Daughter with Hashimotos ????

[Guest guest]

In a message dated 3/23/2005 9:30:50 AM Eastern Standard Time,

ddwilde@... writes:

> She said he had an attitude like " your young, it`s not an emergency or

> anything " . How aggravating this is. How miserable does a person have to be to

get

> some help?

>

very miserable and half dead in my case. don't let untreated hypo continue -

it causes permanent damage.

cindi

[Guest guest]

In a message dated 3/23/2005 9:30:50 AM Eastern Standard Time,

ddwilde@... writes:

> Can anyone give me some websites where I might learn about hashimotos

> disease?

any search on this will give you lots of websites. hashimoto's is the most

common reason for hypo. you can test and find out if she has it. it is

recommended to give thyroid meds then..to help slow down the destruction of the

thyroid gland. antibodies can cause you to have hypo symptoms even when thyroid

hormone levels are in range.

Are you sure she isn't just not getting her period because she's hypo?

cindi

[Guest guest]

Good morning everyone, I am mainly a lurker but am learning so much from this

list.

My 25 year old daughter has premature ovarian failure. It started when she was

16 or 17.

She has been to doctors and tried different things but nothing has worked.

Now she has finally gotten her own insurance and she went back to her gyno. He

did test and said her thyroid level is a 10. He sends her to an endocrinologist

here in our town.

Well, he said he thought she had Hashimotos. He didn`t give her any medicine and

took more blood. He kept saying that what they should really be working on is

getting her to have her period. She told him she had been working on that for at

least 5 years and pretty much accepted the fact that it wasn`t going to happen.

She told him she wants to feel better so she can get on with her life. He seemed

to be reluctant to get her on medicine. She said he had an attitude like " your

young, it`s not an emergency or anything " . How aggravating this is. How

miserable does a person have to be to get some help?

I know a lot of people on this list have had similar problems with doctors. I

just want to help my daughter and comfort her anyway I can.

Does this level seems outrageously high to you guys?

Can anyone give me some websites where I might learn about hashimotos disease?

Any help is appreciated.

Thanks, Donna

[Guest guest]

Donna,

I am 25, so I can tell you that I can relate to your daughter in

that it really sucks to have all of these health problems in what is

suppossed to be the 'prime' of your life. I have Hashimotos and a

severe case of endometriosis.

My sister has something similar to your daughter where she does not

get periods. She is 20, and she also has Hashimotos (which is not

being treated), Polycystic ovarian syndrome, and now endometriosis.

Has your daughter been checked for PCOS? This is a hormonal

imbalance where the ovaries produce too much testosterone. Some of

the side effects are acne and facial hair---but my little sister is

about as feminine looking as you can get!!

I don't understand why your daughter is not being treated with a tsh

of 10. When my tsh is off like that I start to lose my hair and can

barely get out of bed. I think she needs to find a new doctor!!!

My sister and I don't go to a regular GYN for our problems, we go to

a reproductive endocrinologist. I recently fired my sister's doc,

and found one whom I really liked.

Well, I hope that she starts to feel better soon!

Take care!!

- L.

> Good morning everyone, I am mainly a lurker but am learning so

much from this list.

> My 25 year old daughter has premature ovarian failure. It started

when she was 16 or 17.

> She has been to doctors and tried different things but nothing has

worked.

> Now she has finally gotten her own insurance and she went back to

her gyno. He did test and said her thyroid level is a 10. He sends

her to an endocrinologist here in our town.

> Well, he said he thought she had Hashimotos. He didn`t give her

any medicine and took more blood. He kept saying that what they

should really be working on is getting her to have her period. She

told him she had been working on that for at least 5 years and

pretty much accepted the fact that it wasn`t going to happen. She

told him she wants to feel better so she can get on with her life.

He seemed to be reluctant to get her on medicine. She said he had an

attitude like " your young, it`s not an emergency or anything " . How

aggravating this is. How miserable does a person have to be to get

some help?

> I know a lot of people on this list have had similar problems

with doctors. I just want to help my daughter and comfort her anyway

I can.

> Does this level seems outrageously high to you guys?

> Can anyone give me some websites where I might learn about

hashimotos disease? Any help is appreciated.

> Thanks, Donna

>

[Guest guest]

Donna,

I am 25, so I can tell you that I can relate to your daughter in

that it really sucks to have all of these health problems in what is

suppossed to be the 'prime' of your life. I have Hashimotos and a

severe case of endometriosis.

