RE: Body Temperature/Fevers

[Guest guest]

Just for the record I did not know had already come up with 2 articles about low body temperature when I wrote the message below!

Well then you get to find you an article about the low body temperatures and you send him that.

 

Ian 

Ian,Hi! That would be a great idea...but he's in Rochester, MN and I'm in VA when I'm not at the clinic...and currently I'm fever girl! LOLSandi in VA

-- Ian Cribb  P.Eng. (6... -- Ian Cribb  P.Eng.

[Guest guest]

What articles on low body temp?

From:

[mailto: ] On Behalf

Of Ian Cribb

Sent: Friday, March 06, 2009 12:53 PM

To:

Subject: Re: Body Temperature/Fevers

Just for the record I did not know had

already come up with 2 articles about low body temperature when I wrote the

message below!

[Guest guest]

Hi Sandi,My hepatologist seems adamant that my fatigue isn't from the PSC or the liver since my liver numbers are good. The other option is that I have on top of everything else chronic fatigue syndrome. I prefer to think it's from a combination of all that is wrong with me. That way, if and when I get a transplant, hopefully the fatigue will go away. I'm with Kaiser in So. Calif. and there are not that many hepatologists. I did see another hepatologist a few years ago, and he was adamant that there was nothing wrong with my liver. I knew that was wrong, and of course he was wrong. I switched doctors.As to GI doctors, my old GI was treating me for UC with azulfidine for more than 2 decades. I had a history of a toxic megacolon (rare complication of usually UC). I had minor flare ups of the UC over the years and the azulfidine dose was adjusted to treat the flare ups, per the doctor's orders. Well, when the adenomas were discovered, he came out and said he didn't think I had UC (I guess because it had been so well controlled). There again, I knew I had UC, and the blood test confirmed it, but it made me trust the doctor a lot less. During the colectomy for the adenomas, it was noted that my liver looked cirrhotic. This GI was sure I didn't have PSC because that was such a rare disease. Ha!!! Wrong again. I eventually changed doctors.Marie

UC, J-pouch, chronic pouchitis, PSC, AIH, adrenal gland insufficencyTo: From: kizzersmom@...Date: Thu, 5 Mar 2009 20:07:53 -0800Subject: Body Temperature/Fevers

Enid (and everyone else!),

Hi! I'm sorry it's taken me so long to write back to you on this fever/low temp issue. I'm up at Mayo Rochester currently and they're keeping me pretty busy. The fever counting principle was pretty easy. Basically, she just told me that I would use the same scale as a person with a 98.6 degree normal temperature. For instance, if you are normally 98.6 and you go up .4 degrees, that would put you at 99 (a low-grade fever). If you start out at 96.8 degrees and you gain .4 degrees that puts you at 97.2 (if my math is right), but that would be the equivalent of a 99 degree fever for someone with a regular body temp. Does that make sense? If not, let me know and I'll try again.

On a totally different note, I met with my new PSC doc at Rochester Mayo. I was speaking to him about the fact that I'd been running fevers lately and that it was worrying me. He asked what my temperature was and I stated that when I'm not sick I run a 96.8. He interrupted me and told me that ALL people were 98.6 and that I could not possibly be a 96.8. I repeated again that I was a 96.8 and he again told me that was impossible and that everyone was a 98.6. I tried to (politely) argue with him but he shut me down. I finally just told him that I was running 2-3 degree fevers and left it at that. I'm not sure yet if I'm keeping this doctor or if I'm going to ask for another one (there were more issues than just the temperature thing), but I found it very frustrating that he wouldn't acknowledge and didn't seem to know that low body temps was a fairly common PSC thing! Has anyone else run into this kind of adamant denial about their symptoms or PSC

related oddities?

Sandi in VA

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[Guest guest]

Hi Sandi,My hepatologist seems adamant that my fatigue isn't from the PSC or the liver since my liver numbers are good. The other option is that I have on top of everything else chronic fatigue syndrome. I prefer to think it's from a combination of all that is wrong with me. That way, if and when I get a transplant, hopefully the fatigue will go away. I'm with Kaiser in So. Calif. and there are not that many hepatologists. I did see another hepatologist a few years ago, and he was adamant that there was nothing wrong with my liver. I knew that was wrong, and of course he was wrong. I switched doctors.As to GI doctors, my old GI was treating me for UC with azulfidine for more than 2 decades. I had a history of a toxic megacolon (rare complication of usually UC). I had minor flare ups of the UC over the years and the azulfidine dose was adjusted to treat the flare ups, per the doctor's orders. Well, when the adenomas were discovered, he came out and said he didn't think I had UC (I guess because it had been so well controlled). There again, I knew I had UC, and the blood test confirmed it, but it made me trust the doctor a lot less. During the colectomy for the adenomas, it was noted that my liver looked cirrhotic. This GI was sure I didn't have PSC because that was such a rare disease. Ha!!! Wrong again. I eventually changed doctors.Marie

