Re: Re-introductions ( and Suzanne)

March 31, 2009

,

Hi. It's nice to meet/re-meet you. It sounds like your daughter is going

through a rough time and that you're a great support system for her. Since you

said you've been off the site for a bit, I just wanted to make sure you were

aware of another possible avenue of support for Suzanne. Are you aware that we

now have a PSC Partners Facebook site geared towards PSCers in their 20s/30s and

around those ages? If Suzanne would like to join us, please let her know she is

more than welcome. It is much like this site in that it offers support,

connection, and a place to ask questions and get answers. If Suzanne's

interested, she would just need to go to Facebook and set up a free account.

Then she would just search PSC Partners Seeking a Cure and our Group would pop

right up. She could also contact me (Sandi Pearlman) if she needed help getting

to the link.

I hope that the stents help her a bit and that you are on your way to happier

times!

Sandi in VA/Rochester

March 31, 2009

Sandi,

Thank you for this information. I forwarded the email to

Suzanne. She already has a facebook account so I am hoping that she does decide

to “add you as a friend”. I have always hoped she would become interested in

hearing more from people with PSC, perhaps this is a good way for her to do

that.

Thank you again,

LINDA (Mom of Suzanne, 19, UC / PSC 2004, j-pouch 2007)

I just wanted to make sure you were aware of another possible

avenue of support for Suzanne. Are you aware that we now have a PSC Partners

Facebook site geared towards PSCers in their 20s/30s and around those ages?

Sandi in VA/Rochester

Recommended Posts