RE: House - slight topic change

[Guest guest]

I found this staging of HE (attached) to be very informative

when my son was going through the same symptoms as your daughter.

Joanne (mom of Todd, 23, PSC 01, Crohns 02, TX Twice 03, rPSC

05, Diabetes 06, AIH overlap 08 & living life to the fullest and graduating

from college in May)

wrote:

It is not something I came up with in the research leading up tomy daughter's

diagnosis - but it might explain that she has relatively normal numbers (ALT,

AST around 1.4xnormal, GGT around 4xnormal), but symptoms which most literature

describes as later stage (itching - for at least 4 years, although she told me

last night she thinks it is closer to 8), extreme fatigue, insomnia, and

increasing difficulty in reasoning, memory, and writing skills.

[Guest guest]

That is very helpful - thank you! She appears to fall between 1 and 2. She has sleep inversion, impaired thinking (although it is speech based reasoning, rather than computational), and was certainly garrulous the night I sat up with her to try to help her finish her paper. She loses track of time - but she always has. Don't know that it is any worse. , Mom to 18 yo daughter UC 6/95, PSC 3/09From:

Joanne Grieme To: Sent: Tuesday, March 31, 2009 6:15:37 PMSubject: RE: "House" - slight topic change

I found this staging of HE (attached) to be very informative

when my son was going through the same symptoms as your daughter.

Joanne (mom of Todd, 23, PSC 01, Crohns 02, TX Twice 03, rPSC

05, Diabetes 06, AIH overlap 08 & living life to the fullest and graduating

from college in May)

wrote:

It is not something I came up with in the research leading up tomy daughter's

diagnosis - but it might explain that she has relatively normal numbers (ALT,

AST around 1.4xnormal, GGT around 4xnormal), but symptoms which most literature

describes as later stage (itching - for at least 4 years, although she told me

last night she thinks it is closer to 8), extreme fatigue, insomnia, and

increasing difficulty in reasoning, memory, and writing skills.

[Guest guest]

That is very helpful - thank you! She appears to fall between 1 and 2. She has sleep inversion, impaired thinking (although it is speech based reasoning, rather than computational), and was certainly garrulous the night I sat up with her to try to help her finish her paper. She loses track of time - but she always has. Don't know that it is any worse. , Mom to 18 yo daughter UC 6/95, PSC 3/09From:

Joanne Grieme To: Sent: Tuesday, March 31, 2009 6:15:37 PMSubject: RE: "House" - slight topic change

I found this staging of HE (attached) to be very informative

when my son was going through the same symptoms as your daughter.

Joanne (mom of Todd, 23, PSC 01, Crohns 02, TX Twice 03, rPSC

05, Diabetes 06, AIH overlap 08 & living life to the fullest and graduating

from college in May)

wrote:

It is not something I came up with in the research leading up tomy daughter's

diagnosis - but it might explain that she has relatively normal numbers (ALT,

AST around 1.4xnormal, GGT around 4xnormal), but symptoms which most literature

describes as later stage (itching - for at least 4 years, although she told me

last night she thinks it is closer to 8), extreme fatigue, insomnia, and

increasing difficulty in reasoning, memory, and writing skills.