Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Beth, Just out of curiosity, do you still have your gallbladder? I know that one of the reasons Chaim's hep. and GI decided to perform a cholecystectomy (and this is my basic understanding of it) was with the idea in mind that doing so would improve his quality of life-in the short term- i.e. less chance for stone and sludge build-up and therefore less chance that multiple ERCP's would need to be done. Of course this is such an individual disease, but this path seems/ ed to be working for Chaim. Ellen (wife of Chaim, PSC 2002, cholecystectomy 2006) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 ULQ or ORQ pain? Is it some form of gastritis?ShaulPSC UCSent via BlackBerry by AT&TDate: Wed, 19 Nov 2008 09:07:19 -0600To: < >Subject: Re:Multiple ERCP's?? I have been getting ERCP's every 6 months and this was supposed to be my 6th in August. I made the point to the Doc that since the last two ERCP's didn't turn up any sludge or stones could we just roll the dice for a while? He made me wait until they received my blood results, but let me go without it. I am having ULQ pain from time to time, but other than that I feel fine. Don't get in a rut and just go along with the every so often plan if your situation doesn't require it. It will cut down the medical bills and the ERCP is less than pleasant. So until anything changes in my bloodwork, I am rolling the dice. Of course if I start feeling bad I will go in. They wanted to give me ERCP #6 the next morning after #5 since we went to the ER with pain. A transplant doc was on call that night and I was there until 1:00 AM, but we talked some reason into them when the blood work came in. My pain is more frequent, the writing is on the wall, but I want to put it off as long as possible (within reason of course). in Minnesota PSC 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 ULQ or ORQ pain? Is it some form of gastritis?ShaulPSC UCSent via BlackBerry by AT&TDate: Wed, 19 Nov 2008 09:07:19 -0600To: < >Subject: Re:Multiple ERCP's?? I have been getting ERCP's every 6 months and this was supposed to be my 6th in August. I made the point to the Doc that since the last two ERCP's didn't turn up any sludge or stones could we just roll the dice for a while? He made me wait until they received my blood results, but let me go without it. I am having ULQ pain from time to time, but other than that I feel fine. Don't get in a rut and just go along with the every so often plan if your situation doesn't require it. It will cut down the medical bills and the ERCP is less than pleasant. So until anything changes in my bloodwork, I am rolling the dice. Of course if I start feeling bad I will go in. They wanted to give me ERCP #6 the next morning after #5 since we went to the ER with pain. A transplant doc was on call that night and I was there until 1:00 AM, but we talked some reason into them when the blood work came in. My pain is more frequent, the writing is on the wall, but I want to put it off as long as possible (within reason of course). in Minnesota PSC 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Pain can refer to the other side ....maybe that's what is happening......Pam B To: Sent: Wednesday, November 19, 2008 3:31:07 PMSubject: Re: Re:Multiple ERCP's?? Ian (52) PSC 89 On 11/19/08, Sny <dlrepmn (AT) yahoo (DOT) com> wrote:PSC 2006-- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Maybe the spleen is acting up. Not uncommon in PSC patients either. Regard, Chaim Boermeester, Israel From: [mailto: ] On Behalf Of pam brown Sent: Thursday, November 20, 2008 00:01 To: Subject: Re: Re:Multiple ERCP's?? Pain can refer to the other side ....maybe that's what is happening......Pam B From: Ian Cribb <icribb (AT) gmail (DOT) com> To: Sent: Wednesday, November 19, 2008 3:31:07 PM Subject: Re: Re:Multiple ERCP's?? Ian (52) PSC 89 On 11/19/08, Sny <dlrepmn (AT) yahoo (DOT) com> wrote:PSC 2006 -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Maybe the spleen is acting up. Not uncommon in PSC patients either. Regard, Chaim Boermeester, Israel From: [mailto: ] On Behalf Of pam brown Sent: Thursday, November 20, 2008 00:01 To: Subject: Re: Re:Multiple ERCP's?? Pain can refer to the other side ....maybe that's what is happening......Pam B From: Ian Cribb <icribb (AT) gmail (DOT) com> To: Sent: