Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 >Having just been diagnosed, I thought, well, at least I know what's going on, what's wrong with >me and that will help me to cope better. I thought the same thing at first too: At least I have a diagnosis. I thought that would somehow make it better than not knowing what was wrong. It comforted me for the first week or two but now it doesn't really make a difference. >It is so hard for me to get used to this. Many times I've put off doing something because I >could do it later, or I just didn't feel like doing it now, but always rescheduled it. Now I >find myself just truly NOT ABLE to do the things that need done! I just can't reconcile myself >to this. That's how I feel too. It must be even more difficult when you have kids. I can't imagine. I'm only 25 and I'm too sick to have a social life, too sick to make commitments, to sick to engage in some of my favorite hobbies (dancing and motorcycling). Before I had a diagnosis (CFS) I kept thinking, " maybe I'll be better next week. " After the diagnosis I thought, " Now that I know what's wrong maybe I can take steps to improve things. " And I'm trying to do that. But all I read and see and hear and how I feel, I'm beginning to realize that things might not get better, I might not get my life as I knew it back and that's really depressing and frustrating. So here I am venting my complaints too. I can't offer advice but all I can say is I think I have an idea how you feel. ~Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 >Having just been diagnosed, I thought, well, at least I know what's going on, what's wrong with >me and that will help me to cope better. I thought the same thing at first too: At least I have a diagnosis. I thought that would somehow make it better than not knowing what was wrong. It comforted me for the first week or two but now it doesn't really make a difference. >It is so hard for me to get used to this. Many times I've put off doing something because I >could do it later, or I just didn't feel like doing it now, but always rescheduled it. Now I >find myself just truly NOT ABLE to do the things that need done! I just can't reconcile myself >to this. That's how I feel too. It must be even more difficult when you have kids. I can't imagine. I'm only 25 and I'm too sick to have a social life, too sick to make commitments, to sick to engage in some of my favorite hobbies (dancing and motorcycling). Before I had a diagnosis (CFS) I kept thinking, " maybe I'll be better next week. " After the diagnosis I thought, " Now that I know what's wrong maybe I can take steps to improve things. " And I'm trying to do that. But all I read and see and hear and how I feel, I'm beginning to realize that things might not get better, I might not get my life as I knew it back and that's really depressing and frustrating. So here I am venting my complaints too. I can't offer advice but all I can say is I think I have an idea how you feel. ~Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Nancie Taube wrote: > > Then I started getting chest > pains...really bad ones. The first time we called the > dr. he said to call 911, an ambulance came and took me > away to the hospital. Thought I was having a heart > attack. That was about 2-3 weeks ago. Then Wednesday > night, the same thing happened. One minute I'm just > fine (or at least as fine as I get) and the next > minute I am in such pain in my chest, back and left > arm that I can't stand up. Is it possible that these could be panic attacks? I don't get them, but I know it sounds similar to what I've heard others say they are like. On the other hand, it might just be the pain in the chest that some fibro people get. I get it a little, but it doesn't last long and isn't painful enough to make me think it's a heart attack. On the other hand, a friend of mine who has mild fibro, gets the pain so severe that she has to take pain pills for it. I hate when I don't know what's causing something. I'd rather know what it is so at least I can say to myself, " ok, that because of such and such " . Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Nancie Taube wrote: > > Then I started getting chest > pains...really bad ones. The first time we called the > dr. he said to call 911, an ambulance came and took me > away to the hospital. Thought I was having a heart > attack. That was about 2-3 weeks ago. Then Wednesday > night, the same thing happened. One minute I'm just > fine (or at least as fine as I get) and the next > minute I am in such pain in my chest, back and left > arm that I can't stand up. Is it possible that these could be panic attacks? I don't get them, but I know it sounds similar to what I've heard others say they are like. On the other hand, it might just be the pain in the chest that some fibro people get. I get it a little, but it doesn't last long and isn't painful enough to make me think it's a heart attack. On the other hand, a friend of mine who has mild fibro, gets the pain so severe that she has to take pain pills for it. I hate when I don't know what's causing something. I'd rather know what it is so at least I can say to myself, " ok, that because of such and such " . Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 -Nancie, I have 2 boys age 12 and 8 and I completely understand how you are feeling right now. My youngest son has Legg Calve Perthes disease. Which will go away with therapy and time, but last year I thought I may have to home school. I was so afraid to do this because of the exhaustion I have just from everday chores. I go through spells where my kids just do their thing. I dont even bother them to clean their messes. I use less energy doing it myself when I feel like it or rather when I make myself, I never seem to feel like it. Homework is a nightmare at times, I cant imagine teaching them myself. They are not bad kids but being with them full time would drive me insane!! I get very depressed when I seem to be overloaded and my 12 year olds homework seems so difficult and there can be so much of it. Sometimes I just let him do it and dont check it and then if he gets a low grade I feel guilty. When I feel well and the house is clean and I get a little organized I feel so much better. Then I will get behind and think I will never catch up. Its a never ending cycle. I will feel good for a few days and then the fatigue sets in and everthing gets behind. I just keep doing what I can when I feel good and resting when I cant do it anymore. Dont be too hard on yourself, it is not your fault. -- In @y..., Nancie Taube wrote: > Sorry to be so negative after just joining this group, > but I am having a very hard time. Having just been > diagnosed, I thought, well, at least I know what's > going on, what's wrong with me and that will help me > to cope better. Then I started getting chest > pains...really bad ones. The first time we called the > dr. he said to call 911, an ambulance came and took me > away to the hospital. Thought I was having a heart > attack. That was about 2-3 weeks ago. Then Wednesday > night, the same thing happened. One minute I'm just > fine (or at least as fine as I get) and the next > minute I am in such pain in my chest, back and left > arm that I can't stand up. I know this time it's not > a heart attack, so I go to urgent care, they keep me > there for 4 hours, finally give me a shot of morphine, > and send me home. I've done very litte but sleep and > explode with anger since then. > > It is so hard for me to get used to this. Many times > I've put off doing something because I could do it > later, or I just didn't feel like doing it now, but > always rescheduled it. Now I find myself just truly > NOT ABLE to do the things that need done! I just > can't reconcile myself to this. The biggest thing is > homeschooling my 2 boys, ages 6 and 8. Anyone can > vacuum or throw in a load of laundry or pick up toys > or clean the bathroom, and dh has been doing the > shopping for over a year now, but only I can school > the boys. So between naps, I attempt to put in a > lesson, and of course they're busy, into a movie or a > game, etc, and don't want to be bothered. A lot has > to do with discipline, they need to learn, mostly the > 8 year old, that he needs to do what I tell him, when > I tell him, and not just " because I said so " but > because this may be our only opportunity today. > So now, I'm very depressed, and want to do little more > than lay in bed. When I lay in bed I smoke. I take > my pain pills and my antidepressants and I read and > smoke and sleep, and I get more and more depressed. I > don't get hungry very often, but I have to eat because > my pills make me sick if I don't. So I'm gaining > weight. Which depresses me. I just turned 45, > which is a depressing age. And this anger I feel is > way out of normal...anger isn't even the right word > for it, much too mild a word. My dr. isn't happy with > my level of antidepressants, he says they're barely > theraputic levels, but he's had to cut back on them > because my liver enzymes were up. > Well, thanks for letting me vent. I wish I could say > I feel better, but I don't. I'm going to get some > bills paid and then go back to bed. The boys are all > still asleep, the girls have left for school, and dh > gets home from work early today. Maybe he'll clean up > this joint a little for me. I'm just sooo tired. > It's been a while since I've had good sleep, maybe I'm > just catching up. > Nancie > > ===== > > Nancie > > Healthy Homes mean Healthy Children, which lead to a Healthy Future > > > Work from home...ask me how! > > http://nanciet.themomteam.com > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 -Nancie, I have 2 boys age 12 and 8 and