke " ...and why would he/she think the TSH is reliable anymore.

But just wanted to point out that doctors think if he TSH is in range...then

the Free levels are the appropriate ones for the patient.

Cindi

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In a message dated 3/25/2005 12:35:14 AM Eastern Standard Time,

leoyellowrose@... writes:

> When do we thyroid patients rise up and say we want new ranges for

> people who are being treated with thyroid hormones. The ranges that

> are being used now are ranges which were gathered on a few so-

> called " normal " people. People on thyroid hormone treatment are not

> going to test within the same kind of ranges as people who do not

> have the disease and fall within the so-called normal ranges

Amen! There is one study about this...I believe British Journal? but it

points out this very fact- that ranges for folks being treated are different.

Cindi

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In a message dated 3/25/2005 12:35:14 AM Eastern Standard Time,

leoyellowrose@... writes:

> When do we thyroid patients rise up and say we want new ranges for

> people who are being treated with thyroid hormones. The ranges that

> are being used now are ranges which were gathered on a few so-

> called " normal " people. People on thyroid hormone treatment are not

> going to test within the same kind of ranges as people who do not

> have the disease and fall within the so-called normal ranges

Amen! There is one study about this...I believe British Journal? but it

points out this very fact- that ranges for folks being treated are different.

Cindi

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In a message dated 3/25/2005 12:35:14 AM Eastern Standard Time,

leoyellowrose@... writes:

> When

> folks with thyroid disease are on an optimum dose of hormone, of

> course the pituitary gland should stop sending a TSH signal to the

> thyroid to produce more hormone because there's no need. Correct?

> Why is this not logical to doctors?

>

amen again. Yes, you are right. and yes, it is logic. I have pointed out

to my own doctor that the natural feedback loop has been disrupted when someone

is on Armour...and so forget the whole TSH thing.

It amazes me that physicians don't get this.

cindi

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In a message dated 3/25/2005 12:35:14 AM Eastern Standard Time,

leoyellowrose@... writes:

> When

> folks with thyroid disease are on an optimum dose of hormone, of

> course the pituitary gland should stop sending a TSH signal to the

> thyroid to produce more hormone because there's no need. Correct?

> Why is this not logical to doctors?

>

amen again. Yes, you are right. and yes, it is logic. I have pointed out

to my own doctor that the natural feedback loop has been disrupted when someone

is on Armour...and so forget the whole TSH thing.

It amazes me that physicians don't get this.

cindi

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