Re: transplant eligibility

[Guest guest]

,

Thank you so much for finding that for me. I tried to get a hold of the dr who

dx the RP and told me he suspects WG might be involved in my kidney problem

(it's been over a week), but he is out of town till monday. When they were doing

all the tests while trying to dx me, I would stress while waiting for the

results. After dx, I researched like crazy the disease, how it might manifest

itself. I knew what to expect. Waiting for tests no longer bothered me. But

since the dr told me there was something the matter with my kidney, I find I am

very distressed. I can't figure out why dr would be hesitant to treat me with

DMARDs and pred. So my liver fails a little quicker. I get my transplant (Deo

Volente) and the protocol post transplant is DMARDs and Pred. I don't understand

why a doctor would want me to take the risk of destroying, my hearing, eyesight,

kidney failure, trachea collapse to save my failing liver?

-----Original message-----

From: " " rhodesdavid1@...

>

> If your kidney disease was adequately suppressed by immunosuppressants, I

don't see a logical reason why this would reduce your eligibility for liver

transplantation in the long-run.

>

> Best regards,

>

> Dave

> (father of (23); PSC 07/03; UC 08/03)

>

>

>

>