Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Has anyone every been told they had a blood clot in their liver? What did they do for it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 I've had a blood clots before, but not in the liver. I believe the standard treatment for blood clots is blood thinners and hope the clot dissolves its self. A clot in the Liver? What are they saying are the causes? Risks? and what are they going to do to get rid of it? I will pray that God will keep you in his care and that he will guide the doctors to the right treatment. Ian (52) PSC 89, also on blood thinners (rat poison) because of previous DVTs. Has anyone every been told they had a blood clot in their liver? What did they do for it? -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 I've had a blood clots before, but not in the liver. I believe the standard treatment for blood clots is blood thinners and hope the clot dissolves its self. A clot in the Liver? What are they saying are the causes? Risks? and what are they going to do to get rid of it? I will pray that God will keep you in his care and that he will guide the doctors to the right treatment. Ian (52) PSC 89, also on blood thinners (rat poison) because of previous DVTs. Has anyone every been told they had a blood clot in their liver? What did they do for it? -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 I've had a blood clots before, but not in the liver. I believe the standard treatment for blood clots is blood thinners and hope the clot dissolves its self. A clot in the Liver? What are they saying are the causes? Risks? and what are they going to do to get rid of it? I will pray that God will keep you in his care and that he will guide the doctors to the right treatment. Ian (52) PSC 89, also on blood thinners (rat poison) because of previous DVTs. Has anyone every been told they had a blood clot in their liver? What did they do for it? -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 > > Has anyone every been told they had a blood clot in their liver? What did they do for it? > ======================== I've not had a clot **IN** the liver, but I do have multiple and extensive bloodclots throughout the portal, splenic, and mesenteric veins (everything going to the liver). The drs. are mixed on how to treat it. The hepatologist says go on coumadin, the GI dr. and haematologist are very hesitant to do that since my platelets are so low (they stay around 80), and my INR is elevated already. They can't understand how I can keep forming clots when I'm also bleeding at the drop of a hat. I don't know that this is of any help, but it's what I've hit. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 > > Has anyone every been told they had a blood clot in their liver? What did they do for it? > ======================== I've not had a clot **IN** the liver, but I do have multiple and extensive bloodclots throughout the portal, splenic, and mesenteric veins (everything going to the liver). The drs. are mixed on how to treat it. The hepatologist says go on coumadin, the GI dr. and haematologist are very hesitant to do that since my platelets are so low (they stay around 80), and my INR is elevated already. They can't understand how I can keep forming clots when I'm also bleeding at the drop of a hat. I don't know that this is of any help, but it's what I've hit. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 > > Has anyone every been told they had a blood clot in their liver? What did they do for it? > ======================== I've not had a clot **IN** the liver, but I do have multiple and extensive bloodclots throughout the portal, splenic, and mesenteric veins (everything going to the liver). The drs. are mixed on how to treat it. The hepatologist says go on coumadin, the GI dr. and haematologist are very hesitant to do that since my platelets are so low (they stay around 80), and my INR is elevated already. They can't understand how I can keep forming clots when I'm also bleeding at the drop of a hat. I don't know that this is of any help, but it's what I've hit. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 --- Thanks to everyone for the information they provided. To all and , I do not have the specifics if its in veins or arteries. My husband didn't get that information but I have a call in for the specifics. Based on all I have read, in addition to all the information each of you have provided including the Budd-Chiari Syndrome has been very helpful. it mentioned IBD in one of the articles I read and lower extremity weakness. This seems to be making more sense to me since my last post about Neuropathy in the hands and feet. He is also experiencing a lot of weakness in his lower extremities. For now his gastroenterologist has chosen not to do anything about the clot and I'm not comfortable with that since they are encouraging him to exercise to strengthen the lower extremities. My concern is what if it breaks free? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 --- Thanks to everyone for the information they provided. To all and , I do not have the specifics if its in veins or arteries. My husband didn't get that information but I have a call in for the specifics. Based on all I have read, in addition to all the information each of you have provided including the Budd-Chiari Syndrome has been very helpful. it mentioned IBD in one of the articles I read and lower extremity weakness. This seems to be making more sense to me since my last post about Neuropathy in the hands and feet. He is also experiencing a lot of weakness in his lower extremities. For now his gastroenterologist has chosen not to do anything about the clot and I'm not comfortable with that since they are encouraging him to exercise to strengthen the lower extremities. My concern is what if it breaks free? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Talk to your doctor about it, and perhaps find a good vascular surgeon to talk with. I know the big fear with clots is that they will move and get somewhere life threatening, but not all clots pose that risk.I don't have PSC - so I don't know about risks associated with clots in the liver. I have lived with DVT since 1988, and vigorous exercise was what allowed me to retain full use of my arm (and avoid long term treatment with warfarin). My clot is on the outside of the thoracic outlet, and (at least initially) was blocked from moving by the outlet (a criss-cross of bones that make a small opening through which veins arteries, nerves and muscles pass - I'm sure God had a reason for this design, but it is not immediately apparent, and causes a lot of problems - if you are interested, search for thoracic outlet syndrome; DVT was virtually unheard of in that location in 1988, but upper body muscle building has made that particular complicatoin more common). If the clot doesn't dissolve over time (and mine hasn't), the clot just becomes part of the vein wall so after that there is no risk of movement.The liver structure may be of a nature that there isn't any risk of a clot forming there moving around (sort of like the thoracic outlet) - but you would need to ask your physician about it. , Mom to 18 yo daughter UC 6/95, PSC 3/09From: To: Sent: Friday, April 3, 2009 9:43:53 AMSubject: Re: Blood Clot For now his gastroenterologist has chosen not to do anything about the clot and I'm not comfortable with that since they are encouraging him to exercise to strengthen the lower extremities. My concern is what if it breaks free? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Talk to your doctor about it, and perhaps find a good vascular surgeon to talk with. I know the big fear with clots is that they will move and get somewhere life threatening, but not all clots pose that risk.I don't have PSC - so I don't know about risks associated with clots in the liver. I have lived with DVT since 1988, and vigorous exercise was what allowed me to retain full use of my arm (and avoid long term treatment with warfarin). My clot is on the outside of the thoracic outlet, and (at least initially) was blocked from moving by the outlet (a criss-cross of bones that make a small opening through which veins arteries, nerves and muscles pass - I'm sure God had a reason for this design, but it is not immediately apparent, and causes a lot of problems - if you are interested, search for thoracic outlet syndrome; DVT was virtually unheard of in that location in 1988, but upper body muscle building has made that particular complicatoin more common). If the clot doesn't dissolve over time (and mine hasn't), the clot just becomes part of the vein wall so after that there is no risk of movement.The liver structure may be of a nature that there isn't any risk of a clot forming there moving around (sort of like the thoracic outlet) - but you would need to ask your physician about it. , Mom to 18 yo daughter UC 6/95, PSC 3/09From: To: Sent: Friday, April 3, 2009 9:43:53 AMSubject: Re: Blood Clot For now his gastroenterologist has chosen not to do anything about the clot and I'm not comfortable with that since they are encouraging him to exercise to strengthen the lower extremities. My concern is what if it breaks free? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 > > .... For now his gastroenterologist has chosen not to do anything about the clot and I'm not comfortable with that since they are encouraging him to exercise to strengthen the lower extremities. My concern is what if it breaks free? > ========================= That was my first question when they found my first clot. The drs. told us that we had no worries on that point, because the clots would have to travel through the whole liver to get anywhere else and, with my level of cirrhosis, that was a virtual impossibility. So, I guess, a lot would depend on where in the liver the clot is located, and whether or not cirrhosis is involved, etc. If there's no cirrhosis, I honestly don't know what the liklihood would be of the clot traveling elsewhere in his body. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Okay. Talked to the nurse today it is a clot located in the mesenteric vein near the portal vein. It is a non-blocking blood clot. Can anyone share how their doctors handled like Carolyn B. has? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Okay. Talked to the nurse today it is a clot located in the mesenteric vein near the portal vein. It is a non-blocking blood clot. Can anyone share how their doctors handled like Carolyn B. has? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Okay. Talked to the nurse today it is a clot located in the mesenteric vein near the portal vein. It is a non-blocking blood clot. Can anyone share how their doctors handled like Carolyn B. has? Thanks Quote Link to comment Share on other sites More sharing options...
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