Wednesday, November 19, 2008 3:31:07 PM Subject: Re: Re:Multiple ERCP's?? Ian (52) PSC 89 On 11/19/08, Sny <dlrepmn (AT) yahoo (DOT) com> wrote:PSC 2006 -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Maybe the spleen is acting up. Not uncommon in PSC patients either. Regard, Chaim Boermeester, Israel From: [mailto: ] On Behalf Of pam brown Sent: Thursday, November 20, 2008 00:01 To: Subject: Re: Re:Multiple ERCP's?? Pain can refer to the other side ....maybe that's what is happening......Pam B From: Ian Cribb <icribb (AT) gmail (DOT) com> To: Sent: Wednesday, November 19, 2008 3:31:07 PM Subject: Re: Re:Multiple ERCP's?? Ian (52) PSC 89 On 11/19/08, Sny <dlrepmn (AT) yahoo (DOT) com> wrote:PSC 2006 -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Hi Ian and , I also get lots of pain from my upper left side, my docs think this is because mu spleen is enlarged to 19cm due to portal hypertention (plz 4give my spelling!) Have you had your spleen checked for size etc...? Regards (UK, psc & uc 2002) > > > > I have been getting ERCP's every 6 months and this was supposed to be > > my 6th in August. I made the point to the Doc that since the last two > > ERCP's didn't turn up any sludge or stones could we just roll the dice > > for a while? He made me wait until they received my blood results, but > > let me go without it. I am having ULQ pain from time to time, but > > other than that I feel fine. > > > > Don't get in a rut and just go along with the every so often plan if > > your situation doesn't require it. It will cut down the medical bills > > and the ERCP is less than pleasant. So until anything changes in my > > bloodwork, I am rolling the dice. Of course if I start feeling bad I > > will go in. They wanted to give me ERCP #6 the next morning after #5 > > since we went to the ER with pain. A transplant doc was on call that > > night and I was there until 1:00 AM, but we talked some reason into > > them when the blood work came in. > > > > My pain is more frequent, the writing is on the wall, but I want to > > put it off as long as possible (within reason of course). > > > > in Minnesota > > PSC 2006 > > > > > > > > > > -- > Ian Cribb P.Eng. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Hi Ian and , I also get lots of pain from my upper left side, my docs think this is because mu spleen is enlarged to 19cm due to portal hypertention (plz 4give my spelling!) Have you had your spleen checked for size etc...? Regards (UK, psc & uc 2002) > > > > I have been getting ERCP's every 6 months and this was supposed to be > > my 6th in August. I made the point to the Doc that since the last two > > ERCP's didn't turn up any sludge or stones could we just roll the dice > > for a while? He made me wait until they received my blood results, but > > let me go without it. I am having ULQ pain from time to time, but > > other than that I feel fine. > > > > Don't get in a rut and just go along with the every so often plan if > > your situation doesn't require it. It will cut down the medical bills > > and the ERCP is less than pleasant. So until anything changes in my > > bloodwork, I am rolling the dice. Of course if I start feeling bad I > > will go in. They wanted to give me ERCP #6 the next morning after #5 > > since we went to the ER with pain. A transplant doc was on call that > > night and I was there until 1:00 AM, but we talked some reason into > > them when the blood work came in. > > > > My pain is more frequent, the writing is on the wall, but I want to > > put it off as long as possible (within reason of course). > > > > in Minnesota > > PSC 2006 > > > > > > > > > > -- > Ian Cribb P.Eng. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Hi Ian and , I also get lots of pain from my upper left side, my docs think this is because mu spleen is enlarged to 19cm due to portal hypertention (plz 4give my spelling!) Have you had your spleen checked for size etc...? Regards (UK, psc & uc 2002) > > > > I have been getting ERCP's every 6 months and this was supposed to be > > my 6th in August. I made the point to the Doc that since the last two > > ERCP's didn't turn up any sludge or stones could we just roll the dice > > for a while? He made me wait until they received my blood results, but > > let me go without it. I am having ULQ pain from time to time, but > > other than that I feel fine. > > > > Don't