I completely understand how you are feeling right now. My youngest son has Legg Calve Perthes disease. Which will go away with therapy and time, but last year I thought I may have to home school. I was so afraid to do this because of the exhaustion I have just from everday chores. I go through spells where my kids just do their thing. I dont even bother them to clean their messes. I use less energy doing it myself when I feel like it or rather when I make myself, I never seem to feel like it. Homework is a nightmare at times, I cant imagine teaching them myself. They are not bad kids but being with them full time would drive me insane!! I get very depressed when I seem to be overloaded and my 12 year olds homework seems so difficult and there can be so much of it. Sometimes I just let him do it and dont check it and then if he gets a low grade I feel guilty. When I feel well and the house is clean and I get a little organized I feel so much better. Then I will get behind and think I will never catch up. Its a never ending cycle. I will feel good for a few days and then the fatigue sets in and everthing gets behind. I just keep doing what I can when I feel good and resting when I cant do it anymore. Dont be too hard on yourself, it is not your fault. -- In @y..., Nancie Taube wrote: > Sorry to be so negative after just joining this group, > but I am having a very hard time. Having just been > diagnosed, I thought, well, at least I know what's > going on, what's wrong with me and that will help me > to cope better. Then I started getting chest > pains...really bad ones. The first time we called the > dr. he said to call 911, an ambulance came and took me > away to the hospital. Thought I was having a heart > attack. That was about 2-3 weeks ago. Then Wednesday > night, the same thing happened. One minute I'm just > fine (or at least as fine as I get) and the next > minute I am in such pain in my chest, back and left > arm that I can't stand up. I know this time it's not > a heart attack, so I go to urgent care, they keep me > there for 4 hours, finally give me a shot of morphine, > and send me home. I've done very litte but sleep and > explode with anger since then. > > It is so hard for me to get used to this. Many times > I've put off doing something because I could do it > later, or I just didn't feel like doing it now, but > always rescheduled it. Now I find myself just truly > NOT ABLE to do the things that need done! I just > can't reconcile myself to this. The biggest thing is > homeschooling my 2 boys, ages 6 and 8. Anyone can > vacuum or throw in a load of laundry or pick up toys > or clean the bathroom, and dh has been doing the > shopping for over a year now, but only I can school > the boys. So between naps, I attempt to put in a > lesson, and of course they're busy, into a movie or a > game, etc, and don't want to be bothered. A lot has > to do with discipline, they need to learn, mostly the > 8 year old, that he needs to do what I tell him, when > I tell him, and not just " because I said so " but > because this may be our only opportunity today. > So now, I'm very depressed, and want to do little more > than lay in bed. When I lay in bed I smoke. I take > my pain pills and my antidepressants and I read and > smoke and sleep, and I get more and more depressed. I > don't get hungry very often, but I have to eat because > my pills make me sick if I don't. So I'm gaining > weight. Which depresses me. I just turned 45, > which is a depressing age. And this anger I feel is > way out of normal...anger isn't even the right word > for it, much too mild a word. My dr. isn't happy with > my level of antidepressants, he says they're barely > theraputic levels, but he's had to cut back on them > because my liver enzymes were up. > Well, thanks for letting me vent. I wish I could say > I feel better, but I don't. I'm going to get some > bills paid and then go back to bed. The boys are all > still asleep, the girls have left for school, and dh > gets home from work early today. Maybe he'll clean up > this joint a little for me. I'm just sooo tired. > It's been a while since I've had good sleep, maybe I'm > just catching up. > Nancie > > ===== > > Nancie > > Healthy Homes mean Healthy Children, which lead to a Healthy Future > > > Work from home...ask me how! > > http://nanciet.themomteam.com > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 -Nancie, I have 2 boys age 12 and 8 and I completely understand how you are feeling right now. My youngest son has Legg Calve Perthes disease. Which will go away with therapy and time, but last year I thought I may have to home school. I was so afraid to do this because of the exhaustion I have just from everday chores. I go through spells where my kids just do their thing. I dont even bother them to clean their messes. I use less energy doing it myself when I feel like