Re: To my fellow Lupies

[Guest guest]

Sunny,

Don't give up just because your family members don't understand what it is like to live with Lupus!!

I have not been in touch with my 'Family of Origin ' in many years because they ignored the fact that I was being sexually abused as a child......by family members!

And secondly, I swore that MY KIDS would never be put in that danger!

Some of us just have lousy families! Thank Goodness you have a wonderful and supportive Husband. I would also suggest you check with your doctor to see if you neen your antidepressant dose increased.

Here in Texas the documents you are asking about is called a ' Living Will ' and a DNR

( Do Not Resusitate) I have one on file at my local Hospital. That's one of the things they usually ask when you are first hospitalized........I also see packages for the Living Will at the Pharmacy with all the forms and information needed to fill them out.

Ask your Doctor about these documents......I' m sure he will know what they are called in your state, and how to go about getting them .

In the Meantime don't forget that WE ARE ALWAYS HERE FOR YOU.....even if we can' t phisically help you......We can Spiritually and Lovingly help you to get over the rough times.....WE love you!

To my fellow Lupies

I want to commend all of you on how good your spirits and attitudes are with coping with Lupus. I have had it for so many years that I don't remember my life without it.At this point in my life, however, my lupus is becoming much worse. More organs are involved now and I am struggling to maintain a somewhat normal lifestyle in spite of it.But my biggest problem is the way people around me handle it. I have a husband sent directly from God who has been by my side from Day one. He understands my limitations and takes up the slack for me on a daily basis.Yesterday, I changed my policy of never asking my immediate family for help. It unleashed a ton of opinions of me and my life. It was a day of total heartbreak for me as I am being force to realize that they truly don't care about me unless I am well. My disease is disgusting to them. I don't have money as I can't work. I have too many bills. I should snap out of it. I am having a pity party. I should buck up.Needless to say, it put me into a total depression that I am still struggling to overcome today. One of them called today to give me even more garbage as they feared I may take my own life. But the one thing I might have wanted to hear.. compassion.. was not on the agenda. Only more judgment as to how I should not be depressed as I have so much and blah blah blah.Today, my phone is off and I am swallowing tranquilizers as often as I can without ODing. Yes, I WOULD like to do myself in, but I am a Christian and I don't believe in it.Instead, I am praying to God to do that for me.I have instructed my husband that, should the Lord decide to answer my prayer, that nothing be done to keep me alive.Do any of you know what kind of document is needed to insure that they won't? I don't want him to be put in the position to have to fight with my other family members. They are more than aware of my deep depression as my disease worsens, but only one called today to see if I was okay. That one wasn't happy that I was alone and blasted my husband for leaving me alone. ( He had to go to work...) But, she made zero effort to come watch over me herself.The beat goes on.. but hopefully, soon, without me.I would like to hear how you all feel about your wishes should you become unable to make them yourself.If you feel like I do, that you are tired of living in a painful body in a world of uncaring people, how would you handle making sure no one blocks God from taking you?Thank you all for always being a HUGE support to me. You have no idea how many times reading your posts has helped me.Love to you all,Sunny"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies