Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi all! Yesterday was indeed 's two year anniversary. We are so blessed! His health is so much improved. We are able to do things and go places now. I've stopped carrying around our " hospital " bag that was always in our car. It's amazing! We are so thanksful for the donor family and thought of them all day yesterday. His last labs showed that most of his numbers were darn near normal. We still think about and keep an eye on the portal vein thrombosis, but it hasn't given us any problems. I rarely check this board, which is a sign that everything is going great, but I still think about and pray for each one of you who is going through this disease. wife of UC & PSC 2000 J pouch 2004 Tx 11-18-06 rPSC 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 That is great news!!!ShaulUC PSCSent via BlackBerry by AT&TDate: Wed, 19 Nov 2008 11:27:44 -0000To: < >Subject: Re: Happy re-birthday Hi all! Yesterday was indeed 's two year anniversary. We are so blessed! His health is so much improved. We are able to do things and go places now. I've stopped carrying around our " hospital " bag that was always in our car. It's amazing! We are so thanksful for the donor family and thought of them all day yesterday. His last labs showed that most of his numbers were darn near normal. We still think about and keep an eye on the portal vein thrombosis, but it hasn't given us any problems. I rarely check this board, which is a sign that everything is going great, but I still think about and pray for each one of you who is going through this disease. wife of UC & PSC 2000 J pouch 2004 Tx 11-18-06 rPSC 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Congratulations!!!!!!!!!!!! Hope everything goes well. The first month will be the hardest for you guys, so hang in there and do everything they tell you and wishing you the best of luck. Jim, July 02, Transplant April 2005. To: "Psc-Support (AT) Yahoogroups (DOT) Com" < >Sent: Tuesday, November 18, 2008 5:53:04 AMSubject: Happy re-birthday to (and !) 11/18/06:From the archives of 2006From: @ yahoogroups. com [sent: Sunday, November 19, 2006 7:11 PMTo: @ yahoogroups. comSubject: got his transplant yesterday!We got the call Friday/Saturday at 1:15a.m. to be at Vanderbilt by 7:00 that they had a liver for him. At the time we were still in the other hospital. So, as I was running around getting ready and calling everyone, had the nurses discharge him and we were on our way.The surgery began at 1:00 pm. I always thought there was a hurry, but apparently not. Anyway, they finished at around 7 pm. The surgeon said everything went fabulous, but he did have a lot of scar tissue from his J pouch surgeries.He is in SICU of course and still on a vent. He will be going back into surgery tomorrow to remove some blood clots from his abdomen. My goodness, I have never seen so many iv lines in all my life! But the nurses are wonderful and I get to go seem him anytime between 10 am and 5 pm and again from 8:30 pm unitl 10pm. I just checked into a motel and am heading back over to the hospital in just a bit. I knew all of you would want to hear the good news. Please pray for us that there will be few complications. I still feel like I am in a dream!wife of UC and PSC 2000J pouch 2004Transplant November 18, 2006!!!!!!!! ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 - To Colin (and Janet)! 04/11/03 From the archives of 2003: Date: Tue May 27, 2003 12:45 am Subject: Re: Who is the best hepatologist in the Los Angeles area? My husband, Colin, was greatly helped by hepatologist, Dr. Leonard Goldstein at Dumont-UCLA Transplant Center in Westwood. His phone number is . Colin was diagnosed with PSC in 1990. He was put on the liver transplant list in 1998. Because Dr. Goldstein decided to hospitalize him at the end of March, he was in the right place at the right time to get a liver transplant on April 11, this year. Jackie Colleran probably also can give you information. Her phone number is . She does a lot of volunteer work promoting liver transplant. This is my first post. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Happy reBirthday Colin! - To Colin (and Janet)! 04/11/03 From the archives of 2003: Date: Tue May 27, 2003 12:45 am Subject: Re: Who is the best hepatologist in the Los Angeles area? My husband, Colin, was greatly helped by hepatologist, Dr. Leonard Goldstein at Dumont-UCLA Transplant Center in Westwood. His phone number is . Colin was diagnosed with PSC in 1990. He was put on the liver transplant list in 1998. Because Dr. Goldstein decided to hospitalize him at the end of March, he was in the right place at the right time to get a liver transplant on April 11, this year. Jackie Colleran probably also can give you information. Her phone number is . She does a lot of volunteer work promoting liver transplant. This is my first post. -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Happy reBirthday Colin! - To Colin (and Janet)! 04/11/03 From the archives of 2003: Date: Tue May 27, 2003 12:45 am Subject: Re: Who is the best hepatologist in the Los Angeles area? My husband, Colin, was greatly helped by hepatologist, Dr. Leonard Goldstein at Dumont-UCLA Transplant Center in Westwood. His phone number is . Colin was diagnosed with PSC in 1990. He was put on the liver transplant list in 1998. Because Dr. Goldstein decided to hospitalize him at the end of March, he was in the right place at the right time to get a liver transplant on April 11, this year. Jackie Colleran probably also can give you information. Her phone number is . She does a lot of volunteer work promoting liver transplant. This is my first post. -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
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