Re: Vitamin A&D deficiency.....

[Guest guest]

posted this some time ago.

It's recommended that patients with cholestatic liver diseases like primary

biliary cirrhosis and primary sclerosing cholangitis do get checked for

fat-soluble vitamin deficiencies such as vitamin D and A, and then take

supplements to correct any deficiencies. But you have to be very careful not to

over-dose. A good guide is this article:

http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles\

/april2006.pdf

Has she been tested before? If not, it's possible she's always been low. One

of the articles I've seen would lead me to believe that low vitamin A/D may be

contributing to PSC symptoms, not that it's a result of PSC. UC, in general may

by itself cause malabsorption of nutrients.

Arne

>

.... My daughters last test results showed she was low in her Vitamin A & D and

has been put on supplements for both. ... My question is does this mean

anything her PSC progressing?..

[Guest guest]

posted this some time ago.

It's recommended that patients with cholestatic liver diseases like primary

biliary cirrhosis and primary sclerosing cholangitis do get checked for

fat-soluble vitamin deficiencies such as vitamin D and A, and then take

supplements to correct any deficiencies. But you have to be very careful not to

over-dose. A good guide is this article:

http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles\

/april2006.pdf

Has she been tested before? If not, it's possible she's always been low. One

of the articles I've seen would lead me to believe that low vitamin A/D may be

contributing to PSC symptoms, not that it's a result of PSC. UC, in general may

by itself cause malabsorption of nutrients.

Arne

>

.... My daughters last test results showed she was low in her Vitamin A & D and

has been put on supplements for both. ... My question is does this mean

anything her PSC progressing?..

[Guest guest]

posted this some time ago.

It's recommended that patients with cholestatic liver diseases like primary

biliary cirrhosis and primary sclerosing cholangitis do get checked for

fat-soluble vitamin deficiencies such as vitamin D and A, and then take

supplements to correct any deficiencies. But you have to be very careful not to

over-dose. A good guide is this article:

http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles\

/april2006.pdf

Has she been tested before? If not, it's possible she's always been low. One

of the articles I've seen would lead me to believe that low vitamin A/D may be

contributing to PSC symptoms, not that it's a result of PSC. UC, in general may

by itself cause malabsorption of nutrients.

Arne

>

.... My daughters last test results showed she was low in her Vitamin A & D and

has been put on supplements for both. ... My question is does this mean

anything her PSC progressing?..

[Guest guest]

My daughter has been tested many times thoughout that past 4 years and it's only been that last 1 year that her A & D is low. Not bragging but she is a really good/healthy eater, we really watch carefully and keep away from the junk.

[Guest guest]

My daughter has been tested many times thoughout that past 4 years and it's only been that last 1 year that her A & D is low. Not bragging but she is a really good/healthy eater, we really watch carefully and keep away from the junk.

[Guest guest]

My daughter has been tested many times thoughout that past 4 years and it's only been that last 1 year that her A & D is low. Not bragging but she is a really good/healthy eater, we really watch carefully and keep away from the junk.

[Guest guest]

,

Hi! It sounds like you're having a bit of a rough time dealing with some of

your questions about your daughter's medical status with her in the room. I'm

so sorry things are rough and I can absolutely understand why you wouldn't want

to upset your little girl. Do you know if this doctor would be willing to set

up a time to speak with you without your daughter present? They may charge you

an office visit fee, but if it gives you peace of mind and you're able to ask

all the questions you need, you may find it's worth it.

As to whether or not a deficiency in Vitamins A and D indicate a progression in

her PSC, my guess would be no. Many PSC patients suffer from low levels of

Vitamins A and D, so it's not uncommon she'd find herself in that boat, but my

levels have been low and vitamin dosages have had to be prescribed/increased

without a significant impact on my PSC staging at all. I'm not a doctor, and if

you're worried I'd definitely check with one, but I think that this might be one

less thing you have to worry about for now. At least, I certainly hope so!

Best of luck!

Sandi in VA

[Guest guest]

,

Hi! It sounds like you're having a bit of a rough time dealing with some of

your questions about your daughter's medical status with her in the room. I'm

so sorry things are rough and I can absolutely understand why you wouldn't want

to upset your little girl. Do you know if this doctor would be willing to set

up a time to speak with you without your daughter present? They may charge you

an office visit fee, but if it gives you peace of mind and you're able to ask

all the questions you need, you may find it's worth it.

As to whether or not a deficiency in Vitamins A and D indicate a progression in

her PSC, my guess would be no. Many PSC patients suffer from low levels of

Vitamins A and D, so it's not uncommon she'd find herself in that boat, but my

levels have been low and vitamin dosages have had to be prescribed/increased

without a significant impact on my PSC staging at all. I'm not a doctor, and if

you're worried I'd definitely check with one, but I think that this might be one

less thing you have to worry about for now. At least, I certainly hope so!

Best of luck!

Sandi in VA

[Guest guest]

Sandi-

I concur with Dave " astounded! " remark regarding your doctor's

lack of education on body temperature.MINE (and my blood pressure) would

have risen a few degrees just listening to him lecture me with inerrant

information! (Did you check to see if he really WAS a doctor, or was he

just playing one at the Mayo Clinic?) That's pretty scary, and

seriously, I'd " report " him to someone there.

BTW, my PSCE (Empathy) is acting up, probably on your behalf. (My way of

showing how much I care about you!) I too have low body temp - always

under 97 in the am. (Has registered as low as 95.5 AT the doctor's

office.) And recent lab tests show I'm deficient in Vitamin D. Now, they

HAVE to figure out how to help you and get you better. I don't know how

much more of this I can take!

Praying, pulling, rooting, cheering for you,

XXXOOO,

Wife of Fred, PSC, 03/04, UC, 03/06