My sister has something similar to your daughter where she does not

get periods. She is 20, and she also has Hashimotos (which is not

being treated), Polycystic ovarian syndrome, and now endometriosis.

Has your daughter been checked for PCOS? This is a hormonal

imbalance where the ovaries produce too much testosterone. Some of

the side effects are acne and facial hair---but my little sister is

about as feminine looking as you can get!!

I don't understand why your daughter is not being treated with a tsh

of 10. When my tsh is off like that I start to lose my hair and can

barely get out of bed. I think she needs to find a new doctor!!!

My sister and I don't go to a regular GYN for our problems, we go to

a reproductive endocrinologist. I recently fired my sister's doc,

and found one whom I really liked.

Well, I hope that she starts to feel better soon!

Take care!!

- L.

> Good morning everyone, I am mainly a lurker but am learning so

much from this list.

> My 25 year old daughter has premature ovarian failure. It started

when she was 16 or 17.

> She has been to doctors and tried different things but nothing has

worked.

> Now she has finally gotten her own insurance and she went back to

her gyno. He did test and said her thyroid level is a 10. He sends

her to an endocrinologist here in our town.

> Well, he said he thought she had Hashimotos. He didn`t give her

any medicine and took more blood. He kept saying that what they

should really be working on is getting her to have her period. She

told him she had been working on that for at least 5 years and

pretty much accepted the fact that it wasn`t going to happen. She

told him she wants to feel better so she can get on with her life.

He seemed to be reluctant to get her on medicine. She said he had an

attitude like " your young, it`s not an emergency or anything " . How

aggravating this is. How miserable does a person have to be to get

some help?

> I know a lot of people on this list have had similar problems

with doctors. I just want to help my daughter and comfort her anyway

I can.

> Does this level seems outrageously high to you guys?

> Can anyone give me some websites where I might learn about

hashimotos disease? Any help is appreciated.

> Thanks, Donna

>

[Guest guest]

Donna,

I am 25, so I can tell you that I can relate to your daughter in

that it really sucks to have all of these health problems in what is

suppossed to be the 'prime' of your life. I have Hashimotos and a

severe case of endometriosis.

My sister has something similar to your daughter where she does not

get periods. She is 20, and she also has Hashimotos (which is not

being treated), Polycystic ovarian syndrome, and now endometriosis.

Has your daughter been checked for PCOS? This is a hormonal

imbalance where the ovaries produce too much testosterone. Some of

the side effects are acne and facial hair---but my little sister is

about as feminine looking as you can get!!

I don't understand why your daughter is not being treated with a tsh

of 10. When my tsh is off like that I start to lose my hair and can

barely get out of bed. I think she needs to find a new doctor!!!

My sister and I don't go to a regular GYN for our problems, we go to

a reproductive endocrinologist. I recently fired my sister's doc,

and found one whom I really liked.

Well, I hope that she starts to feel better soon!

Take care!!

- L.

> Good morning everyone, I am mainly a lurker but am learning so

much from this list.

> My 25 year old daughter has premature ovarian failure. It started

when she was 16 or 17.

> She has been to doctors and tried different things but nothing has

worked.

> Now she has finally gotten her own insurance and she went back to

her gyno. He did test and said her thyroid level is a 10. He sends

her to an endocrinologist here in our town.

> Well, he said he thought she had Hashimotos. He didn`t give her

any medicine and took more blood. He kept saying that what they

should really be working on is getting her to have her period. She

told him she had been working on that for at least 5 years and

pretty much accepted the fact that it wasn`t going to happen. She

told him she wants to feel better so she can get on with her life.

He seemed to be reluctant to get her on medicine. She said he had an

attitude like " your young, it`s not an emergency or anything " . How

aggravating this is. How miserable does a person have to be to get

some help?

> I know a lot of people on this list have had similar problems

with doctors. I just want to help my daughter and comfort her anyway

I can.

> Does this level seems outrageously high to you guys?

> Can anyone give me some websites where I might learn about

hashimotos disease? Any help is appreciated.

> Thanks, Donna

>

[Guest guest]

In a message dated 3/23/2005 5:53:36 PM Eastern Standard Time,

ddwilde@... writes:

> Did you girls have a lot of pain with your periods? My daughters pain was

> so bad she would throw up and actually passed out a couple of times

before hashi's diagnosis, YES. Terribly painful and heavy flow. that can be

a hypo symptom...but about after 3 months of Armour, all that went away.

