Jim and Theories on how it all started for me

[Guest guest]

Charity writes > So, for myself, I think it's all in the concussions.

> What do you all think? Have you had similar repeat

> traumas that might explain your condition for you?

I have it for a long time but it was not very bothersome. I did have some

pain and I did try to find out what was wrong but that was about it. I was

in Austin in a Randall's grocery store and someone had dropped fruit on the

floor. I stepped on it and had a hard fall to the floor.

The next morning, I could hardly get out of bed. I had to drive home to San

and it was 3 days before I could get out of bed. The pain was awful

and has been every since. I had a new doctor from our insurance company and

I went to see him. I told him my problems and he checked me and told me that

I had fibro. He sent me to a rheumatologist and he was a bummer. He would

not give anything for pain, the same as your doctor but he seemed to enjoy

the fact that I was begging for something and he would not give it to me. He

had this smug little smile.

My husband's office changed insurance and I was able to go back to my old

rheumatologist and he changed everything. We have tried different pain

medication until I found the one that works although I think we will have to

raise the dosage as I have severe pain and I am not having a lot of relief.

This office changed insurance again. Sounds like a game doesn't it. My

doctor is not on their plan but they are letting me go to him because of the

pain and the fact that he is helping me. My three doctors work together. My

Primary doctor who told me at our first appointment that he believed in

fibro, my psychologists and my rheumatologist. They write letters after

visits, talk to each other on the phone and my Primary doctor's lab does the

blood work that my rheumy wants every month.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

--- jimqca jim@...> wrote:

>

> Would some of you share how you feel on most days

> and just are the

> symptoms?

Hi Jim,

Thank you for sharing your journey here! I think all

of us here have been through the search for doctors

who not only care, listen and understand but also try

to help. There are very few of them out there.

I've been in pain my whole life and I only just this

February found a doctor who would listen and once

diagnosed I *finally* got my family to listen and not

just pass it off as " Charity is just a whiner " . I'm

one of those people who don't complain until it is so

bad I can't stand it anymore and I don't stay in bed

unless I can't get out of it. In the last year I have

gotten to that point for months at a time without

reprieve. My family somewhat is understanding, but

seem to feel that I'm now giving my laziness a name

and allowing myself to wallow in it...which is

definately not true, I've known that I have Fibro for

years now, I've just been searching for a Doc that

doesn't give me the lose weight crap to diagnose me.

Now I have a lover who believes that she hurts more

than I do all the time and expects me to give her

special treatment but not expect the same in return.

I am searching for a way to get the people I love in

my life to understand. If anyone has any advise for

me I would absolutely love to hear it. I'm at my wits

end.

I also am interested in hearing if anyone has a theory

as to how they got this disease. No one knows for

sure what starts it, of course, but I know I now have

a theory of when and where mine started.

When I was 18 months old I fell out of a second story

window head first onto a concrete block, splitting my

head open. I'm very lucky to still be alive. I

remember having pain in my feet and ankles and it

would crawl up my legs, the more I walked the worse it

got, kind of thing. I was a very sickly child, any

bug that went around, I got.

Then when I was 15 or 16 I was rollerblading and was

going down a hill that had a sharp turn at the end. I

didn't make the turn, flipped and hit my head hard on

a cement planter. Second concussion of my life and my

symptoms got worse...

In February, I was under a co-workers desk trying to

fix their computer and the phone rang, scaring me half

to death, I stood staight up WAM, hit my head hard on

the underside of the desk. That's when my symptoms

got really really bad. I had a full fledged flare in

my neck that started to cut off blood flow to my

brain, I had to take a 2 week leave of absense from

work and it took my neck more than 4 months to recover

and now all I have to do is carry something on that

shoulder and I can feel it twinge again.

So, for myself, I think it's all in the concussions.

What do you all think? Have you had similar repeat

traumas that might explain your condition for you?

Thanks!

Charity

__________________________________________________

[Guest guest]

Hi Irene,

> This office changed insurance again. Sounds like a

> game doesn't it.

I really think it is to them sometimes...

> They write letters after

> visits, talk to each other on the phone and my

> Primary doctor's lab does the

> blood work that my rheumy wants every month.

That is fabulous! What a great team you have going!

I do have a great doctor, he specializes in pain

management such as after car accidents but also has a

lot of experience with Fibro. He does believe in pain

medication, which I am extremely happy about because

my pain was starting to take over my life. I'm taking

Oxicotin, 10 mg in the morning and 20 at night. As my

Dr says that's a baby dosage but any more than that

and I can't function like a normal person. I am super

sensitive to meds. But the baby dose takes the edge

off the pain enough for me to make it through the day.

Once I get home all I want to do is take a hot bath

and go to bed... wish I could!!

Thanks!

Charity

__________________________________________________

[Guest guest]

Hi Irene,

> This office changed insurance again. Sounds like a

> game doesn't it.

I really think it is to them sometimes...

> They write letters after

> visits, talk to each other on the phone and my

> Primary doctor's lab does the

> blood work that my rheumy wants every month.

That is fabulous! What a great team you have going!

I do have a great doctor, he specializes in pain

management such as after car accidents but also has a

lot of experience with Fibro. He does believe in pain

medication, which I am extremely happy about because

my pain was starting to take over my life. I'm taking

Oxicotin, 10 mg in the morning and 20 at night. As my

Dr says that's a baby dosage but any more than that

and I can't function like a normal person. I am super

sensitive to meds. But the baby dose takes the edge

off the pain enough for me to make it through the day.

Once I get home all I want to do is take a hot bath

and go to bed... wish I could!!

Thanks!

Charity

__________________________________________________

[Guest guest]

Hi Irene,

> This office changed insurance again. Sounds like a

> game doesn't it.

I really think it is to them sometimes...

> They write letters after

> visits, talk to each other on the phone and my

> Primary doctor's lab does the

> blood work that my rheumy wants every month.

That is fabulous! What a great team you have going!

I do have a great doctor, he specializes in pain

management such as after car accidents but also has a

lot of experience with Fibro. He does believe in pain

medication, which I am extremely happy about because

my pain was starting to take over my life. I'm taking

Oxicotin, 10 mg in the morning and 20 at night. As my

Dr says that's a baby dosage but any more than that

and I can't function like a normal person. I am super

sensitive to meds. But the baby dose takes the edge

off the pain enough for me to make it through the day.

Once I get home all I want to do is take a hot bath

and go to bed... wish I could!!

Thanks!

Charity

__________________________________________________