Re: Re: (psc support) first signs and symptoms

[Guest guest]

yes i do have UC and to be honest the best thing you can do is ask for a colonscopy to be done. this will tell you if you have uc or even crohns or nothing at all. it may seem like your having some many tests done but it is the only way and at least you will then know what your fighting against. Any questions you have send them over if i cant help some1 will be able to. X

Subject: Re: (psc support) first signs and symptomsTo: Date: Monday, 30 March, 2009, 10:20 PM

>> Hello up there in scotland. I live jus outside of Canterbury in the south east of england. When i was 17 i had the worse pain ever, childbrith was easier! went to docs who thought at first it was gullstones. Didnt get anybetter and started being sick every hr went into hosp - anyway long story short i had liver blood numbers all v.high and yes now looking back i was always tired. I had a colonoscopy showed UC - have you been tested for any these? bout 2years later thanks to new fab gastro i got dx with PSC (as my liver numbers had neva got back to normal). > > As far as everyday symptoms go i have upper right pain, fatigue, and itching. As everyone else has said we all react to this disease in dif ways. but it is really important to have a good team of docs. They're

like the machanic to your car - without them being good at their job you the car will start to go dwn hill.> > The fear of future can be overwhelming esp whsen you have aa young family, i am blessed with a 4yr old daught er. and the thoughts i havoe sometimes are enough to put my in a dark hole. however i do take extretme comfort in thi s group andt live each day at a time and try to focus oon the great things i do have like my daughter and partner. > Hopefully you'll gfind out some more concrrete news soon and we're all heore for you,> best wishes> >did you have UC symptoms? forgot to ask that, i had strange bowels for 2weeks, not loose but tiny amount of blood and mucus on formed 1 a day stools i dont think it is UC but dr said may be sorry if too much info, but then it went away and not had blood or anything since. sorry to be a pain with questions but dont know where else to turn, dr doesnt seem t

know much,xf