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Deanna

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Hey, you better get your butt (is it all healed by now?) in bed, rest, get better and get back on board!!!!!!! We miss you too much.

Don't you think that if I'm not on board much, I don't check the messages and see what is happening!!!!!!!! How many times do I have to tell you you are not allowed to feel crappy!!!!!! , not allowed.

Mojo

Hi all

Hi everyone,

Just checking in. Been having a real bad flare so have been ordered to bedrest. Welcome to all the new members, Happy Birthday to those I missed, Happy Anniversary to those I missed, and MM you better be taking it easy!!!! I will try to get the board and play catch up when I can.

how are you? Miss you bunches…

Barb hope you enjoyed your mini vacation, and Mojo hope your enjoying summer with the boys… a and Becky hope you two are enjoying your summer with your kids and enjoying the weather…

Miss everyone bunches and will be in contact soon…

Hugs to all.

Hugs,

Deanna

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

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Guest guest

Hey, you better get your butt (is it all healed by now?) in bed, rest, get better and get back on board!!!!!!! We miss you too much.

Don't you think that if I'm not on board much, I don't check the messages and see what is happening!!!!!!!! How many times do I have to tell you you are not allowed to feel crappy!!!!!! , not allowed.

Mojo

Hi all

Hi everyone,

Just checking in. Been having a real bad flare so have been ordered to bedrest. Welcome to all the new members, Happy Birthday to those I missed, Happy Anniversary to those I missed, and MM you better be taking it easy!!!! I will try to get the board and play catch up when I can.

how are you? Miss you bunches…

Barb hope you enjoyed your mini vacation, and Mojo hope your enjoying summer with the boys… a and Becky hope you two are enjoying your summer with your kids and enjoying the weather…

Miss everyone bunches and will be in contact soon…

Hugs to all.

Hugs,

Deanna

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

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Guest guest

Hey, you better get your butt (is it all healed by now?) in bed, rest, get better and get back on board!!!!!!! We miss you too much.

Don't you think that if I'm not on board much, I don't check the messages and see what is happening!!!!!!!! How many times do I have to tell you you are not allowed to feel crappy!!!!!! , not allowed.

Mojo

Hi all

Hi everyone,

Just checking in. Been having a real bad flare so have been ordered to bedrest. Welcome to all the new members, Happy Birthday to those I missed, Happy Anniversary to those I missed, and MM you better be taking it easy!!!! I will try to get the board and play catch up when I can.

how are you? Miss you bunches…

Barb hope you enjoyed your mini vacation, and Mojo hope your enjoying summer with the boys… a and Becky hope you two are enjoying your summer with your kids and enjoying the weather…

Miss everyone bunches and will be in contact soon…

Hugs to all.

Hugs,

Deanna

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

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  • 2 weeks later...
Guest guest

Hey Deanna, you're invited. Come on over, even if it is to kick my behind.

Ha, I wanted to talk with you about the Bill situation. claims she

was dialing the number you gave her for Mike. Hell, maybe you gave her the

wrong number by mistake? You sure you don't have anything to say to us about

Bill?????

Mojo

Hi all

> >

> >

> > > Hi everyone,

> > > I spent the weekend at my moms...

> > > Here is the latest for all you inquiring minds =)

> > >

> > > Friday morning rhuemy wanted me to be admitted into hosp, but

> since

> > > he does not have hospital privledges (because he doesn't want to

> be

> > > limited to the amount of time he spends with a patient - he

> chooses

> > > not to have privledges so he can spend as much time as he wants

> =)..)

> > > He has to go through my primary to get me admitted. Well primary

> > > didn't feel I needed admitted that I was fine, and that whatever

> was

> > > going on was most likely viral and if that is the case there is

> > > nothing anyone could do for me anyways. GRRRR So the two argued

> from

> > > what I was told and right now neither are very happy with one

> > > another. So rhuemy told me to go have a chest x-ray done over at

> the

> > > hospital - I did and apparently there is no change with my lungs

> > > since my last chest x-ray 2 months ago. Rhuemy did have me double

> up

> > > on the zithromax so I was done with it Friday - but did not

> notice a

> > > change. So Rhuemy told me that since he knows I know myself that

> if I

> > > feel I need to go to the hospital to go ahead and go and give him

> a

> > > buzz on his cell phone. Mike decided it would be best if we spent

> the

> > > weekend at my mom's since she is a nurse, so that is what we did.

