Hi Dawn Marie

[Guest guest]

From: lyle-cheryl

Sent: Saturday, July 31, 2004 7:25

PM

To: LUPIES

Subject: Hi Fran

Welcome

Dawn,

I am glad you found us. This is a friendly place with lots of good

information. I am 57 but have had lupus since a teen. I

didn’t get a proper dx until I was in my early 40’s. I have

lupus, fibromyalgia, arthritis, osteoporosis, TMJ dysfunction, IBS, degenerative

disk disease, interstitial cystitis, and cognitive dysfunction (lupus fog).

I am a cancer survivor and have had several brain seizures and a brain

hemorrhage about 7 ½ yrs. ago. Lots of the lupies here have multiple

illnesses, some of which (like mine) may have nothing to do with lupus.

Feel free to express yourself anyway you like. I am married (25

years).  My husband is bipolar and our marriage can be a challenge at times.  He

is a good, kind, and faithful Christian husband.  My kids are grown and both

live in different states.  I have 3 grandchildren.  I suffer from depression,

do you? Depression is a chemical problem that people with lupus and

fibromyalgia get. I take meds for it. The other thing that happens

to us is lack of REM sleep. I take sleeping pills to help me.

Again, Welcome,  You need to find a Dr. who is willing to bring

down that fever.

Signs and Symptoms Which May Signal That a

Lupus Flare is Beginning

A

selection from the Lupus Foundation of America Newsletter Article

Library

LFA Patient Education Committee

Approved 92-040

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Be

aware of one or more of these symptoms:

Persistent

fatigue out of proportion with what you would usually

expect

Persistent

weakness

 

Aching

all over

Fever,

which may be slight to high (you can check your temperature

yourself)

 

Persistent

loss of appetite

 

Involuntary

weight loss

Increasing

hair loss

Recurring

nose bleeds

 

Sore

on the roof of the mouth, which burns with spicy foods

Unexplained

skin rash anywhere on the body

 

Hives

 

Sores

on the skin

Painful

joint(s)

Swollen

joint(s)

Stiffness

of the joints when waking up in the morning

Chest

pain which increases with breathing

Shortness

of breath

Coughing

up blood

Persistent

unusual headache

Nausea

or vomiting

Recurring

or persistent abdominal pain

Persistent,

increasing swelling of the feet and legs

 

Puffy

eyelids

Blood

in the urine

Lupus

is often a self repetitive disease: watch for a recurrence of

the

symptoms that you experienced when your disease started.

Try looking for a Dr. with this web site http://www.healthgrades.com/consumer/index.cfm?

Hi everyone,

Just as I thought that there couldn't possibly be

another publication

of a lupus book that one would need, I found a new

recently published

book at Borders that I think is wonderful.

The book is titled Lupus Q & A Everything you

need to know by G.

Lahita, M.D., Ph.D (Rheumatologist) and H.

, Ph.D.

(Psychologist) There are 228 pages of questions

regarding every

possible aspect of our illness complete with

layman term answers.

What I like the most is that the layout of the

book seemingly

deciphers everything regarding lupus. ie;

socio-economic, ethnicity

percentales, questions from loved ones, etc.

I highly recommend this book. The cost is $14.95

U.S. $22.00 CAN.

Hello, my name is Dawn

Marie, I'm 37 with 3 beautiful children, and I'm married to the nicest man you

could ever meet. You'd almost have to be to put up with me with all my

bad spells. I live in Missouri

and the doctors around here don't seem to have a clue about autoimmune

diseases. I am not officially diagnosed with Lupus yet but they are

saying that they believe that's the. I'm very sick right now; Can't

seem to make my fever go away. And if this is Lupus then there is CNS

involvement, for me anyway. It's all so confusing; We just want

some answers.

Dawn Marie