it or rather when I make myself, I never seem to feel like it. Homework is a nightmare at times, I cant imagine teaching them myself. They are not bad kids but being with them full time would drive me insane!! I get very depressed when I seem to be overloaded and my 12 year olds homework seems so difficult and there can be so much of it. Sometimes I just let him do it and dont check it and then if he gets a low grade I feel guilty. When I feel well and the house is clean and I get a little organized I feel so much better. Then I will get behind and think I will never catch up. Its a never ending cycle. I will feel good for a few days and then the fatigue sets in and everthing gets behind. I just keep doing what I can when I feel good and resting when I cant do it anymore. Dont be too hard on yourself, it is not your fault. -- In @y..., Nancie Taube wrote: > Sorry to be so negative after just joining this group, > but I am having a very hard time. Having just been > diagnosed, I thought, well, at least I know what's > going on, what's wrong with me and that will help me > to cope better. Then I started getting chest > pains...really bad ones. The first time we called the > dr. he said to call 911, an ambulance came and took me > away to the hospital. Thought I was having a heart > attack. That was about 2-3 weeks ago. Then Wednesday > night, the same thing happened. One minute I'm just > fine (or at least as fine as I get) and the next > minute I am in such pain in my chest, back and left > arm that I can't stand up. I know this time it's not > a heart attack, so I go to urgent care, they keep me > there for 4 hours, finally give me a shot of morphine, > and send me home. I've done very litte but sleep and > explode with anger since then. > > It is so hard for me to get used to this. Many times > I've put off doing something because I could do it > later, or I just didn't feel like doing it now, but > always rescheduled it. Now I find myself just truly > NOT ABLE to do the things that need done! I just > can't reconcile myself to this. The biggest thing is > homeschooling my 2 boys, ages 6 and 8. Anyone can > vacuum or throw in a load of laundry or pick up toys > or clean the bathroom, and dh has been doing the > shopping for over a year now, but only I can school > the boys. So between naps, I attempt to put in a > lesson, and of course they're busy, into a movie or a > game, etc, and don't want to be bothered. A lot has > to do with discipline, they need to learn, mostly the > 8 year old, that he needs to do what I tell him, when > I tell him, and not just " because I said so " but > because this may be our only opportunity today. > So now, I'm very depressed, and want to do little more > than lay in bed. When I lay in bed I smoke. I take > my pain pills and my antidepressants and I read and > smoke and sleep, and I get more and more depressed. I > don't get hungry very often, but I have to eat because > my pills make me sick if I don't. So I'm gaining > weight. Which depresses me. I just turned 45, > which is a depressing age. And this anger I feel is > way out of normal...anger isn't even the right word > for it, much too mild a word. My dr. isn't happy with > my level of antidepressants, he says they're barely > theraputic levels, but he's had to cut back on them > because my liver enzymes were up. > Well, thanks for letting me vent. I wish I could say > I feel better, but I don't. I'm going to get some > bills paid and then go back to bed. The boys are all > still asleep, the girls have left for school, and dh > gets home from work early today. Maybe he'll clean up > this joint a little for me. I'm just sooo tired. > It's been a while since I've had good sleep, maybe I'm > just catching up. > Nancie > > ===== > > Nancie > > Healthy Homes mean Healthy Children, which lead to a Healthy Future > > > Work from home...ask me how! > > http://nanciet.themomteam.com > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 -By the way Nancie, I too have had chest pains. I will have certain symptoms for a period of time and they will go away and then here comes a new one. My pain was in the middle of my chest about where they do cpr on the left side more than the middle. One time I had a cramp so bad around my lower rib cage on the left I had to sit down. Dont know what that was about. I had chest pains on and off for about two months then it was gone? My ribs were even sore in this area. Like I said before, I could have a serious illness and think its the fibro again. The last 3 times I was at the doc it was either fibro or stress. I dont even go anymore. -- In @y..., " reds_henry " wrote: > -Nancie, I have 2 boys age 12 and 8 and I completely understand how > you are feeling right now. My youngest son has Legg Calve Perthes > disease. Which will go away with therapy and time, but last year I > thought I may have