> > >

> > > Spent most of the weekend in bed but itching like crazy and broke

> out

> > > in hives. Hmmmm seems to be that I have now developed an allergy

> to

> > > the one and ONLY antibiotic I have been able to take, so I am

> screwed

> > > big time when the time comes that I need an antibiotic - UGGGGG

> Been

> > > eating benedryl like candy and it isn't touching the hives nor the

> > > itching - its not any of my other meds because I was told to stop

> > > them earlier last week. I am starting to feel a little better

> today

> > > but still very warn out, and still coughing like crazy. I just

> > > started getting my voice back but I noticed when I try to talk a

> > > little bit I go into a coughing frenzy so I try not to talk

> unless I

> > > have to. Mike is checking in on me through the cell and the

> rhuemy is

> > > keeping tabs on me as well. I see Rhuemy in two weeks as well as

> > > primary and I am going to ask primary why he seems to be not

> > > following me as closely as he did in the past - I mean he use to

> be

> > > great and work well with all my other docs and now it seems as

> though

> > > he is just slacking and not too concerned and well that aint

> going to

> > > cut it with me and if I have to remind him that he missed my very

> > > first stroke and rub it in his face and also remind him he is

> lucky I

> > > did not go after him for malpractice well then I will!!!!! He does

> > > not want to piss me off - and he knows it!!! ( When it comes to my

> > > health do not f*&^ with me - you better be on top of everything )

> all

> > > my doctors know that, and they know I will speak my mind if I do

> not

> > > feel they are doing a good job - I have the best of the best for a

> > > reason - not to be blown off because you don't have time, or

> because

> > > you just can't figure me out - They know I am not afraid to swear

> at

> > > them, and they know if I feel they are doing a shitty job I WILL

> tell

> > > them =)

> > > My mom labels me the bitch patient from hell at times hehehehehe I

> > > look at it like this - they went into their fields to help people,

> > > and to always continue to learn throughout their time as doctors -

> > > therefore, when patients like me come to them and they are stumped

> > > well you know what - it is time to open up their medical books and

> > > start learning again, refreshing themselves, researching, placing

> > > calls to others, etc. so they can continue to help patients - geez

> > > that is what they are making the big $$ for - because they sure in

> > > the hell are not going to share their wealth with those of us who

> are

> > > sick and can't afford the things they can - so they better be damn

> > > good at their job...

> > > Boy, do I feel sorry for my primary when I see him in two weeks,

> he

> > > is going to get an earful from me...

> > > I am glad I didn't get hospitalized because I hate the damn place

> but

> > > if this doesn't get better soon and then come to find out I should

> > > have been hospitalized - some heads are going to roll...

> > >

> > > So I am home, laying low, and following rhuemy's orders!!!

> > > I got your messages on the answering machine - I didn't

> know

> > > if you are working or not today - so if your home give me a buzz

> or

> > > give me a buzz tomorrow.....

> > >

> > > Hope everyone had a great, painfree, and peaceful weekend...

> > > Time for me to go back to the recliner...

> > >

> > > Huggles

> > > Deanna

> > > P.S. I have not even had a chance to view the messages on the

> board

> > > will try to catch up tomorrow... XOXOXOXO

> > >

> > >

> > >

> > >

> > > " The LUPIES Store " Come check out our store...

> > > http://www.cafepress.com/thelupies

> > >

> > > " The LUPIES Web Page "

> > > http://www.itzarion.com/lupusgroup.html

> > >

> > > " The LUPIES online photo albums! "

> > > Check out what your fellow Lupies look like...

> > > http://www.picturetrail.com/lupies

> > >

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Guest guest

Hey Deanna, you're invited. Come on over, even if it is to kick my behind.

Ha, I wanted to talk with you about the Bill situation. claims she

was dialing the number you gave her for Mike. Hell, maybe you gave her the

wrong number by mistake? You sure you don't have anything to say to us about

Bill?????

Mojo

Hi all

> >

> >

> > > Hi everyone,

> > > I spent the weekend at my moms...

> > > Here is the latest for all you inquiring minds =)

> > >

> > > Friday morning rhuemy wanted me to be admitted into hosp, but

> since

> > > he does not have hospital privledges (because he doesn't want to

> be

> > > limited to the amount of time he spends with a patient - he

> chooses

> > > not to have privledges so he can spend as much time as he wants

> =)..)

> > > He has to go through my primary to get me admitted. Well primary

> > > didn't feel I needed admitted that I was fine, and that whatever

> was

> > > going on was most likely viral and if that is the case there is

> > > nothing anyone could do for me anyways. GRRRR So the two argued

> from

> > > what I was told and right now neither are very happy with one

> > > another. So rhuemy told me to go have a chest x-ray done over at

> the

> > > hospital - I did and apparently there is no change with my lungs

> > > since my last chest x-ray 2 months ago. Rhuemy did have me double

> up

> > > on the zithromax so I was done with it Friday - but did not

> notice a

> > > change. So Rhuemy told me that since he knows I know myself that

> if I

> > > feel I need to go to the hospital to go ahead and go and give him

> a

> > > buzz on his cell phone. Mike decided it would be best if we spent

> the

> > > weekend at my mom's since she is a nurse, so that is what we did.

> > >

> > > Spent most of the weekend in bed but itching like crazy and broke

> out

> > > in hives. Hmmmm seems to be that I have now developed an allergy

> to

> > > the one and ONLY antibiotic I have been able to take, so I am

> screwed

> > > big time when the time comes that I need an antibiotic - UGGGGG

> Been

> > > eating benedryl like candy and it isn't touching the hives nor the

> > > itching - its not any of my other meds because I was told to stop

> > > them earlier last week. I am starting to feel a little better

> today

> > > but still very warn out, and still coughing like crazy. I just

> > > started getting my voice back but I noticed when I try to talk a

> > > little bit I go into a coughing frenzy so I try not to talk

> unless I

> > > have to. Mike is checking in on me through the cell and the

> rhuemy is

> > > keeping tabs on me as well. I see Rhuemy in two weeks as well as

> > > primary and I am going to ask primary why he seems to be not

> > > following me as closely as he did in the past - I mean he use to

> be

> > > great and work well with all my other docs and now it seems as

> though

> > > he is just slacking and not too concerned and well that aint

> going to

> > > cut it with me and if I have to remind him that he missed my very

> > > first stroke and rub it in his face and also remind him he is

> lucky I

> > > did not go after him for malpractice well then I will!!!!! He does

> > > not want to piss me off - and he knows it!!! ( When it comes to my

> > > health do not f*&^ with me - you better be on top of everything )

> all

> > > my doctors know that, and they know I will speak my mind if I do

> not

> > > feel they are doing a good job - I have the best of the best for a

> > > reason - not to be blown off because you don't have time, or

> because

> > > you just can't figure me out - They know I am not afraid to swear

> at

> > > them, and they know if I feel they are doing a shitty job I WILL

> tell

> > > them =)

> > > My mom labels me the bitch patient from hell at times hehehehehe I

> > > look at it like this - they went into their fields to help people,

> > > and to always continue to learn throughout their time as doctors -

> > > therefore, when patients like me come to them and they are stumped

> > > well you know what - it is time to open up their medical books and

> > > start learning again, refreshing themselves, researching, placing

> > > calls to others, etc. so they can continue to help patients - geez

> > > that is what they are making the big $$ for - because they sure in

> > > the hell are not going to share their wealth with those of us who

> are

> > > sick and can't afford the things they can - so they better be damn

> > > good at their job...

> > > Boy, do I feel sorry for my primary when I see him in two weeks,

> he

> > > is going to get an earful from me...

> > > I am glad I didn't get hospitalized because I hate the damn place

> but

> > > if this doesn't get better soon and then come to find out I should

> > > have been hospitalized - some heads are going to roll...

> > >

> > > So I am home, laying low, and following rhuemy's orders!!!

> > > I got your messages on the answering machine - I didn't

> know

> > > if you are working or not today - so if your home give me a buzz

> or

> > > give me a buzz tomorrow.....

> > >

> > > Hope everyone had a great, painfree, and peaceful weekend...

> > > Time for me to go back to the recliner...

> > >

> > > Huggles

> > > Deanna

> > > P.S. I have not even had a chance to view the messages on the

> board

> > > will try to catch up tomorrow... XOXOXOXO

> > >

> > >

> > >

> > >

> > > " The LUPIES Store " Come check out our store...

> > > http://www.cafepress.com/thelupies

> > >

> > > " The LUPIES Web Page "

> > > http://www.itzarion.com/lupusgroup.html

> > >

> > > " The LUPIES online photo albums! "

> > > Check out what your fellow Lupies look like...

> > > http://www.picturetrail.com/lupies

> > >

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Guest guest

Hey Deanna, you're invited. Come on over, even if it is to kick my behind.

Ha, I wanted to talk with you about the Bill situation. claims she

was dialing the number you gave her for Mike. Hell, maybe you gave her the

wrong number by mistake? You sure you don't have anything to say to us about

Bill?????

