Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 , I've been pretty sick lately and I didn't really pay attention to the posts like I wanted to. Do you mind telling me more about how all this was discovered? Also, I went down to SLC and saw Dr. Batista at the Mountain West Gastroenterology. I did not like this dr at all. He has referred me to the Mountain West Gastro Transplant Center where I will be evaluated by the team. Is this where went? or did he go to the University of Utah Transplant center? Hope to hear from you soon. I'm very unsettled right now because this Dr. Batista told me I never had Ulcerative Colitis, that I don't have ascities, that all my pain (including URQ) is due to the fact that I have Chronic Pain Syndrome. He was so full of misinformation that my head is still spinning. I haven't discussed this with my PCP. I did have a good visit with the Rheumatologist over my other problems and they are about ready to diagnose. Since it's been years with the problems, I will have that relief. Take care, Cheryl ID Re: Don Ca 19 > So, here's something to give everyone anxiety: 's CA19 was ZERO > when he was diagnosed with the boogeyman cholangiocarcinoma. It's > clearly not a great marker for screening out this problem. I so pray > they get something better to screen for cancer for people who are high > risk for CCA. Early detection is the only way to survive it. > > , wife of (psc 95, cca 2007, tx 2008, and now........ > survivor of hepatic arterial aneurysm..... Oh! we are having so much > fun with all this. I can't believe I had actually wondered how we were > going to spend out our flexible spending account this year..... enter > maniacal laughter.........) > > Quote Link to comment Share on other sites More sharing options...
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