to home school. I was so afraid to do this because > of the exhaustion I have just from everday chores. I go through > spells where my kids just do their thing. I dont even bother them to > clean their messes. I use less energy doing it myself when I feel > like it or rather when I make myself, I never seem to feel like it. > Homework is a nightmare at times, I cant imagine teaching them > myself. They are not bad kids but being with them full time would > drive me insane!! I get very depressed when I seem to be overloaded > and my 12 year olds homework seems so difficult and there can be so > much of it. Sometimes I just let him do it and dont check it and > then if he gets a low grade I feel guilty. When I feel well and the > house is clean and I get a little organized I feel so much better. > Then I will get behind and think I will never catch up. Its a never > ending cycle. I will feel good for a few days and then the fatigue > sets in and everthing gets behind. I just keep doing what I can when > I feel good and resting when I cant do it anymore. Dont be too hard > on yourself, it is not your fault. > > > > -- In @y..., Nancie Taube > wrote: > > Sorry to be so negative after just joining this group, > > but I am having a very hard time. Having just been > > diagnosed, I thought, well, at least I know what's > > going on, what's wrong with me and that will help me > > to cope better. Then I started getting chest > > pains...really bad ones. The first time we called the > > dr. he said to call 911, an ambulance came and took me > > away to the hospital. Thought I was having a heart > > attack. That was about 2-3 weeks ago. Then Wednesday > > night, the same thing happened. One minute I'm just > > fine (or at least as fine as I get) and the next > > minute I am in such pain in my chest, back and left > > arm that I can't stand up. I know this time it's not > > a heart attack, so I go to urgent care, they keep me > > there for 4 hours, finally give me a shot of morphine, > > and send me home. I've done very litte but sleep and > > explode with anger since then. > > > > It is so hard for me to get used to this. Many times > > I've put off doing something because I could do it > > later, or I just didn't feel like doing it now, but > > always rescheduled it. Now I find myself just truly > > NOT ABLE to do the things that need done! I just > > can't reconcile myself to this. The biggest thing is > > homeschooling my 2 boys, ages 6 and 8. Anyone can > > vacuum or throw in a load of laundry or pick up toys > > or clean the bathroom, and dh has been doing the > > shopping for over a year now, but only I can school > > the boys. So between naps, I attempt to put in a > > lesson, and of course they're busy, into a movie or a > > game, etc, and don't want to be bothered. A lot has > > to do with discipline, they need to learn, mostly the > > 8 year old, that he needs to do what I tell him, when > > I tell him, and not just " because I said so " but > > because this may be our only opportunity today. > > So now, I'm very depressed, and want to do little more > > than lay in bed. When I lay in bed I smoke. I take > > my pain pills and my antidepressants and I read and > > smoke and sleep, and I get more and more depressed. I > > don't get hungry very often, but I have to eat because > > my pills make me sick if I don't. So I'm gaining > > weight. Which depresses me. I just turned 45, > > which is a depressing age. And this anger I feel is > > way out of normal...anger isn't even the right word > > for it, much too mild a word. My dr. isn't happy with > > my level of antidepressants, he says they're barely > > theraputic levels, but he's had to cut back on them > > because my liver enzymes were up. > > Well, thanks for letting me vent. I wish I could say > > I feel better, but I don't. I'm going to get some > > bills paid and then go back to bed. The boys are all > > still asleep, the girls have left for school, and dh > > gets home from work early today. Maybe he'll clean up > > this joint a little for me. I'm just sooo tired. > > It's been a while since I've had good sleep, maybe I'm > > just catching up. > > Nancie > > > > ===== > > > > Nancie > > > > Healthy Homes mean Healthy Children, which lead to a Healthy Future > > > > > > Work from home...ask me how! > > > > http://nanciet.themomteam.com > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 -By the way Nancie, I too have had chest pains. I will have certain symptoms for a period of time and they will go away and then here comes a new one. My pain was in the middle of my chest about where they do cpr on the left side more than the middle. One time I had a cramp so bad around my lower rib cage on the left I had to sit down. Dont know what that was about. I had chest pains on and off for about two months then it was gone? My ribs were even sore in this area. Like I said before, I could have a serious illness and think its the fibro again. The last 3 times I was at the doc it was either fibro or stress. I dont even go anymore. -- In @y..., " reds_henry " wrote: > -Nancie, I have 2 boys age 12 and 8 and I completely understand how > you are feeling right now. My youngest son has Legg Calve Perthes > disease. Which will go away with therapy and time, but last year I > thought I may have to home school. I was so afraid to do this because > of the exhaustion I have just from everday chores. I go through > spells where my kids just do their thing. I dont even bother them to > clean their messes. I use less energy doing it myself when I feel > like it or rather when I make myself, I never seem to feel like it. > Homework is a nightmare at times, I cant imagine teaching them > myself. They are not bad kids but being with them full time would > drive me insane!! I get very depressed when I seem to be overloaded > and my 12 year olds homework seems so difficult and there can be so > much of it. Sometimes I just let him do it and dont check it and > then if he gets a low grade I feel guilty. When I feel well and the > house is clean and I get a little organized I feel so much better. > Then I will get behind and think I will never catch up. Its a never > ending cycle. I will feel good for a few days and then the fatigue > sets in and everthing gets behind. I just keep doing what I can when > I feel good and resting when I cant do it anymore. Dont be too hard > on yourself, it is not your fault. > > > > -- In @y..., Nancie Taube > wrote: > > Sorry to be so negative after just joining this group, > > but I am having a very hard time. Having just been > > diagnosed, I thought, well, at least I know what's > > going on, what's wrong with me and that will help me > > to cope better. Then I started getting chest > > pains...really bad ones. The first time we called the > > dr. he said to call 911, an ambulance came and took me > > away to the hospital. Thought I was having a heart > > attack. That was about 2-3 weeks ago. Then Wednesday > > night, the same thing happened. One minute I'm just > > fine (or at least as fine as I get) and the next > > minute I am in such pain in my chest, back and left > > arm that I can't stand up. I know this time it's not > > a heart attack, so I go to urgent care, they keep me > > there for 4 hours, finally give me a shot of morphine, > > and send me home. I've done very litte but sleep and > > explode with anger since then. > > > > It is so hard for me to get used to this. Many times > > I've put off doing something because I could do it > > later, or I just didn't feel like doing it now, but > > always rescheduled it. Now I find myself just truly > > NOT ABLE to do the things that need done! I just > > can't reconcile myself to this. The biggest thing is > > homeschooling my 2 boys, ages 6 and 8. Anyone can > > vacuum or throw in a load of laundry or pick up toys > > or clean the bathroom, and dh has been doing the > > shopping for over a year now, but only I can school > > the boys. So between naps, I attempt to put in a > > lesson, and of course they're busy, into a movie or a > > game, etc, and don't want to be bothered. A lot has > > to do with discipline, they need to learn, mostly the > > 8 year old, that he needs to do what I tell him, when > > I tell him, and not just " because I said so " but > > because this may be our only opportunity today. > > So now, I'm very depressed, and want to do little more > > than lay in bed. When I lay in bed I smoke. I take > > my pain pills and my antidepressants and I read and > > smoke and sleep, and I get more and more depressed. I > > don't get hungry very often, but I have to eat because > > my pills make me sick if I don't. So I'm gaining > > weight. Which depresses me. I just turned 45, > > which is a depressing age. And this anger I feel is > > way out of normal...anger isn't even the right word > > for it, much too mild a word. My dr. isn't happy with > > my level of antidepressants, he says they're barely > > theraputic levels, but he's had to cut back on them > > because my liver enzymes were up. > > Well, thanks for letting me vent. I wish I could say > > I feel better, but I don't. I'm going to get some > > bills paid and then go back to bed. The boys are all > > still asleep, the girls have left for school, and dh > > gets home from work early today. Maybe he'll clean up > > this joint a little for me. I'm just sooo tired. > > It's been a while since I've had good sleep, maybe I'm > > just catching up. > > Nancie > > > > ===== > > > > Nancie > > > > Healthy Homes mean Healthy Children, which lead to a Healthy Future > > > > > > Work from home...ask me how! > > > > http://nanciet.themomteam.com > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Dear Nancie, I too do not get much sleep