Guest guest Posted August 24, 2002 Report Share Posted August 24, 2002 In a message dated 08/24/2002 4:25:04 PM US Eastern Standard Time, suzimcmullen@... writes: > Why not just let people have a signature line or 2 or 3 sig. lines so that > we can choose if we want to ask them for more information? > Suzi, This is a good Idea..never thought of it. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 Cynkay Morningsong wrote: > Hi..I am curious as to how you all answer the question What is fibromyalgia? It seems that whenever someone asks me and I begin to talk about this illusive illness that creates widespread pain, fatigue, fogginess, and a host of other conditions...all of a sudden, I begin to notice their eyes glaze over. My quick answer to people who really don't *want* to know the details is that it's like having the flu every day and how tired/hurting you feel when you have the flu. That's usually enough to give them a quick answer that makes sense to them. For those who want to know more, I'll give them more details. > > > My next question (and I'm not trying to be difficult here, honestly! I'm only curious) is why it's okay to talk about specific prescribed pharmaceuticals that help or not, along with side effects, but not okay to talk about specific alternative supplements and medicines that we might find helpful or hurtful. There is nothing wrong with saying " I found magnesium/chiropractors/acupuncure/ a good daily vitamin " . It's when you start saying that company xyz has the only product that works to cure fibro that you start to get into murky waters. Unfortunately, there are people out there who pretend to have fibro and come into the group to start hawking their wares. Those are the people we are trying to stop, not the average member of the group who says I use essential oils, and these vitamins. Darcy list co-moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 Cynkay Morningsong wrote: > Hi..I am curious as to how you all answer the question What is fibromyalgia? It seems that whenever someone asks me and I begin to talk about this illusive illness that creates widespread pain, fatigue, fogginess, and a host of other conditions...all of a sudden, I begin to notice their eyes glaze over. My quick answer to people who really don't *want* to know the details is that it's like having the flu every day and how tired/hurting you feel when you have the flu. That's usually enough to give them a quick answer that makes sense to them. For those who want to know more, I'll give them more details. > > > My next question (and I'm not trying to be difficult here, honestly! I'm only curious) is why it's okay to talk about specific prescribed pharmaceuticals that help or not, along with side effects, but not okay to talk about specific alternative supplements and medicines that we might find helpful or hurtful. There is nothing wrong with saying " I found magnesium/chiropractors/acupuncure/ a good daily vitamin " . It's when you start saying that company xyz has the only product that works to cure fibro that you start to get into murky waters. Unfortunately, there are people out there who pretend to have fibro and come into the group to start hawking their wares. Those are the people we are trying to stop, not the average member of the group who says I use essential oils, and these vitamins. Darcy list co-moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 Cynkay Morningsong wrote: > Hi..I am curious as to how you all answer the question What is fibromyalgia? It seems that whenever someone asks me and I begin to talk about this illusive illness that creates widespread pain, fatigue, fogginess, and a host of other conditions...all of a sudden, I begin to notice their eyes glaze over. My quick answer to people who really don't *want* to know the details is that it's like having the flu every day and how tired/hurting you feel when you have the flu. That's usually enough to give them a quick answer that makes sense to them. For those who want to know more, I'll give them more details. > > > My next question (and I'm not trying to be difficult here, honestly! I'm only curious) is why it's okay to talk about specific prescribed pharmaceuticals that help or not, along with side effects, but not okay to talk about specific alternative supplements and medicines that we might find helpful or hurtful. There is nothing wrong with saying " I found magnesium/chiropractors/acupuncure/ a good daily vitamin " . It's when you start saying that company xyz has the only product that works to cure fibro that you start to get into murky waters. Unfortunately, there are people out there who pretend to have fibro and come into the group to start hawking their wares. Those are the people we are trying to stop, not the average member of the group who says I use essential oils, and these vitamins. Darcy list co-moderator Quote Link to comment Share on other sites More sharing options...
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