Mojo

Hi all

> >

> >

> > > Hi everyone,

> > > I spent the weekend at my moms...

> > > Here is the latest for all you inquiring minds =)

> > >

> > > Friday morning rhuemy wanted me to be admitted into hosp, but

> since

> > > he does not have hospital privledges (because he doesn't want to

> be

> > > limited to the amount of time he spends with a patient - he

> chooses

> > > not to have privledges so he can spend as much time as he wants

> =)..)

> > > He has to go through my primary to get me admitted. Well primary

> > > didn't feel I needed admitted that I was fine, and that whatever

> was

> > > going on was most likely viral and if that is the case there is

> > > nothing anyone could do for me anyways. GRRRR So the two argued

> from

> > > what I was told and right now neither are very happy with one

> > > another. So rhuemy told me to go have a chest x-ray done over at

> the

> > > hospital - I did and apparently there is no change with my lungs

> > > since my last chest x-ray 2 months ago. Rhuemy did have me double

> up

> > > on the zithromax so I was done with it Friday - but did not

> notice a

> > > change. So Rhuemy told me that since he knows I know myself that

> if I

> > > feel I need to go to the hospital to go ahead and go and give him

> a

> > > buzz on his cell phone. Mike decided it would be best if we spent

> the

> > > weekend at my mom's since she is a nurse, so that is what we did.

> > >

> > > Spent most of the weekend in bed but itching like crazy and broke

> out

> > > in hives. Hmmmm seems to be that I have now developed an allergy

> to

> > > the one and ONLY antibiotic I have been able to take, so I am

> screwed

> > > big time when the time comes that I need an antibiotic - UGGGGG

> Been

> > > eating benedryl like candy and it isn't touching the hives nor the

> > > itching - its not any of my other meds because I was told to stop

> > > them earlier last week. I am starting to feel a little better

> today

> > > but still very warn out, and still coughing like crazy. I just

> > > started getting my voice back but I noticed when I try to talk a

> > > little bit I go into a coughing frenzy so I try not to talk

> unless I

> > > have to. Mike is checking in on me through the cell and the

> rhuemy is

> > > keeping tabs on me as well. I see Rhuemy in two weeks as well as

> > > primary and I am going to ask primary why he seems to be not

> > > following me as closely as he did in the past - I mean he use to

> be

> > > great and work well with all my other docs and now it seems as

> though

> > > he is just slacking and not too concerned and well that aint

> going to

> > > cut it with me and if I have to remind him that he missed my very

> > > first stroke and rub it in his face and also remind him he is

> lucky I

> > > did not go after him for malpractice well then I will!!!!! He does

> > > not want to piss me off - and he knows it!!! ( When it comes to my

> > > health do not f*&^ with me - you better be on top of everything )

> all

> > > my doctors know that, and they know I will speak my mind if I do

> not

> > > feel they are doing a good job - I have the best of the best for a

> > > reason - not to be blown off because you don't have time, or

> because

> > > you just can't figure me out - They know I am not afraid to swear

> at

> > > them, and they know if I feel they are doing a shitty job I WILL

> tell

> > > them =)

> > > My mom labels me the bitch patient from hell at times hehehehehe I

> > > look at it like this - they went into their fields to help people,

> > > and to always continue to learn throughout their time as doctors -

> > > therefore, when patients like me come to them and they are stumped

> > > well you know what - it is time to open up their medical books and

> > > start learning again, refreshing themselves, researching, placing

> > > calls to others, etc. so they can continue to help patients - geez

> > > that is what they are making the big $$ for - because they sure in

> > > the hell are not going to share their wealth with those of us who

> are

> > > sick and can't afford the things they can - so they better be damn

> > > good at their job...

> > > Boy, do I feel sorry for my primary when I see him in two weeks,

> he

> > > is going to get an earful from me...

> > > I am glad I didn't get hospitalized because I hate the damn place

> but

> > > if this doesn't get better soon and then come to find out I should

> > > have been hospitalized - some heads are going to roll...

> > >

> > > So I am home, laying low, and following rhuemy's orders!!!

> > > I got your messages on the answering machine - I didn't

> know

> > > if you are working or not today - so if your home give me a buzz

> or

> > > give me a buzz tomorrow.....

> > >

> > > Hope everyone had a great, painfree, and peaceful weekend...

> > > Time for me to go back to the recliner...

> > >

> > > Huggles

> > > Deanna

> > > P.S. I have not even had a chance to view the messages on the

> board

> > > will try to catch up tomorrow... XOXOXOXO

> > >

> > >

> > >

> > >

> > > " The LUPIES Store " Come check out our store...