anymore. Seems like I am never rested when I get up. It is hard to go without sleep. Joy Complaints Sorry to be so negative after just joining this group, but I am having a very hard time. Having just been diagnosed, I thought, well, at least I know what's going on, what's wrong with me and that will help me to cope better. Then I started getting chest pains...really bad ones. The first time we called the dr. he said to call 911, an ambulance came and took me away to the hospital. Thought I was having a heart attack. That was about 2-3 weeks ago. Then Wednesday night, the same thing happened. One minute I'm just fine (or at least as fine as I get) and the next minute I am in such pain in my chest, back and left arm that I can't stand up. I know this time it's not a heart attack, so I go to urgent care, they keep me there for 4 hours, finally give me a shot of morphine, and send me home. I've done very litte but sleep and explode with anger since then. It is so hard for me to get used to this. Many times I've put off doing something because I could do it later, or I just didn't feel like doing it now, but always rescheduled it. Now I find myself just truly NOT ABLE to do the things that need done! I just can't reconcile myself to this. The biggest thing is homeschooling my 2 boys, ages 6 and 8. Anyone can vacuum or throw in a load of laundry or pick up toys or clean the bathroom, and dh has been doing the shopping for over a year now, but only I can school the boys. So between naps, I attempt to put in a lesson, and of course they're busy, into a movie or a game, etc, and don't want to be bothered. A lot has to do with discipline, they need to learn, mostly the 8 year old, that he needs to do what I tell him, when I tell him, and not just " because I said so " but because this may be our only opportunity today. So now, I'm very depressed, and want to do little more than lay in bed. When I lay in bed I smoke. I take my pain pills and my antidepressants and I read and smoke and sleep, and I get more and more depressed. I don't get hungry very often, but I have to eat because my pills make me sick if I don't. So I'm gaining weight. Which depresses me. I just turned 45, which is a depressing age. And this anger I feel is way out of normal...anger isn't even the right word for it, much too mild a word. My dr. isn't happy with my level of antidepressants, he says they're barely theraputic levels, but he's had to cut back on them because my liver enzymes were up. Well, thanks for letting me vent. I wish I could say I feel better, but I don't. I'm going to get some bills paid and then go back to bed. The boys are all still asleep, the girls have left for school, and dh gets home from work early today. Maybe he'll clean up this joint a little for me. I'm just sooo tired. It's been a while since I've had good sleep, maybe I'm just catching up. Nancie ===== Nancie Healthy Homes mean Healthy Children, which lead to a Healthy Future Work from home...ask me how! http://nanciet.themomteam.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Dear Nancie, I too do not get much sleep anymore. Seems like I am never rested when I get up. It is hard to go without sleep. Joy Complaints Sorry to be so negative after just joining this group, but I am having a very hard time. Having just been diagnosed, I thought, well, at least I know what's going on, what's wrong with me and that will help me to cope better. Then I started getting chest pains...really bad ones. The first time we called the dr. he said to call 911, an ambulance came and took me away to the hospital. Thought I was having a heart attack. That was about 2-3 weeks ago. Then Wednesday night, the same thing happened. One minute I'm just fine (or at least as fine as I get) and the next minute I am in such pain in my chest, back and left arm that I can't stand up. I know this time it's not a heart attack, so I go to urgent care, they keep me there for 4 hours, finally give me a shot of morphine, and send me home. I've done very litte but sleep and explode with anger since then. It is so hard for me to get used to this. Many times I've put off doing something because I could do it later, or I just didn't feel like doing it now, but always rescheduled it. Now I find myself just truly NOT ABLE to do the things that need done! I just can't reconcile myself to this. The biggest thing is homeschooling my 2 boys, ages 6 and 8. Anyone can vacuum or throw in a load of laundry or pick up toys or clean the bathroom, and dh has been doing the shopping for over a year now, but only I can school the boys. So between naps, I attempt to put in a lesson, and of course they're busy, into a movie or a game, etc, and don't want to be bothered. A lot has to do with discipline, they need to learn, mostly the 8 year old, that he needs to do what I tell him, when I tell him, and not just " because I said