Makes me mad to know I suffered about 10 years with that particular symptom.

Cindi

[Guest guest]

In a message dated 3/23/2005 5:53:36 PM Eastern Standard Time,

ddwilde@... writes:

> Did you girls have a lot of pain with your periods? My daughters pain was

> so bad she would throw up and actually passed out a couple of times

before hashi's diagnosis, YES. Terribly painful and heavy flow. that can be

a hypo symptom...but about after 3 months of Armour, all that went away.

Makes me mad to know I suffered about 10 years with that particular symptom.

Cindi

[Guest guest]

In a message dated 3/23/2005 5:53:36 PM Eastern Standard Time,

ddwilde@... writes:

> Did you girls have a lot of pain with your periods? My daughters pain was

> so bad she would throw up and actually passed out a couple of times

before hashi's diagnosis, YES. Terribly painful and heavy flow. that can be

a hypo symptom...but about after 3 months of Armour, all that went away.

Makes me mad to know I suffered about 10 years with that particular symptom.

Cindi

[Guest guest]

In a message dated 3/23/2005 5:55:05 PM Eastern Standard Time,

ddwilde@... writes:

> Thanks for your responses Cindi. I appreciate the fact that you care.

Donna,

The way I see it...is that if I had to go thru years of not being diagnosed

properly and feeling like crap most of the time...well, if I can help someone

else avoid that by what I have learned...well then my own adversity will not

have been for nothing.

Cindi

[Guest guest]

In a message dated 3/23/2005 5:55:05 PM Eastern Standard Time,

ddwilde@... writes:

> Thanks for your responses Cindi. I appreciate the fact that you care.

Donna,

The way I see it...is that if I had to go thru years of not being diagnosed

properly and feeling like crap most of the time...well, if I can help someone

else avoid that by what I have learned...well then my own adversity will not

have been for nothing.

Cindi

[Guest guest]

In a message dated 3/23/2005 8:27:11 PM Eastern Standard Time,

nk_laurie@... writes:

> She has told me that her periods are

> starting to get really bad, which is a sure sign of endometriosis.

>

I just want to take exception to this statement....painful periods are not

necessarily indicative of endometriosis. it can just be from being hypothyroid.

cindi

[Guest guest]

In a message dated 3/23/2005 8:27:11 PM Eastern Standard Time,

nk_laurie@... writes:

> She has told me that her periods are

> starting to get really bad, which is a sure sign of endometriosis.

>

I just want to take exception to this statement....painful periods are not

necessarily indicative of endometriosis. it can just be from being hypothyroid.

cindi

[Guest guest]

In a message dated 3/23/2005 8:27:11 PM Eastern Standard Time,

nk_laurie@... writes:

> and he says it is common for

> women with endometriosis to have other autoimmune problems such as

> Hashi's or PCOS.

>

never heard that one. my speculation would be that it was undertreated

Hashi's contributing to the endometriosis. That's actually what I thought I had

for several years because of the very painful periods.

cindi

[Guest guest]

Thanks for your responses Cindi. I appreciate the fact that you care. Donna

[Guest guest]

Thanks for your responses Cindi. I appreciate the fact that you care. Donna

[Guest guest]

, Thanks for responding to my e-mail. I don`t know about the PCOS. I guess

I shouldn`t just assume that she has been tested.

Can I ask you a question? Did you girls have a lot of pain with your periods? My

daughters pain was so bad she would throw up and actually passed out a couple of

times. Her gyno decided to put her on birthcontrol pills. She took them everyday

and the idea was to discontinue the every 3 months so she could have only 3 to 4

a year. Well, she never had another one(period).

It interests me that both of you girls have these kind of problems. My youngest

daughter is starting to have the painful cycles and I am so scared she will go

through this, too.

My older daughter just wants to feel better. Thanks for caring.

Donna

P.S. If we go to this endo again and he is not aggressive enough we will

defiantly look elsewhere. We have wasted enough time already.

[Guest guest]

>>Did you girls have a lot of pain with your periods?<<

Painful periods is COMMON whit hypothyroidism. If I knew then what I know now

about HYPO I probably would have children. I used to plan on at least 1-2 days

a month in bed always from my period cramping and then later on from the

" painful ovulation " that sent me to the ER and still was not diagnosed. I ended

up with Endometriosis so bad it became Pelvic Inflammatory Disease and I had to

have everything out when I was 27 years old.