UC, J-pouch, chronic pouchitis, PSC, AIH, adrenal gland insufficencyTo: From: kizzersmom@...Date: Thu, 5 Mar 2009 20:07:53 -0800Subject: Body Temperature/Fevers

Enid (and everyone else!),

Hi! I'm sorry it's taken me so long to write back to you on this fever/low temp issue. I'm up at Mayo Rochester currently and they're keeping me pretty busy. The fever counting principle was pretty easy. Basically, she just told me that I would use the same scale as a person with a 98.6 degree normal temperature. For instance, if you are normally 98.6 and you go up .4 degrees, that would put you at 99 (a low-grade fever). If you start out at 96.8 degrees and you gain .4 degrees that puts you at 97.2 (if my math is right), but that would be the equivalent of a 99 degree fever for someone with a regular body temp. Does that make sense? If not, let me know and I'll try again.

On a totally different note, I met with my new PSC doc at Rochester Mayo. I was speaking to him about the fact that I'd been running fevers lately and that it was worrying me. He asked what my temperature was and I stated that when I'm not sick I run a 96.8. He interrupted me and told me that ALL people were 98.6 and that I could not possibly be a 96.8. I repeated again that I was a 96.8 and he again told me that was impossible and that everyone was a 98.6. I tried to (politely) argue with him but he shut me down. I finally just told him that I was running 2-3 degree fevers and left it at that. I'm not sure yet if I'm keeping this doctor or if I'm going to ask for another one (there were more issues than just the temperature thing), but I found it very frustrating that he wouldn't acknowledge and didn't seem to know that low body temps was a fairly common PSC thing! Has anyone else run into this kind of adamant denial about their symptoms or PSC

related oddities?

Sandi in VA

Express your personality in color! Preview and select themes for Hotmail®. See how.

[Guest guest]

Hi Sandi,My hepatologist seems adamant that my fatigue isn't from the PSC or the liver since my liver numbers are good. The other option is that I have on top of everything else chronic fatigue syndrome. I prefer to think it's from a combination of all that is wrong with me. That way, if and when I get a transplant, hopefully the fatigue will go away. I'm with Kaiser in So. Calif. and there are not that many hepatologists. I did see another hepatologist a few years ago, and he was adamant that there was nothing wrong with my liver. I knew that was wrong, and of course he was wrong. I switched doctors.As to GI doctors, my old GI was treating me for UC with azulfidine for more than 2 decades. I had a history of a toxic megacolon (rare complication of usually UC). I had minor flare ups of the UC over the years and the azulfidine dose was adjusted to treat the flare ups, per the doctor's orders. Well, when the adenomas were discovered, he came out and said he didn't think I had UC (I guess because it had been so well controlled). There again, I knew I had UC, and the blood test confirmed it, but it made me trust the doctor a lot less. During the colectomy for the adenomas, it was noted that my liver looked cirrhotic. This GI was sure I didn't have PSC because that was such a rare disease. Ha!!! Wrong again. I eventually changed doctors.Marie

UC, J-pouch, chronic pouchitis, PSC, AIH, adrenal gland insufficencyTo: From: kizzersmom@...Date: Thu, 5 Mar 2009 20:07:53 -0800Subject: Body Temperature/Fevers

Enid (and everyone else!),

Hi! I'm sorry it's taken me so long to write back to you on this fever/low temp issue. I'm up at Mayo Rochester currently and they're keeping me pretty busy. The fever counting principle was pretty easy. Basically, she just told me that I would use the same scale as a person with a 98.6 degree normal temperature. For instance, if you are normally 98.6 and you go up .4 degrees, that would put you at 99 (a low-grade fever). If you start out at 96.8 degrees and you gain .4 degrees that puts you at 97.2 (if my math is right), but that would be the equivalent of a 99 degree fever for someone with a regular body temp. Does that make sense? If not, let me know and I'll try again.

On a totally different note, I met with my new PSC doc at Rochester Mayo. I was speaking to him about the fact that I'd been running fevers lately and that it was worrying me. He asked what my temperature was and I stated that when I'm not sick I run a 96.8. He interrupted me and told me that ALL people were 98.6 and that I could not possibly be a 96.8. I repeated again that I was a 96.8 and he again told me that was impossible and that everyone was a 98.6. I tried to (politely) argue with him but he shut me down. I finally just told him that I was running 2-3 degree fevers and left it at that. I'm not sure yet if I'm keeping this doctor or if I'm going to ask for another one (there were more issues than just the temperature thing), but I found it very frustrating that he wouldn't acknowledge and didn't seem to know that low body temps was a fairly common PSC thing! Has anyone else run into this kind of adamant denial about their symptoms or PSC

related oddities?

Sandi in VA

Express your personality in color! Preview and select themes for Hotmail®. See how.