> > > http://www.cafepress.com/thelupies

> > >

> > > " The LUPIES Web Page "

> > > http://www.itzarion.com/lupusgroup.html

> > >

> > > " The LUPIES online photo albums! "

> > > Check out what your fellow Lupies look like...

> > > http://www.picturetrail.com/lupies

> > >

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  • 4 weeks later...
Guest guest

Hey, Brat and Deanna, I think it's going to be lousy all over. We saw trees already starting to turn

color when we went camping in July! I mean, that's weird. MM

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Guest guest

Hey, Brat and Deanna, I think it's going to be lousy all over. We saw trees already starting to turn

color when we went camping in July! I mean, that's weird. MM

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Guest guest

Hey, Brat and Deanna, I think it's going to be lousy all over. We saw trees already starting to turn

color when we went camping in July! I mean, that's weird. MM

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Guest guest

hmmm,, maybe while the cats are away we mice can play? what kind of trouble can we start,,,

a

You'll be away with your surgery, Mike will be camping, my surgery is thursday, so I guess I had better learn how to type with one hand! I've been trying to drive with just one hand and it's not that easy. It's okay if there isn't alot of sharp corners. I'll figure it out. I have to drive! And at least I'LL be able to talk!

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  • 2 weeks later...

kiss my ass brat...

yes you can take a shower but you have to wear a bag... NOT I!!!!

You forgot to mention that you can't drive though - in which I CAN!!!

Neener neener neener.....

Yes make sure you fill me in on your full night of sleep =)

It's still humid over here, have had air on since beginning of

summer - thank god for central air - I like being able to bundle up

in the blankies in my sweats and sweatshirts.....

How is Max doing?

How is getting home tomorrow?

I suppose I should go jump in the shower and soap up and get my booty

out the door to get blood work.....

Love ya hon

> It's pouring out right now. Which is okay, it was real warm in the

house this morning. I turned the a/c on yesterday for the first time

in a long time.

> I can still take a shower. Just can't get the bandages wet, so

that's not a problem.

> When I am able to get a full nights sleep again, I'll be sure to

tell you all about it!!

>

>

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kiss my ass brat...

yes you can take a shower but you have to wear a bag... NOT I!!!!

You forgot to mention that you can't drive though - in which I CAN!!!

Neener neener neener.....

Yes make sure you fill me in on your full night of sleep =)

It's still humid over here, have had air on since beginning of

summer - thank god for central air - I like being able to bundle up

in the blankies in my sweats and sweatshirts.....

How is Max doing?

How is getting home tomorrow?

I suppose I should go jump in the shower and soap up and get my booty

out the door to get blood work.....

Love ya hon

> It's pouring out right now. Which is okay, it was real warm in the

house this morning. I turned the a/c on yesterday for the first time

in a long time.

> I can still take a shower. Just can't get the bandages wet, so

that's not a problem.

> When I am able to get a full nights sleep again, I'll be sure to

tell you all about it!!

>

>

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Share on other sites

kiss my ass brat...

yes you can take a shower but you have to wear a bag... NOT I!!!!

You forgot to mention that you can't drive though - in which I CAN!!!

Neener neener neener.....

Yes make sure you fill me in on your full night of sleep =)

It's still humid over here, have had air on since beginning of

summer - thank god for central air - I like being able to bundle up

in the blankies in my sweats and sweatshirts.....

How is Max doing?

How is getting home tomorrow?

I suppose I should go jump in the shower and soap up and get my booty

out the door to get blood work.....

Love ya hon

> It's pouring out right now. Which is okay, it was real warm in the

house this morning. I turned the a/c on yesterday for the first time

in a long time.

> I can still take a shower. Just can't get the bandages wet, so

that's not a problem.

> When I am able to get a full nights sleep again, I'll be sure to

tell you all about it!!

>

>

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Oh

for crying out loud! What the heck is wrong with Doc’s? Please take

care of yourself Deanna, we are all worried about you.

From: Deanna H.

Sent: Thursday, August 19, 2004

6:09 AM

To: LUPIES

Subject: GRRRRR

Don't you just hate it when you have not been able to get more than

maybe 2 hrs

of straight sleep and then all of a sudden at 6am a

doctor calls

to check on you? GRRRRRR

Oh and btw

he informed me my heart dr whom I have had for years now

has moved to

the Buffalo

area and that he has a new one for me to

see. Gee

nice of my heart dr. to inform me of the move. Deanna

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