Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 Hi ,I live in Duluth, Minnesota and I have been down to the Mayo Clinic Rochester, MN just once so far. I am scheduled to go back in May. The Doctor I see is Dr. Poterucha who works closely with Dr. Lindor I believe. This is another option for you if you have not had any luck getting into Dr. Lindor. I just called to the Gastroenterology Department and they set me up with Dr. Poterucha. I find him very personable and accomodating.Good Luck,nnenne Duluth, Minnesota UC 2002, PSC 2008 From: Kakaire <kakairesarah@ yahoo.com>Subject: New memberTo: @ yahoogroups. comDate: Sunday, April 5, 2009, 9:14 AM hello My husband was recently diagonesed with psc about a month ago. I have alot of questions for one before we got the diagonisis he was first diagonesed, with chrohns, then they took that back and said he had ulcerative colonitis, then they took that back now he has psc. The symptons were within the past year he dropped about 4o pounds, now i have been with my husband for 14 years and he has always been itching, so they said his enzymes were up we never thought much of the itching all these years.Another thing that makes our situation complicated is that as a child he was born with an enlarged liver and he was really sick from the age of 6 till about ten he used to throw up couldnt eat or anything then he was treated with predisone and everything stopped we cannot get hold of these earlier records because they did not keep records back then we are relying on his mom's memory so now during the past year his urine went from regular color to orange to that dirty color he had pancretis about 2 months ago so they removed his gallbladder, then they gave him and ercp they said the removed stones and slush and that's what caused the pancreatis, we came home only two weeks later and he was still throwing up and still sick we went back to the hospital and they did another ercp and said they had left some gallstones in there. The thing i don't understand is they say he has had liver disease for about 15 years but i thought you cannot survive past ten years. They have him on uradosil, pentanasa, cholestraynamine, asocal. He is always tired and he can only eat so much if he eats too much he throws up, and if he is not throwing up he is puping everything he ate he is weak he cannot gain any weight. Now his ankles, knees are swollen I dont know we go back to his doctor on the 17th of april, but i dont think they are getting right, i have made another appointment with another liver doctor, i would appreciate any suggestions or any feedback. My husband is 44 years old. lost and confused Quote Link to comment Share on other sites More sharing options...
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