*Artistic Grooming * Hurricane, WV

Fat cat? Diabetes? Listowner for overweight or hypothyroid cats

http://groups.yahoo.com/group/hypokitties/

[Guest guest]

Looking back now, after several years of suffering, I remember a

doctor when I was in late 20's, early 30's, saying " Well, your

thyroid is a little off but I'm not going to do anything about it

yet. " At the time I didn't know the first thing about what he was

talking about. Now, at 45 and having suffered several years, how I

wish I knew what I know now and demanded to start treating it then.

My daughter is young also and I am pushing and pushing to get her on

the right treatment (Armour) and the right amount of treatment NOW

and not 20 years from now. Try to get your daughter good treatment

now also.

> In a message dated 3/23/2005 9:30:50 AM Eastern Standard Time,

> ddwilde@s... writes:

>

> > She said he had an attitude like " your young, it`s not an

emergency or

> > anything " . How aggravating this is. How miserable does a person

have to be to get

> > some help?

> >

>

> very miserable and half dead in my case. don't let untreated hypo

continue -

> it causes permanent damage.

> cindi

>

>

>

[Guest guest]

Looking back now, after several years of suffering, I remember a

doctor when I was in late 20's, early 30's, saying " Well, your

thyroid is a little off but I'm not going to do anything about it

yet. " At the time I didn't know the first thing about what he was

talking about. Now, at 45 and having suffered several years, how I

wish I knew what I know now and demanded to start treating it then.

My daughter is young also and I am pushing and pushing to get her on

the right treatment (Armour) and the right amount of treatment NOW

and not 20 years from now. Try to get your daughter good treatment

now also.

> In a message dated 3/23/2005 9:30:50 AM Eastern Standard Time,

> ddwilde@s... writes:

>

> > She said he had an attitude like " your young, it`s not an

emergency or

> > anything " . How aggravating this is. How miserable does a person

have to be to get

> > some help?

> >

>

> very miserable and half dead in my case. don't let untreated hypo

continue -

> it causes permanent damage.

> cindi

>

>

>

[Guest guest]

Donna,

To answer your question about painful periods, yes.. they are

horrific. I have also been on birth control pills continuously to

stop them (but they don't work b/c I still get my periods, and more

often than I should). I have been prescribed pain pills such as

Vicodin and Ultram for my periods. Even when I take 600mg ibuprofen

every three hours I am still in so much pain that I can't stand up.

My sister was initially diagnosed with PCOS and was given bcpills to

induce menses (Mircette). She has told me that her periods are

starting to get really bad, which is a sure sign of endometriosis.

We are both due to have surgery soon, me in the next two weeks, and

her in the summertime.

I was diagnosed with Hashi's at age 11, and I know my sister was

diagnosed around the same age. The difference is that she hasn't

needed meds (according to her doctor) and I have been on meds since

I was diagnosed. My mother also has Hashi's and Endo.

Anyways, I am seeing an endometriosis specialist (who is one of the

top endo specialists in the nation) and he says it is common for

women with endometriosis to have other autoimmune problems such as

Hashi's or PCOS.

What part of Texas do you live in? I live in Houston... if you need

a referral to a good reproductive endocrinologist let me know. I

have yet to find an endocrinologist that I am thrilled with, but I

really love my gynecologist/pelvic pain/endometriosis

specialist/surgeon. I also talked to his nurse to find out if he

would Rx compounded progesterone cream, and she said that he does

(which is rare).

Take care, and you or your daughter can email me anytime if you need

to talk.

Hugs,

- L.

> , Thanks for responding to my e-mail. I don`t know about the

PCOS. I guess I shouldn`t just assume that she has been tested.

> Can I ask you a question? Did you girls have a lot of pain with

your periods? My daughters pain was so bad she would throw up and

actually passed out a couple of times. Her gyno decided to put her

on birthcontrol pills. She took them everyday and the idea was to

discontinue the every 3 months so she could have only 3 to 4 a year.

Well, she never had another one(period).

> It interests me that both of you girls have these kind of

problems. My youngest daughter is starting to have the painful

cycles and I am so scared she will go through this, too.

> My older daughter just wants to feel better. Thanks for caring.

> Donna

> P.S. If we go to this endo again and he is not aggressive enough

we will defiantly look elsewhere. We have wasted enough time already.

>