Re: Explaining fibro to others

[Guest guest]

Hi Colette,

I have gone to the stage of carry around the leaflets about it, that way you

don't have to say a thing. If they are honestly interested then they will read

it, I have someone be a lot more supportive since I gave them a booklet about

it.

Plus it shuts some people up.

God Bless

Odette

Explaining fibro to others

I don't know which is worse: trying to describe fibro to someone

who knows nothing about it

OR

telling someone who " know " s some THING about it and basically

has their mind made up about you - like, " You just need to exercise,

I read, " which was reitterated to me on Friday by a " friend " .

Colette, FL

[Guest guest]

casalona@... wrote:

> telling someone who " know " s some THING about it and basically

> has their mind made up about you - like, " You just need to exercise,

> I read, " which was reitterated to me on Friday by a " friend " .

Yes, don't you love those " friends " who are perfectly capable of curing everyone

else's world, but theirs doesn't look perfect? It's like that old joke about

the teenager who was always a back seat driver and knew exactly what everyone

else should do, until it was her turn and a situation came up. " What should I

do dad? " " Quick, hop in the back seat, you'll think of something! "

Darcy

[Guest guest]

casalona@... wrote:

> telling someone who " know " s some THING about it and basically

> has their mind made up about you - like, " You just need to exercise,

> I read, " which was reitterated to me on Friday by a " friend " .

Yes, don't you love those " friends " who are perfectly capable of curing everyone

else's world, but theirs doesn't look perfect? It's like that old joke about

the teenager who was always a back seat driver and knew exactly what everyone

else should do, until it was her turn and a situation came up. " What should I

do dad? " " Quick, hop in the back seat, you'll think of something! "

Darcy

[Guest guest]

casalona@... wrote:

> telling someone who " know " s some THING about it and basically

> has their mind made up about you - like, " You just need to exercise,

> I read, " which was reitterated to me on Friday by a " friend " .

Yes, don't you love those " friends " who are perfectly capable of curing everyone

else's world, but theirs doesn't look perfect? It's like that old joke about

the teenager who was always a back seat driver and knew exactly what everyone

else should do, until it was her turn and a situation came up. " What should I

do dad? " " Quick, hop in the back seat, you'll think of something! "

Darcy

[Guest guest]

Most everyone I have daily contact with knows of my condition, and

sometimes just ask " How are you today " . Its really cool, because they

seem to know when i need to be coddled, and when i am rarin' to go,

on any given day.

As far as telling people what I have...I always let them ask first. I

am the shy type, and dont give in easily to iformation about myself

upon the first few meetings, but if it is brought up, I usually just

tell them " FMS is a chronic pain syndrome " . I figure if they want to

know more, and are commited to a conversation about it, they will

ask

Ohhhhh, the knowing one THING about FMS is the worst! Its funny, my

boss is a veterinarian, and very much into medical sciences, both

animal and human (sometimes, they crossrelate to each other, as in

systems and diseases). She is firmly convinced it is an autoimmune

disease (which I believe as well), but always has all kinds of

treatments and suggestions. The biggest is smoking. i know its bad,

and I have tried to quit...need the right time to do so, tho.

(excuses, excuses, i know! *grin*)

she figures If i quit, everything will resolve....including the

inability to be head tech again, as I gave up a month or so ago after

2 1/2 yrs of constant mind bending exhaustion/pain.

My best " given " piece of information to date? Last year, from a

receptionist who no longer works with us.

" My friend has Fibro, and she started working more and running 2

miles a day, and now she works 60+ hours a week, and wears heels and

everything " .

My reply.. " Thats great for her! Im happy hers was resolved, i hope

one day mine will be too " .

Mare

> I don't know which is worse: trying to describe fibro to someone

> who knows nothing about it

> OR

> telling someone who " know " s some THING about it and basically

> has their mind made up about you - like, " You just need to exercise,

> I read, " which was reitterated to me on Friday by a " friend " .

>

> Colette, FL

>

>

>

>

[Guest guest]

Most everyone I have daily contact with knows of my condition, and

sometimes just ask " How are you today " . Its really cool, because they

seem to know when i need to be coddled, and when i am rarin' to go,

on any given day.

As far as telling people what I have...I always let them ask first. I

am the shy type, and dont give in easily to iformation about myself

upon the first few meetings, but if it is brought up, I usually just

tell them " FMS is a chronic pain syndrome " . I figure if they want to

know more, and are commited to a conversation about it, they will

ask

Ohhhhh, the knowing one THING about FMS is the worst! Its funny, my

boss is a veterinarian, and very much into medical sciences, both

animal and human (sometimes, they crossrelate to each other, as in

systems and diseases). She is firmly convinced it is an autoimmune

disease (which I believe as well), but always has all kinds of

treatments and suggestions. The biggest is smoking. i know its bad,

and I have tried to quit...need the right time to do so, tho.

(excuses, excuses, i know! *grin*)

she figures If i quit, everything will resolve....including the

inability to be head tech again, as I gave up a month or so ago after

2 1/2 yrs of constant mind bending exhaustion/pain.

My best " given " piece of information to date? Last year, from a

receptionist who no longer works with us.

" My friend has Fibro, and she started working more and running 2

miles a day, and now she works 60+ hours a week, and wears heels and

everything " .

My reply.. " Thats great for her! Im happy hers was resolved, i hope

one day mine will be too " .

Mare

> I don't know which is worse: trying to describe fibro to someone

> who knows nothing about it

> OR

> telling someone who " know " s some THING about it and basically

> has their mind made up about you - like, " You just need to exercise,

> I read, " which was reitterated to me on Friday by a " friend " .

>

> Colette, FL

>

>

>

>

[Guest guest]

Most everyone I have daily contact with knows of my condition, and

sometimes just ask " How are you today " . Its really cool, because they

seem to know when i need to be coddled, and when i am rarin' to go,

on any given day.

As far as telling people what I have...I always let them ask first. I

am the shy type, and dont give in easily to iformation about myself

upon the first few meetings, but if it is brought up, I usually just

tell them " FMS is a chronic pain syndrome " . I figure if they want to

know more, and are commited to a conversation about it, they will

ask

Ohhhhh, the knowing one THING about FMS is the worst! Its funny, my

boss is a veterinarian, and very much into medical sciences, both

animal and human (sometimes, they crossrelate to each other, as in

systems and diseases). She is firmly convinced it is an autoimmune

disease (which I believe as well), but always has all kinds of

treatments and suggestions. The biggest is smoking. i know its bad,

and I have tried to quit...need the right time to do so, tho.

(excuses, excuses, i know! *grin*)

she figures If i quit, everything will resolve....including the

inability to be head tech again, as I gave up a month or so ago after

2 1/2 yrs of constant mind bending exhaustion/pain.

My best " given " piece of information to date? Last year, from a

receptionist who no longer works with us.

" My friend has Fibro, and she started working more and running 2

miles a day, and now she works 60+ hours a week, and wears heels and

everything " .

My reply.. " Thats great for her! Im happy hers was resolved, i hope

one day mine will be too " .

Mare

> I don't know which is worse: trying to describe fibro to someone

> who knows nothing about it

> OR

> telling someone who " know " s some THING about it and basically

> has their mind made up about you - like, " You just need to exercise,

> I read, " which was reitterated to me on Friday by a " friend " .

>

> Colette, FL

>

>

>

>