Jim and Theories on how it all started for me

[Guest guest]

--- jimqca jim@...> wrote:

>

> Would some of you share how you feel on most days

> and just are the

> symptoms?

Hi Jim,

Thank you for sharing your journey here! I think all

of us here have been through the search for doctors

who not only care, listen and understand but also try

to help. There are very few of them out there.

I've been in pain my whole life and I only just this

February found a doctor who would listen and once

diagnosed I *finally* got my family to listen and not

just pass it off as " Charity is just a whiner " . I'm

one of those people who don't complain until it is so

bad I can't stand it anymore and I don't stay in bed

unless I can't get out of it. In the last year I have

gotten to that point for months at a time without

reprieve. My family somewhat is understanding, but

seem to feel that I'm now giving my laziness a name

and allowing myself to wallow in it...which is

definately not true, I've known that I have Fibro for

years now, I've just been searching for a Doc that

doesn't give me the lose weight crap to diagnose me.

Now I have a lover who believes that she hurts more

than I do all the time and expects me to give her

special treatment but not expect the same in return.

I am searching for a way to get the people I love in

my life to understand. If anyone has any advise for

me I would absolutely love to hear it. I'm at my wits

end.

I also am interested in hearing if anyone has a theory

as to how they got this disease. No one knows for

sure what starts it, of course, but I know I now have

a theory of when and where mine started.

When I was 18 months old I fell out of a second story

window head first onto a concrete block, splitting my

head open. I'm very lucky to still be alive. I

remember having pain in my feet and ankles and it

would crawl up my legs, the more I walked the worse it

got, kind of thing. I was a very sickly child, any

bug that went around, I got.

Then when I was 15 or 16 I was rollerblading and was

going down a hill that had a sharp turn at the end. I

didn't make the turn, flipped and hit my head hard on

a cement planter. Second concussion of my life and my

symptoms got worse...

In February, I was under a co-workers desk trying to

fix their computer and the phone rang, scaring me half

to death, I stood staight up WAM, hit my head hard on

the underside of the desk. That's when my symptoms

got really really bad. I had a full fledged flare in

my neck that started to cut off blood flow to my

brain, I had to take a 2 week leave of absense from

work and it took my neck more than 4 months to recover

and now all I have to do is carry something on that

shoulder and I can feel it twinge again.

So, for myself, I think it's all in the concussions.

What do you all think? Have you had similar repeat

traumas that might explain your condition for you?

Thanks!

Charity

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