so " but because this may be our only opportunity today. So now, I'm very depressed, and want to do little more than lay in bed. When I lay in bed I smoke. I take my pain pills and my antidepressants and I read and smoke and sleep, and I get more and more depressed. I don't get hungry very often, but I have to eat because my pills make me sick if I don't. So I'm gaining weight. Which depresses me. I just turned 45, which is a depressing age. And this anger I feel is way out of normal...anger isn't even the right word for it, much too mild a word. My dr. isn't happy with my level of antidepressants, he says they're barely theraputic levels, but he's had to cut back on them because my liver enzymes were up. Well, thanks for letting me vent. I wish I could say I feel better, but I don't. I'm going to get some bills paid and then go back to bed. The boys are all still asleep, the girls have left for school, and dh gets home from work early today. Maybe he'll clean up this joint a little for me. I'm just sooo tired. It's been a while since I've had good sleep, maybe I'm just catching up. Nancie ===== Nancie Healthy Homes mean Healthy Children, which lead to a Healthy Future Work from home...ask me how! http://nanciet.themomteam.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Joy and Nancie, I was wondering, doesn't your doctor give you anything to help you sleep? Elavil works well and there are others available. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Hi , My doctor has me on trazadone to help with sleep, but I have taken the same dosage for a long time and I have not had a good nights sleep for so long, I thought about increasing it on my own, but am a bit afraid to do that. I go see my doctor on the 16th and will ask about it then. Joy Re: Complaints Joy and Nancie, I was wondering, doesn't your doctor give you anything to help you sleep? Elavil works well and there are others available. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Hi , My doctor has me on trazadone to help with sleep, but I have taken the same dosage for a long time and I have not had a good nights sleep for so long, I thought about increasing it on my own, but am a bit afraid to do that. I go see my doctor on the 16th and will ask about it then. Joy Re: Complaints Joy and Nancie, I was wondering, doesn't your doctor give you anything to help you sleep? Elavil works well and there are others available. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Hi , My doctor has me on trazadone to help with sleep, but I have taken the same dosage for a long time and I have not had a good nights sleep for so long, I thought about increasing it on my own, but am a bit afraid to do that. I go see my doctor on the 16th and will ask about it then. Joy Re: Complaints Joy and Nancie, I was wondering, doesn't your doctor give you anything to help you sleep? Elavil works well and there are others available. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 I started with my fibro symptoms with the chest pains. I also thought I was having a heart attack so I can relate to you sooooo much. That is the one area whether I'm hurting anywhere else or not that I continously either hurt extrememly or just feel a pressure in every day and night since the symptoms have started. It stays there regardless. In my right chest area. I was first dianosed with pleurasy after 3 emergency room visits with chest pains. Then they diagnosed Costochondritis and now Fibromyalgia. No matter what I have, the chest area stays tender to touch and hurts at times that is disabling. a Faye --- Darcy Stockstill catstamp@...> wrote: > > > Nancie Taube wrote: > > > > Then I started getting chest > > pains...really bad ones. The first time we called > the > > dr. he said to call 911, an ambulance came and > took me > > away to the hospital. Thought I was having a > heart > > attack. That was about 2-3 weeks ago. Then > Wednesday > > night, the same thing happened. One minute I'm > just > > fine (or at least as fine as I get) and the next > > minute I am in such pain in my chest, back and > left > > arm that I can't stand up. > > Is it possible that these could be panic attacks? I > don't get them, but > I know it sounds similar to what I've heard others > say they are like. > On the other hand, it might just be the pain in the > chest that some > fibro people get. I get it a little, but it doesn't > last long and isn't > painful enough to make me think it's a heart attack. > On the other hand, > a friend of mine who has mild fibro, gets the pain > so severe that she > has to take pain pills for it. I hate when I don't > know what's causing > something. I'd rather know what it is so at least I > can say to myself, > " ok, that because of such and such " . > Darcy > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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