get in a rut and just go along with the every so often plan if > > your situation doesn't require it. It will cut down the medical bills > > and the ERCP is less than pleasant. So until anything changes in my > > bloodwork, I am rolling the dice. Of course if I start feeling bad I > > will go in. They wanted to give me ERCP #6 the next morning after #5 > > since we went to the ER with pain. A transplant doc was on call that > > night and I was there until 1:00 AM, but we talked some reason into > > them when the blood work came in. > > > > My pain is more frequent, the writing is on the wall, but I want to > > put it off as long as possible (within reason of course). > > > > in Minnesota > > PSC 2006 > > > > > > > > > > -- > Ian Cribb P.Eng. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 I can total relate to the symptoms..... but my doctors are say that my labs and ultra sound are great.... the pain is always here. I am tired and feel drained the later part of my day and I am not sleeping. I somewhat feel that the doctor's don't believe when I say I am in pain because my bloodwork is showing that my liver functions are good and I look good. I am now experience diarrhea and pain in my colon along with gerd and still not much help from the doctors. Any advise on what I could do to get some relief from my symptom or how I can get the doctor's to understand the pain that comes with this desease..... ???? JoAnne Wisdom Riverside, CA - PSC 2007 I have been getting ERCP's every 6 months and this was supposed to be my 6th in August. I made the point to the Doc that since the last two ERCP's didn't turn up any sludge or stones could we just roll the dice for a while? He made me wait until they received my blood results, but let me go without it. I am having ULQ pain from time to time, but other than that I feel fine.Don't get in a rut and just go along with the every so often plan if your situation doesn't require it. It will cut down the medical bills and the ERCP is less than pleasant. So until anything changes in my bloodwork, I am rolling the dice. Of course if I start feeling bad I will go in. They wanted to give me ERCP #6 the next morning after #5 since we went to the ER with pain. A transplant doc was on call that night and I was there until 1:00 AM, but we talked some reason into them when the blood work came in.My pain is more frequent, the writing is on the wall, but I want to put it off as long as possible (within reason of course). in MinnesotaPSC 2006-- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 I can total relate to the symptoms..... but my doctors are say that my labs and ultra sound are great.... the pain is always here. I am tired and feel drained the later part of my day and I am not sleeping. I somewhat feel that the doctor's don't believe when I say I am in pain because my bloodwork is showing that my liver functions are good and I look good. I am now experience diarrhea and pain in my colon along with gerd and still not much help from the doctors. Any advise on what I could do to get some relief from my symptom or how I can get the doctor's to understand the pain that comes with this desease..... ???? JoAnne Wisdom Riverside, CA - PSC 2007 I have been getting ERCP's every 6 months and this was supposed to be my 6th in August. I made the point to the Doc that since the last two ERCP's didn't turn up any sludge or stones could we just roll the dice for a while? He made me wait until they received my blood results, but let me go without it. I am having ULQ pain from time to time, but other than that I feel fine.Don't get in a rut and just go along with the every so often plan if your situation doesn't require it. It will cut down the medical bills and the ERCP is less than pleasant. So until anything changes in my bloodwork, I am rolling the dice. Of course if I start feeling bad I will go in. They wanted to give me ERCP #6 the next morning after #5 since we went to the ER with pain. A transplant doc was on call that night and I was there until 1:00 AM, but we talked some reason into them when the blood work came in.My pain is more frequent, the writing is on the wall, but I want to put it off as long as possible (within reason of course). in MinnesotaPSC 2006-- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
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