Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 My doc tells me that this is what fibro is all about. We may not have MORE pain than a normal human being, but our brain tells our bodies to react differently to that pain than a normal person would. So, something that would not normally really hurt a normal might really hurt someone with fibro because our brain signals are different. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 My doc tells me that this is what fibro is all about. We may not have MORE pain than a normal human being, but our brain tells our bodies to react differently to that pain than a normal person would. So, something that would not normally really hurt a normal might really hurt someone with fibro because our brain signals are different. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 My doc tells me that this is what fibro is all about. We may not have MORE pain than a normal human being, but our brain tells our bodies to react differently to that pain than a normal person would. So, something that would not normally really hurt a normal might really hurt someone with fibro because our brain signals are different. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 hi~ i get something similar to this. if anyone or anything touches me i'm in severe pain. i don't know if it's normal with these illnesses, but it happens to me too. i try to take advil or something just so i can get to sleep i hope that you feel better soon luv, ali --- Eisenbeis jreda9@...> wrote: > Ok, I have a question....anyone get very sharp pain > in their skin w/skin sensitivity? > > My left forearm started to be sensitive yesterday > afternoon and by evening, had shooting pain. This > is all in the skin. It was so senstivie that if > even the bed sheet touched itI'd jump with pain. So > I'd try to sleep (rest??) with the sensitive part of > my arm away from anything touching it, but then the > shooting pain would come along and interrupt > whatever rest I was getting. > > Anyone?? > > > > > > Eisenbeis > www.momswin.com/jenre > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 hi~ i get something similar to this. if anyone or anything touches me i'm in severe pain. i don't know if it's normal with these illnesses, but it happens to me too. i try to take advil or something just so i can get to sleep i hope that you feel better soon luv, ali --- Eisenbeis jreda9@...> wrote: > Ok, I have a question....anyone get very sharp pain > in their skin w/skin sensitivity? > > My left forearm started to be sensitive yesterday > afternoon and by evening, had shooting pain. This > is all in the skin. It was so senstivie that if > even the bed sheet touched itI'd jump with pain. So > I'd try to sleep (rest??) with the sensitive part of > my arm away from anything touching it, but then the > shooting pain would come along and interrupt > whatever rest I was getting. > > Anyone?? > > > > > > Eisenbeis > www.momswin.com/jenre > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 wrote, > OK, I have a question....anyone get very sharp pain in their > skin w/skin sensitivity? My skin sensitivity is the fact that I feel like I have a sunburn. It burns like I had been out in the sun for hours. Speaking of sunburn, a mother was put in jail on 15,000 bond for keeping her children out in the sun too long. There were 3. One was a baby and the others were below 4. The doctor said that they were so red that they looked like lobsters, is what I remember him saying but I have a bad case of fog right now so I won't swear to it. Anyhow, I guess she will go on trial for child endangerment and rightly so. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 wrote, > OK, I have a question....anyone get very sharp pain in their > skin w/skin sensitivity? My skin sensitivity is the fact that I feel like I have a sunburn. It burns like I had been out in the sun for hours. Speaking of sunburn, a mother was put in jail on 15,000 bond for keeping her children out in the sun too long. There were 3. One was a baby and the others were below 4. The doctor said that they were so red that they looked like lobsters, is what I remember him saying but I have a bad case of fog right now so I won't swear to it. Anyhow, I guess she will go on trial for child endangerment and rightly so. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 wrote, > OK, I have a question....anyone get very sharp pain in their > skin w/skin sensitivity? My skin sensitivity is the fact that I feel like I have a sunburn. It burns like I had been out in the sun for hours. Speaking of sunburn, a mother was put in jail on 15,000 bond for keeping her children out in the sun too long. There were 3. One was a baby and the others were below 4. The doctor said that they were so red that they looked like lobsters, is what I remember him saying but I have a bad case of fog right now so I won't swear to it. Anyhow, I guess she will go on trial for child endangerment and rightly so. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Missy, you are sooooo right here! The brain transmitters are faulty in fibro patients. They send of the message that we are in pain when we shouldn't be. So our brain tells us that there is more pain and it is comparable to two to three times the pain someone else would feel. There are some newer studies that are proving much of this hypothisis, but until the medical community is willing to admit they don't know it all and what they don't know is hurting us, we are up a creek in getting sound medical assistance from most in the medical community. They started out saying the same thing about fibromyalgia as they said about AIDS. That it was a waste basket dx and the patients with the complaints of symptoms which later came to be AIDS, were only in need of head doctor and change in life style since most were gay at that time. Now they even teach in medical schools that fibro is in our heads. Won't they be so amazed when they do really prove it was all in our heads, but not the emotional part of our heads, but actually in our brain? So they will prove they were right, but oh so wrong! In MRI scans they are proving things different about our brains and with the substance P factors someone might just get a clue at some point, but will it be after a lifetime of hell for some of us? Donna/Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Missy, you are sooooo right here! The brain transmitters are faulty in fibro patients. They send of the message that we are in pain when we shouldn't be. So our brain tells us that there is more pain and it is comparable to two to three times the pain someone else would feel. There are some newer studies that are proving much of this hypothisis, but until the medical community is willing to admit they don't know it all and what they don't know is hurting us, we are up a creek in getting sound medical assistance from most in the medical community. They started out saying the same thing about fibromyalgia as they said about AIDS. That it was a waste basket dx and the patients with the complaints of symptoms which later came to be AIDS, were only in need of head doctor and change in life style since most were gay at that time. Now they even teach in medical schools that fibro is in our heads. Won't they be so amazed when they do really prove it was all in our heads, but not the emotional part of our heads, but actually in our brain? So they will prove they were right, but oh so wrong! In MRI scans they are proving things different about our brains and with the substance P factors someone might just get a clue at some point, but will it be after a lifetime of hell for some of us? Donna/Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Missy, you are sooooo right here! The brain transmitters are faulty in fibro patients. They send of the message that we are in pain when we shouldn't be. So our brain tells us that there is more pain and it is comparable to two to three times the pain someone else would feel. There are some newer studies that are proving much of this hypothisis, but until the medical community is willing to admit they don't know it all and what they don't know is hurting us, we are up a creek in getting sound medical assistance from most in the medical community. They started out saying the same thing about fibromyalgia as they said about AIDS. That it was a waste basket dx and the patients with the complaints of symptoms which later came to be AIDS, were only in need of head doctor and change in life style since most were gay at that time. Now they even teach in medical schools that fibro is in our heads. Won't they be so amazed when they do really prove it was all in our heads, but not the emotional part of our heads, but actually in our brain? So they will prove they were right, but oh so wrong! In MRI scans they are proving things different about our brains and with the substance P factors someone might just get a clue at some point, but will it be after a lifetime of hell for some of us? Donna/Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 8/23/2002 3:37:30 AM Taipei Standard Time, patidu@... writes: > > OK, I have a question....anyone get very sharp pain in their > > skin w/skin sensitivity? > My upper top right leg does this ever so often including right now. What I have to do to break the cycle, is hours of accupressure (all the way down to my foot) for as many days as it takes. Right now there isn't a lot of good TV on to keep me busy while doing this but I do a bit at bedtime or I would never get to sleep. Margaret (Marty) Byers , Ph.D., Retired Social Psychologist HTTP://members.aol.com/historyresearchHTTP://members.aol.com/historyrese\ arch socpsychology@..., bengeserit@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 08/22/2002 12:20:53 PM US Eastern Standard Time, parrot004@... writes: > We may not have MORE > pain than a normal human being, but our brain tells our bodies to react > differently to that pain than a normal person would. Missy, Yes my doc tells me the samething..she said since our nervous system is so overloaded with the constant message that our body has a constant pain somewhere (not including the butt...eheeehee) that our body reacts soo much differently to these constant messages. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 08/22/2002 12:20:53 PM US Eastern Standard Time, parrot004@... writes: > We may not have MORE > pain than a normal human being, but our brain tells our bodies to react > differently to that pain than a normal person would. Missy, Yes my doc tells me the samething..she said since our nervous system is so overloaded with the constant message that our body has a constant pain somewhere (not including the butt...eheeehee) that our body reacts soo much differently to these constant messages. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 08/22/2002 12:20:53 PM US Eastern Standard Time, parrot004@... writes: > We may not have MORE > pain than a normal human being, but our brain tells our bodies to react > differently to that pain than a normal person would. Missy, Yes my doc tells me the samething..she said since our nervous system is so overloaded with the constant message that our body has a constant pain somewhere (not including the butt...eheeehee) that our body reacts soo much differently to these constant messages. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 08/22/2002 5:21:54 PM US Eastern Standard Time, hansmprnc@... writes: > there is samll wonder I think all of this stuff is a small wonder....a wonder that I wish all these great people didn't have to wonder with. I keep ask'n myself why God can't give this crud to a child molestor or a rapist..that is in prison and doesn't need to live a productive life....but I keep tell'n myself that God works in mysterious ways and that one day I will find the reason that he has granted me with this wonderful wonders of the world....lol Say that 5 times fast...lol Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 08/22/2002 5:21:54 PM US Eastern Standard Time, hansmprnc@... writes: > there is samll wonder I think all of this stuff is a small wonder....a wonder that I wish all these great people didn't have to wonder with. I keep ask'n myself why God can't give this crud to a child molestor or a rapist..that is in prison and doesn't need to live a productive life....but I keep tell'n myself that God works in mysterious ways and that one day I will find the reason that he has granted me with this wonderful wonders of the world....lol Say that 5 times fast...lol Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 In a message dated 08/22/2002 5:21:54 PM US Eastern Standard Time, hansmprnc@... writes: > there is samll wonder I think all of this stuff is a small wonder....a wonder that I wish all these great people didn't have to wonder with. I keep ask'n myself why God can't give this crud to a child molestor or a rapist..that is in prison and doesn't need to live a productive life....but I keep tell'n myself that God works in mysterious ways and that one day I will find the reason that he has granted me with this wonderful wonders of the world....lol Say that 5 times fast...lol Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 --There was an article in my hometown paper about it. I think the charges were lessened and the cop who arrested her saw the kids at a fair and thought they were more burnt than they really were. Probably red also due to heat. The hospital first said they had second degree burns then changed it to first degree. The judge decided it wasnt as big an issue as first thought. I do think she got charged with something though.] - In @y..., patidu@a... wrote: > wrote, > OK, I have a question....anyone get very sharp pain in their > > skin w/skin sensitivity? > > > My skin sensitivity is the fact that I feel like I have a sunburn. It burns > like I had been out in the sun for hours. > > Speaking of sunburn, a mother was put in jail on 15,000 bond for keeping her > children out in the sun too long. There were 3. One was a baby and the > others were below 4. The doctor said that they were so red that they looked > like lobsters, is what I remember him saying but I have a bad case of fog > right now so I won't swear to it. > > Anyhow, I guess she will go on trial for child endangerment and rightly so. > > > > > Take care, > Irene > > Books may well be the only true magic > Alice Hoffman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 That was on the news today Irene...Wow...Those kids were fried...It was horrible. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 That was on the news today Irene...Wow...Those kids were fried...It was horrible. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 That was on the news today Irene...Wow...Those kids were fried...It was horrible. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hi Allicia, For years it was thought that CFS was a result of a compromised immune system. More recent studies suggest that it may be a result of an over-active immune system. In essence it appears that CFS sufferers immune systems act much like someone firing a weapon in the dark with no idea what they are shooting at. Also because there seems to be a link between viral infestation (mycoplasmas)that may impact the nervous system, there is samll wonder why many of us have pain that can migrate. Reggie --- Allicia21@... wrote: > In a message dated 08/22/2002 12:20:53 PM US Eastern > Standard Time, > parrot004@... writes: > > > > We may not have MORE > > pain than a normal human being, but our brain > tells our bodies to react > > differently to that pain than a normal person > would. > > Missy, > Yes my doc tells me the samething..she said > since our nervous system > is so overloaded with the constant message that our > body has a constant pain > somewhere (not including the butt...eheeehee) that > our body reacts soo much > differently to these constant messages. > Allicia > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hi Allicia, For years it was thought that CFS was a result of a compromised immune system. More recent studies suggest that it may be a result of an over-active immune system. In essence it appears that CFS sufferers immune systems act much like someone firing a weapon in the dark with no idea what they are shooting at. Also because there seems to be a link between viral infestation (mycoplasmas)that may impact the nervous system, there is samll wonder why many of us have pain that can migrate. Reggie --- Allicia21@... wrote: > In a message dated 08/22/2002 12:20:53 PM US Eastern > Standard Time, > parrot004@... writes: > > > > We may not have MORE > > pain than a normal human being, but our brain > tells our bodies to react > > differently to that pain than a normal person > would. > > Missy, > Yes my doc tells me the samething..she said > since our nervous system > is so overloaded with the constant message that our > body has a constant pain > somewhere (not including the butt...eheeehee) that > our body reacts soo much > differently to these constant messages. > Allicia > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hi Reggie, I am interested in reading the study regarding the immune system, would you please post where I can find the study? Thanks Dana Quote Link to comment Share on other sites More sharing options...
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